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Looking For A Doc In Kansas City

Mamaburke

By Mamaburke
in Doctors

Recommended Posts

Mamaburke Newbie
Mamaburke
Posted

Hi, I need a knowledgeable Celiac Dr. in the kansas city area, anyone know of one?

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kareng Grand Master
kareng
Posted

Mine was a jerk. He did do a lot of biospies but had no real knowledge of Celiac and was a jerk. I'll Pm you his name. I have heard that Randy Brown or Dr. Buser are good GIs

10200 W 105th St Suite 200

Overland Park, KS 66212

(913) 495-9600 (Office)

If you need a Pediatric doctor, my friends daughter goes to Julia Bracken at the Celiac clinic at Children's Mercy.

  • 2 weeks later...
GFceliacgirl Newbie
GFceliacgirl
Posted

KU Med have specialists. I wonder if they would have celiac doc. I went to a great GI doc too but he didn't have much to offer me in advice with my celiac when I went for my follow-up after being diagnosed in biopsy. His only suggestion was taking Allign for my gut...some follow up. I should've saved my $25 copay for my Primary care Physician which he referred me to for all of my other problems and pains.

  • 1 month later...
chrstlvn Newbie
chrstlvn
Posted

I live in the KC area and was diagnosed with Celiac a few weeks ago. The GI I saw gave me only 10 mins of his time with this diagnosis and all of my problems (anemia, osteopenia, etc...). I left feeling thankful that I have been educating myself because he didn't have much to say. I had to specifically ask whether I needed follow-ups, bloodwork to track iron and such. Have you all been to Dr. Brown or Buser (as recommended above) yet? If so, would you recommend either? Also, since I have Hashimoto's and now Celiac, I think I might need to see a rheumatologist see what else might lurking! Any recommendations?

kareng Grand Master
kareng
Posted

I live in the KC area and was diagnosed with Celiac a few weeks ago. The GI I saw gave me only 10 mins of his time with this diagnosis and all of my problems (anemia, osteopenia, etc...). I left feeling thankful that I have been educating myself because he didn't have much to say. I had to specifically ask whether I needed follow-ups, bloodwork to track iron and such. Have you all been to Dr. Brown or Buser (as recommended above) yet? If so, would you recommend either? Also, since I have Hashimoto's and now Celiac, I think I might need to see a rheumatologist see what else might lurking! Any recommendations?

I actually know Randy Brown as our kids were friends. My husband goes to him but I think it would be a little wierd to go to him. I have been told Dr Buser is good, too. I don't have any reason to see a GI right now. My family doc runs my follow-up blood tests and they have been fine. There is no reason for me to have another endo because I don't have any real issues. I doubt any of them would sit and give you good diet & coping info. Your family doc can do blood tests for vitamins, etc.

  • 2 years later...
Kathy Horton Newbie
Kathy Horton
Posted

Did you find a Dr. in kc

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    • cristiana
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By cristiana · Posted

      Hi Marie Welcome to the forum. I am so sorry your daughter is pointing the finger at you like this.   I am afraid children of any age can be very cruel to their parents - I certainly look back at some of the things I said to my mother and father in the past, and wish I could unsay them.  Sometimes people just need a safe place to vent, and unfortunately having a go at one's parents is the all too easy option.  If she is anything like me, she will regret what she says one day.  (Oh... if only I had the chance rewind the clock!) I just wanted to add one more thing to Trent's and Scott's excellent posts and that is regarding diet:  I have to say, not one person  (my nutritionist, my gastroenterologist or GP) has EVER suggested that a poor diet was the cause of my coeliac disease.    In all the various clinics I have attended these past nearly 12 years no-one has ever asked if I was brought up on processed food, or questioned if I eat 5 fruit and veg a day.  Sure, unfortunately I am only too well aware that I could do a lot better with my diet and it's a constant challenge for me not to give into what I like (unfortunately I've always had a sweet tooth).   But I know some super healthy 10 fruit and veg a day types who still got coeliac disease, and equally, a lot of people who eat all the wrong stuff and they still have cast iron stomachs. Do encourage her to get checked though - it may be that she hasn't got coeliac disease at all. Come back to us if you need any more support through the process. Cristiana
    • trents
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By trents · Posted

