Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cold Sores?


bossley

Recommended Posts

bossley Contributor

Does DH look like cold sores on your fingers? I get them a lot


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

I don't have DH, but from what I uderstand it can look different for different people. Does it itch intensely? Also, DH is symetrical. In other words, you will get it in the same place on both sides of your body.

I have palmoplantar putular psoriasis. It looks a lot like whitehead pimples and I only get it on my hands and feet. It doesn't itch very much but it hurts, just like a whitehead pimple would when you put any pressure on it. Also, when it starts to heal it cracks and peels and that's pretty painful too.

If you didn't have it before you went gluten-free and it is just showing up now it probably isn't either. gluten-free cleared my psoriasis up after a while. DH though, if that's what it is, takes a long time to heal and anything with iodine usually makes it worse, even if you don't ingest gluten.

I think there is a thread here somewhere in which members have posted pictures of their DH. Check that out and compare yours to the pictures. In the meantime I will try to find a picture of PPP and post it here so you can see what that looks like.

bartfull Rising Star

OK, here is what my hands and feet USED TO look like. It sure made life miserable. As bad as it was, going gluten-free (and corn-free, soy-free, nightshade-free and salicylate light) made it go away. And now that my gut has heeled I have been able to get corn starch and nightshades back. With a little time I'm hoping to get more of them back.

Open Original Shared Link

bossley Contributor

I don't have DH, but from what I uderstand it can look different for different people. Does it itch intensely? Also, DH is symetrical. In other words, you will get it in the same place on both sides of your body.

I have palmoplantar putular psoriasis. It looks a lot like whitehead pimples and I only get it on my hands and feet. It doesn't itch very much but it hurts, just like a whitehead pimple would when you put any pressure on it. Also, when it starts to heal it cracks and peels and that's pretty painful too.

If you didn't have it before you went gluten-free and it is just showing up now it probably isn't either. gluten-free cleared my psoriasis up after a while. DH though, if that's what it is, takes a long time to heal and anything with iodine usually makes it worse, even if you don't ingest gluten.

I think there is a thread here somewhere in which members have posted pictures of their DH. Check that out and compare yours to the pictures. In the meantime I will try to find a picture of PPP and post it here so you can see what that looks like.

I was wondering because I got it a lot before gluten free and I could not figure out what it was from. One of the first pictures , on her hand, looks just like it. That would be very interesting if that was what it was. No matter what I did to it would'nt stop it. I even tried to scratch it off. ( That hurt.) It still continued on it's course. I got a lot of cold sores when I was young, And in the last eight years they started again, so I just assumed they were cold sores. Starts out itching, and then blisters under the skin, then clusters of blisters,usually on my fingers. Stays pretty long before it leaves.
bossley Contributor

OK, here is what my hands and feet USED TO look like. It sure made life miserable. As bad as it was, going gluten-free (and corn-free, soy-free, nightshade-free and salicylate light) made it go away. And now that my gut has heeled I have been able to get corn starch and nightshades back. With a little time I'm hoping to get more of them back.

Open Original Shared Link

WOW !! That must have been pain full. The stuff on my hand is only a finger or two. Keep going and be well.

bartfull Rising Star

If you had it before going gluten-free then it might well be psoriasis. OR DH. It will take a while to get rid of it, but I'm sure that if you are scrupulous with your diet you will see results. I hate to even bring this up, but you may have trouble with corn or salicylates like I did. I used to go on a psoriasis forum and when I mentioned gluten-free, they (some of them) scoffed. Some of them said they tried gluten-free and although it seemed to help at first, it came back. I believe that is because they too developed intolerances to other things.

What happened with me is my body was so messed up from about twelve years of untreated celiac that my immune system was mistaking EVERYTHING for gluten. I was down to eleven foods I could safely eat. Everything else flared my psoriasis and gave me insomnia (among other things). It wasn't easy. I kept getting "corned" because corn is in everything - even plastic water bottles.

But eventually I had enough time to heal and when I did, my psoraisis stopped flaring and my gut healed enough to where I can now tolerate corn starch and potatoes again.

If your spots don't start healing pretty soon, you can always PM me and I can help you learn to avoid corn. Another thing you might try to find out if salicylates bother you is asperin. That's how I discovered that I had a problem with sals. I took asperin for a couple of days for an unrelated problem and my psoriasis flared like wildfire. I knew I hadn't been glutened or corned, then one of the helpful folks here told me about salicylate sensitivity. Turns out I have it.

