Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is Craving Food A Symptom Of Celiac Disease?


hubicka

Recommended Posts

hubicka Newbie

I have a really unexplainable constant need for food... for example I'll have a very large bowl of cereal for breakfast, and an hour and a half later am hungry. Even if i'm not physically hungry i'm still extemely strongly craving food, mainly fatty, starchy, sugary, carby foods. I'm not overweight but have been gaining weight lately probably as a result of this. I did notice that in my 2 weeks being gluten free (2 months ago) the cravings weren't there particularly, but this might have been because I knew most of the delicious foods were off limits! For example I remember I ate some pieces of chocolate and then put the rest away, but on most occasions i physically cannot stop myself eating it all and probably also everything else in sight...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shadowicewolf Proficient

Are you getting all the vitamins you need? That might be why.

bartfull Rising Star

You said you were gluten-free for two weeks two months ago. Are you eating gluten again? Are you doing a gluten challenge? It could be that you are not digesting your food and so aren't getting the nutrition from it.

When you decide to go permanently gluten-free, I suggest you eat lots of small meals instead of three big ones. I normally eat six times a day. Two of the meals are substantial, and the rest are snacks like yogurt or nuts, or a couple of slices of Udi's. Or ice cream. Mmm...ice cream. :)

mushroom Proficient

The common wisdom is that we tend to crave those foods that are not good for us. If you are indeed craving gluteny carbs that is a pretty good indication that you are addicted to them and, just as an addicted smoker should quit smoking, a gluten addict should quit gluten. Once you have been off gluten for a while the craving will go away, fortunately, as you began to discover.

Have you had the blood panel drawn for celiac disease?

hubicka Newbie

I have just been to have my blood taken, should find out within 5-7 days :) The doctor seemed to think I may have IBS though. And yes I am eating gluten again, since about 6 or 7 weeks ago. Even less than 2 hours after eating a substantial amount of food i'm physically hungry... rumbly tummy, shaky.

SMDBill Apprentice

I'm not sure it's so much of a symptom as it is a related issue due to the change in diet, as well as part of a condition of malabsorption. It's hard and sometimes I do crave sugary foods as well. If you went from a heavy gluten and sugary diet to a gluten-free diet without all the junk food, that may explain it. Or you could have an underlying issue with glucose levels. Unsatisfied cravings can be an indicator of something missing that your body is searching for. Have you discussed it with your gastro to see if some testing may be needed to help find a root cause? Sure, it could be hunger, but not an insatiable hunger day after day without a mental or physical force behind it.

If you just deny the urge to eat like that does it change the conditions you feel? I'm not at all trying to insult you by suggesting it's in your head, but rather wondering if your body reacts to the denial in some way or if the craving just lingers when you do that. If it gets worse I'd seek some medical advice, but if it just lingers it may be something you can deal with. My instinct would be to see your GP or gastro if you think the disease or some other condition within the body is behind it.

guest134 Apprentice

That sounds like the onset of diabetes and not celiacs IMO.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hubicka Newbie

I have always wondered about diabetes, since I was about 13 I've had terrible problems with blood sugar. Sometimes (often) within less than 2 hours after eating I will be shaky, weak, light headed. I always feel like I have low blood sugar levels, so I bought a blood glucose monitor which either shows elevated or normal glucose levels. Sometimes I'll be shaking and very dizzy and weak, but my blood glucose is actually high! I even feel physically sick, sometimes even being close to being sick, until I get some sugar.

Doctors won't take me seriously at all, however, I had fasting bloods done years ago which came back normal.

jwblue Apprentice

Cereal?

I know people that have eaten an entire box of Cap'n Crunch in one sitting.

Cereal is one of the least filling foods someone can eat.

1desperateladysaved Proficient

Foods high in carbs, especially carbs need fat and protein to round out the meal. With those additions it should help one feel fuller longer.

I have had some issues with extreme hunger. I would have an unsatiable appetite for days followed by days of no appetite at all.

When I ate at subway, before I went gluten-free, I would feel like I had just eaten hours later. I said it felt like an iron brick in my tummy. If only I would have mentioned that to my chiro she might have picked up on it earlier.

AandGsmomma Apprentice

I also had this. It could seriously put down 5-6 slices of pizza for example and go back to get more even when I was full to the point of being sick. Its like my stomache and brain did not communicate. If I got hungry and was delayed/denied food I became the biggest B to ever walk the earth! It turns out that the celiac was causing some vitamin deficiancies. The jury is still out on the blood sugar issues but since cutting gluten and supplementing for my deficiancies, I am so much better. I only eat 2 slices of gluten free pizza and Im satisfied.

hubicka Newbie

I also had this. It could seriously put down 5-6 slices of pizza for example and go back to get more even when I was full to the point of being sick. Its like my stomache and brain did not communicate. If I got hungry and was delayed/denied food I became the biggest B to ever walk the earth! It turns out that the celiac was causing some vitamin deficiancies. The jury is still out on the blood sugar issues but since cutting gluten and supplementing for my deficiancies, I am so much better. I only eat 2 slices of gluten free pizza and Im satisfied.

