Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Test: What Can I Do To Increase Its Accuracy?


jwblue

Recommended Posts

jwblue Apprentice

I have never eaten a gluten free diet except for a slice of bread in the morning that has gluten but is supposed

to me tolerable for people sensitive to gluten.

Are there any foods with gluten I can eat before my blood test in order to increase its accuracy?

For how long before the blood test should I eat this gluten diet in order to increase the accuracy of the blood test?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



beachbirdie Contributor

I've heard you need to be eating a minimum of "3 slices of bread" or the equivalent in other glutenous foods, and over a period of 6 weeks to 3 months. You will get varied advice on this one, based on the different medical establishments/people that each have their own preferences!

tom Contributor

Are there any foods with gluten I can eat before my blood test in order to increase its accuracy?

Do you mean 'any *other* foods'? Then, no.

For how long before the blood test should I eat this gluten diet in order to increase the accuracy of the blood test?

First off, you'll want to verify that a full celiac panel is being done. It's incredible how often people here tell of their Dr running just one or two celiac tests smh.

Once the full panel is in use, the uncertainty of proper/adequate gluten-challenge duration rears its ugly head.

Some people get DXd w/ 2 wks on gluten, some it'll take 6.5 wks, 9, 12, . . Hmmm realizing I don't recall a study checking in-betw 3mos & 6mos, but some ppl might fall in there & there are some who'll never test positive, despite positive biopsy, celiac symptoms & unequivocally positive response to diet.

Does your question mean that you don't already have an appt for the blood tests & get to decide the gluten-challenge (GC) duration yourself?

Some might go w/ a "for as long as you can handle it" approach, depending on not only one's symptoms, but also family situation (e.g. can't be incapacitated w/ 3 toddlers to care for), work/school timing considerations like "not during finals!" or sick leave policies/# of paid sick-days, general masochism etc.

Sure, longer is generally better, absent other considerations, but it's not like we see ppl doing 6 month challenges.

There aren't enough studies on it, but I found it interesting that companies betting millions on 'celiac pills' are testing their efficacy over 6 wks.

How long have been doing the challenge thus far?

Do you already have a GI that you like/trust?

I'd hate to see you schedule X wks then have the symptoms become truly unbearable less than halfway in & want to reschedule but have no appts avail before the already-sched one. If self-scheduling I'd want to ask the Dr's office about that. It's not like the blood draw itself takes any of the Dr's time.

It's a tough call - so how ya doing so far w/ the glutening?

tom Contributor

I've heard you need to be eating a minimum of "3 slices of bread" or the equivalent in other glutenous foods, and over a period of 6 weeks to 3 months. You will get varied advice on this one, based on the different medical establishments/people that each have their own preferences!

Those recs would've been much more common 10 yrs ago than today.

In 2004, Stanford was already saying just 1/2 slice for 30 days & UofChi is currently saying a single cracker is enough.

There are studies that explored dosage qty & what I've seen was 2 for 2 on recommending lightest dose, which was ~1/2 slice. IH may again voice displeasure at celiac studies using celiacs for the testing(?) but I've got if you'd like to read the studies.

I think the people insisting that higher dosage is necessarily better aren't taking into account that the studies aren't just looking for 'what leads to *more* antibodies' but rather 'what leads to *enough* antibodies.

Olympic high-jumpers aren't judged by how much *higher* than the bar they went, just whether they cleared it.

jwblue Apprentice

I've heard you need to be eating a minimum of "3 slices of bread" or the equivalent in other glutenous foods, and over a period of 6 weeks to 3 months. You will get varied advice on this one, based on the different medical establishments/people that each have their own preferences!

Is this assuming that I have been on a gluten free diet?

To clarify, I have never in my life stopped eating gluten products.

Doesn't pretty much everything contain gluten? Can I eat a regular diet?

tom Contributor

Is this assuming that I have been on a gluten free diet?

To clarify, I have never in my life stopped eating gluten products.

Doesn't pretty much everything contain gluten? Can I eat a regular diet?

D'oh!! :wacko:

My posts would apply to ppl re-introducing gluten.

You can/should test immediately if you've never been gluten-free.

And no, hehe, not everything contains gluten, but it does take effort to be 100% gluten-free, compared to just "no obvious wheat/gluten".

1desperateladysaved Proficient

Yeah, you should be good. I just did a antibody blood test for several things. They found antibodies to food that is just incidentally in my diet such a cinnamon, garlic, and chives. If you are eating a "normal" diet you can't hardly miss. I would get the test as soon as possible, so that you can go gluten free as soon as necessary. I hope your test will have accurate results.

Diana


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Just a reinforcement, to continue to eat gluten at least until you get your blood test results because you may be referred to a GI for an endoscopy with biopsy, and the same gluten-eating rules apply.

beachbirdie Contributor

Those recs would've been much more common 10 yrs ago than today.

In 2004, Stanford was already saying just 1/2 slice for 30 days & UofChi is currently saying a single cracker is enough.

I think the people insisting that higher dosage is necessarily better aren't taking into account that the studies aren't just looking for 'what leads to *more* antibodies' but rather 'what leads to *enough* antibodies.

Olympic high-jumpers aren't judged by how much *higher* than the bar they went, just whether they cleared it.

Yeah, makes sense.

I was eating only a slice a day. Raised up some antibodies, not a lot. I've always been puzzled by reports of numbers "through the roof" or "higher than the doctor had ever seen", as if that alone were an indicator of the severity of disease.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,073
    • Most Online (within 30 mins)
      7,748

    ImVenus
    Newest Member
    ImVenus
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
    • Scott Adams
      BTW, we've done other articles on this topic that I wanted to share here (not to condone smoking!):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.