Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cystoscopy

tennisman

By tennisman
in Related Issues & Disorders

Recommended Posts

tennisman Contributor
tennisman
Posted

Hi just wondered if anyone has had the Cystoscopy test ? If there is anyone who has had the test under local anaesthetic I have a few questions ?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


archaeo in FL Apprentice
archaeo in FL
Posted

Hi tennisman, I've had Cystoscopy, with no anaesthetic. (I did not have hydrodistension - if you're getting hydro, from what I've read, you'll need general anaesthetic.) I am a woman, so our experiences might be different, but I'd be happy to answer any questions.

Is this to look for bladder damage related to IC?

tennisman Contributor
tennisman
Posted
  • Author

Hi archaeo in FL , Thanks for the reply . Did the Cystoscopy hurt without anaesthetic ? I'm not sure what hydrodistension is ? I had a Cystoscopy last week it caused sharp pain at the start and near the end of the test . I also had a lot of pain and some swelling after and just wanted to know how long it took for you to recover ? I have read online it can take anything from a few hours to a few weeks. I'm sure having celiac disease also slows down recovery times too .

I had to have a Cystoscopy because I have a slow urine flow and blood in the urine . My doctor said the Cystoscopy test results were normal . I need to have urodynamics testing have you had them tests ?

I have been looking online but it's difficult to find an answer about the local anaesthetic injection . Because for the Cystoscopy the local anaesthetic injection was very painful and I did do the start of the urodynamics testing and had the local anaesthetic injection again and it caused sharp pain i'm not really sure if that's normal or not . I tried looking online but can't really find much about the local anaesthetic injection , I only find stories about the Cystoscopy part of the test .

archaeo in FL Apprentice
archaeo in FL
Posted

Hi archaeo in FL , Thanks for the reply . Did the Cystoscopy hurt without anaesthetic ? I'm not sure what hydrodistension is ? I had a Cystoscopy last week it caused sharp pain at the start and near the end of the test . I also had a lot of pain and some swelling after and just wanted to know how long it took for you to recover ? I have read online it can take anything from a few hours to a few weeks. I'm sure having celiac disease also slows down recovery times too .

I had to have a Cystoscopy because I have a slow urine flow and blood in the urine . My doctor said the Cystoscopy test results were normal . I need to have urodynamics testing have you had them tests ?

I have been looking online but it's difficult to find an answer about the local anaesthetic injection . Because for the Cystoscopy the local anaesthetic injection was very painful and I did do the start of the urodynamics testing and had the local anaesthetic injection again and it caused sharp pain i'm not really sure if that's normal or not . I tried looking online but can't really find much about the local anaesthetic injection , I only find stories about the Cystoscopy part of the test .

Hello again Tennisman, I know this is no fun, and I'm so sorry you're having to go through it! Hydrodistension is when they fill your bladder with water to see how much it can hold. It is also easier to see the little "sores" that are typical of IC when the bladder is distended, so it's used as part of the diagnosis for IC. IC bladders tend not to hold as much, too. It sounds like for you, with sharp pain at the start and the end, that placing the catheter and removing it may be what caused the pain.

Having normal Cystoscopy results is good; it sounds like IC might not be the issue for you. I'm sure a lot of things can cause slow urine flow and blood in the urine, and they're just having to try to figure out what. They might be two different things, though, and it'll be important to pursue the cause of both if it's not one cause.

I have not had urodynamics. I did have to keep a voiding journal, on which I recorded all liquid in (amount and time) and all liquid out (amount and time) - so I had to carry around this ridiculous plastic cover for a toilet seat to measure output. If you ever have to do that it'll likely be a lot easier; you could get a Nalgene and only use it for urine and measure output that way!

Being catheterized in any way is exceptionally uncomfortable for me. I understand that some folks have to cath themselves just to void, and that it's not bad for everyone, but even using a pediatric catheter on me causes a lot of pain, especially afterward. It's uncomfortable during, but far worse after my first void after being cathed, and for several days after. If you're in pain I'd call them and ask for a painkiller; you can also buy some decent ones over the counter (urised or uristat or similar, they're sometimes with the "women's care" stuff in drug stores if you can't find them) and that may help. Also, in the future ask them if they can use a pediatric catheter whenever they need to use one, and to use a local anaesthetic (even just a topical can often help).

I really don't know anything about a local anaesthetic injection for those tests, where they'd be or what they might cause. If you continue to have swelling and pain I'd definitely call them, something bad might be going on, including a potential reaction to what was in the injection. They should be happy to see you for a follow up and try to make you as comfortable as possible!

tennisman Contributor
tennisman
Posted
  • Author

Hi archaeo in FL , Thanks , I hope all the tests will be over soon and we will figure out what's going on . I'm not sure if I had the Hydrodistension , I know near the end of the test they filled my bladder up with water so they could see more in the bladder i'm not if that is the same thing or similar ? That part caused bad pain , I remember the doctor saying the prostate is not relaxing and that could be causing the slow urine flow . I don't think I had a catheter . The part at the start that hurt was the local anaesthetic injection , it caused sharp pain , I also had to have the local anaesthetic injection at the start of the urodynamics test which caused the same sharp pain .

