Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Under The Age Of 25?

inducedjoy

By inducedjoy
in Meet Up Room

Recommended Posts

inducedjoy Newbie
inducedjoy
Posted

Hi all!

I've noticed that most people on this forum are well over the 25 age mark, but I'm curious to see if there are any younger people on the forum. I'm only 19, and although I find the advice and friendliness of all users to be extremely helpful and welcoming, I would like to talk to someone my own age who is going through this. Someone who knows what it's like to miss school because of celiac issues, or who understand how hard it is to explain your special diet to a potential boyfriend or new friends who weren't there during your diagnosis. Perhaps someone who hasn't dealt with being gluten free for 20+ years or who doesn't have a houseful of kids to feed, because I just can't relate to scenarios like that.

SO! If you're a pretty young person on the forums, let's talk! I've never met anyone my own age with celiac disease, and I'm curious to see how others have dealt with it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


luvrdeo Apprentice
luvrdeo
Posted

I'm a few years past 25 (not quite 30 lol), but can 100% relate to what you're going through! I've gone mis-diagnosed since high school, where I repeatedly got sent home for "anxiety attacks" which I now suspect were the beginning stages of celiac. I just got diagnosed 2 months ago, and on Monday got dairy, grains, and corn taken away on top of the gluten. There is nothing easy about this! Luckily for me, one of my best friends is also celiac, so I've had someone who's brain I could pick. The rest of the time, I try to relate on here...and like you, sometimes certain scenarios just don't fit my life at all!

shadowicewolf Proficient
shadowicewolf
Posted

I'm 22 if that helps any.

But, yep, it stinks when doctors and who have you don't listen to ya.

lisasanner22 Newbie
lisasanner22
Posted

Age 17. ive been gluten-free for 5 years and i know what you mean by missing school and trying to tell your boyfriend or anyone for that matter that you cant eat this or that.. it really gets annoying after a while. you want people to understand but they dont.. i figured the best thing is to explain it like an allergy. and to be honest i told my boyfriend before i even started to date him that i was gluten free and he asked about it and it was hard to explain it to him because its like how do you explain so much to them in so little time. like to start with and that was hard, but i was glad i told him first that way i new later on that hes not leaving me for someone else because of celiac. and with missing school it happens at first and there is nothing you can do because you feel like crap or your throughing up or something. but the longer your on the gluten-free diet you realize that you dont really get sick anymore. in the past 3 and 1/2 to 4 years i havnt missed a day of school and thats because i totally live a gluten free diet and once my body got adjusted and is getting the nutrients now. my body is "back to normal" yes there will be changes but its life. and i hope this helped. but going to pray the best for you, if thats okay. i know that has helped me with so much!! Lisa <3

Hi all!

I've noticed that most people on this forum are well over the 25 age mark, but I'm curious to see if there are any younger people on the forum. I'm only 19, and although I find the advice and friendliness of all users to be extremely helpful and welcoming, I would like to talk to someone my own age who is going through this. Someone who knows what it's like to miss school because of celiac issues, or who understand how hard it is to explain your special diet to a potential boyfriend or new friends who weren't there during your diagnosis. Perhaps someone who hasn't dealt with being gluten free for 20+ years or who doesn't have a houseful of kids to feed, because I just can't relate to scenarios like that.

SO! If you're a pretty young person on the forums, let's talk! I've never met anyone my own age with celiac disease, and I'm curious to see how others have dealt with it.

hottati Newbie
hottati
Posted

Hey!

I am also 19 and have never met anyone else with Celiac. I have only been diagnosed for about a year and a half now and it is definitely a challenge when trying to go out to eat with friends (or like you said explaining to potential boyfriends). It would definitely be nice to have someone who understands to talk to.

inducedjoy Newbie
inducedjoy
Posted
  • Author

If anyone wants to talk, my email is aviola93@gmail.com. Shoot me a message and maybe we can chat on fb!

  • 2 weeks later...
hagermeister11 Newbie
hagermeister11
Posted

Newly diagnosed here. 21 years old. After years of all kinds of issues, I finally went in for testing last week. I really didn't know what I would be getting myself into with changing my diet so drastically, but honestly, it isn't as bad as I figured it would be. I understand I'm still rather fresh on the change, but I do feel a bit better already. I'm sleeping better, I have more energy, no more headaches, and my outlook on life is back to where it used to be. I'm excited to keep up the changes and see how much better I feel after a few months.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AshBil Rookie
AshBil
Posted

Hey there! I'm 20 and was just diagnosed two weeks ago exactly. It only took over 3 months for them to figure out why I was constantly nauseous and bloated. That nausea will be the death of me. It still likes to pop up on me and destroy my whole night even when I'm eating something I know is positively gluten free. But, I've only been gluten free for two weeks so I gotta give it some time. I was lucky enough to already be with my boyfriend for four months when this all started. He went with me to every appointment and every trip to the ER thinking I had appendicits or a heart attack (started having terrible chest pains with a racing heart, tingling and numbness in my right hand and foot and vomiting). So I didn't have to explain much to him since he was always there. And now we're at 8 months together and he helps me look at labels and do research. He's the greatest. I had an edoscopy and blood tests done all in September. Blood tests were actully normal except for one that he said wasn't always accurate but the biopsy from the endoscopy showed signs of it plus I have the gene for it too. So I'm still in my beginning stages here but I'm hopeful that I'll feel better soon because I'm not feeling much different with the constant nausea. It's be great to talk to someone my age with this considering the only person I know who does have it is my mom's best friend since elementary school!

