Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Milk Options


Adalaide

Recommended Posts

Adalaide Mentor

So, I am waiting for a call back from the last dairy within a reasonable driving distance of my home for information about milking practices. Every other dairy so far has confirmed that they absolutely use a betadine wash on their cows prior to milking. I am assuming that this one will confirm the same thing.

Are there any rice milk options I can purchase that don't have either carageenan or sea salt? I can't have soy, nuts or seeds. Every coconut milk I've picked up also had carageenan in it, and frankly in the past my opinion of them has been less than stellar, while I quite enjoy rice milk. I know I can make rice milk, I just don't want to have to. I'm not terribly afraid to try flax milk (I haven't had an adverse reaction to flax in my diet with my vision even though it is a seed), but it was $5 for a half gallon and had sea salt. FIVE DOLLARS?!? Who are they kidding? Seriously.

Another option is to start calling dairies as far as 2-3 hours away. It's getting cold out and as long as I grab a cooler I should be good to pick up a lot at once and freeze it. I'm sure I can find something touristy to do with a day besides drive for 4-6 hours too. Yes, I like milk enough to drive 6 hours for it if I have to. If anyone has any knowledge of a dairy with acceptable practices in Utah I would be ever so grateful for contact information. I've got a full tank of gas and nothing to do on Thursday.

Maybe I should buy a cow? I'm only half kidding. Okay, maybe only a quarter.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pricklypear1971 Community Regular

The only milk sub I found that did not have carageenan in it (but did have sea salt) was a hemp milk. I don't remember the brand, but I found it at Whole Foods.

You can make rice milk or almond milk (and I assume coconut milk) at home. Just google for a recipe.

I was able to get my milk down to just half n half in coffee or tea for 2 weeks, plus a little butter in cooking. Milk was the FIRST thing I added back because subbing it is a PITA. Luckily, plain milk wasn't a big issue...just had to watch the carageenan if added.

kareng Grand Master

Why no sea salt? I don't think it has iodine added - at least the one I bought at Costco.

pricklypear1971 Community Regular

Iodine levels in sea salt vary....sea salt is from the sea....they have seaweed there, etc. :). Some sea salts state their iodine levels. I used Real Salt and it was VERY LOW.

Some people prefer not to use sea salt because it's an easy elimination of potential iodine, just like switching to non-iodized salt.

Adalaide Mentor

I use Real Salt at home. I have for quite a long time, I live in Utah where it is mined so it's beneficial to the local economy and frankly it's far better than any sea salt I've ever had. I am going through the worst hell of my life right now and I simply can not risk the fact that I don't know the iodine levels of the sea salts in the milks on the shelves. From what I read, if it's from the sea, it just needs to be out.

The complication for me is the stupid pseudotumor. No nuts, no seeds, no soy. That eliminates almost all of the best options for milk replacements. I love coconut, just not as milk, I don't know it's just weird and watery and... weird. I'll go to making rice milk if I have to I suppose. I was just hoping for something I could buy. I guess it's time to learn to cook rice. <_<

shadowicewolf Proficient

Whats wrong with betadine? Does it have iodine in it?

pricklypear1971 Community Regular

I use Real Salt at home. I have for quite a long time, I live in Utah where it is mined so it's beneficial to the local economy and frankly it's far better than any sea salt I've ever had. I am going through the worst hell of my life right now and I simply can not risk the fact that I don't know the iodine levels of the sea salts in the milks on the shelves. From what I read, if it's from the sea, it just needs to be out.

The complication for me is the stupid pseudotumor. No nuts, no seeds, no soy. That eliminates almost all of the best options for milk replacements. I love coconut, just not as milk, I don't know it's just weird and watery and... weird. I'll go to making rice milk if I have to I suppose. I was just hoping for something I could buy. I guess it's time to learn to cook rice. <_<

I can't stand milk substitutes.

Period.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adalaide Mentor

So, on my way home from work this afternoon I stopped in at the local garden market figuring I can pick up a squash, a last of the seaso tomato and ask about milk. Sure enough there are two places "localy" where I can buy raw milk. I talked to both and the one only 5 minutes away cleans the cows after the iodine wash! They say that the wash would make the milk taste funny and they don't want anything contaminating it at all. I had to sign a waiver, hah! I grew up with a cow until I was 3 drinking raw milk. I also had to pay $7 for a gallon. I was in the store when I talked to the guy at the farm who told me I would be able to drink it and I just stood there and cried like a moron. I'm pretty sure everyone there thinks I'm a freak now. I'm going to have to check for butter and cream and STUFF on Thursday when I go back.

Also, how was there this whole other health food store 5 minutes away I didn't know existed?! Apparently my husband knew it was there and just never mentioned it to me. :blink:

pricklypear1971 Community Regular

So, on my way home from work this afternoon I stopped in at the local garden market figuring I can pick up a squash, a last of the seaso tomato and ask about milk. Sure enough there are two places "localy" where I can buy raw milk. I talked to both and the one only 5 minutes away cleans the cows after the iodine wash! They say that the wash would make the milk taste funny and they don't want anything contaminating it at all. I had to sign a waiver, hah! I grew up with a cow until I was 3 drinking raw milk. I also had to pay $7 for a gallon. I was in the store when I talked to the guy at the farm who told me I would be able to drink it and I just stood there and cried like a moron. I'm pretty sure everyone there thinks I'm a freak now. I'm going to have to check for butter and cream and STUFF on Thursday when I go back.

