Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

livelifelarge24

Recommended Posts

livelifelarge24 Enthusiast

I just got home from my monthly CSA support group meeting and it was reported there that Pepsi and Coke and other cola products, while technically gluten free actually test at 18ppm because of the carmel coloring. I understand that anything under 20 ppm can be considered gluten free but a lot of us react to that level. I am curious to any information or experiences you may have on this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dilettantesteph Collaborator

Are there reported test results somewhere? I would love to see them. My experience is that the level is considerably lower than that. I think that I have seen a lot of reports of carmel coloring being gluten free unless otherwise stated. http://www.celiac.co...ree#entry789813

Do you react to these products?

kareng Grand Master

I would ask to see where they got that info from. There are a lot of people on the internet saying whatever they think might get them attention.

I don't see how it would have gluten if its made from corn.

psawyer Proficient

Caramel color is one of those celiac urban myths that just won't go away.

Here is Shelley Case's take on it, from Gluten-Free Diet A Comprehensive Resource Guide:

Although gluten-containing ingredients (barley malt syrup and starch hydrolysates) can be used in the production of caramel color, North American companies use corn as it has a longer shelf life and makes a superior product. European companies use glucose derived from wheat starch, however caramel color is highly processed and contains no gluten.
[Emphasis in original]
Pac Apprentice

Caramel color is one of those celiac urban myths that just won't go away.

Here is Shelley Case's take on it, from Gluten-Free Diet A Comprehensive Resource Guide:

[Emphasis in original]

And part of this urban legend is that this high level of processing removes all the gluten (or other allergen). Sensitive individuals DO react even to these highly processed ingredients. On the other side, I never had problems with caramel coloring or glucose syrup here in America. Can't say the same about Europe.

cavernio Enthusiast

My current theory about things like caramel color from wheat is that some number of celiacs celiacs will get antibody reactions to broken down parts of the gluten. It's been known for a long time that gliadin portion of the protein is supposed to be what causes the reaction. But does the gliadin need to be fully intact for that? When measuring gluten, is it whole gluten molecules that get tested for? How do our methods for measuring gluten compare to our own bodies recognition of gluten? If they're not exactly the same (like, if they don't culture celiac's anitbodies to create these tests or something), then it's quite plausible that the immune system will treat something that's not even a full gliadin particle like gluten.

  • 2 weeks later...
lolipopins Newbie

I am currently reacting to Coca Cola....or so I think. Its been a year since I tried it again. I'm super sensitive and just wanted a Rum and Coke at x-mass with the Family. I knew i could potentially react, but I really thought I could get away with it, with only minor symptoms....horribly wrong, this has been one of the swiftest reactions and pretty debilitating so far today. I hope it only lasts a few days this time. I'm still on the fence as to wether it was worth it.... I really enjoyed my husband's family after the rum and cokes! LOL! I won't be doing it again of course, but I was blissfully ignorant for a few hours before the pain started!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



psawyer Proficient

lolipopins, just a thought re the Coke. Could HFCS be a factor?

ajnemajrje Newbie

I just got home from my monthly CSA support group meeting and it was reported there that Pepsi and Coke and other cola products, while technically gluten free actually test at 18ppm because of the carmel coloring. I understand that anything under 20 ppm can be considered gluten free but a lot of us react to that level. I am curious to any information or experiences you may have on this.

I would not be surprised as everytime I drink a soda with caramel colouring I react as if I have been glutened.

psawyer Proficient

I just got home from my monthly CSA support group meeting and it was reported there that Pepsi and Coke and other cola products, while technically gluten free actually test at 18ppm because of the carmel coloring.

