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Western Pennsylvania Celiacs


Chris Anne

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Chris Anne Newbie

My name is Chris. I am 10 months diagnosed. Looking for people in my area to chat with.


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mamaw Community Regular

Hi Chris

I'm close to the Pittsburgh area...been gluten-free for about ten years now. I'm the founder of a independent support group....run a mini coop & do gluten-free testing.... for a few companies...

blessings

mamaw

cahill Collaborator

Hi Chris,

I am in Northwestern Pa, Nice to "meet" you :)

mamaw Community Regular

Hi Chill

How are you? Better I hope!!!!

cahill Collaborator

Hi Chill

How are you? Better I hope!!!!

Much better Mamaw :D How about you, How have you been??

mamaw Community Regular

I'm good having some thyroid med issues but it is a endo problem not giving enough since I have no gland left... Been busy canning a ton of veggies.. Getting ready for two gluten-free events in Ohio in Sept then at end of Sept we head to Baltimore for four days for the food expo & then to Philly for the Appetite For Awareness gluten-free event... It is soooo ooo much fun.. If you never attended you should its worth the trip...

Then in October a few more events to attend....Fall is my busy time.....events & doing the gluten-free food orders.....

cahill Collaborator

Fall is my most favorite time of year in western Pa :D


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mamaw Community Regular

Me too! & early spring. I don't like the hot, humid summers...

Chris Anne Newbie

I'm good having some thyroid med issues but it is a endo problem not giving enough since I have no gland left... Been busy canning a ton of veggies.. Getting ready for two gluten-free events in Ohio in Sept then at end of Sept we head to Baltimore for four days for the food expo & then to Philly for the Appetite For Awareness gluten-free event... It is soooo ooo much fun.. If you never attended you should its worth the trip...

Then in October a few more events to attend....Fall is my busy time.....events & doing the gluten-free food orders.....

Hi! I am and hour and a half north of Pittsburgh, originally from near Monroeville. Do you do any of these events in Pgh. area? I would love to attend but not sure about travelling to Philly. Hope your thyroid issue gets to be better for you! Look forward to chatting with both of you!

mamaw Community Regular

Chris

I just sent you a private e-mail.

Yes, there are closer events. The Raisin Rack in Canton isn't that far away. That is where I shop... Sept 8 is when this store has a small sampling day, nothing big but a great store..Then on Sept 9th in Solon, Ohio ( near Cleveland area) there is a event with speakers , vendors/bakers & gluten-free product to purchase....this is my first time at this event as a baker/vendor...

Then in October ther is an event in Cranberry Twp , very close. I will be working that event as well. Oct 27th from 8:30 to well sorry I just forgot!...This is a new one so not all details are worked out yet...Four Points Sheridan.........

This area is not very popular with events....I learned a long time ago that we need to be a road runner to stock up on gluten-free... There are four of us gluten-free & more that needs to be!!!!

I can give you a heads up on everything around here & then other states too....

There's is so much new gluten-free foods these days but still the nasty stuff is still out there too... years ago we had no choices so these days are wonderful for us older celiac faces....

By the way Gaint Eagle is now carrying Goodbye Gluten Bread for $5..49 a loaf, good moist bread that needs no heating!!!!

mamaw

cahill Collaborator

Hi! I am and hour and a half north of Pittsburgh,

You are pretty close to me then, sent you a PM :)

  • 4 weeks later...
ohio nanny Newbie

If you are near the Hermitage area, there is a support group that I belong to. We meet the second Thursday of each month at 6:30 PM. I was diagnosed 3 months ago, and everyone has been fantastic at this group. It's so comforting to talk to someone else who is going through the same issues. We'd love to have you at our meetings.

jaynekellimusic Newbie

Can anyone suggest some great Gluten Free restaurants near Jim Thorpe, PA and Bethlehem, PA?

I'll be on tour there mid-October and run into trouble finding gluten-free places on the road sometimes.

Thanks so much,

Jayne

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  • Recent Activity

    1. - trents replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
      20

      Hidden Gluten in distilled vinegar

    2. - Mynx replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
      20

      Hidden Gluten in distilled vinegar

    3. - Mynx replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
      20

      Hidden Gluten in distilled vinegar

    4. - trents replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
      20

      Hidden Gluten in distilled vinegar

    5. - Mynx replied to Leslie Clark's topic in Gluten-Free Foods, Products, Shopping & Medications
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      Hidden Gluten in distilled vinegar


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    • trents
      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
    • Mynx
      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate a some gluten or cross contamination. It just depends on the sensitivity of the gene. 
    • trents
      @Mynx, you say, "The reason this is believed is because the gluten protein molecule is too big to pass through the distillation process. Unfortunately, the liquid ie vinegar is cross contaminated because the gluten protein had been in the liquid prior to distillation process." I guess I misunderstand what you are trying to say but the statements in those two sentences seem to contradict one another.
    • Mynx
      It isn't a conjecture. I have gotten glitened from having some distilled white vinegar as a test. When I talked to some of my scientists friends, they confirmed that for a mall percentage of people, distilled white vinegar is a problem. The cross contamination isn't from wheat glue in a cask. While yhe gluten protein is too large to pass through the distillation process, after the distillation process, the vinegar is still cross contaminated. Please don't dismiss or disregard the small group of people who are 100^ gluten intolerant by saying things are conjecture. Just because you haven't done thr research or aren't as sensitive to gluten doesn't mean that everyone is like you. 
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