Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Did I Handle This Okay?


DavinaRN

Recommended Posts

DavinaRN Explorer

Discussion with DH--

DH-you act like eating gluten is going to kill you

Me-your right I don't have celiacs, but why would I want to eat something that will make me feel bad

DH-you don't follow the diabetic diet

Me-yes, I struggle with that, but the effect of that is years away (kidney diease, eye sight, amputation) but if I eat gluten my bones hurt and I feel like I have a stomach virus in an hour

I've been out to eat a few times, always order a salad or just side of bacon if its breakfast. Only ordered the wonderful thick ranch once, lesson learned, now Italian only. Next week we are going out of town, staying at the inn on biltmore estate and I'm worried. They have a gluten free menu, but we also eat off the estate frequently for most meals due to the expense. Ideas for snacks needed (not the type of place that comes with frig or microwave)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

peanut butter and rice cakes always go good for me.

You did well. Just stick to your guns.

1desperateladysaved Proficient

Hard boiled eggs travel fairly well in an egg carton, but be sure to mark them hard boiled!

ravenwoodglass Mentor

Have you got a hot plate? If you do bring it and a small pan and some silverware with you to heat up gluten-free soups, Dinty Moore beef stew or other gluten-free prepared foods.

Cheese and Hormel pepperoni make a good snack. Fruit, nuts, chex cereals, peanut butter and some Udi bread.

The most important thing is to have a good time. Enjoy your trip.

kareng Grand Master

I like to take these. I get them at Target or one of the local groceries. Read the box, there are a few that are not gluten-free.

Open Original Shared Link

You could take a cooler and re-fill with ice to keep some basic things like hard boiled eggs or cheese cool. Have you asked the hotel for a frdige? Many will provide one if you tell them its a medical need. They aren't supposed to ask what the medical need is but "food allergies" is a good reason.

I have had to do a few of these trips. One thing I do is grill some chicken, cut it up and freeze it. Then I bring some salad fxings and keep it all in a cooler for a chicken salad. We like to have cheese and crackers and fruit in our room for a meal.

mamaupupup Contributor

I'm thinking of you!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,993
    • Most Online (within 30 mins)
      7,748

    Whitney A
    Newest Member
    Whitney A
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Okay, it does make sense to continue the gluten challenge as long as you are already in the middle of it. But what will change if you rule it out? I mean, you have concluded that whatever label you want to give the condition, many of your symptoms improved when you went gluten free. Am I correct in that? According to how I understand your posting, the only symptom that hasn't responded to gluten free eating is the bone demineralization. Did I misunderstand? And if you do test positive, what will you do different than you are doing now? You have already been doing for years the main thing you should be doing and that is eating gluten free. Concerning how long you should stay on the gluten challenge, how many weeks are you into it already?
    • WildFlower1
      I mean that I will be re-taking the celiac blood test again while I am currently on the gluten challenge right now, but not sure how many weeks more to keep going, to ensure a false negative does not happen. Thank you.
    • WildFlower1
      Thank you for your help, I am currently in the middle of the gluten challenge. A bit over 6 weeks in. At 4 weeks I got the celiac blood tests and that is when they were negative. So to rule out the false negative, since I’m in the middle of the gluten challenge right now and will never do this again, I wanted to continue consuming gluten to the point to make sure the blood tests are not a false negative - which I did not receive a firm answer for how many weeks total.    My issue is, with these blood tests the doctors say “you are not celiac” and rule it out completely as a potential cause of my issues, when the symptoms scream of it. I want to rule out this 30 year mystery for my own health since I’m in the middle of it right now. Thank you!
    • trents
      I am a male and had developed osteopenia by age 50 which is when I finally got dx with celiac disease. I am sure I had it for at least 13 years before that because it was then I developed idiopathic elevated liver enzymes. I now have a little scoliosis and pronounced kyphosis (upper spine curvature).  All of your symptoms scream of celiac disease, even if the testing you have had done does not. You may be an atypical celiac, meaning the disease is not manifesting itself in your gut but is attacking other body systems. There is such a thing as sero negative celiac disease. But you still have not given me a satisfactory answer to my question of why do you need a differential dx between celiac disease and NCGS when either one would call for complete abstinence from gluten, which you have already been practicing except for short periods when you were undergoing a gluten challenge. Why do you want to put a toxic substance into your body for weeks when, even if it did produce a positive test result for celiac disease, neither you or your doctors would do anything different? Regardless of what doctors are recommending to you, it is your body it is affecting not theirs and they don't seem to have given you any good justification for starting another gluten challenge. Where you live, are doctors kings or something?
    • WildFlower1
      Sorry to put it clearly, at 15, infertility started (tried to word it nicely) meaning menstruation stopped. Which is in correlation to celiac I mean. Thank you. 
×
×
  • Create New...