      Welcome to the forum, @Marie70! The first thing to know is that celiac disease has a genetic base. The two main genes that have been identified as providing the potential to develop celiac disease are HLA-DQ2 and HLA-DQ8. About 40% of  the general population carries one or both of these genes. However, only about 1% of the general population ever develops celiac disease. So, we know that in addition to possessing the genetic potential to develop celiac disease, there has to be some triggering environmental or medical "stress" factor (or factors) that switches the gene or genes on such that they are awakened from their latent condition and become active. What may be the triggering factor (or factors) is the subject of much debate. Here is an article that discusses this subject: Second, what will your daughter have to say if her testing for celiac disease is negative? She may have to add crow to her diet. Third, and this is what I really want to focus on because my wife and I are dealing with something similar in our relationship with our own adult daughter: the real problem is not whatever shortcomings you, as the family cook, may have had when providing meals, the real problem is with your daughter's heart/soul/attitude. If it turns out to be true that she has celiac disease, it is likely she would have developed the condition sooner or later even if her diet had been healthier while growing up. She is angry about the prospect of having to deal with the dietary and social limitations that having celiac disease would impose upon her. She doesn't want to face up to the fact that this may be a new reality that will dramatically changer her life and she is looking for someone or something to blame. And she has conveniently turned her wrath on you rather than saying to herself, "Okay, this is what it is. Now what can I do to make adjustments in order to with it the best way I can?"  When faced with a life-changing reality, people will either accept it for what it is, make adjustments and move on or they will become angry and look for something or someone to blame and get stuck. For now, at least, your daughter has chosen the latter option. Don't let her problem destroy both of you.
    • Scott Adams
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By Scott Adams · Posted

      It sounds like you’re carrying a lot of guilt, but please know that you didn’t cause your daughter’s potential celiac disease or your son’s Crohn’s. These conditions have strong genetic components, and while diet can influence symptoms, it does not cause autoimmune diseases. You did the best you could with the knowledge you had at the time, and no parent is perfect. Your daughter’s frustration is understandable, but it’s likely coming from a place of fear and uncertainty rather than true blame. Let her get tested, and if she does have celiac disease, you can support her moving forward. Instead of focusing on guilt, try shifting the conversation toward healing and learning together. You’re not alone, and you don’t deserve to carry this weight on your own. This article might be helpful. She needs to be screened for celiac disease before she can be sure that she has it. Another approach not discussed in the article is a genetic test for celiac disease, which she could do without eating gluten.      
    • Marie70
      My Adult daughter is blaming me for her "possible" Celiac disease.

      By Marie70 · Posted

      Hello, My mid twenties daughter is blaming my husband and I for her celiac disease.  She has not been diagnosed at all, but GOOGLE has informed her she has it.  She is going to go get tested now, but my question is, did we?  I was not the best cook while she was growing up and often made quick processed food for meals.  She is blaming us for what she ate growing up and is angry that we didn't feed her better.  I don't know how to react and all I could tell her was I was sorry.  Her older brother has Crohn's disease and he was diagnosed as a teenager.  She is also furious with us that we didn't change his diet either.  I don't know why I didn't and I am having so much guilt I don't even know how to handle this situation.  Both sides of our family have a history of IBS, Celiac and Crohn's disease.   I guess I just wanted to hear from anyone out there that can either point blame at me (I can accept it) or tell me that the food she ate growing up didn't have an affect on her.  I am thinking it most likely did. Thank you, Marie
    • RMJ
      High blood test numbers - with scales. Any advice?

      By RMJ · Posted

      I’d say celiac is likely.  Please continue to eat plenty of gluten until your endoscopy to be sure that any gluten-related damage can be seen.  Plus it gives you one last chance to enjoy your favorite gluten-containing foods. I hope the endoscopy/biopsies give you a definitive answer. 
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