Would you please tell us who said that, and provide references for the testing. In the US, caramel color is made from corn. Where did the gluten come from?

dilettantesteph Collaborator

I am a super sensitive celiac. I can eat carefully sourced corn. Regular corn and things made from it are likely to give me a reaction. I believe that it gets cross contaminated during growth, harvest, storage, and shipment. Corn is often grown in rotation with wheat, and usually shared equipment is used. The level of cross contamination involved doesn't seem to be great enough to bother typical celiacs.

http://soilquality.org/practices/row_crop_rotations.html

http://ohioline.osu.edu/iwy/croprota.html

http://www.organicgrains.ncsu.edu/production/croprotation.htm

lolipopins Newbie

lolipopins, just a thought re the Coke. Could HFCS be a factor?

yes it could be and I didn't take that into consideration.
Opa3 Apprentice

I haven't drank pepsi or coke in decades. Perhaps you get ill from the phosphoric acid therein. For me, combing this acid with stomach acid ( HCL) gave me stomach upset.

Something else to consider.

  • 2 weeks later...
Elizabethsmommandy Newbie

I get bloating from diet coke and caffeine free coke. Caffine free is the worst, that has caused me problem for several years before anything else really started bothering me. The artificial sugars have given me headaches for years but, the gluten intolerance just started/recognized . I have been trying to get gluten free. It is not easy. I live in the US. Your not alone with having Carmel coloring issues. Hugs. I guess from what I've learned from other posts here it gets better and easier. I am amazed at benedryl. It helps hugely. When I make a mistake. My skin looks like really bad windburn on top of stomach ailments. And bendryl seems to help my insides and skin not react so horibly.

  • 2 weeks later...
bscmga52 Newbie

I am a super sensitive celiac. I can eat carefully sourced corn. Regular corn and things made from it are likely to give me a reaction. I believe that it gets cross contaminated during growth, harvest, storage, and shipment. Corn is often grown in rotation with wheat, and usually shared equipment is used. The level of cross contamination involved doesn't seem to be great enough to bother typical celiacs.

http://soilquality.o..._rotations.html

http://ohioline.osu....y/croprota.html

http://www.organicgr...roprotation.htm

I am a super sensitive celiac. I can eat carefully sourced corn. Regular corn and things made from it are likely to give me a reaction. I believe that it gets cross contaminated during growth, harvest, storage, and shipment. Corn is often grown in rotation with wheat, and usually shared equipment is used. The level of cross contamination involved doesn't seem to be great enough to bother typical celiacs.

http://soilquality.o..._rotations.html

http://ohioline.osu....y/croprota.html

http://www.organicgr...roprotation.htm

After being diagnosed as gluten intolerant, I began eating things like tortillas instead of bread, grits instead of cold cereal and continued to have problems. That is when I began researching corn intolerance as well. The reaction I have from corn is just as bad as from wheat.

GFreeMO Proficient

After being diagnosed as gluten intolerant, I began eating things like tortillas instead of bread, grits instead of cold cereal and continued to have problems. That is when I began researching corn intolerance as well. The reaction I have from corn is just as bad as from wheat.

Me too!

teruff Newbie

I react to anything more than 10 ppm. I usually just stick to water, milk, and the juices I juice myself. In my case, anything with artificial flavors will certainly make me sick.

  • 1 month later...
Finally-45 Contributor

It's not totally an urban myth, some Celiacs are also intolerant to corn--in any form.  I don't think it's a coincidence.   My corn intolerance is worse than the Celiac since I have anaphylaxis even if a food has potassium citrate as an additive.  I can't touch a cola or anything else with caramel color with a ten-foot pole.

kareng Grand Master

It's not totally an urban myth, some Celiacs are also intolerant to corn--in any form.  I don't think it's a coincidence.   My corn intolerance is worse than the Celiac since I have anaphylaxis even if a food has potassium citrate as an additive.  I can't touch a cola or anything else with caramel color with a ten-foot pole.

Being intolerant to corn does not make caramel coloring have gluten in it.

Finally-45 Contributor

For the people who are having similar symptoms from corn as wheat/barley/rye gluten, there appears to be no coincidence.  While the chemical make up of each grain differs, our bodies' responses do not.  Thus, we insist that a connection must be made and/or there needs to be more categories to the condition.  I think we've safely concluded on this forum that the range of symptoms for each person is wide, I don't think we really know why.  That's why it's not totally an urban myth that corn is a problem for Celiacs. 

