Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hematuria & Gluten Intolerance?


Janice1014

Recommended Posts

Janice1014 Newbie

Hi,

Just diagnosed myself as wheat/gluten intolerant during the past 8 mos, so I am new to this whole thing. I am struggling sometimes to figure out what I can eat. Recently went for a physical as part of a DOT requirement (Dept of Transportation) for my CDL license. Found out I have trace amounts of blood in my urine and so far the medical community can't figure out why. Has anyone ever had a correlation between celiac disease/wheat intolerance to this symptom? My health has not changed otherwise so I can't figure out why it would appear now. Oh by the way, I am non-typical in that my symptoms of wheat/gluten is that of difficulty breathing -- no intestinal upset. Any info would help. Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skysmom03 Newbie

I would not self diagnose. Sounds like something other than celiac. You could be doing more harm to yourself by not having more invasive testing done. Has your GP not recommended that? Just my opinion, but that's what I would do. Celiac is quite serious and even if you do have it and are"treating" it right now, you could have some other issues related to having the celiac for an unknown amount of time.

my3monkees Rookie

Hi,

Just diagnosed myself as wheat/gluten intolerant during the past 8 mos, so I am new to this whole thing. I am struggling sometimes to figure out what I can eat. Recently went for a physical as part of a DOT requirement (Dept of Transportation) for my CDL license. Found out I have trace amounts of blood in my urine and so far the medical community can't figure out why. Has anyone ever had a correlation between celiac disease/wheat intolerance to this symptom? My health has not changed otherwise so I can't figure out why it would appear now. Oh by the way, I am non-typical in that my symptoms of wheat/gluten is that of difficulty breathing -- no intestinal upset. Any info would help. Thanks.

Some people do seem to have issues with the urinary tract that is related to Celiac. I am actually trialing gluten free, to see if I can clear up the same problem. I always have trace blood in my urine and abnormal cells. They tell me the cells are probably due to inflammation somewhere. Celiac can cause inflammation. I was thoroughly checked, to make sure that it was nothing else. Urologist has run all kinds of test, but can find no answers. I have been told that some people just have the microscopic blood, and as long as everything else is fine, not to worry about it. I will be curious to see if gluten free helps. I do know that my knees feel great, I can bend them completely. I was able to climb on a chair using my left leg to push off with the other day. My knees haven't been strong enough to do that in a very long time! So I apparently had inflammation in my knees, that I didn't even know I had. I just attributed it to age and weight! HTH

Judyin Philly Enthusiast

I have always had blood in urine too

New urologist just gave me new DX of IC

Anyone have some info on that for me?

  • 4 weeks later...
jelizmay Newbie

Hi,

I'm new here. I've had microscopic amount of blood in my urine all my life - couldn't figure it out. After years of testing and anoying UTIs etc, I was diagnosed with interstacial cystitis.

About 4 years ago I started having a huge amount of stomach issues, plus sinus problems. Also, at the time, I believe I was having a lot of pasta. I was always sick and tired.

About 2 years ago, I started getting these sinus "headaches" that a neuro diagnosed as migraines. But I'm not so sure they are.

My stomach is better except I always tend to be bloated.

My doc tested for celiac bec. my Vit D level was low and I had no energy. It came back negative.

But I'm wondering if I do have a gluten sensitivity.

I went to a chriropractor, which is a little out of my comfort zone and he suggested a food test - which I'm not sure why he wanted to do it. Anyway, the results said I have an issue with dairy, wheat, yeast, eggs.

(1) I don't know if this test is valid and (2) I'm wondering if I do have a gluten sensitivity.

I don't know where to start, I just want these sinus headaches to go away.

Has anyone had similar to above, particularly with sinus issues?

Also, my B12 was extremely high, 2000, and I have no odea why.

I'm scared. I'm 41 and feel like I'm 90.

Thanks.

Jill

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,243
    • Most Online (within 30 mins)
      7,748

    Hurtfeelingz
    Newest Member
    Hurtfeelingz
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Thanks for sharing this! Here is more info about those cookies: https://partakefoods.com/collections/cookies 
    • Scott Adams
      According to their site: https://shop.hersheys.com/our-brands/reeses/034000943265.html
    • Scott Adams
      The positive Anti-deamidated Gliadin IgA result (12 U/ml) suggests possible celiac disease, but it is not definitive on its own, as this marker can also be elevated in other conditions or even in non-coeliac gluten sensitivity (NCGS). Do you know if they also ran a tTg-Iga test? This is the definitive test for celiac disease. The absence of classical symptoms like significant bloating or pain upon gluten reintroduction, along with your history of IBS and sensitivity to legumes, complicates the picture (legumes can be cross-contaminated with wheat). While celiac disease remains a possibility, other conditions like NCGS, leaky gut, or additional food intolerances could also explain your symptoms. A biopsy would provide more conclusive evidence for celiac disease, but for that you need to be eating lots of gluten daily in the weeks leading up to the endoscopy. In the meantime, adopting a gluten-free diet and supporting gut health with supplements (e.g., probiotics, L-glutamine) may help reduce inflammation and symptoms, but it’s important to consult a healthcare professional to tailor your approach and rule out other underlying issues. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Liquid lunch
      I don’t think it matters much, there’s another type of cordyceps but I’m not sure if there’s a lot of difference, the one I’m using is cordyceps sinensis from maesyffin in wales, sinensis is the one with a long history of medicinal use in china. I think the alcohol (vodka) in the tincture helps with uptake vs taking capsules. And yes, changing my diet helped but it’s almost impossible to maintain as I can’t eat any lectins or sugar which is almost everything. Low lectin is about the best to hope for, they’re in everything. I can eat teff, millet, hemp seeds, blueberries, strawberries, blackcurrants, yogurt, cheese, walnuts, pistachios, macadamia, Brazil nuts, broccoli, sweet potato, carrots, beetroot, olives, rocket, onions, garlic, avocado, kale, mushrooms, chlorella/spirulina, and fish. That’s about it. I keep quail and make their food myself because lectins get into the commercial pellet fed chickens eggs. It took me years of adding one thing at a time with three weeks of pain every time I got it wrong to figure this out but there’s a finger prick blood test available now that will tell you which foods are triggering your autoimmune system, they test for 200+ different proteins and measure igg and ige antibodies. Good luck, I hope the mushrooms help but best to address the cause of the problem I think and have the igg and ige antibody test. The test won’t work if you’re already taking the mushrooms.
×
×
  • Create New...