Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I've Been Thinking....

shadowicewolf

By shadowicewolf
in Coping with Celiac Disease

Recommended Posts

shadowicewolf Proficient
shadowicewolf
Posted

hmmm...

Before i went gluten free i used to break out in really, really bad blister/cyst things on my arms (which already have enough issues). They would be very painful once 'popped' (before and after) and create a crater type thing. I have noticed that i hardly ever get them anymore. The last one i got was over thanksgiving break... and its just about healed up.

Been to the doctors many times for this before my dx. I was put on antibiotics for months, tried different creams, etc... didn't work...

Yet, now those have all but near vanished (me thinks its due to CC'ing myself at home), my skin is slowly, ever so slowly healing up (little acne like things, weird, both cored and liquidy (tmi apologizes)).

And yes, i'm bad about scratching at them (not that its so much itchy)...

Hmmm... thoughts?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


captaincrab55 Collaborator
captaincrab55
Posted

Sounds like DH to me. I saw 4 Dermatologist in 30 years before I got diagnosed and I'm not sure how many Doctors I saw before that.

shadowicewolf Proficient
shadowicewolf
Posted
  • Author

Think so? They've never really been itchy when i'd get them (sometimes though, especially post drainage).

Mri3 Newbie
Mri3
Posted

I had exactly the same thing ... no one diagnosed it properly. They completely disappeared once I was gluten free/wheat free. For myself - they seem directly related to wheat .. if I eat wheat they come back; as long as I avoid wheat they are no where to be found. Sounds like DH to me too. Best of luck ...

Chaff Explorer
Chaff
Posted

I got those, too. And I get them on my face, just below my eyes. It's weird. I'd love to know what it's all about.

shadowicewolf Proficient
shadowicewolf
Posted
  • Author

They also like to show up either on my sholders, in my inner elbow region, and on my wrist. Moving whilst having them is not fun at all. :blink:

L.J. Rookie
L.J.
Posted

Hi All!

Yes, I get blisters, rashes, bumps and other skin issues too! I have been Gluten Free-etc. etc. and I too had been cc ing myself by using (Cetaphyl) Lotion--the soap works well--but the lotion has gluten... (I do not have any association with Cetaphyl products) :)

The one thing that has helped me the most--is I started a gluten-free Fish Oil high quality gel tab. It has very few ingredients except the needed fish oils. Believe it or not, I felt a difference within days of using it. I have used it for two weeks straight now--and my skin is *much* better. Not perfect--I still have rashes and bumps, and sores from the old breakouts--but my skin is better. Less peeling off of "dead skin"-- My face is not having the little white cysts either--it is the clearest it has been in a long time! :D :D

It was my Optician who told me to start taking it because being gluten-free we don't get enough of the "good" oils that our body needs. I am having problems with my tear ducts because of it--She said to immediately start the Fish Oils to help my eyes heal. That is a slow process--(no contact lenses for a long while :( ) but the best Side Affect to the Fish Oil was how it is helping my skin!!! :D

Just a thought--My Allergist and Dermatologist kind of shake their heads at all of the skin rashes I have too-- <_< But I did want to share that thought with you about the Fish Oil because of how much it has helped my skin issues!!!! :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


L.J. Rookie
L.J.
Posted

Shadowicewolf--Hi! :lol:

I have them on my shoulders, arms, elbows, legs, torso--hands, wrists too! Another thought to mull on...My Allergist is certain that I have allergies to Chemicals--I am going to do a chemical test on New Years Eve What a way to welcome in the New Year, eh?? :lol:

The three most common chemicals that people have are in hair dye (which I recently changed) and Formaldahyde. The third one I can't remember... But, what I did want to share was that people with skin rashes do *best* with 100% cotton fabrics everywhere! Polyester is a huge allergy for *many* people--and causes me to have break outs wherever it touches me... Leather also has chemicals in it--I have a leather chair--and every time I sat in it, I would have a rash on my back....when I looked up the chemicals, guess what I found??? Leather, suedes, polyester, plastic all have some of the chemicals that many people are allergic to :angry:

So just some more thoughts to think on...We do have to "think outside of the box" for answers, don't we??? :D Let me know what you think???

shadowicewolf Proficient
shadowicewolf
Posted
  • Author

I don't touch chemicals unless i have to (family history of major allergies to them). I normally only wear cotton things on top of it. :)

I tried the fish oil once before and it didn't cut it. Right now i only use vanicream on it because it doesn't irritate it at all.

L.J. Rookie
L.J.
Posted

Yes, I use the vanicream too--lotion, soap, etc...It definitely helps me too. Sorry that the fish oil made things worse :(

Let's keep hanging in there and sharing what does work, though, yes? :rolleyes: On this forum, we find out so much helpful info!!!

frieze Community Regular
frieze
Posted

hmmm...

Before i went gluten free i used to break out in really, really bad blister/cyst things on my arms (which already have enough issues). They would be very painful once 'popped' (before and after) and create a crater type thing. I have noticed that i hardly ever get them anymore. The last one i got was over thanksgiving break... and its just about healed up.

