Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lutein Free Diet


icm

Recommended Posts

icm Apprentice

I've heard that many children with Autistic Spectrum Disorder have IBS.

I've noticed that over the years, I've always felt queasy after eating carrots. From what I've read carrots are high in lutein type substances.

Lutein sensitivity sounds like it's common in ASD. I've only just heard about this issue myself and it seems like it may just fit the bill.

What are your thoughts?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Before you search for other, less likely causes for your issues, try being gluten free for 6 months-no cheating - no magic "cure" pills. Maybe dairy free, too. Try the more likely things first.

I would ask you for your reputable source for this "I have heard" info but, this isn't an autism site, so most of us don't follow the research.

shadowicewolf Proficient

I've never heard of that. Gluten, however, has been known to make things worse.

GFinDC Veteran

Carrots bother me too. So I don't eat them anymore. With celiac disease the damage to the gut can lead to food intolerances of many kinds. Carrots are one of them, for some of us.

Sarah Alli Apprentice

Your eyes require lutein to function properly. Go on a lutein free diet and you are shooting yourself in the foot- not to mention you will probably starve since it is in nearly everything from leafy vegetables to animal fats.

There isn't really any actual scientific evidence that *-free diets are useful in reducing the symptoms of autism anyway, and this is certainly the most extreme iteration of that trend I've seen. The evidence is all anecdotal and doesn't bear out when you do actual placebo-controlled research. In most cases, it doesn't hurt, but it certainly is going to hurt if you try to eliminate so essential a nutrient from your diet.

come dance with me Enthusiast

I've never heard of that before, only the Gluten-free Casein-free diet which we now have because we're vegan and the child is coeliac so we have to be anyway.

  • 5 years later...
Hypnobambie Newbie
On 9/26/2012 at 8:38 AM, icm said:

I've heard that many children with Autistic Spectrum Disorder have IBS.

 

I've noticed that over the years, I've always felt queasy after eating carrots. From what I've read carrots are high in lutein type substances.

 

Lutein sensitivity sounds like it's common in ASD. I've only just heard about this issue myself and it seems like it may just fit the bill.

 

What are your thoughts?

Since not eating lutein, having to pick carrots out of many a salad, lol, I can eat salads again...no carrots works for me


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Hypnobambie Newbie

I have been doing the lutein free diet for 6 months, it's like night and day...when I get lutein I crash w symptoms...when I don't I get stronger and stronger.

 

I am dairy free, oxalate free, grain free, lutein free and feeling much better. I can hike again...

Ennis-TX Grand Master

Never considered this, I know casein makes my Asperger flare up....But I have never gone a meal without some form of lutein foods in 2 years....always eating spinach, kale, romaine or small amounts of broccoli, but I need the vitamin A and vitamin K. Something to consider I guess, but on this I would have to supplement them I guess. UC is under control and no more blood loss that way means I can probably chance cutting down on the vitamin K for a bit. Carrots always had to be steamed to mush when I used to eat them....very tough on the gut. I now avoid them as the sugars/carbs flare the UC. Bit it might explain why I have alaways had some form of my aspy traits present with all the other gluten, dairy, soy food removed...or just be I am a aspy.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - captaincrab55 replied to sillyyak52's topic in Coping with Celiac Disease
      4

      Family education

    2. - trents replied to SaiP's topic in Coping with Celiac Disease
      11

      Dangerously underweight, Perfect gluten free and insomnia

    3. - trents replied to AndiOgris's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      False blood test positive?

    4. - SaiP replied to SaiP's topic in Coping with Celiac Disease
      11

      Dangerously underweight, Perfect gluten free and insomnia

    5. - AndiOgris posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      False blood test positive?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,172
    • Most Online (within 30 mins)
      7,748

