Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

It's Only 9:30...and I've Already Run To The Bathroom 3 Times!

luvrdeo

By luvrdeo
in Coping with Celiac Disease

Recommended Posts

luvrdeo Apprentice
luvrdeo
Posted
  • Author

I feel for you. I was glutened August 19--and just starting to feel better now.

Hope you feel better soon. And yes, I would dump the dairy for a while to see if it helps. Best wishes!

Goodness it has taken that long to feel better?! I guess it isn't out of the norm for me to be feeling horrible today then is it! Shoot.

Dumped the dairy...I think I've overdone it the last few days though, I'm struggling! <_<

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

Goodness it has taken that long to feel better?! I guess it isn't out of the norm for me to be feeling horrible today then is it! Shoot.

Dumped the dairy...I think I've overdone it the last few days though, I'm struggling! <_<

Everyone rebounds at different rates, hon. My experience may not be the norm. I was unDxed for a long time and have a lot of damage to repair.

I know it is difficult at first. It's an up and down road, unfortunately. Hang in there and drink water and stick to foods that are plain and simple.

luvrdeo Apprentice
luvrdeo
Posted
  • Author

Everyone rebounds at different rates, hon. My experience may not be the norm. I was unDxed for a long time and have a lot of damage to repair.

I know it is difficult at first. It's an up and down road, unfortunately. Hang in there and drink water and stick to foods that are plain and simple.

I have gone unDxed for a long time as well, which is what I'm blaming for everything right now :) Thanks for the encouragement!! Much needed today!

IrishHeart Veteran
IrishHeart
Posted

I have gone unDxed for a long time as well, which is what I'm blaming for everything right now :) Thanks for the encouragement!! Much needed today!

((hug)) I can honestly say..."I get it".

You're going to be okay, hon...hang tough.

mommyto2kids Collaborator
mommyto2kids
Posted

I learned I can't eat any steak, but I can eat hamberger. I've tried it about 5 times. Everytime I eat the roat or tritip I get sick. But I can eat ground up hamberger. There may be something you can no longer tolerate and it takes time to figure it out. I am still clueless about several things. For me, I try to eat plain everything. I Stick to one kind of bread and eat plain meat, a starch, plain and a vegetable plain. I am ok that way. Simple plain eating is the way to go. Stay away from processed food since you are new to the diet. The frustrating thing is you may still get sick from the gluten-free food because there is something else in there that you can't tolerate, so frustrating. So try those foods on the weekend if you are brave. Hope you are better soon.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,989
    • Most Online (within 30 mins)
      7,748
    Cappynan
    Newest Member
    Cappynan
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By trents · Posted

      Okay, it does make sense to continue the gluten challenge as long as you are already in the middle of it. But what will change if you rule it out? I mean, you have concluded that whatever label you want to give the condition, many of your symptoms improved when you went gluten free. Am I correct in that? According to how I understand your posting, the only symptom that hasn't responded to gluten free eating is the bone demineralization. Did I misunderstand? And if you do test positive, what will you do different than you are doing now? You have already been doing for years the main thing you should be doing and that is eating gluten free. Concerning how long you should stay on the gluten challenge, how many weeks are you into it already?
    • WildFlower1
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By WildFlower1 · Posted

      I mean that I will be re-taking the celiac blood test again while I am currently on the gluten challenge right now, but not sure how many weeks more to keep going, to ensure a false negative does not happen. Thank you.
    • WildFlower1
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By WildFlower1 · Posted

      Thank you for your help, I am currently in the middle of the gluten challenge. A bit over 6 weeks in. At 4 weeks I got the celiac blood tests and that is when they were negative. So to rule out the false negative, since I’m in the middle of the gluten challenge right now and will never do this again, I wanted to continue consuming gluten to the point to make sure the blood tests are not a false negative - which I did not receive a firm answer for how many weeks total.    My issue is, with these blood tests the doctors say “you are not celiac” and rule it out completely as a potential cause of my issues, when the symptoms scream of it. I want to rule out this 30 year mystery for my own health since I’m in the middle of it right now. Thank you!
    • trents
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By trents · Posted

      I am a male and had developed osteopenia by age 50 which is when I finally got dx with celiac disease. I am sure I had it for at least 13 years before that because it was then I developed idiopathic elevated liver enzymes. I now have a little scoliosis and pronounced kyphosis (upper spine curvature).  All of your symptoms scream of celiac disease, even if the testing you have had done does not. You may be an atypical celiac, meaning the disease is not manifesting itself in your gut but is attacking other body systems. There is such a thing as sero negative celiac disease. But you still have not given me a satisfactory answer to my question of why do you need a differential dx between celiac disease and NCGS when either one would call for complete abstinence from gluten, which you have already been practicing except for short periods when you were undergoing a gluten challenge. Why do you want to put a toxic substance into your body for weeks when, even if it did produce a positive test result for celiac disease, neither you or your doctors would do anything different? Regardless of what doctors are recommending to you, it is your body it is affecting not theirs and they don't seem to have given you any good justification for starting another gluten challenge. Where you live, are doctors kings or something?
    • WildFlower1
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By WildFlower1 · Posted

      Sorry to put it clearly, at 15, infertility started (tried to word it nicely) meaning menstruation stopped. Which is in correlation to celiac I mean. Thank you. 
×
×
  • Create New...