Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Diagnosing A Lactose Intolerence


Adalaide

Recommended Posts

Adalaide Mentor

What sentence? :huh:

:lol:

Not exactly buying the paragon of innocence routine. Sorry. :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ButterflyChaser Enthusiast

... the "how fast can I get to a loo when out in public" thingy, because yeah, I thought I, too was done with that malarkey I endured for 40+ years and so...

gee, and I am whining because the same has lasted for about 6 months for me! :(

Adelaide, any chance it may not be milk, or cheese per se, but some additive they sneak into the cheese? That did happen to me, causing severe D and blistery rash.

Adalaide Mentor

The cheese is simply listed as having cream, cultures, enzymes and salt. Exactly what it takes to make cheese.

My problem is most assuredly not A1 casein. I drank like a quart of milk and feel pretty much fine. I think I'm just going to attempt to shrug it off at this point and try to fit more pieces if/when I get that sick again. Until then it will remain a mystery and I will try to forget it ever happened so it doesn't eat away at me.

IrishHeart Veteran

Not exactly buying the paragon of innocence routine. Sorry. :D

...eh, thought it was worth a shot......... :lol:

IrishHeart Veteran

I think I'm just going to attempt to shrug it off at this point and try to fit more pieces if/when I get that sick again. Until then it will remain a mystery and I will try to forget it ever happened so it doesn't eat away at me.

I hear you. Sometimes, even after I wrack my brain trying to figure out what made me feel yucky (when I had been enjoying a

decent stretch of "peace in the land"), I just give it up, too.

This healing road is so up and down and sometimes, I think it's just a wonky day for the old GI tract.

It is frustrating for sure, but not worth making ourselves nuts.

(or any more nutty than we already are....) :D

foam Apprentice

Strongly suggest you get onto A2 milk only asap, cheese is only concentrated Milk, you can have a mild problem with milk and a much larger problem with Cheese and milk chocolate. Nothing to do with lactose sugar imho, just the A1 milk protein. Yoghurt is the go because the bacteria eat the lactose before you eat it anyway and you really don't want to eat much sugar with a dodgy gut. I originally thought all milk problems were lactose related but after getting more and more unwell on vintage cheese which has no lactose I've seen that theory is just not true.

Adalaide Mentor

Thanks for the tip, and maybe I wasn't totally clear on this with all of my comments on testing and trying to expand my diet. I have completely given up trying to expand my diet. I have for over two months now been on raw milk which I didn't know then, but understand now is A2. It has been for that entire time, until "the incident" been the exclusive source of milk for me. I do not eat milk chocolate as that crap is horrid and nasty, milk has no place in chocolate. I am quite a chocolate snob as a matter of fact. I even made my own peppermint bark out of rather pricey chocolate. It is oh so good!

After drinking milk, eating cheese and going through various type of pain for no apparent reason for that cheese "product" thing I tried I have determined that I in no way have any sort of issue at all with milk. Not lactose, not casein. I will continue with my raw milk though because it is not iodine contaminated and I can also buy cheese made from it. I find that the milk you can buy in the store tastes like crap and frankly if I have to pay almost three times as much for my milk, then so be it. At least it won't give me a rash or suck.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



foam Apprentice

That's great you have a source of raw A2 milk, I have a friend with a A2 cow, I should probably be asking her for some milk too. I work at a dairy farm occasionally also who mostly have A1 cows but also some Jersy cows which are mostly A2 so I have a contact there, I could in theory get my own pure A2 cow one day :0 could just have it in the heard and milk it separately into a container.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - John Scott commented on dixonpete's blog entry in Pete Dixon
      9

      A video with researcher William Parker about Helminthic Therapy

    2. - Mari replied to emily 1's topic in Coping with Celiac Disease
      6

      Black Pepper Reactions

    3. - dixonpete commented on dixonpete's blog entry in Pete Dixon
      9

      A video with researcher William Parker about Helminthic Therapy

    4. - Mari replied to dlaino's topic in Coping with Celiac Disease
      6

      Coping with celiac

    5. - trents replied to Tyoung's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Increasing symptoms after going gluten free


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,007
    • Most Online (within 30 mins)
      7,748

