Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is There A Name For This Diet?


Ray21

Recommended Posts

Ray21 Rookie

Hi,

I am not sure if there is a name for what I can and can not eat. I seem to do fine with a small amount of white rice or potato but no other grains. Also, unlike people who do fine on a Paleo diet with seeds, I can not eat seeds either.

So basically, my diet is Paleo +rice/potato and (- seeds) !

Is there a name for this diet?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

How about "What Works for Ray Today"? :D

I don't know how long you have been doing this, but you might be able to add some foods back in a few months or a year.

Persei V. Enthusiast

Mine is paleo, -seeds and nuts +potato/white cane sugar.

Also known as "The only stuff I can eat" diet.

Ray21 Rookie

How about "What Works for Ray Today"? :D

I don't know how long you have been doing this, but you might be able to add some foods back in a few months or a year.

hehehe... well i am trying to find out if there is an actual name for it so I can look up recepies and join their meetup groups! ... who knows I may find all kinds of friends and even my soulmate ...... Anyone else out there is on "What Works for Ray Today" diet ??? :D J/K

kareng Grand Master

You could find Paleo recipes and just add what you can eat or subtract what you can't. Or start your own dating forum? ;)

Chaff Explorer

Ray, have you tried soaking the seeds? I know the Paleo folks do this, but they often don't talk about it much. It's a little involved (soaking overnight and then low-level roasting for a while) but I hear it helps with digestion immensely. Most websites with instructions on it get them from the book Nourishing Traditions (which I have on order and haven't read yet).

For example: Open Original Shared Link

Works for grains, too, apparently: Open Original Shared Link

Anyway, I've only soaked rice and polenta (both helped a LOT) but haven't had the courage to do nuts yet. But I can handle almond milk OK, although regular almonds not so much, so it seems like it should work.

foam Apprentice

Everyone says not to eat potato but there's something in that stuff that works well. I think it's the poisons in the skin (I eat them with the skin) and there are supposed to be some fairly powerful compounds in potato skin, anti fungals. The only problem I've had with them was as a kid if I ate a lot of baked potato's with skins I'd have the most crazy vivid nigthmares and have them every single time I ate potato late at night..


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



LeakyGutRsrch Newbie

Autoimmune paleo diet and SCD diet are closes to what you are eating.

Ray21 Rookie

Everyone says not to eat potato but there's something in that stuff that works well. I think it's the poisons in the skin (I eat them with the skin) and there are supposed to be some fairly powerful compounds in potato skin, anti fungals. The only problem I've had with them was as a kid if I ate a lot of baked potato's with skins I'd have the most crazy vivid nigthmares and have them every single time I ate potato late at night..

Well, since most of these food allergies revolve around problem with certain protein digestions, I wonder if potatos just don't have the protein that I am allergic to. I know I am allergic to Gluten, but I am talking besides glutern. Maybe there is other protein that are not yet researched enough to make as much headlines as gluten. For example, I hear there is a protein in Oats that some people are allergic to. My body actually acts much worst to oats and oat bran then it does to wheat so I am one of them.... It could very well be that my body can digest all the protein in the potato. Same with white basmati rice, but not the brown rice which is suppose to be better for you!

foam Apprentice

Ray21 you are right, it's the proteins that cause the problems. I'm in the same boat but have some extra complexities because I also have a high eosonphil white cell count that's causing more damage on it's own it's also caused an enlarged node/tumour in my neck, I also have a IgE antibody level over 4000 (which should be under 200) although I don't have any actual allergy as such, I am just intolerant to grains and some kinds of dairy (although Yoghurt is doable. I've been slightly sick for well.. decades but I started to have enormous daily stomach and small intestine issues about 3 years ago and that's when I went off wheat, I was practically on the toilet all day... not eating wheat helped a lot but because I kept eating Corn etc I didn't ever really improve that much.

