Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

josh603

Recommended Posts

josh603 Newbie

Hello!,

I am new to this forum and I hope I am posting in the right place. LONG story short, I have had a panic disorder that doctors called PTSD so shoved pills down my throat for years, got to the point where I spent 2 years in bed. Could not even get to my mailbox. 2 years not one step out the door. I found out I have these allergies and I still struggle but I am out again...absolutely amazing! After being told time and time again that a food could not contribute to it by Doctors. I am allergic to gluten, casein, soy, and corn.

I eat hummus every day for the protein, etc...but lately it has been making me very tired. I see people saying they cut out legumes from their diet, I was wondering why they cut them out? Is there evidence that Celiacs can't always stomach legumes?

-Josh


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

No most Celiac, as well as most people, can tolerate them just fine. There are a few people that can't.

Do you have Celiac? Or an allergy to wheat? They are 2 different things. If you are allergic to corn or soy, it it possibly an ingredient in the hummus?

If you are eating a small variety of foods, perhaps you need some vitamins? Have they checked your iron, ferritin, B12 & D? A lack of any of those can make you tired. Have they checked your thyroid?

Just a few things to think about.

josh603 Newbie

No most Celiac, as well as most people, can tolerate them just fine. There are a few people that can't.

Do you have Celiac? Or an allergy to wheat? They are 2 different things. If you are allergic to corn or soy, it it possibly an ingredient in the hummus?

If you are eating a small variety of foods, perhaps you need some vitamins? Have they checked your iron, ferritin, B12 & D? A lack of any of those can make you tired. Have they checked your thyroid?

Just a few things to think about.

No most Celiac, as well as most people, can tolerate them just fine. There are a few people that can't.

Do you have Celiac? Or an allergy to wheat? They are 2 different things. If you are allergic to corn or soy, it it possibly an ingredient in the hummus?

If you are eating a small variety of foods, perhaps you need some vitamins? Have they checked your iron, ferritin, B12 & D? A lack of any of those can make you tired. Have they checked your thyroid?

Just a few things to think about.

I have Celiac. I just went into a Celiac center in Boston and they ran a bunch of tests and after a year of gluten free, my IgA is back to almost normal...I still deal with anxiety every day but the fraction compared to how it was is like, 1/100. They checked my vitimans, and everything looked good except D, so I need to find a supp. for that. Thyroid is fine, senstivie thyroid check has been fine. No corn or soy in the hummus I eat.

ONLY possible thing I can think of, is that I take klonopin and it has a corn starch filler so I am sure that is contributing negatively to everything...it may be CAUSING some anxiety rather than what is is supposed to be doing, but that is a long ween to get off of it, which I am starting this week.

I would hate to cut Hummus out of my diet, its how I get most my protein, the healthy fat I need(Olive oil) etc.

Thanks for the reply!

mushroom Proficient

Legumes are a good source of protein. Some of us do not tolerate them but it has nothing to do with gluten. I had to cut them from my diet because of the lectins contained in their outer skins which interfere with my autonomic nervous system and give me atrial fibrillation. I am also intolerant of soy (which happens to be in the legume family) and corn for the same reason.

If you suspect that you might have this additional intolerance, you should try eliminating all beans and peas and see if your fatigue level improves. You can always verify by challenging the food group again and observing your reaction once your system has been clear of it for a while. Often you will react more strongly on reintroduction.

Are you allergic to the foods you list, or intolerant? There is a difference in the body's reaction between the two conditions. Celiac disease is not an allergy to gluten but an intolerance, which causes physical damage to the small intestine. An allergy will cause hives, itching, swelling, anaphylaxis.

josh603 Newbie

Legumes are a good source of protein. Some of us do not tolerate them but it has nothing to do with gluten. I had to cut them from my diet because of the lectins contained in their outer skins which interfere with my autonomic nervous system and give me atrial fibrillation. I am also intolerant of soy (which happens to be in the legume family) and corn for the same reason.

If you suspect that you might have this additional intolerance, you should try eliminating all beans and peas and see if your fatigue level improves. You can always verify by challenging the food group again and observing your reaction once your system has been clear of it for a while. Often you will react more strongly on reintroduction.

Are you allergic to the foods you list, or intolerant? There is a difference in the body's reaction between the two conditions. Celiac disease is not an allergy to gluten but an intolerance, which causes physical damage to the small intestine. An allergy will cause hives, itching, swelling, anaphylaxis.

Intolerant to the foods listed, sorry for the terminology mix up.

josh603 Newbie

I am just trying to find a diet that works for me and it's been so hard. Ever since hummus has been making me so tired lately (its also a good food to eat when I am out and about because everywhere sells it) I am kind of worried.