I sympathise absolutely - previously I have almost made myself sick by eating so much but I really had no idea at all that I was full! I ate a chicken burger and then straight after felt still hungry so I started eating a sandwich and half way through felt like I was going to be sick, it took me a bit of time to realise it was because I was so full but my brain wasn't 'sensing' it at all!

nvsmom Community Regular

I have always wondered about diabetes, since I was about 13 I've had terrible problems with blood sugar. Sometimes (often) within less than 2 hours after eating I will be shaky, weak, light headed. I always feel like I have low blood sugar levels, so I bought a blood glucose monitor which either shows elevated or normal glucose levels. Sometimes I'll be shaking and very dizzy and weak, but my blood glucose is actually high! I even feel physically sick, sometimes even being close to being sick, until I get some sugar.

Doctors won't take me seriously at all, however, I had fasting bloods done years ago which came back normal.

Oh yes! This used to happen to me all the time when I was undiagnosed. I had to make sure I ate something every two hours or I got the shakes and was light headed. Hypoglycemia is a symptom of celiac. My fasting blood levels were normal too.

Now that I've been gluten-free for 4 months, that rarely happens anymore. I can go 6 hours before I notice that I haven't eaten... no shakes at all... well, only if I drink too much coffee. LOL

I used to overeat too; not always but I did it. I always had pain when I ate so the pain of overeating was not that noticeable. Now if I eat too much junk food or simply too much, I notice it more because stomach pain is now unusual for me.

Good luck with your tests. :)

Celiac Mindwarp Community Regular

I have had this too. I would regularly eat a meal then have a snack straight after.

It has mostly gone now gluten-free. It truly felt like I was starving, and I now think it was a result of lack of absorption.

I seem to benefit from sublingual b12 and a good multivitamin.

I forgot to take them away with me recently, and cravings came back again.

All anecdotal from me I'm afraid, but looks like you are not alone

AandGsmomma Apprentice

I cant even tell you how happy it makes me to know Im not alone in having this!

shadowicewolf Proficient

I used to over eat as well. I could go to TGIF Fridays and get one their big pasta plates and eat it all in one go. Or 4-5 slices of pizza (before when i could have tomatos :blink: ). Or a full big stack of pancakes with a massive slab of ham. I could go on. I would get up in the middle of the night just because i "felt" hungery.

Now i'm the exact opposite. I have to eat small meals throughout the day or my GERD kicks me in the butt. Generally its smaller portions that i do. Still eating is a challenge for me. This is probably due to the fact at my lowest point i was dealing with vomiting, "D", insomnia, an allergic reaction (later discovered it was the tomatos!), panic attacks, jitters, massive weight loss (i'm talking 40lbs in little over a month), Major acid reflux (damaged my troat, took a year to heal) and a slowly dying gallbladder (not related to the "D", as it cleared up right after i went gluten free about 4 months before i had it taken out).

I used to have that feeling as well if i didn't eat (still do in morings if i have no breakfast). I know better now (diabietes runs in family, i get checked often, but no signs yet).

Also, always keep something on you that you can munch away on just in case you need it.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Known1 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Reverse Osmosis (RO) Water

    2. - Known1 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      What would you do - neighbor brought gluten-free pizza from Papa Murphy's

    3. - Scott Adams replied to Yaya's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Great Value Veggies cannot be trusted.

    4. - trents replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Confused about HLA-DQ Celiac gene test result

    5. - ainsleydale1700 replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Confused about HLA-DQ Celiac gene test result

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,442
    • Most Online (within 30 mins)
      7,748