  • 1 year later...
Hobbes Rookie
Hobbes
Posted

Hi all!

I've noticed that most people on this forum are well over the 25 age mark, but I'm curious to see if there are any younger people on the forum. I'm only 19, and although I find the advice and friendliness of all users to be extremely helpful and welcoming, I would like to talk to someone my own age who is going through this. Someone who knows what it's like to miss school because of celiac issues, or who understand how hard it is to explain your special diet to a potential boyfriend or new friends who weren't there during your diagnosis. Perhaps someone who hasn't dealt with being gluten free for 20+ years or who doesn't have a houseful of kids to feed, because I just can't relate to scenarios like that.

SO! If you're a pretty young person on the forums, let's talk! I've never met anyone my own age with celiac disease, and I'm curious to see how others have dealt with it.

 

I can definitely relate to how you feel. I've never met anyone my own age (or any age!) who has celiac. I'm pretty fortunate though because my girlfriend is very understanding, and won't even touch anything with gluten. I'm 20 btw, working as an intern at 2 different places this summer and it's been quite the challenge so far.  

  • 11 months later...
pghkid33 Rookie
pghkid33
Posted

Hi all!

I've noticed that most people on this forum are well over the 25 age mark, but I'm curious to see if there are any younger people on the forum. I'm only 19, and although I find the advice and friendliness of all users to be extremely helpful and welcoming, I would like to talk to someone my own age who is going through this. Someone who knows what it's like to miss school because of celiac issues, or who understand how hard it is to explain your special diet to a potential boyfriend or new friends who weren't there during your diagnosis. Perhaps someone who hasn't dealt with being gluten free for 20+ years or who doesn't have a houseful of kids to feed, because I just can't relate to scenarios like that.

SO! If you're a pretty young person on the forums, let's talk! I've never met anyone my own age with celiac disease, and I'm curious to see how others have dealt with it.

Not sure if you'll read this, but I'm 23 and I'm kind of in the same boat. I have a few friends that have Celiac, but they're not super close to me (both in terms of friendship and proximity) so we don't really talk to much. I'd love to have someone else to talk to, other than damn doctors or nutritionists haha. I know what it's like to miss school, or work, or social gatherings (it sucks). I'm on here a good bit, feel free to shoot me a msg

  • 3 weeks later...
MissMusician Newbie
MissMusician
Posted

Hey InducedJoy!

I completely understand what you're going through. 20yo F and my two celiac family members are the only celiacs I know in real life (but one family member lives an hour away and the other doesn't get symptoms so she doesn't take it seriously, while I am super sensitive). It's been almost a year since my celiac diagnosis and I've been gluten free/dairy free ever since, but still getting sick. Missing class because of symptoms is such a pain, not to mention having to miss social events too. Don't even get me started on dating! If you need someone to talk to, feel free to message me! Good luck with everything!  :)

  • 5 months later...
MissL101 Newbie
MissL101
Posted

Hey! I'm Lisa Marie and I'm about to turn 22.

I'm still in the pre-stages of being actually diagnosed but since I went gluten free I'm feeling better. This stinks since now I have to be conscious about the places my friends want to go. Plus side: Gluten free cookies from publix = the bomb.com

  • 10 months later...
katesyl Apprentice
katesyl
Posted
On October 10, 2012 at 11:14 AM, inducedjoy said:

SO! If you're a pretty young person on the forums, let's talk! I've never met anyone my own age with celiac disease, and I'm curious to see how others have dealt with it.

I am twenty-five now. I was diagnosed at age twenty-two. 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,565
    • Most Online (within 30 mins)
      7,748
    StephanieNewcomb-A
    Newest Member
    StephanieNewcomb-A
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • TerryinCO
      New Guy Here...

      By TerryinCO · Posted

      They've not made that call at this point. They say it looks more like Celiac's than common variable immune deficiency.  They say to get a positive diagnosis another endoscopy is needed after I've been on gluten-free diet awhile.  So, waiting for more input from Docs'.
    • Tazzy11
      Pathology results - coeliac positive?

