Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Disease And Eczema

Spartans1960

By Spartans1960
in Related Issues & Disorders

Recommended Posts

Spartans1960 Contributor
Spartans1960
Posted

Any Celiacs out there have a problem with eczema and itchy red spots or itchy skin, including the body and scalp? please advise, Doug

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Adalaide Mentor
Adalaide
Posted

I do have eczema and have since I was a teen. If possible (and not embarrassing) I would try to get a few pics or maybe just check out what you can find in the DH forums. You want to be sure you aren't confusing eczema for DH. I'm special.... I have both! <_<

I was advised by my dermatologist when I was first diagnosed with eczema to use Eucerin lotion. I find that this is by far still the most helpful for me. If I ever have an especially bad flair I'll go with Aquaphor instead. They also make a body wash that is the only thing that keeps me sane. I have no idea what the ingredients are to be honest and that's really high on my list of I don't rightly care. If you are after the body wash and can't find it, Aquaphor also has one but it is marketed as for babies so you may have luck finding it in the baby section. It says it is baby wash and shampoo so I suppose it could be used as both to help with the scalp stuff. I'm far too stuck up about my hair to try it.

Laenie Newbie
Laenie
Posted

Any Celiacs out there have a problem with eczema and itchy red spots or itchy skin, including the body and scalp? please advise, Doug

I have had a type of rash for about 8 years on my scalp, went to a few Derm Doctors and no one could figure out quite what it is. Was diagnosed with Sjorgren's Syndrome and then Gluten Sensitivity a year later, since going gluten free (3 months) the rash is almost gone, and no itching. laenie

Laenie Newbie
Laenie
Posted

I do have eczema and have since I was a teen. If possible (and not embarrassing) I would try to get a few pics or maybe just check out what you can find in the DH forums. You want to be sure you aren't confusing eczema for DH. I'm special.... I have both! <_<

I was advised by my dermatologist when I was first diagnosed with eczema to use Eucerin lotion. I find that this is by far still the most helpful for me. If I ever have an especially bad flair I'll go with Aquaphor instead. They also make a body wash that is the only thing that keeps me sane. I have no idea what the ingredients are to be honest and that's really high on my list of I don't rightly care. If you are after the body wash and can't find it, Aquaphor also has one but it is marketed as for babies so you may have luck finding it in the baby section. It says it is baby wash and shampoo so I suppose it could be used as both to help with the scalp stuff. I'm far too stuck up about my hair to try it.

Just a question, what is DH? Thanks, laenie

kareng Grand Master
kareng
Posted

Just a question, what is DH? Thanks, laenie

Dermatitis Herpetiformis - the skin condition associated with Celiac. Not everyone has it. There is a section on this forum about it.

1desperateladysaved Proficient
1desperateladysaved
Posted

I had exzema throughout my teens and early twenties. It went away. I did several things that might have helped. I did not know that I had celiac at the time. I began a supplement program as recommended by a chiropractor. I covered my hands with rabbit fur gloves as soon as the weather cooled in fall. I learned how to make homemade soap. Now, I won't go anywhere without my homemade soap..

I know eczema is itchy and keeps coming back. I remembering dispair set in when a dermatologist had no good answer for what caused it. They also had the only treatment anyone could figure out: hydrocortisone cream. It could make my sores go away, but they seemed to come back with fury. It is also dangerous for kidneys my pharmacist said.

  • 2 weeks later...
ktienken Newbie
ktienken
Posted

I'm really hoping someone can explain to me WHY I got Eczema when I stopped the gluten...?? I've never had it before now. I was just diagnosed w Celiac in October, and in November I developed Eczema all over my chin, upper lip, nose , and part of my forehead :(. Does anyone know why? AND, will it go away???

