How To Convince Dr To Test 21/2 Year Old

[Sheloveshim]

Hi I have some concerns with my older son who is 2 1/2 he was born a healthy 10lb baby and was breastfeed strictly for the first year with some solids and he is still breastfeeding about 3 + times a day with meals and snacks. When he was about a year or so I noticed a rash when he ate anything with dairy but it took a while for me to connect it to dairy. When he was breastfeeding I could not eat anything with it caused him green frothy diapers gas and over all fussiness. He was up until a few months ago could tolerate cheese and now his bottom breaks out in hives with a raw bleeding rash. My ped ( we are navy and don't see te same one all the time) but I took him to the dr asked for a allergy test for milk the dr said he isn't reacting to milk and just have him drink soy. Um no honestly I don't really care if he drinks milk he doesn't seem to like it anyways but with no cheese now I want to know what I can and can't give him.

I also asked for a test for celiac because he almost fell off the growth curb on dr said he was pushing failure to thrive at 6 months, he hasn't gained only a pound in 6 months, his behavior is crazy sometimes ( don't know if it's because he is 2) he goes in his diaper 3+ times days large amounts which looks like food is still whole, horrible gas smells like stomach acid, getting a few gray hairs, enamel on his back teeth soft (had two caps pit on) sleep issues, bruises easy,

Now the dr printed out a sheet that said sympotoms for celiac which were irritable, failure to thrive, and something else basically tOld me that he doesn't have any issues and to stop worrying. I also told him that I was tested for celiac and the dr said I was not negative and he looked at my results and said no your negative and started talking to me about if he had a true allergy to ANYTHING he would show big symptoms I don't know what to do I left feeling like a crazy person and I know there is something wrong but I can't seem to make him or any Drs understand. The dr also said I would be wasting insurance money on being referred to a allergist . I don't want my son to suffer or worse think these problems are normal I know I can just take him off dairy and gluten but having someone a dr say he is allergic or sick that way everyone in the family knows (his grandmother when we visit likes to give him cheese and dairy even when I tell her no) I also show her the rash he has from it and she sees him screaming in pain and can't sit and all she stupidly says to me is oh that cnt be from dairy it must be from him still breastfeeding

I just need some advise or help or anything I feel in my gut my baby is sick

Thank you for reading and the help sorry this is all over the place

[MitziG]

You need to be firm and call the shots. Insist on a celiac test for your son, he is very symptomatic. If your ped still refuses, find a new one. Chances are, if you stick to your guns, he will give in.

If the tests are negative (which is commmon in toddlers) then try the gluten diet. I bet you will see results.

[tarnalberry]

I'm sorry you have a moron for a doctor there.

The soft enamel, undigested food, abdominal pain, and easy bruising are all STRONG celiac warning signs. I suggest one of three things:

1) Go back in, say "Undigested food, abdominal pain, easy bruising from anemia, lack of weight gain, and soft tooth enamel are all very strong signs for celiac disease. Stop being a egotistical moron, order the tests, and do your homework." (Literally. I would be a gigantic pain in the ass and make it clear that I was not going to play the "doctor knows best" game in this case.)

2) Find a doctor, knowing you will pay out of pocket, that you like (very possibly not military). Ask for the test. This may be expensive.

3) Take your son gluten free for a while and see what the results are. Yes, this may make getting a definitive diagnosis nearly impossible, but may get you the only answer you'll get from the system you're in.

[frieze]

I'm sorry you have a moron for a doctor there.

The soft enamel, undigested food, abdominal pain, and easy bruising are all STRONG celiac warning signs. I suggest one of three things:

1) Go back in, say "Undigested food, abdominal pain, easy bruising from anemia, lack of weight gain, and soft tooth enamel are all very strong signs for celiac disease. Stop being a egotistical moron, order the tests, and do your homework." (Literally. I would be a gigantic pain in the ass and make it clear that I was not going to play the "doctor knows best" game in this case.)

2) Find a doctor, knowing you will pay out of pocket, that you like (very possibly not military). Ask for the test. This may be expensive.

3) Take your son gluten free for a while and see what the results are. Yes, this may make getting a definitive diagnosis nearly impossible, but may get you the only answer you'll get from the system you're in.

......and, referring back to OP, what monumental idiot blames a rash on his butt on BREAST FEEDING?

[tarnalberry]

......and, referring back to OP, what monumental idiot blames a rash on his butt on BREAST FEEDING?

So many doctors (including pediatricians) have absolutely no clue when it comes to breastfeeding (they get all of a day of training on it in med school, is my understanding) and even less about extended breastfeeding. It's horrid.

[Sheloveshim]

Thank you everyone for the help I am calling Monday for a apt. I know I need to be more forceful about testing,but for some reason I didn't know I could just ask for a second opinion or a different dr now I do. Also dealing with Tricare and military Drs isn't the greatest experience we had to switch his primary when he was 6 months old because the dr said he was failure to thrive and told me to pump and add rice to it to fatten him up. I thought he was crazy and asked him if maybe I could do something since I felt it was my milk and flat out told me that I just wanted to nurse to feel better about myself so I left went to the lactation consultant down the hall who was a wonderful lady helped me so much and we changed Drs. My faith in most of them is not the greatest also I know they see so many children.

[Boys mom]

I am still in the process of diagnosing my sons but I related to EVERYTHING you wrote from breastfeeding/milk intolerant newborn to current behavior problems in a 2+ year old. (I know how exhausted you are...and my husband doesn't deploy! Hats off to you!!) I'm sure your gut instinct is razor sharp and you are such a good mom for not settling for the first answer you received and continuing to advocate for your child. BULLDOZE through tricare if you have to---you may need a referral to a pediatric GI specialist for the right help. Continue to advocate as loudly as you can. We are prior military, so I highly suggest you continue to push for the right diagnosis for your son (before you just take him off of wheat to test if it helps his symptoms) as there will be financial support through tricare for whatever the solution you find actually is. For instance, my son's diet is supplemented with Neocate Splash (a fortified juice) and tricare does reimburse the cost of some of this with the right diagnosis/documentation. Hang in there and GOOD JOB MAMA!!!!!!