Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dehydration

Jodster72

Recommended Posts

Jodster72 Rookie
Jodster72
Posted

hello and good morning all:)

Just wondering if anyone as dealt with this along their journey.

Because I am obviously malabsorbing everything I have started to get dehydrated the last week. I first noticed I was very pasty in my mouth abd white tongue despite how much water I am drinking as well as my bottom eyelids are white rather than red/pink. I'm thinking this could be the reason that my heart rate as been jumping over 100 this week as well. Can anyone suggest any vitamins I could try while I wait to see doctor in a few days. They must also be sugar free as well. Any ideas would be appreciated xo

Have a great morning xo

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


IrishHeart Veteran
IrishHeart
Posted

I also had dehydration for quite some time, hon but I also have a hubs who pestered me to drink water all day long. When I was very dehydrated pre-DX from (I'll just say it) vomiting and the Big D, he had me drinking 16 oz. glasses of water with a tsp. of salt/a TBLS. of sugar in it to balance my electrolytes. It was that --or go to the ER for a bag of saline again. It helped immensely.

That said, I drink about 68-72 ounces of water a day now and I found that being hydrated helps with muscle and tissue repair as well as a keeping a clear head, smooth -running bowels, and better digestion.

My heart palps stopped, the "funky tongue" cleared up, my kidneys function better (the doc loved my last lab test results) and I push water on everyone now.

I say: Drink up! It may take some time for all these issues to resolve. Hang in there.

1desperateladysaved Proficient
1desperateladysaved
Posted

Can you do coconut? I was having dehydration problems with a recent cold. My tongue was cleaving to the roof of my mouth. I believe my red eyes might have been assoicated with the dehydration. Water just seemed to be going straight through. I tried coconut water. In a couple of hours my mouth was moistened again. It seemed to stick better than water.

I look for a brand that has only Coconut water in it. Young coconut water actually tastes good. I read that Coconut water can be a good sport drink and that is what made me think of it. Regular sport drinks aren't hydrating and are too much sugar for me.

It advertised that it has natural potassium in it. My only problem is that I bought out all 4 bottles at the local store and need to go further for more. One store has 4 different brands of coconut water for me to choose from!

Diana

mommida Enthusiast
mommida
Posted

I think you are actually having symptoms of anemia (low iron).

Please see your doctor. You should start with tests to see what your iron level is and where it needs to be. There is a serious problem of taking too much iron called toxicity.

Symptoms of iron defiency... paleness (can be noticed first in areas known to be pink, like gums of the mouth), heart palpatations, weakness, constipation, and the list goes on.

IrishHeart Veteran
IrishHeart
Posted

I think you are actually having symptoms of anemia (low iron).

Please see your doctor. You should start with tests to see what your iron level is and where it needs to be. There is a serious problem of taking too much iron called toxicity.

Symptoms of iron defiency... paleness (can be noticed first in areas known to be pink, like gums of the mouth), heart palpatations, weakness, constipation, and the list goes on.

Brilliant advice!!!!

I had B-12, iron and folate anemias--and yes, they all can cause those symptoms as well.

And I echo the thought-do not start supplementing until your levels are checked.

Nice catch, mommida :)

gfreejz Rookie
gfreejz
Posted

I have dehydration problems as well and would like to second irishheart's suggestion with the salt sugar water. It has helped myself alot. My recipe is a shake of salt and one teaspoon sugar to about 20 ounces of filtered water. Also I'd like to add that I don't consume any other added salt or sugar on my diet. I also no longer have any blood pressure or blood sugar problems to worry about so I'm not worried about adding in more salt or sugar.( I still check my BP daily ) Too me this water reminds me of milk, so it shouldnt taste bad or weird, if it does add more water. I also gave up caffeine recently because coffee was simulating my bowels alot, and it seems that I would have to pee before I even set my cup down. Now I have to get up in the middle of the night to pee, for the first time ever! The salt/sugar makes the water stick. Oh and since I'm taking b12 now I never even think about caffine . I'm almost two years gluten-free now and I think I've almost figured it all out with the help of this board and a few posters. I'm Med free too! ( only vitamins and ptobiotics ) Two years ago I was on a high dose of hypertension meds that barely worked, asthma inhailer that didn't help my lung function, Ppi's that didn't help and I'm only 31!

Also, I am somewhat underweight with very low fat from the years of malabsorbson and the salt sugar water makes my obnoxiously large veins on my arms dissappear.

Gluten free, dairy/casien free, msg free, caffine free, alcohol free, headache free, grumpy free ;)

IrishHeart Veteran
IrishHeart
Posted

I'm almost two years gluten-free now and I think I've almost figured it all out with the help of this board and a few posters. I'm Med free too! ( only vitamins and ptobiotics ) Two years ago I was on a high dose of hypertension meds that barely worked, asthma inhailer that didn't help my lung function, Ppi's that didn't help and I'm only 31!

