Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lectins, Leaky Gut & Celiac Disease - The Connection


Emilem

Recommended Posts

Emilem Apprentice

I was diagnosed with celiac disease in March of this year (2012) after experiencing an on-set of the following symptoms:

-EDEMA (extreme tissue swelling all over the body that never seemed to subside)

-SINUS CONGESTION and SCRATCHY THROAT

-Achiness

-Fatigue

-Anemia (falling asleep all of the time)

-Severe cravings/constant hunger

I immediately eliminated ALL gluten. I felt better for a few weeks, then I felt progressively worse. I've toyed with elimination diets of all sorts for the past six months. I have been able to pinpoint some problematic foods, but what throws me for a loop, is that some herbs, and possibly some vegetables seem to bother me.

I've recently discovered that many celiacs are sensitive to all lectins when they have a leaky gut. I have felt better cutting these well-known lectins from my diet

-legumes

-dairy

-all nuts

-soy

-nightshades & citrus

However, I feel there are some other things lingering in my diet that contain high lectin levels. Is it true that garlic and onion are high in lectin? Are there any fruits and veggies that are known for high lectin content??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

From my reading and experience most lectin-intolerant people are not intolerant to all lectins, but rather specific groups of lectins. You have listed most of the groups up there. Soy and peanuts belong with the legumes, or at least I put them in the same class. I avoid the peanuts not because of trialling them but because I do not tolerate soy. I have no problems with any dairy lectins at this point. I do not know the lectin content of garlic and onion and they do not give me a problem; they are, however, quite high in salicylates which many celiacs have a problem with. I tolerate all tree nuts. One of my big no-no's is corn and the outer skin of the corn kernel is very high in lectins to prevent insect predation. Corn was my first identified reaction to food. And it was a revelation to me when I found out about lectins :) It explained so many things.

Have you actually individually trialled all those food groups, i.e., challenged each one individually? Because if not you may not need to eliminate them all. It is good to eliminate them all to start with (I would include the corn - and that is a hard one ) and then do an individual challenge of each group? If one food of a group is okay, then try another in the same group the following week, eating small amounts of it each day. Continue testing until you know your response to each group or you may eliminate things unnecessarily.

Have you addressed the issue of healing your leaky gut? Because, as I found to my detriment, until you do you may continue to "lose" other foods which infiltrate your blood stream the same way gluten does.

I would be happy to discuss this some more with you.

LeakyGutRsrch Newbie

I was diagnosed with celiac disease in March of this year (2012) after experiencing an on-set of the following symptoms:

-EDEMA (extreme tissue swelling all over the body that never seemed to subside)

-SINUS CONGESTION and SCRATCHY THROAT

-Achiness

-Fatigue

-Anemia (falling asleep all of the time)

-Severe cravings/constant hunger

I immediately eliminated ALL gluten. I felt better for a few weeks, then I felt progressively worse. I've toyed with elimination diets of all sorts for the past six months. I have been able to pinpoint some problematic foods, but what throws me for a loop, is that some herbs, and possibly some vegetables seem to bother me.

I've recently discovered that many celiacs are sensitive to all lectins when they have a leaky gut. I have felt better cutting these well-known lectins from my diet

-legumes

-dairy

-all nuts

-soy

-nightshades & citrus

However, I feel there are some other things lingering in my diet that contain high lectin levels. Is it true that garlic and onion are high in lectin? Are there any fruits and veggies that are known for high lectin content??

Do not overlook the obvious: What is your position on alcohol. For me it was #1 contributor.
GottaSki Mentor

Ditto what Mushroom said, except I am currently intolerant of ALL the high lectin groups with the exception of onions and garlic for which I am very grateful - they add flavor to almost everything I eat.

Eggs also contain high lectin count -- I thought I was fine with them after elimination trials -- turns out I was wrong -- the reaction was not as sudden as with my other intolerances, but when I had a major flare/setback I finally thought what foods are left that I haven't removed -- removed eggs two months ago - have improved greatly -- but it's a combination of removing eggs and finding that one of my worst intolerances is high histamine foods. If you bloat after eating foods that are normally safe for you -- like leftovers of a meal that was safe or bananas or red wine bother you -- take a look at the high histamine list too.

Hang in there -- this silly food puzzle seems impossible to figure out at times -- but it is doable.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - BoiseNic posted a topic in Dermatitis Herpetiformis
      0

      Skinesa

    2. - Wheatwacked replied to llisa's topic in Gluten-Free Foods, Products, Shopping & Medications
      20

      Gluten free vitamins

    3. - trents replied to llisa's topic in Gluten-Free Foods, Products, Shopping & Medications
      20

      Gluten free vitamins

    4. - llisa replied to llisa's topic in Gluten-Free Foods, Products, Shopping & Medications
      20

      Gluten free vitamins

    5. - trents replied to llisa's topic in Gluten-Free Foods, Products, Shopping & Medications
      20

      Gluten free vitamins


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,238
    • Most Online (within 30 mins)
      7,748

    Christi Brown
    Newest Member
    Christi Brown
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • BoiseNic
      Anyone try this? No matter what the brand, probiotics have ALWAYS made me break out bad. I am hesitant to try this simply for that fact, but I ordered a 3 month supply. Any input would be appreciated. Wish me luck.
    • Wheatwacked
      @llisa, I am curious to know how much vitamin D you are taking and what is your plasma level in nmol/L or ng/ml what the doctor's target 25(OH)D is. Hopefully with the gluten free diet you'll be able to feel better.
    • trents
      Yes, but if you had been avoiding bread because of the stricture, that might explain the negative result of the previous celiac antibody test.
    • llisa
      Hashimoto diagnosed over 20 years ago after my daughter was diagnosed and told me to get checked due to similar symptoms. Diabetes diagnosed same time. Exocrine pancreatic insufficiency this past summer. Celiac last Wednesday. Have been having the digestive issues for a couple of years, several doctors--thought we had it solved with the Creon. Then symptoms got worse. I have a theory about that. I have a stricture in my esophagus that has to be dilated every 6-8 months. When it is tight, I have trouble swallowing. Bread is one of the harder things to swallow, so I avoid it. Had the stricture stretched end of October and started eating bread again. That's about when the diarrhea, bloating, gas, and pain started getting worse. Went in for another upper endoscopy and dilation of stricture last week. (It had been so tight this time, he scheduled a second dilation one month after the first.)  I told him how miserable I'd been, and he did the small intestine biopsy. I know they did the blood test for celiac about a year or more ago trying to find source of my problems,  and it was negative.
    • trents
      Diabetes and Hashimoto's as well, huh? You are the epitome of the autoimmune cascade effect. That is, once you get one autoimmune condition you tend to develop others. But I am curious. In the sequence of these several autoimmune diagnoses, where did the celiac diagnosis come? You certainly have a lot of health issues to juggle.
×
×
  • Create New...