Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Test: What Can I Do To Increase Its Accuracy?


jwblue

Recommended Posts

jwblue Apprentice

I have never eaten a gluten free diet except for a slice of bread in the morning that has gluten but is supposed

to me tolerable for people sensitive to gluten.

Are there any foods with gluten I can eat before my blood test in order to increase its accuracy?

For how long before the blood test should I eat this gluten diet in order to increase the accuracy of the blood test?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



beachbirdie Contributor

I've heard you need to be eating a minimum of "3 slices of bread" or the equivalent in other glutenous foods, and over a period of 6 weeks to 3 months. You will get varied advice on this one, based on the different medical establishments/people that each have their own preferences!

tom Contributor

Are there any foods with gluten I can eat before my blood test in order to increase its accuracy?

Do you mean 'any *other* foods'? Then, no.

For how long before the blood test should I eat this gluten diet in order to increase the accuracy of the blood test?

First off, you'll want to verify that a full celiac panel is being done. It's incredible how often people here tell of their Dr running just one or two celiac tests smh.

Once the full panel is in use, the uncertainty of proper/adequate gluten-challenge duration rears its ugly head.

Some people get DXd w/ 2 wks on gluten, some it'll take 6.5 wks, 9, 12, . . Hmmm realizing I don't recall a study checking in-betw 3mos & 6mos, but some ppl might fall in there & there are some who'll never test positive, despite positive biopsy, celiac symptoms & unequivocally positive response to diet.

Does your question mean that you don't already have an appt for the blood tests & get to decide the gluten-challenge (GC) duration yourself?

Some might go w/ a "for as long as you can handle it" approach, depending on not only one's symptoms, but also family situation (e.g. can't be incapacitated w/ 3 toddlers to care for), work/school timing considerations like "not during finals!" or sick leave policies/# of paid sick-days, general masochism etc.

Sure, longer is generally better, absent other considerations, but it's not like we see ppl doing 6 month challenges.

There aren't enough studies on it, but I found it interesting that companies betting millions on 'celiac pills' are testing their efficacy over 6 wks.

How long have been doing the challenge thus far?

Do you already have a GI that you like/trust?

I'd hate to see you schedule X wks then have the symptoms become truly unbearable less than halfway in & want to reschedule but have no appts avail before the already-sched one. If self-scheduling I'd want to ask the Dr's office about that. It's not like the blood draw itself takes any of the Dr's time.

It's a tough call - so how ya doing so far w/ the glutening?

tom Contributor

I've heard you need to be eating a minimum of "3 slices of bread" or the equivalent in other glutenous foods, and over a period of 6 weeks to 3 months. You will get varied advice on this one, based on the different medical establishments/people that each have their own preferences!

Those recs would've been much more common 10 yrs ago than today.

In 2004, Stanford was already saying just 1/2 slice for 30 days & UofChi is currently saying a single cracker is enough.

There are studies that explored dosage qty & what I've seen was 2 for 2 on recommending lightest dose, which was ~1/2 slice. IH may again voice displeasure at celiac studies using celiacs for the testing(?) but I've got if you'd like to read the studies.

I think the people insisting that higher dosage is necessarily better aren't taking into account that the studies aren't just looking for 'what leads to *more* antibodies' but rather 'what leads to *enough* antibodies.

Olympic high-jumpers aren't judged by how much *higher* than the bar they went, just whether they cleared it.

jwblue Apprentice

I've heard you need to be eating a minimum of "3 slices of bread" or the equivalent in other glutenous foods, and over a period of 6 weeks to 3 months. You will get varied advice on this one, based on the different medical establishments/people that each have their own preferences!

Is this assuming that I have been on a gluten free diet?

To clarify, I have never in my life stopped eating gluten products.

Doesn't pretty much everything contain gluten? Can I eat a regular diet?

tom Contributor

Is this assuming that I have been on a gluten free diet?

To clarify, I have never in my life stopped eating gluten products.

Doesn't pretty much everything contain gluten? Can I eat a regular diet?

D'oh!! :wacko:

My posts would apply to ppl re-introducing gluten.

You can/should test immediately if you've never been gluten-free.

And no, hehe, not everything contains gluten, but it does take effort to be 100% gluten-free, compared to just "no obvious wheat/gluten".