Lately I'm making my own Yoghurt from A2 milk from this company since the A2 yoghurt isn't available in my local supermarket yet. Open Original Shared Link I make it with a spoon of normal bacteria from a normal yoghurt and add in some LGG and other probiotics in it which is super easy to make and I don't know why I didn't do this years ago. I'm going to see if you can set yogurt made from pure LGG only soon. The A2 milk really makes a difference in the digestibility of the proteins and my own inner feeling is that I'm digesting it 100% perfectly, I don't even get any grumbling/gurgling from it like I do from the normal milk here which comes from friesian (holstien) cows and is A1 protein, that is bad bad news). The only allergy I technically have is to yeast which I think has built up because of Candida.

So my problem is that because all the proteins from grains and legumes have been leaking through my small intestine for years and years I've got anti bodies to all those proteins which makes me very intolerant of them, because I was vegetarian for a couple of decades I've eaten way too much grains. I'm now eating meat and the good thing is that it's building my body up and fixing my many malabsorbtion deficiencies, for the first time in ages I have enough minerals to wake up with mucus in my eyes! :) amazing. I'm also acne free for the first time in 20 years after only 2 weeks on red meat.

But It's also still not helping my eosonphilia because of the proteins in it although it's much easier to digest than grains, the only meat I'm dodgy on is Chicken, especailly the breast as it's almost non digestible, red meat and fish though I get near enough to 100% digestion on. However! something that may interest you is that is that whenever I take antibiotics my eosonphil count drops and my white tongue magically goes away... The only bacteria that can really cause these problems I have is helicobacter pylori and I have been treated for it before but obviously the high card high sugar diet I used to be on feed it too much and it didn't die off. Now I'm taking another course of treatment for it since it really seems to be the smoking gun in my case, or some other uncommon similar upper intestinal bacteria. If I keep eating my home made lgg yoghurt I seem to be able to take antibiotics just fine without issues, normally they totally ruin me and I give up on them.

I can get my eosonphil count down just fine eating potato only and vege juice just because there's almost no protein in those foods. But you can only do that for a limited time when you are already deficient and borderline malnutritioned as it is.

The trick for me is, sure I can take the antibiotics and eventually kill off the H pylori but then how to you eat enough protein to repair your gut without increasing your eosonphil count and ruining you gut and probably getting reinfected with a bacteria. You could technically do it with straight pure amino acids because they your body doesn't recognised them as anything bad. But I don't have any.. should get some. In the end I might just give up and take cortisteriods for a couple/few months to give me some respite from the eosonphillia and get my IgE levels down to a sensible level. I can't really take H pylori anything but very seriously with my genetics because my Grandfather suffered for years with stomach problems and ended up dying at a young age from complications of Ulcers.

All grains other than white rice give me problems, although even white rice causes my body to be "stiff" as in slightly inflamed compared to potato. Pretty much every other grain sends my to the toilet half out of my mind almost straight away, most especailly Corn and Wheat but Oats was never any good either, they are all too hard/ to slow to digest and leak through your gut undigested before they break down into amino acids.

mushroom Proficient

I wonder if potatos just don't have the protein that I am allergic to. I know I am allergic to Gluten, but I am talking besides glutern. Maybe there is other protein that are not yet researched enough to make as much headlines as gluten. For example, I hear there is a protein in Oats that some people are allergic to. My body actually acts much worst to oats and oat bran then it does to wheat so I am one of them.... It could very well be that my body can digest all the protein in the potato. Same with white basmati rice, but not the brown rice which is suppose to be better for you!

Ray, are you able to eat potato skins without any problem? It is the skins that I cannot eat because they contain the protein called lectin (there are also lectins in many other foods; e.g., probably in brown rice because it has the outer husk of the rice grain which is removed for white rice.) I tend to avoid brown rice to keep away from as many lectins as possible. The lectins contain a substance which is poisonous to insects (causes their blood to clot) and is the plant's first line of defense against attack.

Ray21 you are right, it's the proteins that cause the problems....

So my problem is that because all the proteins from grains and legumes have been leaking through my small intestine for years and years I've got anti bodies to all those proteins which makes me very intolerant of them....

