Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Pretty Sure I Glutenized (?) My Son...


prairiemamma

Recommended Posts

prairiemamma Apprentice

I don't know where it would of come from, but I'm pretty sure I fed him gluten somewhere. Yesterday evening he was complaining his tummy hurt followed by nasty poops before bed. This morning, still pooping...

His food for the day:

Breakfast - leaping lemurs

Snack - oj, banana, gluten-free cookie

Lunch - sandwich made from homemade brown rice bread, gluten-free sandwich meat, cheese slice.

Snack - apples

Supper - gluten-free sausage, carrots, minute rice make with gluten-free chicken stock and gluten-free soya sauce

The only place I can think of is the bread I made (which was a flop btw, but he liked it so who am I to judge) or the minute rice. Crap!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

I know it's tough - but try not to be hard on yourself. The reality is this will happen again and you may never figure out what causes each reaction. All you can do is try each day to limit the possibility of exposure.

It is possible he is becoming more sensitive to cross contamination, but I wouldn't jump to the bread. Just make sure the bread pan has no scratches and was cleaned well before baking gluten-free bread.

Sometimes the healing gut will react to something other than gluten. Was this the first time he had the either the cereal, gluten-free cookie or the gluten free sausage? Even gluten-free processed foods can be hard on his healing system.

Playing detective during the first months is tough - period.

Hang in there :)

kareng Grand Master

Could have nothing to do with gluten at all! Maybe he was a bit constipated and had a lot that needed to come out? Could be a bit of a stomach bug, could be another food he ate, could be the grass he ate when you weren't looking in the backyard.... You get the idea. You may never know what bothered him. Doesn't make it your fault.

Just noticed; What was he drinking? Maybe it bothered him, even unrelated to gluten?

prairiemamma Apprentice

I know it's tough - but try not to be hard on yourself. The reality is this will happen again and you may never figure out what causes each reaction. All you can do is try each day to limit the possibility of exposure.

It is possible he is becoming more sensitive to cross contamination, but I wouldn't jump to the bread. Just make sure the bread pan has no scratches and was cleaned well before baking gluten-free bread.

Sometimes the healing gut will react to something other than gluten. Was this the first time he had the either the cereal, gluten-free cookie or the gluten free sausage? Even gluten-free processed foods can be hard on his healing system.

Playing detective during the first months is tough - period.

Hang in there :)

Nope, he's had all those products at least once since his dx. All I can think of is the bread. I made it in the bread machine. I made sure to wash it well,but in all reality, it is old. It was a hand me down from my mom, but I thought it was safe. Or even maybe an ingredient in the bread. I'll have to go back and look again

bartfull Rising Star

Might be the dairy in the cheese or the soy. Many of us react to these things. With me, the first few weeks I was fine with corn for example, and then three weeks in I started to react to it, so even if he was fine with dairy and soy at first, he might be reacting to them now.

prairiemamma Apprentice

Good gosh, I hope it isn't the dairy! Much of the kids diet is dairy based. He drinks a lot of milk. I don't buy juice...ever. Except for pure orange on a rare occasion or for PreK.

shadowicewolf Proficient

I say it was the bread machine, especially if he's had dairy and whatnot before. Been there done that and got a post card from CC from a bread machine -_-


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Richardo's topic in Dermatitis Herpetiformis
      3

      dermatitis herpetiformis with all grains

    2. - Richardo replied to Richardo's topic in Dermatitis Herpetiformis
      3

      dermatitis herpetiformis with all grains

    3. - trents replied to Richardo's topic in Dermatitis Herpetiformis
      3

      dermatitis herpetiformis with all grains

    4. - Richardo posted a topic in Dermatitis Herpetiformis
      3

      dermatitis herpetiformis with all grains

    5. - trents replied to Tarp's topic in Related Issues & Disorders
      6

      Celiac related issues


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,330
    • Most Online (within 30 mins)
      7,748

