Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Problems W/skin


mandigirl1

Recommended Posts

mandigirl1 Enthusiast

Hello!!!!

I am broken out very badly on my checks (acne) and I get cyst-like erruptions out of nowhere. A big, red, angry pimple appears from nowhere....for example, the tip of my nose!!!!!!!! :angry:

I see a dermatologist and do get creams--they dont work.

I also break out on my back and a little bit on my chest. Plus, my nails are so short, damaged and brittle that it scares me!! My hair also......went from curly/wavy to terrible, terrible frizz! I do use a flatiron though. Im noticing my hair is also thinning out, more than ever.

What might cause this? Is it celiac disease related? Or DH????

Does anyone else have this problem???

Any feedback would be appreciated!

:)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

I've had some of the skin problem you describe (and I had DH). The skin thing you have does not sound like DH.

The hair and nail thing can be gluten related or something else. Are you gluten-free?

richard

jams Explorer
Hello!!!!

I am broken out very badly on my checks (acne) and I get cyst-like erruptions out of nowhere. A big, red, angry pimple appears from nowhere....for example, the tip of my nose!!!!!!!!  :angry:

I see a dermatologist and do get creams--they dont work.

I also break out on my back and a little bit on my chest. Plus, my nails are so short, damaged and brittle that it scares me!! My hair also......went from curly/wavy to terrible, terrible frizz! I do use a flatiron though. Im noticing my hair is also thinning out, more than ever.

What might cause this? Is it celiac disease related? Or DH????

Does anyone else have this problem???

Any feedback would be appreciated!

:)

<{POST_SNAPBACK}>

I break out a lot when I eat gluten. They get pretty yucky. I went to the dr before celiacs and they said it was rosatia (spelling.. sorry!). My nails were also very brittle.

Now, gluten-free, I have a clear face (except for when I oops) and my nails are hard to cut even with a clippers! I tried to bite them this past weekend at my son's soccer game and I couldn't because they were so hard!!

Are you gluten-free and if so, are you sure you are not slipping up anywhere? Things such as toothpaste, chapstick, soaps, small altoids :unsure: ?

Rachel--24 Collaborator

I've been getting bumps on my face since I went gluten-free and accidently get glutened.

I'm not sure what they are but I got them 3 years ago when I first got sick and then nothing for a couple years until now that I've gone gluten-free. I was also dx'd with Rosacea back then but I don't really have it.

I don't think they are pimples cuz they arent like any pimple I've seen before and they also stay for several weeks. They also usually have a twin on the other side of my face so I don't know if it might be DH. Sometimes they are in small clusters on each side but they hardly itch at all so I don't know if they are weird pimples or DH.

mandigirl1 Enthusiast

Yes, as far as I'm aware, I'm completely gluten-free, for 7 years now. However, I suspect I am getting glutened all the time. Maybe Im too risky, because Ive had celiac disease for a while, but I try to "be like everyone else" and eat in restaurants where there may or may not be contamination. I try to be very careful though....even my family/boyfriend. "jumps right in" and go on and on telling the waiter my whole story!!!! I get so embarrased, even though they mean well.

I used to eat such bland, tasteless food for the first few years of having celiac disease. Later on, I was way more lenient. Maybe now Im still too lenient. I had a boyfriend doctor who gave me "permission" to ease up alittle, dont be so paranoid. What this basically meant was: After not having a hot dog from the BBQ in so many years, I followed his advice and tried it. I was fine. (I also checked the label). I never took chances!!!!. Thanks to him, he opened up a whole new world for me and food -----gluten-free food!!!! So now, I'll enjoy bacon or frozen yogurt or tuna from a can, etc....and not just the steamed chicken and broccoli, or salad w/no dressing.

What my point is in saying all this is that:

Can CDrs ever be completely free of Gluten???? Im beginning to think No, its just impossible. You cant take evrey measure, every time to protect yourself. Its just everywhere. <_<

Oh, and by the way, even if you eat gluten-free totally in a diner, for example, how well are the utensils and cookware cleaned in the washing machine? Are YOU back there? #1 and #2 what if it isnt 100% sterilized? Obviously this is a risk when eating food off the grill, counter, same pans, etc.

Getting back to the acne (cystic), I think it could be celiac disease related. If that is the case, and I get this all the time, in the past year, then Im being glutened for sure.

:o:(

Corrine Rookie

My husband gets these cyst like things as well. They are horribly ichy and he scratches them until they bleed and then they don't itch anymore. Then he has these ugly scabs. The dermetologist said it wasn't DH but I suspected it was. In June he consented to going gluten-free. He did have a blood test that came back negative so we're going this route. He says he doesn't feel any different but I haven't noticed any new cysts.

laurie222 Newbie

[ Plus, my nails are so short, damaged and brittle that it scares me!! My hair also......went from curly/wavy to terrible, terrible frizz! I do use a flatiron though. Im noticing my hair is also thinning out, more than ever.

What might cause this? Is it celiac disease related? Or DH????

Does anyone else have this problem???

Any feedback would be appreciated!

:)

<{POST_SNAPBACK}>


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



laurie222 Newbie

Seven years for me and I don't think you are ever going to be totally free. Especially if you ever eat out or anywhere other than your house. Always a calculated risk.