 

I've tried having corn products that are free of cross contamination with wheat/barley/rye gluten and the same problem occurs.  I even tried rinsing popcorn before popping--same nauseating result.  I've had a bad relationship with corn since I was a kid, not sure how much GM corn was around then, but my hunch is that it doesn't matter.  I couldn't eat corn on an empty stomach without a guarantee that I'd puke it up soon after.  Everyone thought I had a weak stomach, go figure.

 

Also, something like teff grain, which has no risk of cross contamination like oatmeal and corn do, would ideally never cause problems.  I've gotten sick from that.  As someone suggested in my post on going grain free, the difference may lie in the amount of time a person has been unintentionally exposed to the problem foods. 

kareng Grand Master

For the people who are having similar symptoms from corn as wheat/barley/rye gluten, there appears to be no coincidence.  While the chemical make up of each grain differs, our bodies' responses do not.  Thus, we insist that a connection must be made and/or there needs to be more categories to the condition.  I think we've safely concluded on this forum that the range of symptoms for each person is wide, I don't think we really know why.  That's why it's not totally an urban myth that corn is a problem for Celiacs. 

 

I've tried having corn products that are free of cross contamination with wheat/barley/rye gluten and the same problem occurs.  I even tried rinsing popcorn before popping--same nauseating result.  I've had a bad relationship with corn since I was a kid, not sure how much GM corn was around then, but my hunch is that it doesn't matter.  I couldn't eat corn on an empty stomach without a guarantee that I'd puke it up soon after.  Everyone thought I had a weak stomach, go figure.

 

Also, something like teff grain, which has no risk of cross contamination like oatmeal and corn do, would ideally never cause problems.  I've gotten sick from that.  As someone suggested in my post on going grain free, the difference may lie in the amount of time a person has been unintentionally exposed to the problem foods. 

 

 

That stilldoes not mean that carmel coloring  contains gluten. (which is what we were discussing).

  • 2 years later...
slukk Newbie

Caramel color is one of those celiac urban myths that just won't go away.

Here is Shelley Case's take on it, from Gluten-Free Diet A Comprehensive Resource Guide:

[Emphasis in original]

As a person very sensitive to gluten, I have to say that I think this isn't true. I have had a gluten reaction to many coca cola and pepsi products that contain either caramel color or natural flavors, but I can have regular gluten free caramels. So far, I have only found that I can have Sierra Mist Natural, 1919 root beer, Blue Sky flavors, and Hanks root beer.

Gemini Experienced

Caramel color is gluten free.  If you choose to believe it is not, you are free to do so but it does not mean you are correct.  I am not implying you are not reacting to these products but soda is so bad for you anyway, I think worrying about caramel color is a moot point.  No one should be drinking soda in their diet if they want to be healthy.

It is incredibly bad for bone health and that is a top concern for many Celiac's. 

 

This is an older topic but 2 years later, caramel color is still gluten free!  :)

 

 

http://www.glutenfreedietitian.com/caramel-color/

kareng Grand Master

but I can have regular gluten free caramels. .

I agree with Gemini. And caramel candy is not the same thing as a caramel colored artificial coloring. :)

slukk Newbie

Caramel color is gluten free.  If you choose to believe it is not, you are free to do so but it does not mean you are correct.  I am not implying you are not reacting to these products but soda is so bad for you anyway, I think worrying about caramel color is a moot point.  No one should be drinking soda in their diet if they want to be healthy.

It is incredibly bad for bone health and that is a top concern for many Celiac's. 

 

This is an older topic but 2 years later, caramel color is still gluten free!  :)

 

 

http://www.glutenfreedietitian.com/caramel-color/

I just know from experience that it is a gluten reaction. Whether it is from the natural flavors, caramel coloring, and/or cross contamination, I don't know. All I know is that I have tried multiple pops and have had a gluten reaction to the ones containing natural flavors and caramel color. After being g.f for 5-6 years, I rarely take any company at its word that the product is gluten free unless they say it is certified or actually have it listed as gluten free on the package.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,187
    • Most Online (within 30 mins)
      7,748