Also, I am somewhat underweight with very low fat from the years of malabsorbson and the salt sugar water makes my obnoxiously large veins on my arms dissappear.

Gluten free, dairy/casien free, msg free, caffine free, alcohol free, headache free, grumpy free ;)

"Grumpy-free" :D ...Love this.

Congrats on your rebound to good health!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Takala Enthusiast
Takala
Posted

More vegetables, you need the fiber in them to hold the moisture in your gut. Put the stuff in a blender for a smoothie with a piece of fruit, if you can't stand the thought of just eating it.

Other than that, I agree w/ the above suggestions that you sound like you're also a bit anemic. At one point I was sucking down blackstrap molasses every day like manna as a source of iron, besides gluten free B complex vitamins/mineral supplements. If you can't do the home made electrolyte sugar/salt in water, (normal summer temps here hit a high of 100

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jeff Platt
      - Jeff Platt replied to Vozzyv's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Weird Symptoms

      Ear pain and ringing your entire life may or may not be TMJ related but could be something else. A good TMJ exam would be helpful to rule that out as a potential cause from a dentist who treats that. I have teens as well as adults of all ages who suffer from TMJ issues so it’s not a certain age when it shows up.
    2. cristiana
      - cristiana replied to Vozzyv's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Weird Symptoms

      Not sure if related to coeliac disease but my ear ringing has stepped up a notch since diagnosis. Even since a child silence really hurts my ears - there is always a really loud noise if there is no other noise in a quiet room - but my brain has learned to filter it out. Since diagnosis in my forties I also get a metallic ringing in my ears, sometimes...
    3. Scott Adams
      - Scott Adams replied to More2Learn's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Celiac Maybe a Possibility?

      Welcome to the forum, and thank you for sharing your story! It sounds like you’ve been through an incredible journey with your health, and it’s no wonder you’re starting to piece things together and wonder about celiac disease. Your experiences—from childhood through adulthood—paint a picture of symptoms that are often associated with celiac disease, though t...
    4. More2Learn
      - More2Learn posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Celiac Maybe a Possibility?

      Hi, I am new! (Although I've used this forum as a reference over the past couple of years.) I'm just looking for some initial reactions to if I actually might possibly have Celiac Disease, or if I'm reaching here. I have had lifelong health issues and not once has a doctor suggested I look into celiac. I always thought it was basically an extreme allergy...
    5. Wheatwacked
      - Wheatwacked replied to GardeningForHealth's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Ground meat absolutely full of gluten?

      "grass-fed" meat by definition cannot contain wheat as it means the animal is only fed grass organic meat can be fed wheat feed
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,099
    • Most Online (within 30 mins)
      7,748
    Amy Fuglestad
    Newest Member
    Amy Fuglestad
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jeff Platt
      Weird Symptoms

      By Jeff Platt · Posted

      Ear pain and ringing your entire life may or may not be TMJ related but could be something else. A good TMJ exam would be helpful to rule that out as a potential cause from a dentist who treats that. I have teens as well as adults of all ages who suffer from TMJ issues so it’s not a certain age when it shows up.   
    • cristiana
      Weird Symptoms

      By cristiana · Posted

      Not sure if related to coeliac disease but my ear ringing  has stepped up a notch since diagnosis.  Even since a child silence really hurts my ears - there is always a really loud noise if there is no other noise in a quiet room - but my brain has learned to filter it out.  Since diagnosis in my forties I also get a metallic ringing in my ears, sometimes just one, sometimes both.  But it comes and goes.   My sister also suffers now, we are both in our fifties, but she is not a coeliac, so for all I know it could just be an age thing.  I do get occasional stabbing pain in my ears but that has been all my life, and I do appear to be vulnerable to outer ear infections too.  So not a particularly helpful reply here, but I suppose what I am trying to say is it might be related but then again it could just be one of those things.   I think in the UK where I live doctors like you to report if you get tinnitus in just the one ear.  I reported mine but no cause was found.  Most of the time it is nothing but sometimes it can have a cause that can be treated, so perhaps worth reporting to your GP.  
    • Scott Adams
      Celiac Maybe a Possibility?

