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Celiac Disease And Eczema


Spartans1960

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Spartans1960 Contributor

Any Celiacs out there have a problem with eczema and itchy red spots or itchy skin, including the body and scalp? please advise, Doug


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Adalaide Mentor

I do have eczema and have since I was a teen. If possible (and not embarrassing) I would try to get a few pics or maybe just check out what you can find in the DH forums. You want to be sure you aren't confusing eczema for DH. I'm special.... I have both! <_<

I was advised by my dermatologist when I was first diagnosed with eczema to use Eucerin lotion. I find that this is by far still the most helpful for me. If I ever have an especially bad flair I'll go with Aquaphor instead. They also make a body wash that is the only thing that keeps me sane. I have no idea what the ingredients are to be honest and that's really high on my list of I don't rightly care. If you are after the body wash and can't find it, Aquaphor also has one but it is marketed as for babies so you may have luck finding it in the baby section. It says it is baby wash and shampoo so I suppose it could be used as both to help with the scalp stuff. I'm far too stuck up about my hair to try it.

Laenie Newbie

Any Celiacs out there have a problem with eczema and itchy red spots or itchy skin, including the body and scalp? please advise, Doug

I have had a type of rash for about 8 years on my scalp, went to a few Derm Doctors and no one could figure out quite what it is. Was diagnosed with Sjorgren's Syndrome and then Gluten Sensitivity a year later, since going gluten free (3 months) the rash is almost gone, and no itching. laenie

Laenie Newbie

I do have eczema and have since I was a teen. If possible (and not embarrassing) I would try to get a few pics or maybe just check out what you can find in the DH forums. You want to be sure you aren't confusing eczema for DH. I'm special.... I have both! <_<

I was advised by my dermatologist when I was first diagnosed with eczema to use Eucerin lotion. I find that this is by far still the most helpful for me. If I ever have an especially bad flair I'll go with Aquaphor instead. They also make a body wash that is the only thing that keeps me sane. I have no idea what the ingredients are to be honest and that's really high on my list of I don't rightly care. If you are after the body wash and can't find it, Aquaphor also has one but it is marketed as for babies so you may have luck finding it in the baby section. It says it is baby wash and shampoo so I suppose it could be used as both to help with the scalp stuff. I'm far too stuck up about my hair to try it.

Just a question, what is DH? Thanks, laenie

kareng Grand Master

Just a question, what is DH? Thanks, laenie

Dermatitis Herpetiformis - the skin condition associated with Celiac. Not everyone has it. There is a section on this forum about it.

1desperateladysaved Proficient

I had exzema throughout my teens and early twenties. It went away. I did several things that might have helped. I did not know that I had celiac at the time. I began a supplement program as recommended by a chiropractor. I covered my hands with rabbit fur gloves as soon as the weather cooled in fall. I learned how to make homemade soap. Now, I won't go anywhere without my homemade soap..

I know eczema is itchy and keeps coming back. I remembering dispair set in when a dermatologist had no good answer for what caused it. They also had the only treatment anyone could figure out: hydrocortisone cream. It could make my sores go away, but they seemed to come back with fury. It is also dangerous for kidneys my pharmacist said.

  • 2 weeks later...
ktienken Newbie

I'm really hoping someone can explain to me WHY I got Eczema when I stopped the gluten...?? I've never had it before now. I was just diagnosed w Celiac in October, and in November I developed Eczema all over my chin, upper lip, nose , and part of my forehead :(. Does anyone know why? AND, will it go away???


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  • 5 years later...
myrajacobs Newbie

OMG, thank you for this blog I have had eczema for only 6 mo but it has pretty much stopped me in my tracks. My doctor told me I was at the end of the line, treatment wise! The only thing left is some sort of injectable… side affect; anaphalayctic shock and i would have to carry an epi-pen… the uv lights burned me… I am working with a homeopath and I’ve found a few things that semi-stop the itch! I am also taking high cbd/low thc weed to sleep at night..why or why can’t they make something to suppress my everyday health, besides steroids… although who doesn’t love no rash and that feeling of power… yes the little bumps etc return with a vengeance when the drug is stopped.. :((

cyclinglady Grand Master
7 hours ago, myrajacobs said:

OMG, thank you for this blog I have had eczema for only 6 mo but it has pretty much stopped me in my tracks. My doctor told me I was at the end of the line, treatment wise! The only thing left is some sort of injectable… side affect; anaphalayctic shock and i would have to carry an epi-pen… the uv lights burned me… I am working with a homeopath and I’ve found a few things that semi-stop the itch! I am also taking high cbd/low thc weed to sleep at night..why or why can’t they make something to suppress my everyday health, besides steroids… although who doesn’t love no rash and that feeling of power… yes the little bumps etc return with a vengeance when the drug is stopped.. :((

Are you sure it is eczema?  Has your dermatologist ruled out  Dermatitis Herpetiformis?  DH is an insanely itchy rash that is usually bilateral (both sides of body).  It is actually celiac disease and can only be treated on a strict gluten free diet.  

