Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed 9-9-05. I Have Some Questions...

AN616

Recommended Posts

AN616 Rookie
AN616
Posted

Hi,

I am very new to this board and also to the gluten free thing. I wanted to post my enterolab results and see if you guys have anymore information for me.

Fecal Antigliadin IgA 12 Units (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 9 Units (Normal Range <10 Units)

Microscopic Fecal Fat Score: 301 Units (Normal Range < 300 Units)

HLA-DQ Gene Molecular analysis: HLA-DQB1*0301, 0502

Food Sensitivity Testing

Fecal anti-casein (cow's milk) IgA antibody 7 Units (Normal Range <10)

I think I understand it but I'm not totally sure. Basically I started on the gluten free diet as soon as I got my results back. Before the diet my only symptoms were occasional bloating and constipation and that is all. I was tested because my mom was diagnosed celiac last year. So now after being on the diet for about 5 days I don't really feel any different than I did before I started the diet. (but before the diet I didn't feel bad just had constipation.) I am still having constipation. I know that some of you have said that it can take months of being on the diet to actually start to feel different but from my test results it doesn't look like I had a lot if any damage done. Does that make a difference?

Thank-you for any more information that you might have for me.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


skoki-mom Explorer
skoki-mom
Posted

Sorry, I really don't know. But, can I just ask why you didn't have blood testing?? It is much more accurate and diagnostice of celiac disease if it is positive.

Sorry you aren't feeling better yet. Hang in there. I've been gluten-free just over 3 weeks, and I just finished rummaging in my pantry and came up with one lousy chocolate for lunch because everything else contains gluten and I am beyond sick of rice cakes already. I need to go grocery shopping today!

((Hugs)) and welcome to the board.

Rachel--24 Collaborator
Rachel--24
Posted

Hi,

You might need more than just 5 days to see results and are you 100% gluten-free like with skin products, lipstick, toothpaste...stuff like that?

You could also be sensitive to another food...especially dairy.

I had Enterolab tests as well...my malabsorption score was 912 so even though my anti-casein was in the normal range (9) I still have problems with dairy such as bloating and gas and various other symptoms. I think even if you have only mild damage you could still be sensitive to dairy or something else till you heal.

Just a thought.

AN616 Rookie
AN616
Posted
  • Author

Thanks for the reply Rachel--24. I think that I will try eliminating dairy out of my system also. I thought that since it didn't say that I was sensitive to that it would be ok.

Rachel--24 Collaborator
Rachel--24
Posted

I think what the Enterolab casein test is looking for is an immune response to dairy which is totally seperate from lactose intolerance. Lactose intolerance sort of comes with the territory when there is damage to the intestine. It will get better when you heal. Of course I have no idea if thats the case for you but definately worth a try. I know lactose intolerance can cause diarreah and bloating but I'm not sure about constipation. Maybe someone can answer that cuz I'm not sure. :unsure:

Carriefaith Enthusiast
Carriefaith
Posted
Fecal Antigliadin IgA 12 Units (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 9 Units (Normal Range <10 Units)

Microscopic Fecal Fat Score: 301 Units (Normal Range < 300 Units)

HLA-DQ Gene Molecular analysis: HLA-DQB1*0301, 0502

Food Sensitivity Testing

Fecal anti-casein (cow's milk) IgA antibody 7 Units (Normal Range <10)

It appears from these results that you are sensitive or intolerant to gluten. And you appear to have the gene. You cannot confirm celiac from enterolab results; however, you can tell if you are sensitive or intolerant to something. Based on these results, I think the gluten-free diet is a very good choice if you are not interested in getting other tests done. Being on the gluten-free diet can give false negative results on blood tests and biopsies.

So now after being on the diet for about 5 days I don't really feel any different than I did before I started the diet.
It may take over a month to notice any improvements. If you do indeed have celiac, your intestines will need lots of time to heal. I started to notice improvement after 6 months and started to feel a lot better after 1 year.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,914
    • Most Online (within 30 mins)
      7,748
    JTro65
    Newest Member
    JTro65
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.8k
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Lkg5
      Guidance on next steps after the lab tests

      By Lkg5 · Posted

      Be cautious with vitamin D if you are female and post-menopausal.  I had to decrease my D dosage from 4000 IU/day to 2000 IU because of hormonal acne and unwanted facial hair - likely from an increased testosterone level from the D.  Finally relief!  I hope to keep my D level below 50 nm/l now.
    • knitty kitty
      Coping with celiac

      By knitty kitty · Posted

      Do you eat processed gluten free foods?  
    • Scott Adams
      Coping with celiac

      By Scott Adams · Posted

      You may want to wear an N-95 mask to filter out any possible gluten, at least when you handle the flour.
    • Scott Adams
      3 years with Celiac, now I appear fine.

      By Scott Adams · Posted

      It sounds like you've been on quite the journey trying to understand your symptoms and diagnosis. It’s great that you’re planning to consult a doctor for allergy testing, as distinguishing between a wheat allergy, celiac disease, or another gluten-related condition is crucial for moving forward. The fact that you’ve tolerated barley and wheat products without recent symptoms might suggest something other than celiac disease, but as you noted, the absence of immediate symptoms doesn’t necessarily rule out potential underlying damage, especially if celiac disease is still a possibility. It’s worth discussing whether you should undergo updated testing, such as genetic testing for celiac markers (HLA-DQ2/DQ8), or even revisiting an endoscopy if appropriate. In the meantime, keep documenting your experiences with food and symptoms—it could provide valuable insights for your healthcare provider. It’s also important to test for other possible causes of your original symptoms, like IBS, food intolerances, or even other autoimmune conditions, to ensure nothing is overlooked. 
    • Scott Adams
      Bloodwork Help for my Teen

      By Scott Adams · Posted

      Your daughter's results, along with her symptoms and family history, certainly suggest further investigation for celiac disease is warranted. The low total IgA can explain why some IgA-based tests, like tTG-IgA, are negative, as there's simply not enough IgA in her system for reliable results. The weak positive tTG-IgG is notable, especially with her symptoms and the vitamin D deficiency, which is common in celiac disease due to malabsorption. I’d recommend discussing these results with her doctor or a gastroenterologist. They may suggest an endoscopy with biopsy for a definitive diagnosis or explore other potential causes for her symptoms. Meanwhile, keeping a food and symptom diary can help track patterns until a formal diagnosis is made. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease.    
×
×
  • Create New...