Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

"skeeter Syndrome?"


andrea lee

Recommended Posts

andrea lee Newbie

last year I found out I had dermatitis herpetiformis, and since then, my skin seems to be even more sensitive.

now, when I get bit by a mosquito, and I do not immediately take the medicine or use the steroid cream prescribed for the dermatitis herpetiformis, I get a severe allergic reaction, known as "skeeter syndrome".

these bites severely swell the entire area and are extremely painful, a deep pain that if bit on a joint can be incredibly hard to even move (ex, elbows, ankles, knees) the bite site is extremely hot and usually within 24 hours starts to bruise from the pressure of the swelling. this is all without even scratching the bite! this is a frustrating addition to my list of allergies, especially since I like the outdoors so darn much, and they only treatment seems to be "avoidance".

has anyone else experienced this? what has helped you? I would like to avoid products containing deet, are there any natural bug repellents you've used that actually work?

mosquitoes love me!!

thanks for your time, hope to learn more!

xo-a


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adalaide Mentor

While not particularly effective at peak hours of the day, my grammy puts a pinch of fresh citronella in her bonnet when she gardens and swears by it. She says she never has a problem with bugs while she's out. Due to the severity of the health risks involved with bites and the fact that she has battled lyme in the past and my family watched me nearly die of west nile virus we don't mess around with bugs. At dusk and dawn if we need to be out, we absolutely always use deet repellent. We also always use it if we will be going into the woods. Also, wear long sleeves and long pants. It may not be as comfortable as shorts and a tee, but with the symptoms you are describing, even barring a catastrophic illness associated with a bite it will be a whole lot more comfortable than being bitten.

pricklypear1971 Community Regular

My husband found a natural mosquito repellant at the sports store - don't know the name but I think it was eucalyptus oil. He said it works very well.

I use a Desert Essence blemish stick for odd things - bites, etc. and it seems to help with itch and pain.

Also, you may try ice packs on the bites if you haven't already. Ice packs seem to help everything "skin" for me.

GFinDC Veteran

Seems like I read that skeeters don't like people with high B vitamins in their blood and garlic. Might need some searching though to verify.

ivy light Newbie

I didn't want to use chemical bug repellants on my young daughter, so a friend of mine recommended Tea Tree Oil. I also put a Bounce dryer sheet in my pocket...crazy, but it helps!

I'm planning to put a bat house in our backyard. Bats LOVE bugs!

Best of luck!

tarnalberry Community Regular

I am a freakishly effective mosquito magnet. And I'm allergic to them. Always have been, even before celiac. No bug spray (natural or DEET) or any other method outside of avoidance can be certain to keep them away from me. Some people are just that lucky.

(Here's my legs after an overnight backpacking trip, and yes, I was wearing socks: Open Original Shared Link

Open Original Shared Link by Open Original Shared Link, on Flickr)

1974girl Enthusiast

Oh goodness! That looks horrible. I have the solution for you! My husband uses this for turkey hunting with my 12 year old daughter. It is the best $25 we have spent. It is the Thermacell mosquito repellant. It just clips on you or set it on a chair around you. It covers a 15 foot area around you! It is battery run and almost orderless. They say it is but I can smell a very, very faint "earthy" smell. There is nothing to spray on your skin. We take it to every campout, bonfire, and even the 4th of July fireworks. People want to sit around us! Here is the link from Bass Pro. 4.7 out of 5 with 112 reviews is pretty good! Buy some refills while you are at it!

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



bartfull Rising Star

I am so lucky! In the eight+ years I have lived in the Black Hills I have been bitten by a mosquito exactly twice! I used to get all swollen from them too. It's been about five years since I have been bitten so I don't know if gluten-free has helped or not.

I used to react even worse to gnat bites. The bitten area would swell like a balloon. If I got a bite on my ankle, that ankle would swell to twice the normal size. But there are no gnats here either.