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myrajacobs Newbie

Yes, its eczema,  as said I working with a homeopath hence got confirmation its eczema,  it's in my gene... Mom had now its passed to me.... I checked with the dermatologist and online resources  they have ruled out celiac. 

ravenwoodglass Mentor
3 hours ago, myrajacobs said:

Yes, its eczema,  as said I working with a homeopath hence got confirmation its eczema,  it's in my gene... Mom had now its passed to me.... I checked with the dermatologist and online resources  they have ruled out celiac. 

What tests did the derm do? Did they run a celiac panel or do a biopsy on the clear skin next to an area of an outbreak? Have you seen a GI or regular MD about this? If so what tests have you done? A gene test can't diagnose anything it can only tell you what you may develop. Please also note, since you mention steroids, that steroids will give you a false negative on celiac testing.

  • 1 month later...
myrajacobs Newbie

I had a patch test .followed with other test to rule out other skin diseases... ....I am seeing a derm...for my condition

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    • Scott Adams
      The first set of results show two positive results for celiac disease, so at the very least it looks like you could have it, or at the least NCGS.   Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.      
    • Scott Adams
      Elevated tissue transglutaminase IgA (tTG-IgA) levels are highly specific for celiac disease, and they are a key biomarker used in its diagnosis. However, there are some rare instances where elevated tTG-IgA levels have been reported in conditions other than celiac disease. While these cases are not common, they have been documented in the literature. Below are some examples and references to studies or reviews that discuss these scenarios:  1. Non-Celiac Gluten Sensitivity (NCGS)    - NCGS typically does not cause elevated tTG-IgA levels, as it is not an autoimmune condition. However, some individuals with NCGS may have mild elevations in tTG-IgA due to intestinal inflammation or other factors, though this is not well-documented in large studies.    - Reference: Catassi, C., et al. (2013). *Non-Celiac Gluten Sensitivity: The New Frontier of Gluten-Related Disorders*. Nutrients, 5(10), 3839–3853. [DOI:10.3390/nu5103839](https://doi.org/10.3390/nu5103839)  2. Autoimmune Diseases    - Elevated tTG-IgA levels have been reported in other autoimmune conditions, such as type 1 diabetes, autoimmune hepatitis, and systemic lupus erythematosus (SLE). This is thought to be due to cross-reactivity or polyautoimmunity.    - Reference: Sblattero, D., et al. (2000). *The Role of Anti-Tissue Transglutaminase in the Diagnosis and Management of Celiac Disease*. Autoimmunity Reviews, 1(3), 129–135. [DOI:10.1016/S1568-9972(01)00022-3](https://doi.org/10.1016/S1568-9972(01)00022-3)  3. Chronic Liver Disease    - Conditions like chronic hepatitis or cirrhosis can sometimes lead to elevated tTG-IgA levels, possibly due to increased intestinal permeability or immune dysregulation.    - Reference: Vecchi, M., et al. (2003). *High Prevalence of Celiac Disease in Patients with Chronic Liver Disease: A Role for Gluten-Free Diet?* Gastroenterology, 125(5), 1522–1523. [DOI:10.1016/j.gastro.2003.08.031](https://doi.org/10.1016/j.gastro.2003.08.031)  4. Inflammatory Bowel Disease (IBD)    - Some patients with Crohn’s disease or ulcerative colitis may have elevated tTG-IgA levels due to intestinal inflammation and damage, though this is not common.    - Reference: Walker-Smith, J. A., et al. (1990). *Celiac Disease and Inflammatory Bowel Disease*. Journal of Pediatric Gastroenterology and Nutrition, 10(3), 389–391. [DOI:10.1097/00005176-199004000-00020](https://doi.org/10.1097/00005176-199004000-00020)  5. Infections and Parasites    - While infections (e.g., giardiasis) are more commonly associated with false-positive tTG-IgA results, chronic infections or parasitic infestations can sometimes lead to elevated levels due to mucosal damage.    - Reference: Rostami, K., et al. (1999). *The Role of Infections in Celiac Disease*. European Journal of Gastroenterology & Hepatology, 11(11), 1255–1258. [DOI:10.1097/00042737-199911000-00010](https://doi.org/10.1097/00042737-199911000-00010)  6. Cardiac Conditions    - Rarely, heart failure or severe cardiovascular disease has been associated with elevated tTG-IgA levels, possibly due to gut ischemia and increased intestinal permeability.    - Reference: Ludvigsson, J. F., et al. (2007). *Celiac Disease and Risk of Cardiovascular Disease: A Population-Based Cohort Study*. American Heart Journal, 153(6), 972–976. [DOI:10.1016/j.ahj.2007.03.019](https://doi.org/10.1016/j.ahj.2007.03.019)  Key Points: - Elevated tTG-IgA levels are highly specific for celiac disease, and in most cases, a positive result strongly suggests celiac disease. - Other conditions causing elevated tTG-IgA are rare and often accompanied by additional clinical findings. - If celiac disease is suspected, further testing (e.g., endoscopy with biopsy) is typically required for confirmation. If you’re looking for more specific studies, I recommend searching PubMed or other medical databases using terms like "elevated tTG-IgA non-celiac" or "tTG-IgA in non-celiac conditions." Let me know if you’d like help with that!
    • MaryMJ
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    • trents
      I agree. Doesn't look like you have celiac disease. Your elevated DGP-IGG must be due to something else. And it was within normal at that after your gluten challenge so it is erratic and doesn't seem to be tied to gluten consumption.
    • Jack Common
      Hello! I want to share my situation. I had symptoms like some food intolerance, diarrhea, bloating, belching one year ago. I thought I could have celiac disease so I did the blood tests. The results were ambiguous for me so I saw the doctor and he said I needed to do tests to check whether I had any parasites as well. It turned out I had giardiasis. After treating it my symptoms didn't disappear immediately. And I decided to start a gluten free diet despite my doctor said I didn't have it. After some time symptoms disappeared but that time it wasn't unclear whether I'd had them because of eliminating gluten or that parasite. The symptoms for both are very similar. Giardiasis also damages the small intestine. The only way to check this was to start eating bread again as I thought. Now about my results.   These are my first test results (almost a year ago) when I had symptoms: The Tissue Transglutaminase IgA antibody - 0.5 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) The Tissue Transglutaminase IgG antibody - 6.6 U/ml (for the lab I did the tests 0.0 - 3.0 is normal) Immunoglobulin A - 1.91 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) IgA Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) IgG Endomysial antibody (EMA) - < 1:10 titer (for the lab I did the tests < 1:10 titer is normal) Deamidated gliadin peptide IgA - 0.3 U/ml (for the lab I did the tests 0.0 - 6.0 is normal) Deamidated gliadin peptide IgG - 46.1 U/ml (for the lab I did the tests 0.0 - 6.0 is normal)   Then I didn't eat gluten for six months. Symptoms disappeared. And I started a gluten challenge. Before the challenge I did some tests. My results: The Tissue Transglutaminase IgG antibody - 0.5 U/ml (for the lab I did the tests < 20 U/ml is normal)) Deamidated gliadin peptide IgG - 28 U/ml (for the lab I did the tests < 20 U/ml is normal)   During the challenge I ate 6 slices of wheat bread. After the challenge my results are: The Tissue Transglutaminase IgA antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) The Tissue Transglutaminase IgG antibody - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.31 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgA - 2.0 U/ml (for the lab I did the tests < 20 U/ml is normal) Deamidated gliadin peptide IgG - 2.13 U/ml (for the lab I did the tests < 20 U/ml is normal)   To be sure I continued consuming gluten. I ate a lot each day. Two months after I did the tests again. My results I got today are: The Tissue Transglutaminase IgA antibody - 0.7 U/ml (for the lab I did the tests < 20 U/ml is normal) Immunoglobulin A - 1.62 g/l (for the lab I did the tests 0.7 to 4 g/l is normal) Deamidated gliadin peptide IgG - 25.6 U/ml (for the lab I did the tests < 20 U/ml is normal)   Nowadays I didn't have any symptoms except tiredness but I think it's just work. I think it was this parasite because two years ago, for example, and before I didn't have these symptoms and I always ate gluten food. But I'm still not sure especially because the Deamidated gliadin peptide IgG results are sometimes high. What do you think? @Scott Adams
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