Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Work Results

KikiB

Recommended Posts

KikiB Explorer
KikiB
Posted

Hi! Looks like a lot of blood work coming back today. Dr. said it's a 90% chance I don't have Celiac, but she does recommend having the endoscopy to verify based on my reaction to gluten. I wonder if it's because the Mono I got in April triggered it and it's too new in my body to show up?

IGA <11

IGG <14

IGM <12

Each one of these is one number short of "indeterminate" according to the sheet she gave me.

I have an appointment with the Gastroenterologist on Oct 23rd for a consultation. I know I have to start eating gluten again, but I'm scared. (What a baby, right?) How long before the endoscopy should I be eating gluten? It's not even scheduled yet, but should I just bite the bullet and eat it?

Sigh.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


beachbirdie Contributor
beachbirdie
Posted

Hi! Looks like a lot of blood work coming back today. Dr. said it's a 90% chance I don't have Celiac, but she does recommend having the endoscopy to verify based on my reaction to gluten. I wonder if it's because the Mono I got in April triggered it and it's too new in my body to show up?

IGA <11

IGG <14

IGM <12

Each one of these is one number short of "indeterminate" according to the sheet she gave me.

I have an appointment with the Gastroenterologist on Oct 23rd for a consultation. I know I have to start eating gluten again, but I'm scared. (What a baby, right?) How long before the endoscopy should I be eating gluten? It's not even scheduled yet, but should I just bite the bullet and eat it?

Sigh.

The tests, as you list them, are not celiac specific tests. Do you have a sheet with the full names?

Not a bad thing that the doc will do an endoscopy even with unremarkable blood work. That is highly unusual! Glad they are willing to look, sorry you have to be eating gluten.

KikiB Explorer
KikiB
Posted
  • Author

The tests, as you list them, are not celiac specific tests. Do you have a sheet with the full names?

Not a bad thing that the doc will do an endoscopy even with unremarkable blood work. That is highly unusual! Glad they are willing to look, sorry you have to be eating gluten.

I may have used the wrong references. I have 3 pages of blood test results (she tested me for lots of things) -- what names should I be looking for?

GottaSki Mentor
GottaSki
Posted

You should continue to eat gluten until the endoscopy is complete. Aside from the endo, your GI may want to order more specific blood work and any time gluten free can cause these tests to be less accurate. I know it is frustrating and counter-intuitive but for the best possible results from the available tests, you need to keep eating gluten. If you haven't started eating gluten, I suggest a grilled cheese or bowl of pasta for snack or dinner TODAY!

Like BB said the numbers you posted do not relate to specific celiac blood tests. Do you have written or electronic results you can post here so we can help interpret the results?

KikiB Explorer
KikiB
Posted
  • Author

You should continue to eat gluten until the endoscopy is complete. Aside from the endo, your GI may want to order more specific blood work and any time gluten free can cause these tests to be less accurate. I know it is frustrating and counter-intuitive but for the best possible results from the available tests, you need to keep eating gluten. If you haven't started eating gluten, I suggest a grilled cheese or bowl of pasta for snack or dinner TODAY!

Like BB said the numbers you posted do not relate to specific celiac blood tests. Do you have written or electronic results you can post here so we can help interpret the results?

Thanks for making me smile, Lisa! You are too cute suggesting a grilled cheese.

I have 3 pages of test results, I guess I picked wrong -- I wouldn't know which results to give you. :(

nora-n Rookie
nora-n
Posted

IgA IgG IgM ate classes of antibodies, just general tests.

Now the celiac tests are like deaminated gliadin IgG or tissue transglutaminase IgA or endomysium Ab

Also vitamin D is often lowish with celiac, and iron/hemoglobin or ferritin too.

GottaSki Mentor
GottaSki
Posted

You are looking for keywords like tTG, Gliadin, Endomysial, IgA and IgG -- below are the names of the tests in the celiac panel, many labs do use slightly different names and abbreviations.

