Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wheat + Sleep = No Pain?! I Think I Found My Cure! (Possibly?)


SandraLAVixen

Recommended Posts

SandraLAVixen Apprentice

Hi it's me again, yes I know, I've been up to challenging wheat again... I know, I'm stubborn... but I finally figured something out.

For the last month I ate danishes (made from wheat) every morning for a month and then went straight back to bed to nap, and an hour later there was no pain!!

I did that because I thought that my body was low on serotonin (a neurotransmitter) when my Carcinoid urine test (for some other condition) came back low (but not clinically significant low) on serotonin by-product.

I'm now up to eating two wheat danishes every morning, normally that would send me to the ER, but I go immediately back to sleep and there is no pain.

Has anyone else heard of being NCGI and then trying to sleep more and then being able to eat wheat again? Could I have just been low on serotonin all this time?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cahill Collaborator

Hi it's me again, yes I know, I've been up to challenging wheat again... I know, I'm stubborn... but I finally figured something out.

For the last month I ate danishes (made from wheat) every morning for a month and then went straight back to bed to nap, and an hour later there was no pain!!

I did that because I thought that my body was low on serotonin (a neurotransmitter) when my Carcinoid urine test (for some other condition) came back low (but not clinically significant low) on serotonin by-product.

I'm now up to eating two wheat danishes every morning, normally that would send me to the ER, but I go immediately back to sleep and there is no pain.

Has anyone else heard of being NCGI and then trying to sleep more and then being able to eat wheat again? Could I have just been low on serotonin all this time?

please tell me you are joking .
jerseyangel Proficient

In so many ways, that does not make sense. There are plenty of ways to get more serotonin without eating wheat.

kareng Grand Master

As far as I can tell by your signature, there is no reason for you not to eat whatever you want. If wheat doesn't bother you, good for you.

Lady Eowyn Apprentice

Have often thought that responses here are occasionally aggressive, patronizing and just plain mean especially to some poor soul who fell off the cart and made the mistake of eating some gluten.

However, can't make head nor tail of this post and would like to say I'm speechless (except obviously not)!

At the end of the day a danish each morning (or two ?) is not healthy eating for anyone and I'm sure it's not 'the answer' to anything either.

jerseyangel Proficient

Sandra, since all of your testing--up to and including a pillcam--plus the most telling of all, the diet challenge are negative, it seems to me that it is safe to say that you don't appear to have a problem with gluten. Perhaps you might consider that your symptoms are due to other issues?

I reiterate this because the title of this thread--"I Think I Found a Cure" is misleading.

guest134 Apprentice

I would agree that gluten is not your problem, if you feel the need to sleep and have mood swings after consuming carbs I would say you are more on the line of diabetic. If you had a gluten intolerance NOTHING but eliminating the food will alleviate your symptoms, the reason why many people are here is because there was no relief to any symptoms which lead to a confirmed celiac or NCGI diagnosis.

I guess the reason why some responses can seem hostile is because many people here have been through A LOT, a lot more than you think and through all the B.S (not anything against you) they have a certain exterior defence and have a low tolerance for things that are not factual in the basis of celiac and NCGI. Please don't take offence to any of the responses, everyone here has good intentions at heart but can sometimes come across as mean because of their low tolerance for the non-factual info that lead them to be undiagnosed for so many years.

If you truly believe that you have a gluten intolerance and uphold that you feel you have found what works for you than do what you have to do. Unfortunately the information you have provided does not lead members to believe you have either issues (and trust me if they thought you did they wouldn't lie to you) and we believe that you may be better off looking at other issues and considering the placebo effect in a case such as yours.

If you need any specific info please continue to post or if you feel more comfortable send me a private message, I will help you out to the best of my ability and knowledge.

Edit- Oops, just noticed that you were not the one who commented on the hostility, I will leave the comment there anyway, it is important to remember for anyone who feels that some responses can be heated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GFinDC Veteran

The suggestion to look at blood sugar makes sense to me. You may be getting sleepy after eating the danish due to the amount of sugar in it and the carbs. You can get a blood glucose test kit at a pharmacy and check your own levels. It isn't hard to do. You should test right before you eat, an hour after eating, and 2 hours after eating. Don't eat anything else in the time period when you are testing. That will give you an idea of how your body responds over time.

