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Celiac With Additional Food Allergies


Iris court

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Iris court Newbie

Diagionsed with celiac 7 months ago and just learned that I am also fructose, lactose intolerant. I was recently told I was also allergic to corn, soy, peanuts, shrimp and scallops with blood test results by a celiac GI doctor in NY.

Any advice on how to approach / manage these restrictions.

I am feeing better now that my diet is even more restricted.


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Iris court Newbie

I've been looking for information on multiple food allergies but find it very difficult to locate. Also looking for a brand of multi vitamins that would be soy, corn, gluten, lactose and fructose free. My search today was unsuccessful at a local health food store Mrs.Greens.

rosetapper23 Explorer

The Paleo/Primal diet is naturally restrictive of all of those foods (except maybe shrimp and scallops), so you might scout around for a book on Paleo/Primal recipes. An excellent book about this diet is "Primal Body/Primal Mind" by Nora Gedgaudas; however, there is also a website that is quite helpful with regard to recipes: www.marksdailyapple.com You can download the recipes, as well as the actual recipe books, for free--if you want hard copies, you have to pay for them.

amahones Rookie

Diagionsed with celiac 7 months ago and just learned that I am also fructose, lactose intolerant. I was recently told I was also allergic to corn, soy, peanuts, shrimp and scallops with blood test results by a celiac GI doctor in NY.

Any advice on how to approach / manage these restrictions.

I am feeing better now that my diet is even more restricted.

I really sympathize with you. I also have multiple food allergies (but have had them almost my entire life): shellfish, peanuts, most tree nuts and sesame. If you have a true allergy to those foods, it's super important that you avoid them as each time you consume them, your allergic reaction could get progressively worse and could ultimately result in anaphylaxis.

I don't have a lot of advice as your allergies are more varied than mine but I hope you find some relief. Have you met with a dietitian or nutritionist to help come up with a plan of what to eat?

Iris court Newbie

Thank you for the boost of support, I thought gluten free was hard, corn on top of it is not for the faint at heart. I've eliminated as much as possible, carry around my list of ingredients to avoid and try to cook very simply. Yes, will see my nutritionist in the next week or so as we'll as an allergist.

Haven't spoken to very many other people that are dealing with food allergies like these. Reading entries on this site made me realize that I'm not suffering alone. That others have managed to bring themselves back from the edge of the cliff to not only survive but to thrive:D

GFinDC Veteran

Hi,

Vitamin Shoppe brand or Solgar vitamins may work for you. Not sure about the corn though so be sure to ask them. Allergies are caused by proteins, so starches may be ok. Many times vitamins are held together by starches and corn is often used.

Your allergies should be retested after 6 months or so of gluten-free eating. Sometimes people's allergic reactions taper off when they go gluten-free. I used to have pretty bad hayfever but it is gone now.

Iris court Newbie

My children ask if it will always be like this and I often reply that maybe the fructose and lactose intolerance will let up .

Searching everyday for Rx items without corn Mvits too but no luck yet, will keep trying:D

Lots of brands and info to sift through ...thanks for the note:)


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GFinDC Veteran

Hi Iris,

There were some threads about bone broth soup a while back on the forum. It is supposed to be very good for minerals. Might be worth trying. Vitamins you can eat! Meats are a pretty good source of nutrition too.

It may take some time for your reactions to settle down. Mine tapered off slowly over a year or so. I used to buy anti-histamines once a week, but don't need them now. You can always tell the kids "it'll be over when it's over" in a low deep voice. That should satisfy them! :)

Iris court Newbie

Thank you.