Total Serum IgA

Tissue Transglutaminase IgA and IgG

Gliadin IgA and IgG

Endomysial Antibody IgA

Deamidated Gliadin Peptide IgA and IgG

Also any tests that indicate you are low in nutrients.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KikiB Explorer
KikiB
Posted
  • Author

You are looking for keywords like tTG, Gliadin, Endomysial, IgA and IgG -- below are the names of the tests in the celiac panel, many labs do use slightly different names and abbreviations.

Total Serum IgA

Tissue Transglutaminase IgA and IgG

Gliadin IgA and IgG

Endomysial Antibody IgA

Deamidated Gliadin Peptide IgA and IgG

Also any tests that indicate you are low in nutrients.

I've been low on D, B12 and Iron for almost 4 years that I know of. I take a prescription B12 nasal spray, and supplements for D and Iron.

Tissue Transglutaminase AB, IGA <1

Tissue Transglutaminase AB, IGG <1

Gliadin (Deamidated) AB (IGG) 2

Thanks for your help!

GottaSki Mentor
GottaSki
Posted

It is great that your doc has recommended an endo even with negative celiac blood tests. Given your reaction to gluten and nutrient deficiency it will be good to rule out intestinal damage.

Good Luck :)

KikiB Explorer
KikiB
Posted
  • Author

It is great that your doc has recommended an endo even with negative celiac blood tests. Given your reaction to gluten and nutrient deficiency it will be good to rule out intestinal damage.

Good Luck :)

I had a burger last night with the bun, and the muscle weakness came back within an hour and still bothering me today. Just whining. I wish I could get this over with. :)

  • 1 month later...
KikiB Explorer
KikiB
Posted
  • Author

Here are the new blood test results:

IgA 223 (reference range is 81-463)

Transglutaminase IgG Result <3.0 (less than 6.0 is negative)

Transglutaminase IgA Result <3.0 (less than 4.0 is negative)

Endomysial Ab (IgA) only says Negative. No reference numbers.

Gliadin (Deamidated) IgG Result 4 Reference Range <20 Antibody Not Detected

Gliadin (Deamidated) IgA Result 4 Reference Range <20 Antibody Not Detected

So it looks like they are all negative. Still waiting on the Endoscopy results.

I know mono can trigger Celiac Disease -- but can it/would it just trigger a gluten intolerance? That seems so odd to me.

jwblue Apprentice
jwblue
Posted

What the heck is the point of a blood test if the doctor still recommends an endo?

Waste of money.

GottaSki Mentor
GottaSki
Posted

What the heck is the point of a blood test if the doctor still recommends an endo?

Waste of money.

Celiac Disease can be very difficult to diagnose. Until we have alternatives, we must utilize the mechanisms currently available - this often necessitates using:

Blood Work

Endoscopic Pathology

Dietary Response

Genetic Testing

IMO the waste occurs when doctors don't suspect or test for Celiac Disease - the years of health I and others have lost to misdiagnosis and undiagnosed Celiac are far more costly than these tests.

GottaSki Mentor
GottaSki
Posted

So it looks like they are all negative. Still waiting on the Endoscopy results.

I know mono can trigger Celiac Disease -- but can it/would it just trigger a gluten intolerance? That seems so odd to me.

They are negative - technically a very good thing - but frustrating none the less.

The unknown factors in Celiac Disease and NCGI are incredibly frustrating. So much remains unknown about celiac disease and next to nothing has been studied thoroughly in NCGI.

I remain hopeful your endo pathology will provide a firm diagnosis, but if it doesn't it is possible that you either have Celiac and were fortunate to catch it before damage can be measured OR you have NCGI.

I know this doesn't help much with the frustration factor :unsure:

jwblue Apprentice
jwblue
Posted

Celiac Disease can be very difficult to diagnose. Until we have alternatives, we must utilize the mechanisms currently available - this often necessitates using:

Blood Work

Endoscopic Pathology

Dietary Response

Genetic Testing

IMO the waste occurs when doctors don't suspect or test for Celiac Disease - the years of health I and others have lost to misdiagnosis and undiagnosed Celiac are far more costly than these tests.

Most doctors are inherently incompetent.

GottaSki Mentor
GottaSki
Posted

Most doctors are inherently incompetent.

In my experience - the training and experience of doctors is incomplete with regard to Celiac Disease.

