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- ainsleydale1700 replied to ainsleydale1700's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4Confused about HLA-DQ Celiac gene test result
Thank you! I have the classic symptoms while eating gluten-constipation, diarrhea, weight loss, loss of appetite, etc. My main problems right now are elsewhere in my body. Dental issues...my teeth started breaking. I had two teeth break in the past month. My dentist looked at my teeth with a camera and said I have no enamel left. Im really struggling... -
- heart390 replied to heart390's topic in Introduce Yourself / Share Stuff2Why now?
THANK YOU Trents!!! No, I have not been tested - but have several autoimmune diseases ( MS over 50 yrs.) MAJOR GAS & fatigue are my most severe problems. Possibility STRESS helped kick it off? It's a sad additional problem to add to the latter part of my life! -
- Scott Adams replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms1Collecting all possibly related lab work?
It’s absolutely worth bringing all of this to your GI appointment. The 2013 CT note about thickening in the second and third portions of the duodenum is especially important, since that area is directly involved in celiac disease and other inflammatory conditions, even if it wasn’t followed up at the time. The weak positive HLA-B27, joint pain, stiffness, nu...- 1
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- Known1 commented on Scott Adams's article in Gluten-Free Foods & Beverages2Safe Gluten-Free Spices and Brands: A Celiac Disease Guide
Thanks for this article. I gave a bunch of my old spices to my single mom neighbor after being diagnosed this past month. She was thrilled to find chili powder and used it that same evening. After reading several reviews on Amazon, I purchased a 28oz container of Badia Complete Seasoning for under $7.00. It is super rare to find anything on Amazon...- 1
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- trents replied to heart390's topic in Introduce Yourself / Share Stuff2Why now?
Welcome to the celiac.com community @heart390! Genes connected with the development of celiac disease remain latent until triggered or activated by some biological stressor. The stressor can be many things and our knowledge in this area is incomplete. Suspects include viral infections, antibiotics, pesticides, preservatives and other harmful chemicals...
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By ainsleydale1700 · Posted
Thank you! I have the classic symptoms while eating gluten-constipation, diarrhea, weight loss, loss of appetite, etc. My main problems right now are elsewhere in my body. Dental issues...my teeth started breaking. I had two teeth break in the past month. My dentist looked at my teeth with a camera and said I have no enamel left. Im really struggling with neuropathy, and gynecological conditions. My periods stopped 6 years ago and Im not in perimenopause or menopause. When I consume gluten, my resting HR goes up about 30 points, and takes a week or so to normalize. The list goes on, its very overwhelming Ongoing vitamin D deficiency, magnesium, iron, blood creatinine is always low, dont know if thats relevant. Below is from the Celiac panel, otherwise the results were normal. Not crazy high, but I wasnt aware the Celiac panel was included in the bloodwork. So I didnt prepare for it in advance, and Ive been on a gluten-free diet for the past 4 years High t-Transglutaminase (tTG) IgG: 7, Reference Interval: 0-5, Unit: U/mL This test detects IgG antibodies to tTG (tissue transglutaminase), and was performed because your IgA level is below normal. The immune response that occurs in celiac disease often leads to IgG antibodies against tTG. I know I have a bad reaction to gluten. But with the low likelihood of Celiac, any guidance on other paths to explore would be greatly appreciated! Ive been trying to figure this out for years now, and more issues keep coming up. It has been so overwhelming. Thanks again. -
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By Scott Adams · Posted
It’s absolutely worth bringing all of this to your GI appointment. The 2013 CT note about thickening in the second and third portions of the duodenum is especially important, since that area is directly involved in celiac disease and other inflammatory conditions, even if it wasn’t followed up at the time. The weak positive HLA-B27, joint pain, stiffness, numbness, and burning sensations could suggest an autoimmune or inflammatory process, which sometimes overlaps with celiac disease or other gut-related immune conditions. Your periods of neurological symptoms (balance issues, numbness, confusion), low vitamin D, and fluctuating levels despite supplementation are also relevant, as malabsorption can contribute to deficiencies and neurologic complaints. Even “normal” labs are helpful for pattern recognition over time. I’d suggest organizing your records into categories—GI imaging, autoimmune labs, vitamin/mineral levels, neurological evaluations, and symptom timelines—so your GI doctor can see the bigger picture. This kind of long-term pattern can be very useful in connecting dots. -
Welcome to the celiac.com community @heart390! Genes connected with the development of celiac disease remain latent until triggered or activated by some biological stressor. The stressor can be many things and our knowledge in this area is incomplete. Suspects include viral infections, antibiotics, pesticides, preservatives and other harmful chemicals in the environment. The onset of celiac disease can happen at any stage in life. It is a long outdated misconception that gluten intolerance is a childhood phenomenon that you eventually outgrow. You use the term "gluten problems". What do you mean by that? Have you been formally diagnosed with celiac disease (aka, "gluten intolerance")? There is also NCGS (Non Celiac Gluten Sensitivity or "gluten sensitivity") for which there is not yet any testing available. It shares many of the same symptoms with celiac disease but is not autoimmune in nature and does not damage the lining of the small bowel. A diagnosis of NCGS depends on first ruling out celiac disease for which we do have tests. If you would seek testing for celiac disease, you must not begin the gluten free diet until all testing is done with or you will have invalidated the testing. There are two stages to the testing. The first stage involves a simple blood draw to check for certain antibodies produced by celiac disease. If the antibody testing is positive, doctors normally order an endoscopy with biopsy of the small bowel lining which checks for damaged caused by the inflammation associated with the autoimmune response. That is the second stage of diagnostic testing.
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