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 5 years later...
myrajacobs Newbie
myrajacobs
Posted

OMG, thank you for this blog I have had eczema for only 6 mo but it has pretty much stopped me in my tracks. My doctor told me I was at the end of the line, treatment wise! The only thing left is some sort of injectable… side affect; anaphalayctic shock and i would have to carry an epi-pen… the uv lights burned me… I am working with a homeopath and I’ve found a few things that semi-stop the itch! I am also taking high cbd/low thc weed to sleep at night..why or why can’t they make something to suppress my everyday health, besides steroids… although who doesn’t love no rash and that feeling of power… yes the little bumps etc return with a vengeance when the drug is stopped.. :((

cyclinglady Grand Master
cyclinglady
Posted
7 hours ago, myrajacobs said:

OMG, thank you for this blog I have had eczema for only 6 mo but it has pretty much stopped me in my tracks. My doctor told me I was at the end of the line, treatment wise! The only thing left is some sort of injectable… side affect; anaphalayctic shock and i would have to carry an epi-pen… the uv lights burned me… I am working with a homeopath and I’ve found a few things that semi-stop the itch! I am also taking high cbd/low thc weed to sleep at night..why or why can’t they make something to suppress my everyday health, besides steroids… although who doesn’t love no rash and that feeling of power… yes the little bumps etc return with a vengeance when the drug is stopped.. :((

Are you sure it is eczema?  Has your dermatologist ruled out  Dermatitis Herpetiformis?  DH is an insanely itchy rash that is usually bilateral (both sides of body).  It is actually celiac disease and can only be treated on a strict gluten free diet.  

Open Original Shared Link

myrajacobs Newbie
myrajacobs
Posted

Yes, its eczema,  as said I working with a homeopath hence got confirmation its eczema,  it's in my gene... Mom had now its passed to me.... I checked with the dermatologist and online resources  they have ruled out celiac. 

ravenwoodglass Mentor
ravenwoodglass
Posted
3 hours ago, myrajacobs said:

Yes, its eczema,  as said I working with a homeopath hence got confirmation its eczema,  it's in my gene... Mom had now its passed to me.... I checked with the dermatologist and online resources  they have ruled out celiac. 

What tests did the derm do? Did they run a celiac panel or do a biopsy on the clear skin next to an area of an outbreak? Have you seen a GI or regular MD about this? If so what tests have you done? A gene test can't diagnose anything it can only tell you what you may develop. Please also note, since you mention steroids, that steroids will give you a false negative on celiac testing.

  • 1 month later...
myrajacobs Newbie
myrajacobs
Posted

I had a patch test .followed with other test to rule out other skin diseases... ....I am seeing a derm...for my condition

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to CDW's topic in Dermatitis Herpetiformis
      8

      dermatitis herpetiformis outbreaks while on strict gluten-free diet

      Hi, @Richardo, Welcome to the forum! Good suggestions, although we are aware here that oats, corn and rice can cause problems for some because their proteins have segments that resemble segments of the gluten protein. What I find most helpful for my dermatitis herpetiformis flares is to increase Niacin Vitamin B 3 and Thiamine Vitamin...
    2. trents
      - trents replied to AmandaA's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      24

      New and Frustrated

      @Tracey Thomas, Is that the only celiac test that was run? From the magnitude of the reference range, that looks like it was the "total IGA" test to check for IGA deficiency. It is not checking for celiac disease per se. If you are IGA deficient, it can cause false negatives in the individual IGA celiac antibody tests. Were there any other celiac antibody...
    3. Tracey Thomas
      - Tracey Thomas replied to AmandaA's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      24

      New and Frustrated

      So yes I am aware that celiac is not an allergy. This is just the steps the doctors put me through. The Dermatologist results came back as a form of hives. A type I’ve never had so I didn’t think they were but test came back as a form of hives. So my celiac test iga was 229 the range was 70-400 so mine fell in normal range.
    4. MomofGF
      - MomofGF replied to MomofGF's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Not sure if this is Celiac or just a gluten-free intolerance

      Where I live - Celiac is covered on our taxes and is considered a disability as well. So that’s one reason (not just for me because she is almost 18 but when she is out in the world and starts out, I would hate for her to be broke all the time and barely able to feed herself) but she also has many health issues that could be related to Celiac or maybe something e...
    5. Richardo
      - Richardo replied to CDW's topic in Dermatitis Herpetiformis
      8

      dermatitis herpetiformis outbreaks while on strict gluten-free diet

      Hi CDW. Some here may disagree with me on this site but, nothing ventured nothing gained. As long as my suggestion does no harm and is a possible help for your struggles I'll throw it out there. I have broached this in another forum.but I know this worked amazingly well for me as I too had return of dermatitis herpetiformis every 3 to 4 months for...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      127,658
    • Most Online (within 30 mins)
      7,748
    Joe Caulfield
    Newest Member
    Joe Caulfield
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.3k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      dermatitis herpetiformis outbreaks while on strict gluten-free diet

