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Introducing Myself While I Wait For Test Results


KC in KC

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KC in KC Newbie

Hi everyone! :D

I'm SO glad I found this forum! I'm a chronic user of such things -- the support and the knowledge-sharing is so valuable! -- so when I realized we were starting down Celiac Road, I knew I needed to find some people to walk with. I've been lurking for a couple of days now already ;)

We're approaching a celiac diagnosis a little bit backwards -- in chasing down some GI issues, my doc did the biopsy already. It came back with "moderate inflammation", so he's ordered the celiac panel. I'm just waiting not-so-patiently for the results now. I know the biopsy results *could* be from other causes, but based on symptoms from myself and my daughter, celiac sure sounds like a strong likelihood. Kinda feels like waiting for the other shoe to drop now.

We have a couple of friends with confirmed celiac, so I have absorbed a certain amount of knowledge from them already, plus I know I've got some automatic local support, if necessary. But I'm a research junkie, so I'm dealing with the waiting-suspense by researching. :P

Just at the moment my biggest concern is simply logistics. I don't do much cooking at home right now, thanks to time pressures, but I know our budget won't stretch to cover much in the way of gluten-free-convenience foods. I'm going to have to figure out a new set of priorities, I think. :(

Anyway, Hi! :lol:


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mushroom Proficient

Hi :) and welcome to the board. I hope we can provide you with whatever support you need.

Yes, if there is one thing gluten intolerant people discover, it is that they have to do more cooking than they have been used to in the past. I once joked to a friend that if I want to make a pie with a cookie crust, first I have to bake the cookies :lol:

You will find that a crockpot is an indispensable kitchen item, and you will probably end up cooking in bigger batches than you are used to so that you have leftovers, both for lunches and for nights when that's all you're up to.

But don't let it overwhelm you. Millions of us, cooks and non-cooks alike, manage to cope with it very successfully.

Let us know how your blood tests turn out.

GFinDC Veteran

Welcome to the forum KC! :)

There is lots to learn here about celiac disease and gluten intolerance. And eating gluten-free for that matter. Your budget should be fine if you stay away from processed foods and concentrate on whole foods and cooking them yourself. Cooking is going to be important for you so you can know what is in your food rather than guessing what someone else may have put in it that could make you sick. But it doesn't have to be gourmet cooking to taste good and be nutritious too. Simple meals are good for starting out as your gut needs time to heal and it is easier with simple foods. Anyway, welcome again and feel free to ask questions.

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    • trents
      Take it easy! I was just prompting you for some clarification.  In the distillation process, the liquid is boiled and the vapor descends up a tube and condenses into another container as it cools. What people are saying is that the gluten molecules are too large and heavy to travel up with the vapor and so get left behind in the original liquid solution. Therefore, the condensate should be free of gluten, no matter if there was gluten in the original solution. The explanation contained in the second sentence I quoted from your post would not seem to square with the physics of the distillation process. Unless, that is, I misunderstood what you were trying to explain.
    • Mynx
      No they do not contradict each other. Just like frying oil can be cross contaminated even though the oil doesn't contain the luten protein. The same is the same for a distilled vinegar or spirit which originally came from a gluten source. Just because you don't understand, doesn't mean you can tell me that my sentences contradict each other. Do you have a PhD in biochemistry or friends that do and access to a lab?  If not, saying you don't understand is one thing anything else can be dangerous to others. 
    • Mynx
      The reason that it triggers your dermatitis herpetiformis but not your celiac disease is because you aren't completely intolerant to gluten. The celiac and dermatitis herpetiformis genes are both on the same chronometer. Dermatitis herpetoformus reacts to gluten even if there's a small amount of cross contamination while celiac gene may be able to tolerate a some gluten or cross contamination. It just depends on the sensitivity of the gene. 
    • trents
      @Mynx, you say, "The reason this is believed is because the gluten protein molecule is too big to pass through the distillation process. Unfortunately, the liquid ie vinegar is cross contaminated because the gluten protein had been in the liquid prior to distillation process." I guess I misunderstand what you are trying to say but the statements in those two sentences seem to contradict one another.
    • Mynx
      It isn't a conjecture. I have gotten glitened from having some distilled white vinegar as a test. When I talked to some of my scientists friends, they confirmed that for a mall percentage of people, distilled white vinegar is a problem. The cross contamination isn't from wheat glue in a cask. While yhe gluten protein is too large to pass through the distillation process, after the distillation process, the vinegar is still cross contaminated. Please don't dismiss or disregard the small group of people who are 100^ gluten intolerant by saying things are conjecture. Just because you haven't done thr research or aren't as sensitive to gluten doesn't mean that everyone is like you. 
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