    Clg1994
    Newest Member
    Clg1994
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.8k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Hi Emily, What you described is very similar to what I experienced in coping with Celiacs. I think my first symptoms started when I was about 3 and I wasn't diagnosed until I was almost 70. I got along OK util I was about 30  when I began to have more problems that the Drs thought was an autoimmune problem that they couldn't identify. Then I worked in medical labs in Bolivia for 8 months and returned to the US with more problems such as sensitivities to chemicals and increasing food intolerances. I had always had canker sores in my mouth and nose but have not had any now  since I went strictly gluten free. Before I was gluten-free I became very sensitive to hot peppers and then I could not eat anything spicy such as cinnamon, turmeric or black peppers. I have not eaten any nightshades for years. No corn or soy.  My diet now is lamb stew with rice, squash, green beans, chard, kale, collards with salt. Then eggs , chard, spinach, black beans, summer squash, asparagus, rice and salt. I eat peanuts for snacks. I have been eating nuts but may have to stop. Coconut is OK but too much sugar is not.  I am very cautious about adding back foods to my diet but hope to add back small amounts of turmeric. Take care.
    • Mari
      mcg Vit. B12Hi dlaino  - You mentioned that you are now feeling sick all the time. If this is making you miserable you might want to go to your health provider, describe what you are feeling and your symptoms so that theySome of the people here can give you useful advice about taking supp;ements and the amounts you could take to improve your overall health. I have increased my Vit. B12  can help you figure out what is happening. Just because you have gluten intolerance does not mean that your current problems are related to that. Some of the people here can give you useful advice about supplements and how much to take for improved health. I recently upped my Vit. D3 from 50 mcg to 150 mcg and now take either 500 mcg or 1000 mcg of vit. B12 sublingual daily instead of once a week.                                    Take care
    • trents
      Welcome to the forum, @Tyoung! It is possible that you are experiencing some kind of gluten withdrawal but I would thing that would have started to subside by now. There are a couple of possibilities that come to mind. One is the polysaccharide ingredients that are typically found in prepackaged "gluten-free" wheat flour facsimile foods. If you read the ingredient lists of such foods you will usually find things like guar gum and xanthan gum. Their function is to give the product a texture similar to wheat flour but they are hard to digest and give many celiacs digestive issues. I mention this not knowing if you are relying on prepackaged gluten free food items to any extent or are just choosing carefully from mainstream naturally gluten free food items. Another is that your body is just going through adjustment to a major dietary change. Wheat is a significant component to the typical western diet that supplies certain nutrients and some fiber that has now been withdrawn suddenly. Are you experiencing any constipation? Also be aware that foods made from gluten-free flour are typically devoid of nutritional value. Wheat flour is mandated by government regulations to be fortified with vitamins but gluten-free flours are not. It can be smart to compensate for this with vitamin and mineral supplements. Still another possibility is that in addition to being gluten intolerant, your also have other food intolerances. One small study found that 50% of celiacs reacted to dairy like they do gluten. That number may be on the high side in reality and more research needs to be done. However, it is true that dairy intolerance is very common in the celiac community. Another common "cross reactive" food is oats. There are certain foods whose proteins closely resemble gluten and cause the same reaction. About 10% of celiacs react to the protein "avenin" in oats like the do the protein gluten. You might try eliminating dairy and oats for a few weeks and see if your symptoms improve.
    • Tyoung
      Before my diagnosis I would consider myself pretty much asymptomatic other than a few flare ups of what I previously thought were ibs symptoms. After having iron deficiency as well I had a positive blood test and EGD. I have now been gluten free for about a month but my symptoms have gotten worse. I now have bloating, acid reflux, and pain in the upper abdomen on and off most days. I am pretty positive I am not being glutened as we overhauled our whole house to be gluten free and haven’t eaten out since the diagnosis. Has anyone else experienced a worsening of symptoms after going gluten free? Will it subside? Or is there something else I should be concerned about. Thank you! 
    • RMJ
      That is strange.  Other pages talk about testing. The one thing I like about GFCO is that the handbook for their certification process is available on their website.  I may not agree with the whole process, especially the reduced testing, but at least I can see what the process is. I wish the other certifying organizations would publish their processes. GFCO 2024 manual
×
×
  • Create New...