Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Nocturnal (Nighttime) Diarrhea And Nausea

ABQ-Celiac

Recommended Posts

ABQ-Celiac Rookie
ABQ-Celiac
Posted

I'm a 52 year old white male.

After several months of nausea and occasional diarrhea, I had two >225 antibody tests. At the suggestion of my doctors went gluten free. I was better right away. Instead of having 6-7 bad days a week, I was done to 1-2.

I'm quite careful about avoiding gluten and mostly make all of my food at home. But I still have occasional nocturnal diarrhea. It's almost always between midnight and 3:30 am. I wake up with a rumbling stomach and nausea, and then I have diarrhea, very soft stool, sometimes mucous, etc.

It's exhausting, as many of you know. I live in a state with poor medical care, and don't have my next appointment with a GI until mid February. Does anyone have any insight? I'm new on this site, but have learned much from so many of you already. This place has been a real life line for me in making these adjustments.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gemini Experienced
Gemini
Posted

I'm a 52 year old white male.

After several months of nausea and occasional diarrhea, I had two >225 antibody tests. At the suggestion of my doctors went gluten free. I was better right away. Instead of having 6-7 bad days a week, I was done to 1-2.

I'm quite careful about avoiding gluten and mostly make all of my food at home. But I still have occasional nocturnal diarrhea. It's almost always between midnight and 3:30 am. I wake up with a rumbling stomach and nausea, and then I have diarrhea, very soft stool, sometimes mucous, etc.

It's exhausting, as many of you know. I live in a state with poor medical care, and don't have my next appointment with a GI until mid February. Does anyone have any insight? I'm new on this site, but have learned much from so many of you already. This place has been a real life line for me in making these adjustments.

Welcome! I am a 53 year white female so maybe I can help! ;)

Nocturnal diarrhea is very indicative of gluten but it may be that you have additional food issues that are causing this. Have you tried eliminating dairy? Many Celiacs have trouble with dairy in the beginning because the enzyme used to break down lactose is produced in the tips of the villi and when those villi are blunted or gone, you cannot digest milk products. I still have to eat dairy light after almost 8 years gluten-free. I went too long without a Celiac diagnosis so when it happened, I think my gut was just too compromised. Some people get their ability to digest milk back, others do not. This is extremely common so when people complain of stubborn symptoms not going away entirely, you look first at dairy. I know, not something many want to hear but it isn't always forever. Either that, or you are inadvertantly ingesting small amounts of gluten somewhere and it's still causing you grief. This diet takes a while to nail down completely. I know how exhausting it is because that was my main issue when I got really sick...nocturnal diarrhea. Sleep is totally disrupted.

How long have you been gluten-free?

ABQ-Celiac Rookie
ABQ-Celiac
Posted
  • Author

Have you tried eliminating dairy?

How long have you been gluten-free?

Thanks for your reply. I've been gluten free for 8 weeks and I've been off diary for the same amount of time. (Before my diagnosis I was getting ill from milk and ice cream especially.)

Continued good luck to you!

kareng Grand Master
kareng
Posted

As an "older" diagnosed Celiac, It takes a lot longer than 8 weeks to get everything healed and back on track. It could be something else you are eating, like a really cheesy dinner with ice cream or maybe you just need more time.

Whoopes! Just saw you are off dairy, but you get the idea. In the beginning a lot of corn products would do that tp me, too. Corn Chex for breakfast, Corn chips at lunch and corn tortillas and frozen corn at dinner. You may find its something like that.

ABQ-Celiac Rookie
ABQ-Celiac
Posted
  • Author

As an "older" diagnosed Celiac, It takes a lot longer than 8 weeks to get everything healed and back on track.

I appreciate your input! I am keeping a good food diary and indeed too much fiber makes me worse, too much fruit, for example. Pork and beans is hard on my stomach. My go-to food is rice. It can be fixed a number of ways and it never seems to bug me. I love this forum. I've learned so much.