I - along with members of my family and several friends owe our lives to very competent doctors.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to DayaInTheSun's topic in Coping with Celiac Disease
      12

      Being a burden to family/friends

      It might be understandable to say "friends or family weeded me or you out of their lives". Some people are fearful of getting out of their comfortable known lives and having to make changes to accommodate another. If they are too uncomfortable to walk a mile with me, I shake the dust off my feet and journey on. They're just not ready to learn that lesson...
    2. Celiacandme
      - Celiacandme replied to Kwinkle's topic in Coping with Celiac Disease
      4

      I’m so confused…

      You might also be sensitive to other things while you are healing. Dairy, for example. It won't harm you from a celiac standpoint but is inflammatory and could be bothering you. Have you been keeping a food & symptom journal? Might be worth it for a week to see if you notice something you are eating prior to the times you feel your worst. I hope you start...
    3. lmemsm
      - lmemsm replied to jasoncrest's topic in Gluten-Free Recipes & Cooking Tips
      4

      Recipe Apps?

      Someone recently recommended Superfoods for looking up recipes free of allergens or intolerances. It's a web site but there's also an app.
    4. lmemsm
      - lmemsm posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      food app

      Open Food Facts is a free food database: https://world.openfoodfacts.org/discover There's an app to access it which is also free (with no in app commercials). You can use it to look up information about foods such as ingredients, Nova score (to help avoid ultra processed foods), environmental impact and nutritional scores, allergy related information and...
    5. lmemsm
      - lmemsm replied to trsprecker's topic in Coping with Celiac Disease
      5

      OTC pain reliever that are gluten-free and corn free??

      You could try white willow bark, but make sure it's in a safe dosage range. Herbs aren't regulated the way prescriptions are. White willow bark works a lot like aspirin but is often milder on the stomach. I used to use Nature's Way white willow bark. I was told it was corn free at that time. Double check with the manufacturer to make sure it's free of...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,277
    • Most Online (within 30 mins)
      7,748
    Catdog
    Newest Member
    Catdog
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.1k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      Being a burden to family/friends

      By knitty kitty · Posted

      It might be understandable to say "friends or family weeded me or you out of their lives". Some people are fearful of getting out of their comfortable known lives and having to make changes to accommodate another.   If they are too uncomfortable to walk a mile with me, I shake the dust off my feet and journey on.  They're just not ready to learn that lesson.  But you confidently keep going on your journey.  They can catch up later.  
    • Celiacandme
      I’m so confused…

      By Celiacandme · Posted

      You might also be sensitive to other things while you are healing. Dairy, for example. It won't harm you from a celiac standpoint but is inflammatory and could be bothering you. Have you been keeping a food & symptom journal? Might be worth it for a week to see if you notice something you are eating prior to the times you feel your worst. I hope you start feeling better soon. 
    • lmemsm
      Recipe Apps?

      By lmemsm · Posted

      Someone recently recommended Superfoods for looking up recipes free of allergens or intolerances.  It's a web site but there's also an app.
    • lmemsm
      food app

      By lmemsm · Posted

      Open Food Facts is a free food database: https://world.openfoodfacts.org/discover  There's an app to access it which is also free (with no in app commercials).   You can use it to look up information about foods such as ingredients, Nova score (to help avoid ultra processed foods), environmental impact and nutritional scores, allergy related information and more.  It can scan a product's barcodes and bring up relevant information about that product.  The project relies on volunteers to share information about products.  We can add information on our favorite gluten free products to share with each other.  It has several gluten free items in the database already:  https://world.openfoodfacts.org/cgi/search.pl?search_terms=gluten+free&search_simple=1&action=process  I think it could make a great tool for people with celiac. 
    • lmemsm
      OTC pain reliever that are gluten-free and corn free??

      By lmemsm · Posted

      You could try white willow bark, but make sure it's in a safe dosage range.  Herbs aren't regulated the way prescriptions are.  White willow bark works a lot like aspirin but is often milder on the stomach.  I used to use Nature's Way white willow bark.  I was told it was corn free at that time.  Double check with the manufacturer to make sure it's free of any of any allergens you're concerned with.
×
×
  • Create New...