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    • trents
      We are all different and our immune systems are unique. I will say, however, that I have not gotten the impression as a moderator and reading hundreds and hundreds of posts on this forum over the years that a dermatitis herpetiformis outbreak caused by grains other than wheat, barley and rye is common. But perhaps it is more common than we have realized and it could be why it it is seems to be common that those who suffer from dermatitis herpetiformis struggle to keep it under control. Perhaps there are qualities found in all cereal grains besides gluten that are contributing factors. Also, have you tried a low iodine diet to see if it helps with your dermatitis herpetiformis? Reportedly, reducing iodine helps some folks afflicted with dermatitis herpetiformis.
    • Richardo
      Ok thanks Trents. I had the lesions biopsied and confirmed dermatitis herpetiformis, so I guess dermatitis herpetiformis can be associated with other grains not typically gluten. I appreciate your comment and I'll give Dr Osborne the benefit of the doubt because without him I would never have known of my grain intolerance and would still be suffering today. I simply never read anyone explain how grains could worsen dermatitis herpetiformis and I feel that information should be made much more readily available. Hey if someone tries going grain free and there's no improvement, no loss, however it drastically changed my life for the better and could at least be offered as a suggestion to sufferers from dermatitis herpetiformis. The other option is Dapsome and I wouldn't want anyone taking that chemical if there was a more natural solution. thanks again 
    • trents
      Welcome to the forum, @Richardo! We sometimes run across terms like "rice gluten", "corn gluten", and "oat gluten" but they are used informally and, technically, it is incorrect to speak of grains other than wheat, barley and rye as having gluten. Gluten is a protein with a specific structure found only in wheat, barley and rye. Other cereal grains contain proteins that are more or less similar in structure to gluten in some ways but are not actually gluten. Having said that, the proteins found in these other cereal grains are similar enough to gluten to possibly cause cross reactivity in some celiacs. Cross reactivity also happens with non cereal grain foods as well that have a protein structure similar to gluten. A prime example is dairy (the protein "casein"). Another example may be soy. Other foods can also cause cross reactivity for different reasons, such as microbial transglutaminase (aka, "meat glue") used commonly in pressed meat products. Just so you'll know, Dr. Osborne's claims have not received wide acceptance in the celiac community and are looked upon with skepticism by the medical and scientific community. Although he is a board certified nutritionist, his doctorates are actually in chiropractic medicine and pastoral science: https://www.drpeterosborne.com/about/dr-peter-osborne/ I am not sure Osborne has the training and background to address the chemical structure that defines gluten. I would encourage you to do some research on what gluten actually is. I have done this for myself and came away convinced that only wheat, barely and rye actually contain the protein gluten. I do not doubt your claims that you have breakouts of dermatitis herpetiformis from consuming these other grains. I am just contending it is not actually from gluten.
    • Richardo
      I was diagnosed celiac about 15 years ago and followed the usual diet restriction on Wheat, barley and rye and did very well on those restrictions with no problems with dermatitis herpetiformis. 4 years ago I started getting bad rashes on my knees and calves, buttocks, around my waist and my elbows and forearms and hands. It seemed to last about 11/2 to 2 months then clear up for a month and come back  again. I never changed anything in my diet and a dermatologist told me I  must getting  cross contamination, which I knew I wasn't.  Finally after struggling with it all that time, I watched a video by Dr Osborne who sited a study done in England showing that ALL grains (rice, corn etc) contain gluten. I went on a totally grain free diet and have now been 100 percent free of dermatitis herpetiformis for over a year. I tried a test and ate corn flour and it started to come back so I'm off all grains again. Long story I know, but my question is, why is practically EVERY celiac site private or Govt only mentioning the BIG 3 and never mentions other grains as a possible means of contamination? I am free  from a horribly uncomfortable condition now and I know there are others who would be encouraged by this.
    • trents
      Your chest pain could be related to the Sarcoidosis. "When it affects the lungs, wheezing, coughing, shortness of breath, or chest pain may occur." https://en.wikipedia.org/wiki/Sarcoidosis   The bowel incontinence could be caused by surgical damage (or scar tissue) to the cauda equina nerve bundle in the lumbar area of the spine. Or, it could be related to unintentional gluten exposure.
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