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Razzle Dazzle Brazell

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Razzle Dazzle Brazell Enthusiast

Went to the doctor today and despite skepticism, she tested me for yeast overgrowth. Guess what. I was right. I have to take fluconazole and nystatin, a very aggressive course of treatment. Back on a low carb/sugar diet. I am really hoping that this, in conjunction with my Gluten-free Casein-free diet will put me on the path to healing.

Isnt it great when, for once, tests prove what you know? Thanks to this forum, I am moving toward healing and a hopeful future. A lot of my reactions and chemical sensitivities may stem from this overgrowth that was caused by prednisone, followed up with strong antibiotics and then a gluten challenged immune system. Amazing like a dominoe. Yep thats how I feel, like my immune system is just a line of dominoes, waiting for someone to tip that first one over. Anybody else feel that way?


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shadowicewolf Proficient

Yep, with my gallbladder. Months of heck with ultrasounds from every which way (even this was painful then) and the blood tests came back normal. Even went to the ER once because the pain got so bad (and i was nauseous). Go to new GP and she says to get the HIDA scan done, and lo and behold there is my side pain problem. Another few weeks or so later it came out (longest time of my life).

JNBunnie1 Community Regular

Don't forget your probiotics!!!

GFinDC Veteran

Prednizone knocks down the immune system, so yeah it can be a problem. It would be a good idea to make sure you are getting some Betaine HCL in your diet if you are on prednizone. That may help your stomach acid defeat incoming pathogens. Your stomach acid is your front line defense when your immune system is shut down.

Razzle Dazzle Brazell Enthusiast

@ Shadow: I can't imagine having to deal with gallbladder issues and celiac. I have no idea what a HIDA scan is lol hafta look it up.

@JNBunnie: I tried a acidophilus but it gave me severe heartburn bo matter how much water I drank after taking it. If I can find a gluten and corn free probiotic, it would be great.

@GFinDC: I never heard of that. I tend to have low stomach acid in the mornings that causes nausea but I get heartburn if I take something like acidophilus so I need a happy medium.

ncdave Apprentice

You are aware that both fluconazole and nystatin cotain corn.

JNBunnie1 Community Regular

@ Shadow: I can't imagine having to deal with gallbladder issues and celiac. I have no idea what a HIDA scan is lol hafta look it up.

@JNBunnie: I tried a acidophilus but it gave me severe heartburn bo matter how much water I drank after taking it. If I can find a gluten and corn free probiotic, it would be great.

@GFinDC: I never heard of that. I tend to have low stomach acid in the mornings that causes nausea but I get heartburn if I take something like acidophilus so I need a happy medium.

Razzle, I take PB8, which is a combo probiotic, it comes in capsules, and the one I get has a blue

label, and the ingredients are the probiotic organisms, inulin from chicory root, cellulose, and gelatin.

I am not a corn expert so I do not know if it's corn safe, corn is not listed on the 'free from' list on the

bottle.

I can tell you that you would probably be better off taking a probiotic before food, before the biggest

meal of your day. That way it will mix with the food and pass through before it causes heartburn. In

my opinion the more the merrier, a probiotic with eight different strains will serve you better than just

plain acidophilus.


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Razzle Dazzle Brazell Enthusiast

@ ncdave: yup. it has citric acid in it. it is definitely causing swelling but it is hella expensive so im trying to just live with it; there is no way I cann afford some custom medicine :(

. I am not having the neurological symptoms to it thank God, no brain fog, just abd. swelling but what can ya do?

@ JNBunnie: I think I will call my doctor up and ask for her help. I definitely cannot take anymore corn b/c I am so swollen right now but i also recently got glutened so I am hoping lots of water and some of this will subside in a day or two. At least now I can prove that I react to all gluten and it is not just wheat. Some barley malt got me :unsure:. So I can tell the doc I was right about something else ;)

ncdave Apprentice

If there"s anything else in your diet that contains corn you can remove till you finish the meds, maby that would help. I doubt it would be enough to compensate for the amount thats in the pills, but it may make things a little easyier. water, salt, meats? Other than that wear some lose fitting clothing, and look forward to the last pill being gone, so you can start to feel better again. Wishing you mild symptoms, an a speedy recovery.

Razzle Dazzle Brazell Enthusiast

If there"s anything else in your diet that contains corn you can remove till you finish the meds, maby that would help. I doubt it would be enough to compensate for the amount thats in the pills, but it may make things a little easyier. water, salt, meats? Other than that wear some lose fitting clothing, and look forward to the last pill being gone, so you can start to feel better again. Wishing you mild symptoms, an a speedy recovery.

Thx I am using only kosher salt but I will definitely be checking up on whether I can eliminate the meat washes by going to local farmers. I am so excited to make it through the first few days of treatment. I am already feeling so much better. Die off is pretty brutal.

ndw3363 Contributor

How did your dr. test for yeast overgrowth? Was it your GP that did it? I need to find a new GP because getting my current one to give me anything besides antacids (which would be awful since I have LOW stomach acid...she doesn't believe me) and antidepressants (because clearly I need that to tackle my stress...has nothing to do with food). :angry:

I try to stay very low carb/low sugar anyway because I feel better when I do. But every time I've taken some type of antifungal, whether it be natural or Rx, nothing happens. I take probiotics everyday which definitely helps the digestive system, but I can't figure the rest out!! Luckily (knock on all wood), I haven't had a YI in awhile, but I think being off the bc pill is helping that. But I'm still having skin trouble, fatigue and brain fog. If I eat carbs (gluten-free of course), my skin gets bright red and burns a bit on either side of my nose. Then I get terrible seborrhea on my scalp and I'm dizzy for a day or so. Feels like classic Candida reaction, but each time I've tried the diet and the antifungals, nothing happens (i.e. I've never experienced die off). Would like to get a doctor's help with all of this instead of just trying to figure it out on my own, but can't find one that will listen to me.

Razzle Dazzle Brazell Enthusiast

Keep looking! Do not give up. When I got this new doctor, I told her up front that I got tired of

misdiagnosis all my life and described my indisputable symptoms. I did my research. I told her why I did not feel like something else because I had recurrent infections down below and she was skeptical but finally believed me when she checked. Some doctors are different but most do not want to think we can figure things out on our own by doing research and understanding our own bodies. They want to think that a decade in school is the only way to know what they know. Besides that, a lot of doctors, IMO do not want you to know what is wrong because they want to keep making money off you. They would rather say you have irritable bowel than for you to know you just have to eat gluten free. Where is the money in that? I say do not act desperate. Act matter of fact and as if you can always get another doctor if she/he is not doing what you want. Act content no matter what because it makes you not look like a hypochondriac or depressed and effectively says, "It is my way or the highway, Some money or no money is entirely up to you."

As far as testing, you can get a blood test done or you can even send stool samples to enterolab, or similar labs. Some of us may not have a bowel infection but just do not tolerate any grains so you will have to just test and see.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
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