Yes, as far as I'm aware, I'm completely gluten-free, for 7 years now. However, I suspect I am getting glutened all the time. Maybe Im too risky, because Ive had celiac disease for a while, but I try to "be like everyone else" and eat in restaurants where there may or may not be contamination. I try to be very careful though....even my family/boyfriend. "jumps right in" and go on and on telling the waiter my whole story!!!! I get so embarrased, even though they mean well.

I used to eat such bland, tasteless food for the first few years of having celiac disease. Later on, I was way more lenient. Maybe now Im still too lenient. I had a boyfriend doctor who gave me "permission" to ease up alittle, dont be so paranoid. What this basically meant was:  After not having a hot dog from the BBQ in so many years, I followed his advice and tried it. I was fine. (I also checked the label). I never took chances!!!!. Thanks to him, he opened up a whole new world for me and food -----gluten-free food!!!!  So now, I'll enjoy bacon or frozen yogurt or tuna from a can, etc....and not just the steamed chicken and broccoli, or salad w/no dressing.

What my point is in saying all this is that:

Can CDrs ever be completely free of Gluten???? Im beginning to think No, its just impossible. You cant take evrey measure, every time to protect yourself. Its just everywhere.  <_<

Oh, and by the way, even if you eat gluten-free totally in a diner, for example, how well are the utensils and cookware cleaned in the washing machine? Are YOU back there? #1 and #2 what if it isnt 100% sterilized?  Obviously this is a risk when eating food off the grill, counter, same pans, etc.

Getting back to the acne (cystic), I think it could be celiac disease related. If that is the case, and I get this all the time, in the past year, then Im being glutened for sure.

:o  :(

<{POST_SNAPBACK}>

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      322

      Terrible Neurological Symptoms

    2. - Known1 replied to Known1's topic in Introduce Yourself / Share Stuff
      20

      Diagnosed Marsh stage 3C in January 2026

    3. - knitty kitty replied to Known1's topic in Introduce Yourself / Share Stuff
      20

      Diagnosed Marsh stage 3C in January 2026

    4. - HectorConvector replied to HectorConvector's topic in Related Issues & Disorders
      322

      Terrible Neurological Symptoms

    5. - Known1 replied to Known1's topic in Introduce Yourself / Share Stuff
      20

      Diagnosed Marsh stage 3C in January 2026

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,594
    • Most Online (within 30 mins)
      7,748

    Deedeewhiteside
    Newest Member
    Deedeewhiteside
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Thiamine Mononitrate is "shelf stable" and won't break down easily when exposed to heat, light and over time.  This makes it very hard for the body to absorb and utilize it.  Only thirty percent is absorbed, less is utilized because it takes additional thiamine to break it down.   Thiamine Hydrochloride is great.  Benfotiamine is wonderful, too.   Retaining water, edema, is a symptom of low thiamine.  I'd bloat up like a puffer fish.   The ingrown toenail problems I had that I attribute to Niacin deficiency and Vitamin C deficiency.  My toenails curled in and grew thick and yellow, thickened heels.  It was awful.   So glad you're going to give thiamine hydrochloride a try!   Let me know how it goes.  You may feel worse before you feel better, the thiamine paradox, but it does clear up.  It's like a car back firing if it hasn't been run for a while.   Thiamine and benfotiamine: Focus on their therapeutic potential https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/
    • Known1
      Thanks again, I'll keep pressing on.  🤞
    • knitty kitty
      @Known1, Search for "niacin flush fades the longer you use it" and "Niacin flush worse if deficient".   It takes a couple to three weeks for the body to adjust and you're at that point now, so things should improve. Riboflavin makes the neon color, which glows under black light.  If not absorbed, excreted.  Absorption of riboflavin will improve as the body starts healing the intestinal lining and villi grow back.   You could skip the multivitamin instead.  
    • HectorConvector
      The conversion factor for mg/dl and mmol/L is 18. So 5 = 90, 7 = 126, and so on. In the US, blood sugar regulations now are the same as what we use in the UK except for this difference in units. In terms of how they compare in the past, the numbers today that I quoted are stricter than they used to be. Blood sugar numbers for +1 and +2 hour postprandial are measured from the beginning of a meal in these official numbers. In regards to the thiamin supplement I have: it says it is thiamine mononitrate. I had not until now been aware there were different types (it seems I find that is the case with everything, including the magnesium I take!) and this one I have is the only one available in my local stores. I know it makes my pee smell strong when I take it which would seem to indicate my body is absorbing enough that the remainder gets ejected, but I could be wrong. Of course, I'm willing to try anything reasonable to correct this long standing condition, whatever it might be so I will try and get thiamin hydrochloride. Back on the note of diabetes (potentially) I haven't had the blood test for a while and I did notice ingrown toenail type infections a few times in the last 3 years that kept coming back. I heard that diabetes caused high urination. But eating sugar and elevated blood sugar causes the opposite in me. If I eat a lot of sugar I retain water, like big time. If I ate a bunch o sugar in the afternoon say, I can produce little enough urine that I can go over 12 hours and have nowhere near enough urine to need to void in that time or longer which seems abnormal.       
    • Known1
      @knitty kitty For me, the flushing lasts about 10 hours and not just 60-90 minutes after consuming the vitamins.  I am 10-days into taking this already.  My urine is neon colored around the clock and I drink between 1/2 to 3/4 of a gallon of water per day.  I'll stick with 2 a day for now, but am honestly quite hesitant to do so. I am curious, where are you reading "the worse the flush, the more your body needs the niacin"?  I have been searching for that, but haven't found that anywhere.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.