      By Scott Adams · Posted

      Welcome to the forum, and thank you for sharing your story! It sounds like you’ve been through an incredible journey with your health, and it’s no wonder you’re starting to piece things together and wonder about celiac disease. Your experiences—from childhood through adulthood—paint a picture of symptoms that are often associated with celiac disease, though they can overlap with other conditions as well. The recurring sinus infections, being underweight as a child, chronic gastrointestinal issues, nutrient-related symptoms like cramps, and the persistent fatigue and brain fog are all things that many people with undiagnosed celiac report. Your reactions to gluten also stand out. The improvement in symptoms when you reduce or remove gluten, followed by the resurgence of pain and other problems when you reintroduce it, is a common experience for those with celiac or gluten intolerance. While your frustrations and trials with elimination diets might not have given you concrete answers yet, they’ve provided valuable clues. It’s also worth noting that celiac disease doesn’t always present in the classic way. Many people, like yourself, may not experience severe gastrointestinal distress but instead have “atypical” or extraintestinal symptoms like joint pain, menstrual irregularities, fatigue, and more. It’s a condition that can go undiagnosed for years, especially when symptoms are subtle, sporadic, or mistakenly attributed to other issues. The fact that you’ve sought alternative approaches to feel better shows just how determined you’ve been to find relief, even without a definitive diagnosis. Given your history and how your body responds to gluten, it would be worth exploring celiac disease further with a medical professional. Before removing gluten completely, it’s important to get tested while you’re still eating it, as going gluten-free beforehand can affect the accuracy of the results. A blood test for celiac antibodies (like tTG-IgA) is usually the first step, and if positive, an endoscopy may follow to confirm the diagnosis. If the testing process feels daunting, keep in mind that getting answers could give you clarity and help guide your health decisions going forward. Whatever the outcome, you’ve already made significant strides in identifying triggers and managing your symptoms. Your awareness and persistence are key, and this community is here to support you as you continue to seek answers. This article might be helpful. It breaks down each type of blood test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • More2Learn
      Celiac Maybe a Possibility?

      By More2Learn · Posted

      Hi, I am new!  (Although I've used this forum as a reference over the past couple of years.) I'm just looking for some initial reactions to if I actually might possibly have Celiac Disease, or if I'm reaching here.  I have had lifelong health issues and not once has a doctor suggested I look into celiac. I always thought it was basically an extreme allergy that needed an EpiPen, and I know that's not me.  However, I stumbled upon some symptoms, realized I was wrong, and after some research I'm almost shocked at what I have found.  It seems like anything I've ever struggled with has a potential correlation to this disease!  I'm in my 40's, now.  Here is my journey to date... Issues as a Kid: tons of allergies, and had sinus infections all the time... however I didn't have hayfever-like allergies and the scratch tests didn't register much, it was more that when I was exposed to allergens (like say I spent hours with a cat) I was certain to get a sinus infection and it lasted months. was extremely skinny and everyone always said I was anorexic (I wasn't) always getting sick and the illnesses hang on for a long time always cold (my favorite thing to do is sit in front of a space heater or be out in 90 degree weather) intermittent bad constipation (still happens but not as severe) horrible toe cramps that would wake me up in the middle of the night As I got older (teenage/college years): acid reflux diagnosis learned that beer made me EXTREMELY sick, cannot tolerate it horrible issues with menstrual cycle - I wasn't regular, had awful cramps and PMS, sometimes cannot function the first couple of days night terrors/sleep walking more stomach issues - I learned I couldn't have black coffee.  I often had issues especially when traveling.  For example I finally noticed a pattern that I could never, ever eat at a hotel buffet spread - it would always make me sick afterwards. More recent problems: always tired periodic pain on right side that can be so painful I can't stand up straight. Have had all kinds of scans and doctors always say I'm fine.  I was so sure I had gallstones or my liver was failing but... nope. chest pain brain fog not diagnosed but many, many ADHD symptoms lots of inflammation, am overweight now toe cramps evolved into leg/calf cramps None of my symptoms from any era of my life ever really resolved, except I went from being skinny to ~20/30 pounds overweight, and as I got older I got less outright sinus infections.  Largely due to the pain in my right side and the fact that I always, always seem to pick up every illness, especially when traveling, I started pursuing alternative medicine paths... I did the Pritikin lifestyle, I tried an elimination diet, I followed the Root Cause Protocol, I did a Leptin reset.  A lot of these paths recommend removing gluten, and in the past year or so some of my symptoms have gone away!  Specifically less issues with toe cramps, sometimes the side pain would go away for a long time, and my acid reflux got much better.  But, because I was never diagnosed with any specific intolerance, I wasn't militant about the gluten - I had cut out dairy, soy, all kinds of things.  So I would say cross-contamination is ok, or make an exception at a group outing. Then one day, I just got frustrated and ate some normal slices of pizza... and my side pain came back!  I started doing research and now I'm here and wondering... could I have actually had this my whole life??!? Thoughts and observations welcome.           
    • Wheatwacked
      Ground meat absolutely full of gluten?

      By Wheatwacked · Posted

      "grass-fed" meat by definition cannot contain wheat as it means the animal is only fed grass  organic meat can be fed wheat feed
×
×
  • Create New...