    Peggy Vorell
    Newest Member
    Peggy Vorell
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Known1
      I am hesitant to post this as I have seen many people here recommending RO water.  With that said, I want to share my experience and how RO water now impacts me.  Three or four years ago a local store installed a RO water refill station.  I had been buying gallons of distilled and spring water prior to that.  I switched over to using the RO water refill station saving money by brining in my own clean empty gallon jugs.  Every 6-months I would replace the jugs by buying new gallons of distilled water.  This RO water is the only water I would drink while at home.  Two huge glasses every morning before work and two more after work.  I would also use the RO water to make coffee and hot coco. This past December, prior to my celiac diagnosis, my gut was making more noise than anything I had ever experienced.  Seriously, it was crazy, almost like fire works going off in my stomach.  I happened to pick up some distilled water for my 6-month jug rotation.  Literally, as soon as I started drinking the distilled water my stomach settled a great deal.  I could honestly feel the difference after the first glass of water.  I thought that maybe the RO water from the store's refill station was contaminated with some sort of cleaning agent.  I swore to myself I would never drink from that RO refill station again.  Instead I went back to buying distilled along with gallon jugs of spring water.  No issues with either of those as far as an upset stomach is concerned.  Cost, well that's a different story all together. After being diagnosed marsh 3c, I went shopping at Aldi's for the first time in my life.  I noticed they also sell water by the gallon.  Over the course of the last few weeks, I have purchased a total of 6-gallons of their water.  (Thankfully they were out on two of my visits.)  After having my stomach starting to make noises similar to mid-December again, it dawned on me, maybe its the Aldi water?  Initially I had contributed my bubble gut to some sort of gluten exposure or cross contamination.  Even though everything I have put into my stomach is naturally gluten-free or has been labeled gluten-free / certified gluten-free.  I had assumed that the Aldi water was spring water.  Come to find out, that was a bad assumption.  Looking close at the label it says purified by RO or distillation (or something like that). Again, I switched to different water.  Just like last December, the non-RO water instantly calmed my stomach and even felt better going down the hatch.  This was earlier today by the way.  Prior to creating this post, I did a few searches via Uncle Google.  I bumped into a thread on Reddit (where I am not a member) that has multiple people complaining of GI issues related to RO water.  So my initial thoughts on a cleaning agent in the refill station RO water were likely not correct.  Unfortunately, it seems the RO water itself causing me problems.  I am not sure if we are allowed to post links to other sites and hopefully I will not get into trouble for doing so.  I did try printing the Reddit thread to a PDF file.  Unfortunately, the file is 2MB in size, which is well over the 500KB file attachment limit here on this amazing forum.  Again, hopefully this is ok.  🤞  Here is the Reddit thread. This may not be a popular opinion here, but personally, I will not willingly drink another glass of RO water for the remainder of my life.  Who knows, maybe drinking RO water for the past several years is part of what activated my celiac?  No proof, but just a thought.  Come to find out RO water is well known to leech minerals from your body.  With people like us often lacking minerals to begin with, RO water does not seem like a wise choice.  As the Reddit thread mentions, there are RO water filtration systems that will inject minerals back into the water.  However, those systems are likely not being used at the grocery store refill stations nor by the bottling companies producing RO water for sale at your local store. Please do not shoot the messenger as I am just sharing my personal experience and letting others know that most RO water will leech minerals from your body. God bless and stay well, Known1
    • Known1
      My neighbor's mom was diagnosed with celiac disease 16 years ago.  She is a very kind person and has shared some info about local grocery stores and daily (soon to expire) meat deals.  This evening she brought over 2 slices of Papa Murphy's gluten-free pizza.  It looks to be topped with chicken and spinach.  I asked, "aren't you concerned with cross contamination"?  She said no and apparently eats it on a somewhat regular basis. I found an old article here along with another thread pertaining to Papa Murphy's gluten-free pizza.  The article is quite old, so I do not think it holds much weight nowadays.  The thread I found was also a bit dated, but certainly more recent and relevant.  The information in the thread I found was a bit inconclusive.  Some said they trust Papa Murphy's gluten-free pizza and others were a big no way.  One person even took time to train their local franchise on how to ensure the pizza remains gluten-free without cross contamination. Anyway, being recently diagnosed as marsh 3c, I am currently working on week 3 or 4 in my new gluten-free journey.  I do not want to be rude and toss the pizza out, but I also do not want to have a reaction.  Since she has celiac and obviously ate much or at least some of the pizza, I am leaning towards eating the two slices for lunch tomorrow.  As this thread's title states, what would you do?  Would you eat it or toss it out?  I suppose I could also just give it back to my neighbor to polish off. I look forward to reading your thoughts. Thanks, Known1
    • Scott Adams
      That must have been really upsetting to discover, especially after relying on a product you believed was safe. Labeling can change at any time due to supplier shifts or shared equipment, so it’s always important to double-check packaging—even on products we’ve trusted for years. A “may contain wheat” statement usually indicates potential cross-contact risk rather than an added ingredient, but for people with celiac disease that risk can still be significant. If you’ve been having symptoms, it may take days to weeks to fully settle, depending on the level and duration of exposure. In the meantime, switching to fresh produce or brands that clearly state gluten-free status is a reasonable step. It may also help to contact the manufacturer directly to ask when the labeling changed and what their current cross-contact controls are.
    • trents
      If you have been on a gluten-free diet for four years, all of the testing with the exception of the HLA one, was a waste of time. Not sure why your physician would have even considered it.  But that doesn't explain your ongoing celiac-like symptoms. It's beginning to look like they are being caused by some other medical issues unrelated to a gluten disorder. 
    • ainsleydale1700
      Thanks for the insight!  It has been a whirlwind...very overwhelming and frustrating at times.  But what you are saying makes sense to me. I have been on a Gluten Free diet for 4 years now Its been suggested to me to get a second opinion  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.