Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Best Leaky Gut Healing Diet To Follow


Emilem

Recommended Posts

jerseyangel Proficient

JERSEYANGEL -

Just curious, were you able to figure out why you were having a problem with the chicken?

No, not specifically. I think that, as happens sometimes, I was reacting to a lot of things while my gut was still damaged and trying to heal.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Highflyer Newbie

The operative word is "management" . Not cure.

Until the connection to gluten was discovered by doctors in the Netherlands after World War II, no one really knew what sparked the autoimmune response.

I think it was 1952, unfortunately there is so much more to learn about this disease and we, along with millions of others, are proof that the conventional treatment for Celiac Disease is grossly inadequate. The current conventional treatment for Celiac is antiquated and ineffective long term...There is a real need for more research to be done.

To say adopting the SCD diet after a celiac diagnosis will "cure" celiac disease is simply not true.

Does the SCD help alleviate more symptoms for many people? YES!

And people should try it if they wish to see if it will help.

I am not arguing this point with you at all.

Phew...that's a relief. ;) I think it's likely a very individual thing...some claim they are cured.

I hope you see the distinction I am trying to make here.

Best wishes to you!

Indeed I do!

Clearly there is so much more to be learned about this disease. I'm not sure I actually said "I" believe the SCDiet will cure Celiac, but that Dr. Haas was known in his day as having discovered a cure. The banana diet is fun to read about. In the end the SCDiet was what he concluded was resolving his patients intestinal issues, bananas were not a big part of it, except that eating very ripe ones is on the allowable food list. Elaine Gottshall gives a very good explanation of the science behind why his diet works in her book Breaking the Vicious Cycle.

I wish my drs over the years had been better equipped to instruct me in the area of diet...most of us are left on our own devices to figure it out. So it's a relief to have some practical advice with scientific backing.

Let's not be naive about the popularization of certain kinds of treatments. The gluten-free food industry is a good example of that...over priced packaged foods, many of which could be classified 'junk food'...it's a total money grab. I'm leary of any 'remedy' that is a marketing scheme.

For me personally Celiac disease was not the first autoimmune disease I developed, which I'm more and more convinced was caused by leaky gut syndrome...(but where did the leaky gut come from? did gluten cause the leaky gut or did the leaky gut cause celiac disease?---I lean strongly toward the latter explanation.) The remedy for leaky gut is starving off pathogens with special diet and other means and rebuilding healthy intestinal flora with probiotics. Doing this seems (for me personally) to be reversing all my autoimmune diseases...slooowly. Others have experienced the same thing.

(We seem to have more than one train of thought happening in this thread and I apologize to the original poster if this is veering off into outer space. We could move it elsewhere.)

IrishHeart Veteran

I do not think it has gone so terribly off topic at all. The discussion of various approaches to healing a leaky gut is very much on topic.

But, the link you posted to---does indeed say the SCD diet cures it--along with this

"Curing celiac disease depends on repopulating the intestinal tract with helpful flora microbes."

While I agree probiotics are necessary to repopulate the good gut flora,

I do not see how this is a "cure" for celiac. It is part of the treatment in getting the symptoms under control.

Everyone should do what they feel is best to feel well.

Kind regards.

kareng Grand Master

I think there is a difference between "curing Celiac" and "healing from Celiac". These diets, probiotics, etc can help you "heal" but they are not a "cure". There is no reputable medical/scientific data that a Celiac can go back to eating gluten with no ill effects once thier gut is healed.

jerseyangel Proficient

Exactly--there is currently no cure for Celiac Disease. There are things people can do to help with or even eliminate the symptoms of the disease, but the underlying cause will always be there.

GottaSki Mentor

Yep...no cure and many different dietary changes and combos of supplementation can produce results for many -- the key with all is removing all gluten first, then make any other changes needed to help the damaged small intestine heal and stay healed!

Highflyer Newbie

I think were haggling over words. Healed vs. Cured. I guess for me cure is defined by evidence. I have arthritis and if my body no longer showed evidence of the disease I would consider myself cured of it. I have a skin disorder that is healing itself...once I have fully recovered from it I will consider myself cured. Likewise, Dr. Haas had patients who were symptom free after returning to a regular diet, which he and they considered evidence of a cure. I think it's a fabulous bit of information worth looking into. If I ever get to the point where I feel my body is healed and I can resume a diet that is healthy (which would be far from the typical american diet btw) I would also consider myself cured of the disease. Ha...hasn't happened yet! I agree with you all who say 'there is no cure' but I would qualify it by saying, "To date conventional western medicine has not recognized a cure for celiac disease"...however that doesn't mean there is no cure for it, or that it is incurable.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

Perhaps we are haggling over words, but the words we choose to use on this forum are important as there are many newly diagnosed individuals who read "cure" which leads to more confusion during an often very confusing transition.

In my opinion:

"Cured" would mean someone with Celiac Disease would both heal and be able to safely ingest gluten for life.

"Healed" means health has been restored by healing the damaged small intestine. Often this requires removing more than gluten - while it is possible to get some food intolerances back into the diet - for Celiac Disease gluten can never be ingested safely - well at least until our friends down under work the kinks out of theiir vaccine research.

ndw3363 Contributor

Yes, but I think the point some are trying to make is that just because patients felt "symptom free" doesn't mean they weren't redoing all the damage to their systems. Once completely healed, I'm sure plenty of people could go back to eating whatever they wanted with no symptoms...however, months or years down the road, they would be right back to where they started or worse. Patients felt better because they stopped eating the offending foods and healed their systems. That's like drinking small amounts of poison every day and feeling terrible...stop drinking it and you will miraculously feel "cured". Just my opinion. I had a skin condition too that is HEALED since going gluten-free. However, it is not CURED because if I were to go back to eating that way everyday, my skin condition would return.

jerseyangel Proficient

I think were haggling over words. Healed vs. Cured. I guess for me cure is defined by evidence. I have arthritis and if my body no longer showed evidence of the disease I would consider myself cured of it. I have a skin disorder that is healing itself...once I have fully recovered from it I will consider myself cured. Likewise, Dr. Haas had patients who were symptom free after returning to a regular diet, which he and they considered etevidence of a cure. I think it's a fabulous bit of information worth looking into. If I ever get to the point where I feel my body is healed and I can resume a diet that is healthy (which would be far from the typical american diet btw) I would also consider myself cured of the disease. Ha...hasn't happened yet! I agree with you all who say 'there is no cure' but I would qualify it by saying, "To date conventional western medicine has not recognized a cure for celiac disease"...however that doesn't mean there is no cure for it, or that it is incurable.

Celiac is an autoimmune disease. No matter how well you get yourself feeling--which is totally possible--the disease itself is still there. I feel perfectly normal unless I get accidentally cross contaminated. Took years to get to this point, though, and I would never consider relaxing the "no gluten ever" rule.

Plus, with Celiac, symptom intensity does not necessarily correlate with damage.

You have a right to eat whatever you want, but Celiac at this point can't be cured--there is a lot we still don't know about the disease, but this we do know for sure.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

    2. - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    3. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    4. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,415
    • Most Online (within 30 mins)
      7,748

    KittyKatJill
    Newest Member
    KittyKatJill
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.