Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Here From Long Island, Ny..


GFKryptonian

Recommended Posts

GFKryptonian Newbie

Hey yall any of you from NY, or Long Island? I was diagnosed about 4.5 years ago with celiac disease. I am currently attending school in Providence, Rhode Island. I'd love to meet anyone, especially from the NY or Providence, RI area. I have never met anyone face to face with celiac ;[. My aim is mikestein00 or my email is mls794@jwu.edu - please message me anytime I love meetin people!

  • 7 months later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



laurichick Newbie

hey there!

I was just diagnosed about 3 months ago! I live on li too!

The local celiac group is having a vendor fair in june, i just posted info about it Open Original Shared Link

you should check it out! and also the celiac group meets the 1st tuesday of the month, then plan meals out and pretty much hang out and eat gluten-free stuff together. very cool people!

if you want info on that lemme know!

Lauri

my aim> vaguelyvogue

  • 1 year later...
mouth Enthusiast
Hey yall any of you from NY, or Long Island? I was diagnosed about 4.5 years ago with celiac disease. I am currently attending school in Providence, Rhode Island. I'd love to meet anyone, especially from the NY or Providence, RI area. I have never met anyone face to face with celiac ;[. My aim is mikestein00 or my email is mls794@jwu.edu - please message me anytime I love meetin people!

Long island here too..

Dandelion Contributor

Yay! Other Long Islanders!!!!! I'm from Nassau County. Where are you guys from?

whitney728 Newbie

yay long island...suffolk (but school in nyc) here

darlindeb25 Collaborator

East Islip--Suffolk County on the south shore. Of course, I am not a native islander, I am a native Michiganian, but I do love it here. Michigan is a beautiful state and the Great Lakes are beautiful, but they can't beat the beauty of our Lady, the ocean!!!!!

Silly Yak Pete Rookie

Long Beach Long Island here!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mouth Enthusiast
Yay! Other Long Islanders!!!!! I'm from Nassau County. Where are you guys from?

NASSAU COUNTY!!!!!!!!!!! LEVITTOWN

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,396
    • Most Online (within 30 mins)
      7,748

    ElizHane
    Newest Member
    ElizHane
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.1k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • ChrisSeth
      Hi thanks for your response! This is the only other info that’s on my test results for the IgA. The initial testing performed in the Celiac Disease Reflex Panel is the total IgA. If the total IgA is <10 mg/dL, the reflex tests that will be ordered are the Tissue Transglutaminase IgG Antibody and the Deamidated Gliadin Peptide IgG Antibody. If the total IgA is >=10 mg/dL, the reflex test that will be ordered is the Tissue Transglutaminase IgA Antibody. Does that give some insight?  following up with my Dr early next week… thanks again.  And I didn’t eat more gluten than usual during the last 6-8 weeks on purpose. Just a normal diet prior to testing. I had gluten everyday for 6-8 weeks though I’m sure.
    • Scott Adams
      Have you tried sheep's milk and goat's milk cheeses? After my diagnosis I could not tolerate cow's milk for ~2 years until my villi healed, but for some reason I did not have issues with sheep milk or goat milk cheeses.  I also had temporary issues with chicken eggs, but could eat duck eggs.
    • Scott Adams
      This is not a test for celiac disease, but your total IgA levels. This test is usually done with other celiac disease blood tests to make sure the results are accurate. Did they do a tTg-IgA test as well? Were you eating lots of gluten in the 6-8 weeks leading up to your blood tests? This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • ChrisSeth
      Test results came back for everything that was tested now. Cholesterol is off the charts high. Not sure if that’s related to celiac, I have no idea how it could be so high. Also tested positive for H pylori  infection… is there a link to celiac and H pylori? Or am I just experiencing symptoms of the H pylori infection? 
    • ChrisSeth
      I’m reading that some sites list a high Immunoglobulin A result for my age above 300, another site says above 356, and other sites are saying above 400. I don’t know what to make of this result 🤷‍♂️
×
×
  • Create New...