      By knitty kitty · Posted

      Hi, @Richardo,  Welcome to the forum!   Good suggestions, although we are aware here that oats, corn and rice can cause problems for some because their proteins have segments that resemble segments of the gluten protein.   What I find most helpful for my dermatitis herpetiformis flares is to increase Niacin Vitamin B 3 and Thiamine Vitamin B 1.  Niacin and Thiamine are needed to turn those carbohydrates into energy to fuel metabolic reactions that keep us healthy.  An influx of carbohydrates demands more of these vitamins.  Since malabsorption of Celiac can cause us to be low in the eight essential water soluble B vitamins, consuming a high carbohydrate diet can deplete thiamine and niacin stores rapidly. There's evidence that Niacin insufficiency plays a big part in dermatitis herpetiformis.   The flushing form of Niacin is known to dilate small blood vessels in the skin which allows the antibodies to be easily cleared from the blisters and induce healing.   Niacin intake should be kept under 500 mg a day otherwise it will lower bad cholesterol and raise good cholesterol, but this should only be done under doctor supervision.   Thiamine is nontoxic and safe Eve in high doses.  Every cell in the body needs thiamine to fuel the mitochondrial functions.  A high carbohydrate diet requires 500 - 1000 mg more for every 1000 calories from carbs.  
    • trents
      New and Frustrated

      By trents · Posted

      @Tracey Thomas, Is that the only celiac test that was run? From the magnitude of the reference range, that looks like it was the "total IGA" test to check for IGA deficiency. It is not checking for celiac disease per se. If you are IGA deficient, it can cause false negatives in the individual IGA celiac antibody tests. Were there any other celiac antibody tests run?
    • Tracey Thomas
      New and Frustrated

      By Tracey Thomas · Posted

      So yes I am aware that celiac is not an allergy. This is just the steps the doctors put me through. The Dermatologist results came back as a form of hives. A type I’ve never had so I didn’t think they were but test came back as a form of hives. So my celiac test iga was 229 the range was 70-400 so mine fell in normal range. 
    • MomofGF
      Not sure if this is Celiac or just a gluten-free intolerance

      By MomofGF · Posted

      Where I live - Celiac is covered on our taxes and is considered a disability as well. So that’s one reason (not just for me because she is almost 18 but when she is out in the world and starts out, I would hate for her to be broke all the time and barely able to feed herself) but she also has many health issues that could be related to Celiac or maybe something else!! But that has to be taken off the table first. She has been so sick since she was 13/14 - dropping 20lbs because of this issue. Had her doctor thought about it then maybe we would have known but this was never tested. Her family doctor never told us what we needed to do aside from eat gluten. It wasn’t explained to us and maybe I should have came here first but I didn’t realize what it meant. Once I see the results online I will come back here with them. I took a pic of the req but it disappeared completely from my phone. I have a bad memory so I don’t remember what they tested for. thanks again for all advice. it is greatly appreciated  Nadia 😀👋    
    • Richardo
      dermatitis herpetiformis outbreaks while on strict gluten-free diet

      By Richardo · Posted

      Hi CDW. Some here may disagree with me on this site but, nothing ventured nothing gained. As long as my suggestion does no harm and is a possible help for your struggles I'll throw it out there. I have broached this in another forum.but I know this worked amazingly well for me as I too had return of dermatitis herpetiformis every 3 to 4 months for 4 years. with a month break then it would return. 1.I am 100% gluten free (I thought) 2.There is no problems with cross contamination with my diet. 3.My skin rash was confirmed as dermatitis herpetiformis by skin biopsy.  What I did last spring was go 100% grain free. No oats, corn or even rice. My rash was gone in 2 weeks and never came back intil I tested it 6 months later and ate rice 1 time and corn flour 1 time over a 3 day period. My rash started to come back. I quit again and it has been gone since. A huge relief for me. No more pain itching or unsightly rash ANYWHERE. A study was done in the UK showing that practically all grains contain some type of gluten but the rice corn and oats possibilities IS ALMOST NEVER mentioned in celiac related sites. Perhaps going grain free will help you, perhaps not, but I swear it did wonders for me and hopefully will help ypu too. Worth a try!
×
×
  • Create New...