SandraLAVixen Apprentice

I know this sounds bizare, and it's very frustrating, maybe it's not a total "cure" but I found something at least.

I just know that if I force myself to sleep after eating wheat, there is considerably less pain. If I do not sleep much and eat wheat, then I have severe pain, thrashing, ER, etc, etc... (I don't feel particularly sleepy after eating danishes)

So that's all I know so far, and I'm just trying to figure out what could this be, I have to find an explaination to what I have.

Darkfire Ann Newbie

Gluten makes me tired. Or it can make my heart race and make me swell and still tired. These are immediate reactions. Now if you are dealing with pain and sugar and wheat are making you better it is because you are getting high off of it. I believe it's more a Dopamine issue than a Serotonin issue but I am not a doctor. I do know you can become addicted to sugar and the very things that are killing you like Gluten so temporarily you will not only feel ok but better. However, if you are Celiac you will have intestinal damage symptomatic or not, but again I am not a doctor. Good luck to you.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Blue Roan replied to Blue Roan's topic in Related Issues & Disorders
      4

      Lymph nodes in neck + thyroid issues

    2. - Scott Adams replied to Dawn R.'s topic in Related Issues & Disorders
      1

      Gluten Ataxia

    3. 0

      Vanderbilt Celiac Disease Clinic Life with Celiac Disease: Home for the Holidays

    4. - knitty kitty replied to Bindi's topic in Super Sensitive People
      31

      Refractory or super sensitive?

    5. - glucel replied to Bindi's topic in Super Sensitive People
      31

      Refractory or super sensitive?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      125,913
    • Most Online (within 30 mins)
      7,748

    AWRives
    Newest Member
    AWRives
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Blue Roan
      @RMJ@Scott Adams@knitty kitty, Thank you for all of your responses, tips, and suggestions. I'm very grateful that this website exists. It makes me feel a lot less alone in my celiac journey!  The endocrinologist had me do a neck ultrasound just to be safe. Thankfully, thyroid and lymph nodes came back normal. knitty kitty, my Vitamin D is on the higher end of normal, but I will definitely consider the dentist route next time I have my checkup if I'm still noticing issues. Thank you! Scott, thanks for suggesting the ENT. I may consider seeing one if things don't resolve on their own. I am thankfully feeling a bit better now, so hopefully, this is just some sort of residual celiac inflammation like you mentioned, Scott. After all of the numerous tests and clinical visits I've had all year, I'm going to give my body (and wallet) a break for a few months to rest and heal without the stress of doctor appts/labwork and whatnot. Perhaps the health anxiety is also contributing to some of my symptoms.  Thank you once again for sharing your stories.  
    • Scott Adams
      Welcome to the forum. A search for "ataxia" in our forum shows 718 results: https://www.celiac.com/search/?q=Ataxia&quick=1&type=forums_topic We also have an article category dedicated to summarizing research on this topic: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/ataxia-nerve-disease-neuropathy-brain-damage-and-celiac-disease/ Do you have a specific question about it?
    • knitty kitty
      Using a pressure cooker will break down Lectins.  Long cooking times as in using a crock pot will also reduce Lectin content.   However, having tried both, going lectin free for a few weeks is like a vacation for my digestive system.  I do hope you give the AIP diet a try.  I understand that changing ones diet takes a lot of mental readjustment which is difficult, but it's really worth the effort for long-term health.   P.S.  Once your digestive tract is healed up, you should be able to add beans and rice back into your diet gradually.
    • glucel
      Depending on which source you research sprouting or fermentation can reduce lectins. I sprout rice, buckwheat and quinoa. However, I admit that gas and intestinal inflammation still plague me after 5 1/2 mo gluten-free. I have been resisting but I may try the aip diet at some point.
    • cristiana
      Hi @jadeceoliacuk I am a UK based coeliac and I have used a private nutritionist a few times. She is very highly qualified and having just googled her details, she is listed on this website (see link).  For that reason, I think you could trust the listings here as I am quite sure she would not want to associate with this website unless it was a professional, trustworthy resource. https://www.nutritionist-resource.org.uk/ I hope this helps. Cristiana  
×
×
  • Create New...