Gemini Experienced
Gemini
Posted

I appreciate your input! I am keeping a good food diary and indeed too much fiber makes me worse, too much fruit, for example. Pork and beans is hard on my stomach. My go-to food is rice. It can be fixed a number of ways and it never seems to bug me. I love this forum. I've learned so much.

Yeah.....2 months is not very long and other foods, even gluten-free ones, will cause grief at times. I still, after 8 years, have bad days when I eat something that is harder to digest like a greasier meal or heavier foods. We just have very sensitive tummies and probably always will but it does get much, much better the longer you are gluten free. Just keep it plain and simple for awhile and add things back in slowly.

L.J. Rookie
L.J.
Posted

Welcome ABQ! I too am sensitive to many foods--and have a short list that I can eat. After a bit of time--my tummy problems got much better, but it took awhile. I found that I was still eating foods that I shouldn't be, and that as I get better at knowing the "good foods" for me--my tum does much better. I agree that we all seem to be quite "sensitive" souls with equally sensitive bodies! :D

Keep checking in regularly here--You will find *amazing* support, advice, and some laughs (which we all need too) as well!

Welcome again! :lol: :lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,994
    • Most Online (within 30 mins)
      7,748
    DawnMaureen
    Newest Member
    DawnMaureen
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By trents · Posted

      Okay, it does make sense to continue the gluten challenge as long as you are already in the middle of it. But what will change if you rule it out? I mean, you have concluded that whatever label you want to give the condition, many of your symptoms improved when you went gluten free. Am I correct in that? According to how I understand your posting, the only symptom that hasn't responded to gluten free eating is the bone demineralization. Did I misunderstand? And if you do test positive, what will you do different than you are doing now? You have already been doing for years the main thing you should be doing and that is eating gluten free. Concerning how long you should stay on the gluten challenge, how many weeks are you into it already?
    • WildFlower1
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By WildFlower1 · Posted

      I mean that I will be re-taking the celiac blood test again while I am currently on the gluten challenge right now, but not sure how many weeks more to keep going, to ensure a false negative does not happen. Thank you.
    • WildFlower1
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By WildFlower1 · Posted

      Thank you for your help, I am currently in the middle of the gluten challenge. A bit over 6 weeks in. At 4 weeks I got the celiac blood tests and that is when they were negative. So to rule out the false negative, since I’m in the middle of the gluten challenge right now and will never do this again, I wanted to continue consuming gluten to the point to make sure the blood tests are not a false negative - which I did not receive a firm answer for how many weeks total.    My issue is, with these blood tests the doctors say “you are not celiac” and rule it out completely as a potential cause of my issues, when the symptoms scream of it. I want to rule out this 30 year mystery for my own health since I’m in the middle of it right now. Thank you!
    • trents
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By trents · Posted

      I am a male and had developed osteopenia by age 50 which is when I finally got dx with celiac disease. I am sure I had it for at least 13 years before that because it was then I developed idiopathic elevated liver enzymes. I now have a little scoliosis and pronounced kyphosis (upper spine curvature).  All of your symptoms scream of celiac disease, even if the testing you have had done does not. You may be an atypical celiac, meaning the disease is not manifesting itself in your gut but is attacking other body systems. There is such a thing as sero negative celiac disease. But you still have not given me a satisfactory answer to my question of why do you need a differential dx between celiac disease and NCGS when either one would call for complete abstinence from gluten, which you have already been practicing except for short periods when you were undergoing a gluten challenge. Why do you want to put a toxic substance into your body for weeks when, even if it did produce a positive test result for celiac disease, neither you or your doctors would do anything different? Regardless of what doctors are recommending to you, it is your body it is affecting not theirs and they don't seem to have given you any good justification for starting another gluten challenge. Where you live, are doctors kings or something?
    • WildFlower1
      Contradicting length of time for gluten challenge - please help to ensure not getting false negative. Thank you!

      By WildFlower1 · Posted

      Sorry to put it clearly, at 15, infertility started (tried to word it nicely) meaning menstruation stopped. Which is in correlation to celiac I mean. Thank you. 
×
×
  • Create New...