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Any Almost Symptomless Young Kids Test Positive?

Metoo

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Metoo Enthusiast
Metoo
Posted

I did not test positive for celiac, but i have a rash and it's obvious I can't have gluten.

In the year I have been gluten-free my family has been 80% or more gluten free. I still buy them some non-gluten-free packaged snacks or an occasional loaf of bread.

During this time my 5 year old managed to gain 7lbs between 4-5 years old! This is a kid who barely gains 2-3lbs a year, it finally pushed him up to a more matching percentile! (75th height/50th for weight!). He also has excema, his skin feels like sandpaper!

I would like to get him tested I think. But I don't have a positive test to back me up. And he doesn't have a lot of symptoms.

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1974girl Enthusiast
1974girl
Posted

I have a totally symptomless child but her dad is type 1 diabetic and she has low thyroid. It was those facts alone that led her pediatrician to run a random test. Positive. Oh and egg allergy can also cause exema.

Skysmom03 Newbie
Skysmom03
Posted

Mine was symptomless as well. His dad has type 1 diabetes and celiac. Only got tested because of him.... Turns out he has had it for about three years they believe.

Minette Contributor
Minette
Posted

I think my daughter's doctor would consider the change in weight gain to be significant enough (especially combined with your positive response to going gluten-free) that he would be willing to test.

Then again, we are lucky enough to have great insurance that lets us do pretty much anything, so we rarely have to work hard to convince doctors to run tests. Sadly, that usually factors into the equation.

Mom-of-Two Contributor
Mom-of-Two
Posted

My daughter tested positive to our shock after we had them both tested following my own disgnosis 8 mos ago. No abdominal symptoms or indications of anything wrong, very healthy. She had a normal biopsy, however tested pos on her ttg labs and pos for the endomysial antibody, also vitamin D deficient. She has been strictly gluten free for 3 months, and gained 4 lbs in the 3 months- very telling.

1desperateladysaved Proficient
1desperateladysaved
Posted

Eczema isn't normal. I had it when I was a teen. The itching is horrendous, if you can spare him only that, I think it would be worth it.

Diana

Cara in Boston Enthusiast
Cara in Boston
Posted

My son's only symptom was a drastic and sudden behavior change. Otherwise he appeared perfectly healthy. Taller than average, fantastic eater, zero GI issues (ever, even as a baby). Mysterious things that improved (besides his behavior) after going gluten free: sleeps better, no dark circles under his eyes, more verbal and outgoing, more patience. His hair got thicker and turned somewhat curly. (not sure if that would have happened anyway - it is weird.)

Now, if he gets gluten accidently, he has symptoms. Stomach ache, rash around his mouth. super-grouchy mood for about a week.

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      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By WildFlower1 · Posted

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    • trents
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By trents · Posted

      Welcome to the forum, @WildFlower1! The reason you are seeing conflicting results when you research the length of time recommended for doing the "gluten challenge" is that the guidelines have recently been under revision. So there are two components: 1. amount of daily gluten consumption and 2. duration of that amount of daily gluten consumption Recently, the guidelines have been under revision because the medical community was sensing the previous standards were too relaxed, particularly in the daily amount of recommended gluten consumption. The more recent guidelines seem to be calling for higher amounts of daily gluten consumption over (perhaps) as shorter period of time. So, it is becoming a daily minimum of 10g of gluten daily (about the amount in 4-6 slices of wheat bread) for a minimum of two weeks. Personally, I would recommend that amount of consumption be extended from two weeks to four weeks to ensure valid testing. Your Immunoglobulin IgA at 1.25. Was that within normal range? If that one is low, you are IgA deficient and other IgA test results cannot be trusted. But regardless of whether or not you have celiac disease or NCGS (Non Celiac Gluten Sensitivity) the antidote is the same, namely, a gluten free diet. What would you do different if you had a more confident differential diagnosis? And there are other reasons for the development of osteopenia/osteoporosis that you probably should explore. Are you on any serious supplementation for D3 and magnesium?
    • WildFlower1
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      By WildFlower1 · Posted

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    • WildFlower1
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By WildFlower1 · Posted

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