When I lived in Connecticut I was a fishing fool. (Still am.) I had a fifty acre pond full of bass in my back yard and of course bass bite better around sunset (when the bugs come out). All of the neighbors who fished were out there in shorts and tank tops because it was hot, but I always had on long pants, long sleeves, and a wide brimmed hat with mosquito netteng that came down to my neck. They would all have to go in just when the bass started biting but I could stay out all evening. The only thing that got bit was my hands. I LOOKED foolish, but I sure caught a lot of fish!

tarnalberry Community Regular

Oh goodness! That looks horrible. I have the solution for you! My husband uses this for turkey hunting with my 12 year old daughter. It is the best $25 we have spent. It is the Thermacell mosquito repellant. It just clips on you or set it on a chair around you. It covers a 15 foot area around you! It is battery run and almost orderless. They say it is but I can smell a very, very faint "earthy" smell. There is nothing to spray on your skin. We take it to every campout, bonfire, and even the 4th of July fireworks. People want to sit around us! Here is the link from Bass Pro. 4.7 out of 5 with 112 reviews is pretty good! Buy some refills while you are at it!

Open Original Shared Link

Problem with the "clip it to yourself" stuff is twofold:

One, it is questionable that there are no ill-health effects from the chemicals that are emitted into the air near you. As an asthmatic with sensitivities to airborne chemicals, I'm ridiculously leery of these things.

Two, and the most important one in my case, I hike. They're not effective if you're continuously moving. :)

Juliebove Rising Star

Seems like I read that skeeters don't like people with high B vitamins in their blood and garlic. Might need some searching though to verify.

That's interesting! My B levels tend to be low despite taking a lot of supplements. And I do get bitten like mad if I go outside. Now I mainly just don't go outside. Which is okay because I don't like it out there anyway.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,963
    • Most Online (within 30 mins)
      7,748

    Cheryl minshew
    Newest Member
    Cheryl minshew
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Pasballard
      I have Celiacs and want you to be aware of the amount of weight you can potentially put on if you rely on gluten free snacks, bread etc.,they  are high in carbs.  I put on 25 lbs in a short amount of time.  Whole Foods are the best way to go but I struggle with this.  The cost of gluten free is also a problem.  I love black licorice but most have gluten.  My favorite chili seasoning as well.  The list is endless.  I take  Advil liquid gels and had no idea until I read this.  I hope you do better than I have done.  I feel I am destined to suffer daily no matter what.  My aunt didn’t take care of herself and died from complications.  I hope you can get on a good routine.
    • growlinhard1
      Thank you, I appreciate the response. I'm going to begin the gluten free diet and wait for the biopsy results. I feel fairly certain that it's the right thing for my well being. I will keep you posted.
    • Scott Adams
      The flu vaccine is indeed not 100% effective every year, as its effectiveness varies depending on how well the vaccine strains match the circulating flu viruses. However, even in years when the match is less than perfect, the flu vaccine still provides significant benefits. Studies consistently show that vaccinated individuals who contract the flu often experience milder symptoms, a lower risk of complications, and a reduced likelihood of hospitalization or death compared to those who are unvaccinated. For high-risk groups, such as the elderly, young children, and individuals with chronic health conditions, the flu vaccine remains a critical tool for reducing severe outcomes. Regarding the mention of risks associated with vaccines, it’s important to note that the flu vaccine is generally very safe for most people. Serious side effects are extremely rare, and the benefits of vaccination far outweigh the risks for the vast majority of individuals. If someone has specific concerns about vaccine safety due to medical conditions or allergies, they should consult their healthcare provider to discuss their options. As for alternative measures like a D Lamp (ultraviolet light disinfection), while these can be useful for reducing pathogens in the environment, they are not a substitute for vaccination. The flu virus spreads primarily through respiratory droplets, and personal protection measures like hand hygiene, masking, and improving indoor ventilation can complement vaccination but cannot replace its targeted immune protection.
    • trents
      Because you have already had the "gold standard" test done, and because you have some experiential evidence that removing gluten from your diet causes you to feel better, it would make sense to begin the gluten-free diet as you wait for biopsy results.
    • growlinhard1
      I wasn't given any blood tests. I think I should try the gluten free diet because when I cut it out a few weeks ago for just a couple of days, I know I started feeling better. The difference was actually pretty dramatic. When I learned gluten free eating may cause false negative biopsy results, I went back to gluten full force and feel like you know what × 10. Do you feel it would be okay since the gold standard for diagnosis is behind me or should I wait for biopsy results? In your opinion, of course. I know you can't offer me medical advice.
×
×
  • Create New...