Yes, that goes for me too. I can do white rice, and the 'pseudo-grains' (or should I say not recognized as grains by the general population) buckwheat, teff and sorghum because they are things I have never eaten before. But I have lost so many foods and am struggling to get them back. For me, at least, it appears to be the lectins in the skins of the plants, which then generalizes to the whole plant, and then to the whole food group. It will be a red letter day if I can eat legumes again!!! White bean salad, mmm!!!

foam Apprentice

Mushroom I ate a lot of potato skin the other day as a test for the first time in a few weeks and didn't do that well with it as I thought I would lol! so I might retract that statement. I'm not on potato at all at the moment because I'm trying to starve this bacteria while I'm on antibiotics because I'm really improving considerably on antibiotics if for no other reason than my eosonphillia goes down, when it's high at about 30% wbc for years and years you get used to feeling how you do but you feel way better when the levels are down.. Turnips seem an awesome! replacement (peeled :)) for potato but in any case potato is better than rice, I'm sure about that. I'm 41 and progressively got more problems as I age, my wife is of Spanish decent and younger at 33. She has a big genetic advantage with grains compared to me who's a Northerner but even so she's recently developed intolerances to Corn and Lentils. She's pregnant at the moment and that really helps in showing things up! she gets a big red mark right around her mouth every time she goes near corn at the moment.

It's a real pain to fix this leaky gut, I'm really glad for this forum because most doctors and other people just don't get how it all works or even believe it exists, they are just all about the Celiac which is only one small part of a very big puzzle. It's pretty hard when you are fighting against some bacteria, trying to grow others, fighting your own immune system and half the foods and pretty much all the additives on the planet all at once :)!.

foam Apprentice

If you guys want me to walk you through how to make probiotic yoghurt just let me know, I'm going to make some more today and also try the pure LGG to see what that makes. I made two batches yesterday. One was ordinary cultures and the other ordinary + probiotics and for me the probiotic tasted better so I'm interested to see if it will culture on it's own in milk, I hope so because it's very expensive to by as a powder! so I'd be very happy to just keep on growing it myself.

mushroom Proficient

Mushroom I ate a lot of potato skin the other day as a test for the first time in a few weeks and didn't do that well with it as I thought I would lol! so I might retract that statement. .....

It's a real pain to fix this leaky gut, I'm really glad for this forum because most doctors and other people just don't get how it all works or even believe it exists, they are just all about the Celiac which is only one small part of a very big puzzle. It's pretty hard when you are fighting against some bacteria, trying to grow others, fighting your own immune system and half the foods and pretty much all the additives on the planet all at once :)!.

Not only that, but I am doing something very counter-intuitive, in taking Humira injections for my psoriatic arthritis (which, although I think it is not as bad as before the diet, is still debilitatingly painful if I don't) and which are TNF inhibitors which, wait for it, suppress the immune system :ph34r: So anytime I get an infection of any kind I can't shoot up :lol: until I heal it up and then I get dangerously close to a nonfunctioning level.

Nobody knows the troubles I've known..... :blink:

mushroom Proficient

If you guys want me to walk you through how to make probiotic yoghurt just let me know, I'm going to make some more today and also try the pure LGG to see what that makes. I made two batches yesterday. One was ordinary cultures and the other ordinary + probiotics and for me the probiotic tasted better so I'm interested to see if it will culture on it's own in milk, I hope so because it's very expensive to by as a powder! so I'd be very happy to just keep on growing it myself.

I think I missed something along the way -- what is LGG?

foam Apprentice

This is LGG, there's heaps of studies on it versus allergy and leak gut etc. Open Original Shared Link

It's probably the best of the known bacteria's to help, along with the yoghurt it seems to help put a liner of mucus on your guts, the German doctor that specialises in curing leaky gut has all his patients on at least half a litre a day!.

  • 2 weeks later...
Nadia2009 Enthusiast

Is there LGG in BioK or Dr Ohira probiotics? I have been taking those two for some time.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

    2. - Jane02 replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

    3. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

    4. - trents commented on Amiah's blog entry in Amiah
      1

      Help!!