1desperateladysaved Proficient

Yeah, you should be good. I just did a antibody blood test for several things. They found antibodies to food that is just incidentally in my diet such a cinnamon, garlic, and chives. If you are eating a "normal" diet you can't hardly miss. I would get the test as soon as possible, so that you can go gluten free as soon as necessary. I hope your test will have accurate results.

Diana


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Just a reinforcement, to continue to eat gluten at least until you get your blood test results because you may be referred to a GI for an endoscopy with biopsy, and the same gluten-eating rules apply.

beachbirdie Contributor

Those recs would've been much more common 10 yrs ago than today.

In 2004, Stanford was already saying just 1/2 slice for 30 days & UofChi is currently saying a single cracker is enough.

I think the people insisting that higher dosage is necessarily better aren't taking into account that the studies aren't just looking for 'what leads to *more* antibodies' but rather 'what leads to *enough* antibodies.

Olympic high-jumpers aren't judged by how much *higher* than the bar they went, just whether they cleared it.

Yeah, makes sense.

I was eating only a slice a day. Raised up some antibodies, not a lot. I've always been puzzled by reports of numbers "through the roof" or "higher than the doctor had ever seen", as if that alone were an indicator of the severity of disease.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Fiber Supplement

    2. - Trish G posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Fiber Supplement

    3. - kpf replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      ttg iga high (646 mg/dl) other results are normal

    4. - knitty kitty replied to Rejoicephd's topic in Related Issues & Disorders
      4

      Basic metabolic panel results - more flags


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,333
    • Most Online (within 30 mins)
      7,748

    jlcvt
    Newest Member
    jlcvt
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their level of sensitivity to minor amounts of gluten. That's the long and nuanced answer. The short answer is that it is a product derived from wheat and so you can be certain it will contain some residual amounts of gluten. No gluten removal process is 100% effective. So, to be absolutely certain, stay away from it. Have you tried chia seeds? Very high in fiber and quickly turns into a gel when added to water. Make sure you get seeds that are gluten free if you decide to try it.
    • Trish G
      I was taking Benefiber for my IBS-C before my celiac diagnosis. It does say Gluten Free but lists Wheat Dextrin on the label. I really dont like psyllium fiber, so is there anything else I can take or is the Benefiber really ok for someone with Celiac disease?  Thanks!!!
    • kpf
      Abdominal pain and an itchy stomach were the symptoms I asked to see a GI about. Now I’ve learned these other symptoms—that I have but attributed to other issues—could also be related to celiac disease:  fatigue joint pain canker sores numbness or tingling in hands or feet difficulty with coordination anemia headaches neutropenia I never dreamed in a million years she would consider celiac disease. It was a shock to me. It’s definitely not what I went to her for. 
    • knitty kitty
      @Rejoicephd, I'm not a doctor, but I experienced severe thiamine deficiency.  Your symptoms seem really familiar.  Malabsorption is a real thing that happens with Celiac.  A multivitamin is not going to prevent nor correct nutritional deficiencies.    Doctors do not recognize nutritional deficiency symptoms.  Gastrointestinal Beriberi is not recognized often.  Caused by thiamine deficiency, high dose thiamine supplements or IV administration with other vitamins, minerals and glucose under doctor's care is needed.   Thiamine deficiency is found in anemia.  Thiamine deficiency in the kidneys can result in electrolyte imbalances and cloudy urine.  Thiamine deficiency can cause high blood sugar which can cause cloudy urine.  Dehydration can cause cloudy urine.   I'm linking some PubMed articles.  You see if your symptoms match.  Discuss the possibility of Gastrointestinal Beriberi with one of your specialists soon!  Just to rule it out.  I'm very concerned.   I'm linking some PubMed articles.  You see if your symptoms match.   Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/#ref3 From Section 3: "In conclusion, TD limited to the gastrointestinal system may be an overlooked and underdiagnosed cause of the increasingly common gastrointestinal disorders encountered in modern medical settings. Left unattended, it may progress to wet or dry beriberi, most often observed as Wernicke encephalopathy.". . And... Refeeding Syndrome https://www.ncbi.nlm.nih.gov/books/NBK564513/
    • trents
      What are your symptoms? What has brought you to the point where you sought celiac disease testing?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.