Been to the doctors many times for this before my dx. I was put on antibiotics for months, tried different creams, etc... didn't work...

Yet, now those have all but near vanished (me thinks its due to CC'ing myself at home), my skin is slowly, ever so slowly healing up (little acne like things, weird, both cored and liquidy (tmi apologizes)).

And yes, i'm bad about scratching at them (not that its so much itchy)...

Hmmm... thoughts?

I am thinking probably not,,,,,but could it be acne inversa?
shadowicewolf Proficient
shadowicewolf
Posted
  • Author

its possible... I looked it up on wikipedia, but its general area that it is located in is the underarm, the butt, under breasts, etc. Places where there are alot of friction.

I've noted that i've had them on my inner elbow area and on my wrist (outer). I've also gotten them on my sholders, mid-upper arm and lower arm. On a rarity i've gotten them on my upper thigh and once on my chest.

mommida Enthusiast
mommida
Posted

I got those, too. And I get them on my face, just below my eyes. It's weird. I'd love to know what it's all about.

Are you talking about something that looks like a "hard cream colored" for better term acne? If so, that is a symptom of circulatory issue ~ mainly a heart issue. Or that was the doctor's advice when my friend went into the doctor's office to have them removed. He is now on medication for his heart, and I haven't noticed them since. That does seem to make sense. That is an area of "transition tissue" where some of the (lipids/fats?) can become trapped.

Chaff Explorer
Chaff
Posted

Hm...no, mine are something else. But good to be on the watch for -- thanks for the tip!

Darkfire Ann Newbie
Darkfire Ann
Posted

hidradenitis suppurativa is what I was dxed with and it is totally different than my DH. Take a google gander and see if it matches your symptoms. When Glutened my reactions are worse. I have been hospitalized for an abscess that went necrotic.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,117
    • Most Online (within 30 mins)
      7,748
    Ellis Dennis
    Newest Member
    Ellis Dennis
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.2k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • StaciField
      My bone structure is disintegrating and I’m having to have my teeth removed

      By StaciField · Posted

      There’s a Cosco in Auckland in New Zealand. It’s a bit away from where I live but it’s worth the travel for me. Very appreciative of your advice.
    • Wheatwacked
      Celiac Maybe a Possibility?

      By Wheatwacked · Posted

      It seems you have proven that you cannot eat gluten.  You've done what your doctors have not been able to do in 40 years. That's your low vitamin D, a common symptom with Celiac Disease.  Zinc is also a common defiency.  Its an antiviral.  that's why zinc gluconate lozenges work against airborne viruses.  Vitamin D and the Immune System+ Toe cramps, I find 250 mg of Thiamine helps.   When I started GFD I counted 19 symptoms going back to childhood that improved with Gluten Free Diet and vitamin D. I still take 10,000 IU a day to maintain 80 ng/ml and get it tested 4 times a year. Highest was 93 ng/ml and that was at end of summer.  Any excess is stored in fat or excreted through bile.   The western diet is deficient in many nutrients including choline and iodine.  Thats why processed foods are fortified.  Celiac Disease causes malabsorption of vitamins and minerals from the small intestine damage.  GFD stops the damage, but you will still have symptoms of deficiency until you get your vitamins repleted to normal.  Try to reduce your omega 6:3 ratio.  The Standard American Diet is 14:1 or greater.  Healthy is 3:1.  Wheat flour is 22:1.  Potatoes are 3:1 while sweet potatoes are 14:1.  So those sweet potatos that everyone says is better than Russet: they are increasing your inflammation levels.   
    • Scott Adams
      Weird Symptoms

      By Scott Adams · Posted

      My mother also has celiac disease, and one of her symptoms for many years before her diagnosis was TMJ. I believe it took her many years on a gluten-free diet before this issue went away.
    • Jeff Platt
      Weird Symptoms

      By Jeff Platt · Posted

      Ear pain and ringing your entire life may or may not be TMJ related but could be something else. A good TMJ exam would be helpful to rule that out as a potential cause from a dentist who treats that. I have teens as well as adults of all ages who suffer from TMJ issues so it’s not a certain age when it shows up.   
    • cristiana
      Weird Symptoms

      By cristiana · Posted

      Not sure if related to coeliac disease but my ear ringing  has stepped up a notch since diagnosis.  Even since a child silence really hurts my ears - there is always a really loud noise if there is no other noise in a quiet room - but my brain has learned to filter it out.  Since diagnosis in my forties I also get a metallic ringing in my ears, sometimes just one, sometimes both.  But it comes and goes.   My sister also suffers now, we are both in our fifties, but she is not a coeliac, so for all I know it could just be an age thing.  I do get occasional stabbing pain in my ears but that has been all my life, and I do appear to be vulnerable to outer ear infections too.  So not a particularly helpful reply here, but I suppose what I am trying to say is it might be related but then again it could just be one of those things.   I think in the UK where I live doctors like you to report if you get tinnitus in just the one ear.  I reported mine but no cause was found.  Most of the time it is nothing but sometimes it can have a cause that can be treated, so perhaps worth reporting to your GP.  
×
×
  • Create New...