    Melissa27
    Newest Member
    Melissa27
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • captaincrab55
      Welcome sillyyak52,  I'm not sure of your age or if you live with your parents.  Is there a nurse in your family or friend of the family that may be able to explain your diagnoses?  You can get a second opinion by taking your lab results to another GI Doctor.   Good Luck!
    • trents
      So, you have three symptoms of a gluten-related disorder: weight loss, brain fog and lose stools. Of the three, the lose stools that firm up when you cut back on gluten is the only symptom for which you have reasonable cause to assume is connected to gluten consumption since the other two persist when you cut back on gluten. But since you do not have any formal test results that prove celiac disease, you could just as easily have NCGS (Non Celiac Gluten Sensitivity). In fact, what testing you have had done indicates you do not have celiac disease. NCGS shares many of the same symptoms of celiac disease but does not damage the lining of the small bowel as does celiac disease. There is no test for it. A diagnosis for NCGS depends on first ruling out celiac disease. It is 10x more common than celiac disease. Some experts feel it can be a precursor to the development of celiac disease. Eliminating gluten is the antidote for both. What muddies this whole question are two things: 1. Lack of official diagnostic data that indicates celiac disease. 2. Your persistence in consuming gluten, even though in smaller amounts. Your anxiety over the insomnia seems to outweigh your anxiety over the weight loss which prevents you from truly testing out the gluten free diet. What other medical testing have you had done recently? I think something else is going on besides a gluten disorder. Have you had a recent CBC (Complete Blood Count) and a recent CMP (Complete Metabolic Panel)? You say you don't believe you have any vitamin and mineral deficiencies but have you actually been tested for any. I certainly would be concerned with that if I was losing weight like you are despite consuming the high amount of calories you are.
    • trents
      Welcome to the forum, @AndiOgris! Recently upgraded guidelines for the "gluten challenge" recommend the daily consumption of at least 10g of gluten for at least 2 weeks to the day of testing to ensure valid testing, either for the antibody testing or the endoscopy/biopsy. 10g of gluten is roughly the amount found in 4-6 slices of wheat bread. So, there is a question in my mind as to whether or not your gluten consumption was intense enough to ensure valid testing the second time around. And was the tTG-IGA the only antibody test that was run? That is far from a comprehensive celiac panel. Concerning your negative biopsy, there is the possibility of patchy damage that was missed due to inadequate sampling as you alluded to. There is also the possibility that the onset of your celiac disease (if you have it) was so new that there had not yet been time to accumulate damage to the small bowel lining. Your total lack of symptoms at the time of diagnosis would seem to support this idea. Having said all that, and this is my informal observation from reading many, many posts like yours over the years, I wonder if you are on the cusp of celiac disease, crossing back and forth across that line for the time being. My suggestion would be to keep a close eye on this for the time being. Watch for the development of symptoms and request a more complete celiac panel a year from now. Here is an article that discusses the various antibody tests that can be run for celiac disease. Note: The EMA test is kind of outdated and expensive. It has been replaced by the tTG-IGA which measures the same thing and is less expensive to run.  
    • SaiP
      Hi, yes. Much more solid and firm, as opposite to diarrhea like when on gluten.
    • AndiOgris
      Hi all I have had a very confusing year with celiac disease (or perhaps not as it turns out) and wondered if anyone can help me make sense of it? My mother was diagnosed with celiac disease (in her 70s) a couple of years ago. I am in my early 40s and did not have any symptoms, but I took a blood test in November 2023 and it came back positive (TTG IGA 23.4 U/ml - normal range is below 7 U/ml). I was referred for a gastroscopy to confirm, which was scheduled for October 2024 (I use the UK health service, things move slowly!). The gastroscopy found no evidence of celiac disease.  My gastroenterologist has asked me to retake the blood test, and it just came back negative (TTG IGA 1.6 U/ml - normal range is below 7 U/ml). Given the long wait between my initial positive blood test and my gastroscopy, I reduced my gluten intake but never avoided it fully. In the 6 weeks before the gastroscopy and the second blood test, I made sure to eat at least two slices of bread a day as recommended, and often I had significantly more.  So what's going on? I understand that false positives are very rare for celiac blood tests, and usually associated with other serious diseases which I am fairly sure I don't have (my health is generally very good). After the negative biopsy, I thought that (i) either they did not take enough samples, or (ii) I have "potential celiac disease". But now that the second blood test has come back negative, I'm running out of plausible explanations...  Can anyone make sense of this? I have not spoken to my gastroenterologist yet - I wanted to get a better sense of where I am beforehand so that I can ask the right questions. Under the UK system, specialist doctors can be very hard to get hold of, so I need to make the most of my time with him! Thanks!        
×
×
  • Create New...