Here's hoping you don't have to go through all of that though. I hope your spots clear up just by ditching the gluten and you are on your way to good health. :)

bossley Contributor

If you had it before going gluten-free then it might well be psoriasis. OR DH. It will take a while to get rid of it, but I'm sure that if you are scrupulous with your diet you will see results. I hate to even bring this up, but you may have trouble with corn or salicylates like I did. I used to go on a psoriasis forum and when I mentioned gluten-free, they (some of them) scoffed. Some of them said they tried gluten-free and although it seemed to help at first, it came back. I believe that is because they too developed intolerances to other things.

What happened with me is my body was so messed up from about twelve years of untreated celiac that my immune system was mistaking EVERYTHING for gluten. I was down to eleven foods I could safely eat. Everything else flared my psoriasis and gave me insomnia (among other things). It wasn't easy. I kept getting "corned" because corn is in everything - even plastic water bottles.

But eventually I had enough time to heal and when I did, my psoraisis stopped flaring and my gut healed enough to where I can now tolerate corn starch and potatoes again.

If your spots don't start healing pretty soon, you can always PM me and I can help you learn to avoid corn. Another thing you might try to find out if salicylates bother you is asperin. That's how I discovered that I had a problem with sals. I took asperin for a couple of days for an unrelated problem and my psoriasis flared like wildfire. I knew I hadn't been glutened or corned, then one of the helpful folks here told me about salicylate sensitivity. Turns out I have it.

Here's hoping you don't have to go through all of that though. I hope your spots clear up just by ditching the gluten and you are on your way to good health. :)

I'm doing your whole food diet and I see some improvement, but I keep messing up. I know right away when I blow it because my face swells and my nose closes. I put butter on something yesterday thinking ( whole ). Two hours later I could not breath. Forgot about milk. I'll keep picking away.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Whyz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Feeling ill

    2. - Scott Adams replied to Whyz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Feeling ill

    3. - Scott Adams replied to Sicilygirl's topic in Coping with Celiac Disease
      2

      fed up italian

    4. - trents replied to Whyz's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Feeling ill

    5. - trents replied to Art Maltman's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      My 5 months of Struggle


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,504
    • Most Online (within 30 mins)
      7,748

    Madlyn47
    Newest Member
    Madlyn47
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum! Keep in mind that if you quit eating gluten before all testing is done, you may have inaccurate, possibly false negative, test results.  When you stop eating gluten, your body stops making the antibodies which are measured in the blood tests.  Stopping gluten before an endoscopy may make the intestinal damage harder to detect, and a false negative biopsy may result.  As uncomfortable as it is, finish all testing before going gluten free.  
    • Scott Adams
      Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      Your feelings are completely valid, and I want to commend you for advocating for yourself despite the initial resistance from your doctor. Navigating a new celiac diagnosis can feel overwhelming, especially when you're adjusting to such a big lifestyle change. It’s natural to grieve the loss of your old eating habits and to feel frustrated by the constant label-reading and vigilance required. But please know that you are not alone, and many others have walked this path and come out stronger on the other side. Healing takes time, and while the brain fog, fatigue, and bowel symptoms can be discouraging, they often improve as your body begins to recover. It’s great that you’ve hired a dietitian—that’s a big step in supporting your healing journey and ensuring you’re getting the nutrients your body needs to rebuild. Remember, each small step you take is progress, even if it doesn’t feel like it right now. It’s okay to feel sad and angry, but also try to give yourself credit for your strength in facing this. The fact that you pushed for answers shows how resilient you are. While the road ahead may have challenges, many people find that over time, they feel better than they ever imagined possible once their gut begins to heal. You’ve got this, and the celiac community is here to support you every step of the way. If you have time, this book was published on Celiac.com's and you might find it helpful: Also, this article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • trents
      Welcome to the forum, @Whyz! By "half way to being diagnosed" I assume you mean you have had the blood antibody testing done but not the gastroscopy with biopsy. Is this correct? Were the results of your blood work positive for celiac disease?
    • trents
      Three days of no gluten is not likely to have much impact on serum antibody test results. I have more concern over exactly what test or tests were ordered. When you get the results back, please post them including the reference ranges for the tests for negative vs. positive. What country are you in? Do you have much choice in what doctors you see? Sounds like it might be a good idea to seek out another physician who knows what they are doing in this area of disease diagnosis. At any rate, you have the link I shared above outlining the various tests that can be run so that might be a resource you could share with a physician.
×
×
  • Create New...