    5. - Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
      314

      Terrible Neurological Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,581
    • Most Online (within 30 mins)
      7,748

    MaggieSc
    Newest Member
    MaggieSc
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Jane02
      Sorry, I just realized how old this thread is and only read the initial post from 2021. I'll have to catch up on the comments in this thread. 
    • Jane02
      Sorry to hear you're going through such a hard time. It would be worth looking into MCAS/histamine issues and also Long Covid. Perhaps there is something occurring in addition to celiac disease. It would be worth ruling out micronutrient deficiencies such as the b vitamins (B12, folate, B1, etc), vit D, and ferritin (iron stores). 
    • knitty kitty
      This sounds very similar to the neuropathic pain I experienced with type two diabetes.  Gloves and boots pattern of neuropathy is common with deficiencies in Cobalamine B12 (especially the pain in the big toe), Niacin B3, and Pyridoxine B6.  These are vitamins frequently found to be low in people with pre-diabetes and diabetes.  Remember that blood tests for vitamin levels is terribly inaccurate.  You can have vitamin deficiencies before there are any changes in blood levels.  You can have "normal" serum levels, but be deficient inside organs and tissues where the vitamins are actually utilized.  The blood is a transportation system, moving vitamins absorbed in the intestines to organs and tissues.  Just because there's trucks on the highway doesn't mean that the warehouses are full.  The body will drain organs and tissues of their stored vitamins and send them via the bloodstream to important organs like the brain and heart.  Meanwhile, the organs and tissues are depleted and function less well.   Eating a diet high in simple carbohydrates can spike blood sugar after meals.  Eating a diet high in carbohydrates consistently over time can cause worsening of symptoms.  Thiamine and other B vitamins like Niacin B3 and Pyridoxine B6, (which I noticed you are not supplementing), are needed to turn carbs, proteins and fats into energy for the body to use.  Alcohol consumption can lower blood sugar levels, and hence, alleviate the neuropathic pain.  Alcohol destroys many B vitamins, especially Pyridoxine, Thiamine and Niacin.  With alcohol consumption, blood glucose is turned into fat, stored in the liver or abdomen, then burned for fuel, thus lowering blood glucose levels.  With the cessation of alcohol and continued high carb diet, the blood glucose levels rise again over time, resulting in worsening neuropathy.   Heavy exercise can also further delete B vitamins.  Thiamine and Niacin work in balance with each other.  Sort of like a teeter-totter, thiamine is used to produce energy and Niacin is then used to reset the cycle for thiamine one used again to produce energy.  If there's no Niacin, then the energy production cycle can't reset.  Niacin is important in regulating electrolytes for nerve impulse conduction.  Electrolyte imbalance can cause neuropathic pain.   Talk to your doctors about testing for Type Two diabetes or pre-diabetes beyond an A1C test since alcohol consumption can lower A1C giving inaccurate results. Talk to your doctors about supplementing with ALL eight B vitamins, and correcting deficiencies in Pyridoxine, Niacin, and B12.  Hope this helps! Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ P. S.  Get checked for Vitamin C deficiency, aka Scurvy.  People with Diabetes and those who consume alcohol are often low in Vitamin C which can contribute to peripheral neuropathy.
    • Scott Adams
      I’m really sorry you’re dealing with this—chronic neuropathic or nociplastic pain can be incredibly frustrating, especially when testing shows no nerve damage. It’s important to clarify for readers that this type of central sensitization pain is not the same thing as ongoing gluten exposure, particularly when labs, biopsy, and nutritional status are normal. A stocking/glove pattern with normal nerve density points toward a pain-processing disorder rather than active celiac-related injury. Alcohol temporarily dampening symptoms likely reflects its central nervous system depressant effects, not treatment of an underlying gluten issue—and high-dose alcohol is dangerous and not a safe or sustainable strategy. Seeing a pain specialist is absolutely the right next step, and we encourage members to work closely with neurology and pain management rather than assuming hidden gluten exposure when objective testing does not support it.
    • Scott Adams
      There is no credible scientific evidence that standard water filters contain gluten or pose a gluten exposure risk. Gluten is a food protein from wheat, barley, or rye—it is not used in activated carbon filtration in any meaningful way, and refrigerator or pitcher filters are not designed with food-based binders that would leach gluten into water. AI-generated search summaries are not authoritative sources, and they often speculate without documentation. Major manufacturers design filters for water purification, not food processing, and gluten contamination from a water filter would be extraordinarily unlikely. For people with celiac disease, properly functioning municipal, bottled, filtered, or distilled water is considered gluten-free.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.