Yeh normal results is great , but it makes me think I went through the test for nothing . I worried a lot about the test it seems frustrating all the worry etc and no progress made . My doctor hasn't said anything about IC , so it's probably not the problem . I was sent to see the urologist by my Gastro doctor who thinks I have kidney stones . I have been getting non celiac related stomach pains for over 4 years now and my Gastro thinks stomach pain , blood in the urine and a slow urine flow could be caused by kidney stones but my urologist doesn't think kidney stones is the problem . I hope the urologist can figure out what is going on and if it's causing the stomach pains too .

I had to do the voiding journal as part of the urodynamics testing , I only recorded 3 days as that was the time I had between getting the letter and going for the test . That must have been a pain carrying around the plastic cover . I used an old measuring jug it was only 500ml almost overflowed once or twice ! But as I stopped the urodynamic test after I had the painful local anaesthetic injection I probably need to re schedule the urodynamic tests and maybe record everything again , did the doctor find out lots from your voiding journal ?

The catheter sounds very painful . I read online in some people it's causing excruciating pain and some people feel no pain which seems strange as it sounds very painful . I can imagine the pain being bad after , the pain I had passing urine after the Cystoscopy was very bad especially after the local anaesthetic wore off ! Did you find drinking water helped your symptoms after the catheter ? My doctor gave me some strong pain killers for before the Cystoscopy but I don't they helped much . I will look for the tablets you mentioned , and ask for the pediatric catheter.

I'm going to see the urologist later in the week and will ask questions about the local anaesthetic injections and why they were causing pain and it that was normal . I'm hoping the pain and swelling is completely gone by than ! I was going to ring the hospital because since the local anaesthetic injection for the urodynamics I have felt exhausted have a headache etc and didn't know if it was related or not . I remember my last endoscopy I had hallucinations for a few days after and the doctor found it funny :S

Thanks again for the advice and information :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,154
    • Most Online (within 30 mins)
      7,748
    J. Nichols
    Newest Member
    J. Nichols
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      71.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Dora77
      Energy drink can has stains - potential gluten?

      By Dora77 · Posted

      It wasnt really eye catching, but they were small stains which looked like dried out liquid. I dont know if it was normal or shouldve been just completely clean. But if someone didnt pay attention, it wouldnt be noticeable.
    • RMJ
      Energy drink can has stains - potential gluten?

      By RMJ · Posted

      If there were stains or particles on a drink can in an area that would either contact the drink or my lips, I would wash that can whether or not I had celiac disease.
    • Bebygirl01
      Not Just Wheat, Barley and Rye Glutens that make us sick

      By Bebygirl01 · Posted

      You are on the money, but I should also add that Italian, French and other countries research shows exactly what I have said. Our FDA is behind the ball when it comes to this research and I am hopeful that Kennedy can straighten this out soon, albeit he is giving the food companies too long to just remove food dyes from our foods when in fact they have to remove all that in order to sell for example, in the UK as they aren't allowed such things. The food companies and the cola companies have also changed their formulas to have just sugar in them instead of corn gluten aka high fructose corn syrup and corn starch in them. Misinformation here in America is a very dangerous thing. I also have been grain free for a long time now and at no time can I even have the smallest amount of corn gluten -I recently got glutened from a supplement that claimed to be grain free yet upon further research I found that it had erythritol (corn sugar) in it and that is what got me sick for 7 days straight. I am not hopeful to ever be able to add back into my diet any of the grain glutens, but perhaps those who were only gluten intolerant might be able to, but for me being celiac, I have no hope in that. Thank you for the article, I will add it to my collection of research as I am collecting everything I can find on this subject and posting it on X as well as other places.  I also don't use psuedo grains i.e. quinoa as that also reacts negatively with my gut, so I am 100% a cassava/tapioca/arrow root girl and that is my go to bread replacement. There are some new items made with chicpea/green peas that are sold as rice alternatives, i bought one to try but haven't yet. So food companies are getting creative, but like you said, I am fresh whole foods and don't buy many processed foods, I make my own cheese, ketchup, pickles, jams, etc.
    • Dora77
      Energy drink can has stains - potential gluten?

      By Dora77 · Posted

      There were small spots (stains) on the drinking area at the top of the energy drinks can from the store that looked as the same color as milk — maybe oat milk (Hafermilch) or a wheat-based drink (Weizendrink), but I’m not sure what it was. There were also some particles that looked like either flour or dust, but not many. Could it have been a gluten-containing drink spilled onto the can or just regular small stains which I shouldn‘t worry about? Do you watch out for stuff like that or am I overthinking? Would it cause damage to a celiac?
    • Scott Adams
      Not Just Wheat, Barley and Rye Glutens that make us sick

      By Scott Adams · Posted

      This is such an important discussion! While corn gluten (zein) is structurally different from wheat gluten, emerging research suggests some celiac and gluten-sensitive individuals may still react to it, whether due to cross-reactivity, inflammation, or other factors. For those with non-responsive celiac disease or ongoing symptoms, eliminating corn—especially processed derivatives like corn syrup—might be worth exploring under medical guidance. That said, corn’s broader health impact (GMOs, digestibility, nutritional profile) is a separate but valid concern. Like you mentioned, ‘gluten-free’ doesn’t automatically mean ‘healthy,’ and whole, unprocessed foods are often the safest bet. For those sensitive to corn, alternatives like quinoa, rice, or nutrient-dense starches (e.g., sweet potatoes) can help fill the gap. Always fascinating (and frustrating) how individualized this journey is—thanks for highlighting these nuances! Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
×
×
  • Create New...