      By Tazzy11 · Posted

      Hi All! I recieved some coeliac serology test results but I am yet to see my g.p can anyone please confirm what these numbers mean?? Tissue transglutaminase IgA - 3 units (<20) Deamidated Gliadin Peptide IgG - 26H units (<20)   My IgG is high, does this mean it is positive?   
    • cristiana
      Getting rid of the belly bloat

      By cristiana · Posted

      Karen, welcome to the forum. Another thing to add:  Belly bloat can persist if you are lactose intolerant, a situation caused by coeliac disease or it can simply be a stand alone condition.  In the case of coeliac disease, it could be your damaged gut cannot break down lactose efficiently but, in time, once the gut heals, your lactose intolerance and bloating should improve.  You might also find it helpful to stay clear of certain high fibre foods for a while, perhaps keeping a food diary to see if any are causing you to bloat a lot or give you stomach pain.  Lentils and soya were an issue for me in the short term, while I was recovering.  Also, are you taking iron - that can really hurt your belly and in my case it added to the bloating. The other point I wanted to make is has your doctor looked into any other reasons for your belly bloat.? There are a number of other gastric conditions that can result in a bloated belly.  A blood test and an ultrasound to check for possible gynaecological issues could also be something to speak to your GP about. It took me a few months for my bloating to subside, but the journey which involved a few tests along the way to ensure nothing else was was worth it.   Cristiana
    • badastronaut
      Still unsure.....

      By badastronaut · Posted

      Thanks very much for the in depth reply!!! I'll discuss it with my doctor next week!
    • knitty kitty
      Still unsure.....

      By knitty kitty · Posted

      Hello, @badastronaut, I reread your last post on your previous thread... "Had some new bloodworks and an echo done because I still have problems with my stomach. According to my latest bloodworks I'm still negative for celiac and still low on zinc (even after supplementing it for quite a long time), I'm low on folic acid now too and my bilirubin is quite high (2,5 and 0,6). My ALT is also slightly elevated. I have been doing a gluten free diet quite strict although I did eat some gluten in the previous weeks.  "Could my blood result be this way because of gluten sensitivity and me being not strict enough? My echo showed no problems with my liver or pancreas. My bile ducts were fine too (although I don't have a gallbladder anymore).  "What to do??? Could this be gluten related?"   Your bilirubin is high.  The liver breaks down bilirubin.  The liver needs Thiamine to break down bilirubin.  Without sufficient Thiamine, bilirubin is not broken down and escapes into the bloodstream. High levels of bilirubin suppress the immune system.  High levels of bilirubin suppress the production of white blood cells, including anti-gluten antibodies.  The suppression of your immune system by high bilirubin could be the explanation for false negative Celiac antibody testing.  Thiamine is needed for antibody production.  Thiamine deficiency can cause false negatives on Celiac antibody tests.  If you are not making a lot of antibodies, you won't have much damage to the small intestine.   Your ALT is high.  The liver produces ALT.  When the liver does not have sufficient Thiamine, the liver produces more ALT that escapes into the bloodstream.  Elevated ALT is seen in thiamine deficiency. Your Lipase is high.  Lipase is produced in the liver and pancreas.  More Lipase is released by both in thiamine deficiency. Your gallbladder has been removed.  Gallbladder dysfunction is common in thiamine deficiency. Your Zinc is low.  Zinc absorption is enhanced when Thiamine is present.  Zinc is not absorbed well in thiamine deficiency. Your Folate is low.  Celiac Disease causes malabsorption of all the essential nutrients we need for health, the eight B vitamins, including Thiamine, the four fat soluble vitamin, Vitamin C and minerals like Zinc and Magnesium.  Thiamine stores can be depleted in as little as three weeks or even as quickly as three days.  Thiamine deficiency symptoms can wax and wane depending on how much thiamine is consumed that day.   If a high carbohydrate is eaten regularly, additional Thiamine is needed (500 mg per 1000 calories). Anxiety and depression are symptoms of thiamine insufficiency.  The brain just thinking  uses as much thiamine as muscles do when running a marathon.   I have had thiamine deficiency symptoms like you are experiencing.  My doctors did not recognize the symptoms of thiamine deficiency.  They just prescribed pharmaceuticals to cover up the symptoms which only made things worse.  I had a lot of nutritional deficiencies.  I ended up getting a DNA test to check for known genes for Celiac.  I have two Celiac genes.   Have you had a DNA test for Celiac genes?   I took Benfotiamine, a form of thiamine that promotes intestinal healing, and a B Complex to correct my deficiencies.   High doses of thiamine need to be taken to correct deficiency.  Talk to your doctor about administering thiamine intravenously.  Thiamine is safe and nontoxic even in high doses.  Thiamine is easily excreted in urine if not needed.  Improvement of symptoms should be seen within a few hours to a few days.  No harm in trying.  Process of elimination, etc.   Talk to your doctor and nutritionist.  Testing for nutritional deficiencies should be done before taking vitamin supplements, otherwise the vitamin supplements already taken will be measured.   I hope this helps you on your journey. References: https://pmc.ncbi.nlm.nih.gov/articles/PMC8451766/ https://pmc.ncbi.nlm.nih.gov/articles/PMC6662249/#:~:text=CONCLUSION%3A,in men than in women. https://pubmed.ncbi.nlm.nih.gov/24923275/ https://pmc.ncbi.nlm.nih.gov/articles/PMC6040496/ https://pmc.ncbi.nlm.nih.gov/articles/PMC3772304/#:~:text=Based on the patient's history,were also no longer present. https://pmc.ncbi.nlm.nih.gov/articles/PMC10682628/#:~:text=Benfotiamine (Fig.,]%2C [62]].  
×
×
  • Create New...