    MandyPandy
    Newest Member
    MandyPandy
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.1k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      We are all different and our immune systems are unique. I will say, however, that I have not gotten the impression as a moderator and reading hundreds and hundreds of posts on this forum over the years that a dermatitis herpetiformis outbreak caused by grains other than wheat, barley and rye is common. But perhaps it is more common than we have realized and it could be why it it is seems to be common that those who suffer from dermatitis herpetiformis struggle to keep it under control. Perhaps there are qualities found in all cereal grains besides gluten that are contributing factors. Also, have you tried a low iodine diet to see if it helps with your dermatitis herpetiformis? Reportedly, reducing iodine helps some folks afflicted with dermatitis herpetiformis.
    • Richardo
      Ok thanks Trents. I had the lesions biopsied and confirmed dermatitis herpetiformis, so I guess dermatitis herpetiformis can be associated with other grains not typically gluten. I appreciate your comment and I'll give Dr Osborne the benefit of the doubt because without him I would never have known of my grain intolerance and would still be suffering today. I simply never read anyone explain how grains could worsen dermatitis herpetiformis and I feel that information should be made much more readily available. Hey if someone tries going grain free and there's no improvement, no loss, however it drastically changed my life for the better and could at least be offered as a suggestion to sufferers from dermatitis herpetiformis. The other option is Dapsome and I wouldn't want anyone taking that chemical if there was a more natural solution. thanks again 
    • trents
      Welcome to the forum, @Richardo! We sometimes run across terms like "rice gluten", "corn gluten", and "oat gluten" but they are used informally and, technically, it is incorrect to speak of grains other than wheat, barley and rye as having gluten. Gluten is a protein with a specific structure found only in wheat, barley and rye. Other cereal grains contain proteins that are more or less similar in structure to gluten in some ways but are not actually gluten. Having said that, the proteins found in these other cereal grains are similar enough to gluten to possibly cause cross reactivity in some celiacs. Cross reactivity also happens with non cereal grain foods as well that have a protein structure similar to gluten. A prime example is dairy (the protein "casein"). Another example may be soy. Other foods can also cause cross reactivity for different reasons, such as microbial transglutaminase (aka, "meat glue") used commonly in pressed meat products. Just so you'll know, Dr. Osborne's claims have not received wide acceptance in the celiac community and are looked upon with skepticism by the medical and scientific community. Although he is a board certified nutritionist, his doctorates are actually in chiropractic medicine and pastoral science: https://www.drpeterosborne.com/about/dr-peter-osborne/ I am not sure Osborne has the training and background to address the chemical structure that defines gluten. I would encourage you to do some research on what gluten actually is. I have done this for myself and came away convinced that only wheat, barely and rye actually contain the protein gluten. I do not doubt your claims that you have breakouts of dermatitis herpetiformis from consuming these other grains. I am just contending it is not actually from gluten.
    • Richardo
      I was diagnosed celiac about 15 years ago and followed the usual diet restriction on Wheat, barley and rye and did very well on those restrictions with no problems with dermatitis herpetiformis. 4 years ago I started getting bad rashes on my knees and calves, buttocks, around my waist and my elbows and forearms and hands. It seemed to last about 11/2 to 2 months then clear up for a month and come back  again. I never changed anything in my diet and a dermatologist told me I  must getting  cross contamination, which I knew I wasn't.  Finally after struggling with it all that time, I watched a video by Dr Osborne who sited a study done in England showing that ALL grains (rice, corn etc) contain gluten. I went on a totally grain free diet and have now been 100 percent free of dermatitis herpetiformis for over a year. I tried a test and ate corn flour and it started to come back so I'm off all grains again. Long story I know, but my question is, why is practically EVERY celiac site private or Govt only mentioning the BIG 3 and never mentions other grains as a possible means of contamination? I am free  from a horribly uncomfortable condition now and I know there are others who would be encouraged by this.
    • trents
      Your chest pain could be related to the Sarcoidosis. "When it affects the lungs, wheezing, coughing, shortness of breath, or chest pain may occur." https://en.wikipedia.org/wiki/Sarcoidosis   The bowel incontinence could be caused by surgical damage (or scar tissue) to the cauda equina nerve bundle in the lumbar area of the spine. Or, it could be related to unintentional gluten exposure.
×
×
  • Create New...