Also, how was there this whole other health food store 5 minutes away I didn't know existed?! Apparently my husband knew it was there and just never mentioned it to me. :blink:

I'm glad you found some!

You can make your own butter, and even fresh soft cheese VERY easily.

You won't be short of cream, either if they haven't let it rise. You may get some even if they have, if you let it sit again.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      41

      My journey is it gluten or fiber?

    2. - cristiana replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      2

      Celiac support is hard to find

    3. - cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Newly diagnosed mam to coeliac 11 year old

    4. - tiffanygosci replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      2

      Celiac support is hard to find

    5. - trents replied to mamaof7's topic in Parents, Friends and Loved Ones of Celiacs
      1

      Help understand results

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,972
    • Most Online (within 30 mins)
      7,748

    NinaElaine
    Newest Member
    NinaElaine
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      So I have the Benfo, Thiamax, and Neuromag along with my Super B Complex. When I read the labels it says take 3/take 4 times a day but one pill a day is ok correct since its 4 pills at breakfast.
    • cristiana
      Hi @tiffanygosci Well done for reaching out,  fantastic you have found this forum. It sounds like you are managing the diet well, it can be overwhelming at first, but it will get easier.     I wonder if you have seen the short film 'Glutened'? - someone shared it on this forum a few months ago and it reminded me of how isolating it can be, particularly at first, when you don't know anyone with celiac disease.  *see link for film below. I realise now how blessed I was that when I was diagnosed two friends were also diagnosed around the same time, as we shared a lot of tips and recipes at the start.   Since then the number of people I know diagnosed with coeliac disease has grown and grown, there seems to be a much greater awareness of it among healthcare professionals and the public, at least this side of the Atlantic (I'm British).  I think in time you may find this, too. That said, those two coeliac buddies were 'straightforward' cases who seemed to recover very quickly when on a gluten-free diet - I struggled for some time.  So I found that I spent much more time discussing things with this online coeliac family. If you have any more questions, we're here for you.  I hope your event on 15th goes well.  Sounds like a good start!  I like you am not keen on Facebook, but perhaps setting up an account short-term might help? * https://vimeo.com/486284734 Cristiana     
    • cristiana
      You are very welcome @Dizzyma. Gastroenterologists are now following this rule in the UK more and more with children, so I am not surprised your daughter is not having an endoscopy.   Switching to a gluten free diet should begin to help, but also, even if you have to have testing done privately, it would be very helpful for you to find out if your daughter has vitamin and mineral deficiencies, which is highly likely,    In the UK tests are generally offered on the NHS for B12 and ferritin, and sometimes vitamin D.  Shortages in these can really cause any anxiety or depression or ramp it up. If you do end up supplementing, make sure your GP is aware as levels do need to be monitored, for example,  too much ferritin can cause huge health issues. Re: anxiety, definitely speak to a GP or another health care professional about this if it is an issue. Hopefully the Coeliac Society of Ireland will also be able to help. Cristiana  
    • tiffanygosci
      EDIT: I did find a monthly Zoom meeting for Celiacs through the Celiac Disease Foundation, so I'll be able to talk with some other people on January 15. And I also found a Celiac Living podcast on Spotify made by a celiac. I feel a little bit better now and I am still hoping I will find some more personal connections in my area.
    • trents
      Welcome to the celiac.com community, @mamaof7! It means for the one celiac disease antibody test that was ordered, she tested negative. However, other tests should have been ordered, especially for someone so young who would have an immature immune system where there would be a high probability of being IGA deficient.  The one test that was ordered was an IGA-based antibody test. It is not the only IGA antibody test for celiac disease that can be run. The most common one ordered by physicians is the TTG-IGA. Whenever IGA antibody tests are ordered, a "total IGA" test should be included to check for IGA deficiency. In the case of IGA deficiency, all other IGA tests results will be inaccurate. There is another category of celiac disease antibody tests that can be used in the case of IGA deficiency. They are known as IGG tests. I will attach an article that gives an overview of celiac disease antibody tests. All this to say, I would not trust the results of the testing you have had done and I would not rule out your daughter having celiac disease. I would seek further testing at some point but it would require your daughter to have been eating normal amounts of gluten for weeks/months in order for the testing to be valid. It is also possible she does not have celiac disease (aka, "gluten intolerance") but that she has NCGS (Non Celiac Gluten Sensitivity, or just "gluten sensitivity" for short) which is more common. The difference is that celiac disease is an autoimmune disorder that damages the lining of the small bowel whereas NCGS does not autoimmune in nature and does not damage the lining of the small bowel, though the two conditions share many of the same symptoms. We have testing to diagnose celiac disease but there are no tests for NCGS. To arrive at a diagnosis of NCGS, celiac disease must first be ruled out. A gluten free diet is the solution to both maladies.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.