    Jackie49
    Newest Member
    Jackie49
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      First, welcome to the forum, @boy-wonder! Second, a little clarification in terminology is in order. Granted, inconsistency is rampant when it comes to the terminology associated with gluten disorders, but it has more or less become settled in this fashion: "Gluten intolerance" is a general term that car refer to either celiac disease or NCGS (Non Celiac Gluten Sensitivity). "Gluten Sensitivity" is the shortened version of NCGS. Third, Celiac disease is not an allergy to gluten. It is an autoimmune disorder characterized by gluten ingestion causing the immunes system to attack the lining of the small bowel, causing damage to it over time due to the constant inflammation that wears down the "villi" (mucosal finger-like projections that make up the lining). Over a significant period of time as gluten continues to be consumed, this generally results in impaired nutrient absorption. There are specific blood antibody tests available to check for celiac disease but the testing will not be valid while on a reduced gluten diet or a gluten free diet. Those already having having begun a gluten free diet must go back to consuming generous amounts of gluten for a period of weeks if they wish to pursue testing for celiac disease. Fourth, NCGS shares many of the same symptoms of celiac disease but does not damage the lining of the small bowel as does celiac disease. There is no test for it. A diagnosis for NCGS depends on first ruling out celiac disease. It is 10x more common than celiac disease. Some experts feel it can be a precursor to the development of celiac disease. Eliminating gluten from your life is the antidote for both. Fifth, you state that you are convince you don't have celiac disease by are just "gluten intolerant" (aka, gluten sensitive). How do you know that? It seems to me you are making a dangerous assumption here. I suggest you consider getting formally tested for celiac disease.
    • AllyJR
      Has anyone found a gluten free parakeet seed mix? I can't find a single one! My doctor wants me to make sure all pet food in the house is gluten free but I'm not sure if that's even possible with parakeets. We love our birds so much! I'm wondering if anyone has ever made their own bird seed mix if gluten free ones are not available. 
    • boy-wonder
      Hi, new member. About me, I had been suffering with weight gain, bloating and irregular and extreme bowel habits for a year or so. For example, I went on holiday in 2023, then again I  2024 at the same time of year and every shirt I wore in 2023 didn't fit anymore, couldn't even do the buttons up. Being in my mid 50s I put it down to age and middle aged spread. I'd been lucky all my life having good metabolism and being able to eat anything and as much as I like without putting on any weight, it drove my other half mad. Over a conversation with a friend health and age Related stuff came up and he mentioned someone he knew who had recently found out they were gluten intolerant,  I looked it up and had every one of 8 or so symptoms listed. Bloating,  weight gain,  headaches, brain fog,  constipation, etc etc. I took the decision to give going gluten free a try. Within 1 week I had lost 4 lb, now 7 weeks in I've lost 13 lb. I feel much better in general,  the bloating has severely subsided, it used to keep me awake at night as I felt so uncomfortable.  So pretty much a success story, as everyone here knows,  going gluten free isn't always easy, and eating out can be awkward,  but I consider myself lucky that I appear to have an intolerance rather than an allergy or being celiac.  I can deal with most of the gluten free options at the supermarket but, the big one for me is bread, I love bread, and the gluten free options I've tried are pretty poor. I was at a posh black tie event last night and chose all the food options I thought would be gluten free,  however,  there was bread on the table and I couldn't resist it, I had I small piece of bread,  god it was good, I wanted more but I resisted. Today I feel a bit dodgy, my stomach is churning, and I generally feel a bit urgh.  So here's the question, is that really down to 1 small piece of bread or is it coincidence?  I'd be interested in hearing how other people have reacted to a similar situation,  as I was considering having a day off every now and then and enjoying some lovely fresh bread.
    • ValerieC
      Does anybody know of a guide that ranks reevaluates universities and colleges in terms of their accommodation of celiac disease or food allergies?   Thanks in advance for any leads! Valerie 
    • thejayland10
      thank you, i have been doing that the last few weeks and will continue to do so. I had not had my ttg iga checked since I was diagnosed 14 yrs ago so I am not sure if they ever dropped below the 15-20 range.    all my other labs are completely normal but I am concerned that this may be signs of refractor celiac or something else since I'm so careful with gluten-free diet 
×
×
  • Create New...