Lately my diet has been:

Food:

Hummus, vegetables, bananas(only fruit I really like), and chicken(some nights)

Drink:

Coconut water

Water.

It is a very boring diet but it beats the alternative of being stuck in my bed, I am just trying to find a way to expand it without any kind of problems. I know I am overly cautious and I know I am not getting my calorie intake daily.

GottaSki Mentor

Hi Josh-

I am intolerant of many foods - most of which are high in lectins as Mushroom mentioned. The theory is once the damage caused by celiac disease heals/repairs itself I will be able to tolerate many of the foods that I am intolerant of.

All legumes make me tired - peas are like sleeping pills for me, peanuts make me tired and extremely emotional, soy makes me tired and angry -

How about trying a fruit smoothie if you arent a fan of many fruits - my son loves them with al different fruits and even greens - but will only eat green apples or grapes normally.

Can you eat almonds? I grind almonds with basil or cilantro - and a little garlic & plive or coconut oil -- makes a great replacement for hummus and easy to make in the blender.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



josh603 Newbie

Hi Josh-

I am intolerant of many foods - most of which are high in lectins as Mushroom mentioned. The theory is once the damage caused by celiac disease heals/repairs itself I will be able to tolerate many of the foods that I am intolerant of.

All legumes make me tired - peas are like sleeping pills for me, peanuts make me tired and extremely emotional, soy makes me tired and angry -

How about trying a fruit smoothie if you arent a fan of many fruits - my son loves them with al different fruits and even greens - but will only eat green apples or grapes normally.

Can you eat almonds? I grind almonds with basil or cilantro - and a little garlic & plive or coconut oil -- makes a great replacement for hummus and easy to make in the blender.

It's funny because after I cut out peas from my diet, I felt a lot better. I am intolerant to soy. Intolerant to corn. I guess other legumes wouldn't surprise me. That being such a staple food. What can I replace it with...I don't do almonds. I can't do potatoes. Veggies and fruits all day sometimes make me edgy because of all the sugar. It's so frustrating. I'm so new to this and have come such a long way by finding out all these intolerances after 4 or 5 doctors all told me I was wrong. They all believe me now and get their mental health patients checked before even prescribing now. I am 20 years old and still pretty new to all of this. Hell, to think if I never have found all this out alone and requested those tests, I would still be on bed.

josh603 Newbie

Does anyone here react to rices?

GottaSki Mentor

Does anyone here react to rices?

I don't eat any grains - rice passed my eliminaiton/challenge diet, but I had to remove later. It will be the first grain I reintroduce after another six months or so.

If you don't do potato -- is it because it is a nightshade or you just don't like them? Sweet potato and yams are not nightshade. I also eat quite a bit of squash -- I cook a spaghetti squash every couple days to keep "noodles" ready to add to meat and vegies for quick meals. I love butternut squash fries -- and recently got a julienne mandolin to cut zucchini into angel hair like "noodles"

josh603 Newbie

I don't eat any grains - rice passed my eliminaiton/challenge diet, but I had to remove later. It will be the first grain I reintroduce after another six months or so.

If you don't do potato -- is it because it is a nightshade or you just don't like them? Sweet potato and yams are not nightshade. I also eat quite a bit of squash -- I cook a spaghetti squash every couple days to keep "noodles" ready to add to meat and vegies for quick meals. I love butternut squash fries -- and recently got a julienne mandolin to cut zucchini into angel hair like "noodles"

I don't do potatoes because I read somewhere people with a lot of intolerances react to them quite often. I know I am being overly cautious but I just came out of two years of the darkest point in my life and never want to go back. So sweet potatoes and yams aren't in that same class as say a normal red skin potato?

Also,

I would just like to thank everyone so much for all this info. It means the world to be truly. I am

Having a hard time.

cahill Collaborator

So sweet potatoes and yams aren't in that same class as say a normal red skin potato?

.

.Nope , not in the same class ( different family )

I had eliminated potatoes for quite awhile but now that my food selection is so limited I do rotate potatoes into my diet once or twice a week.

mushroom Proficient

Sweet potatoes and yams are a staple of my diet. Unlike GottaSki, I am not totally grain free. I do eat alternative breads made with rice flour, tapioca, sorghum, buckwheat, arrowroot, teff. I do not eat wheat, oats, rye, barley, corn, quinoa, millet or amaranth. I eat white rice, but to be safe avoid brown rice which has the bran (and therefore the lectins) left on. Like you, I don't want to lose any more foods, although I found that healing the leaky gut was the key to preventing additional food loss. So long as those partially digested proteins are able to make it through the gut lining into the blood stream you run the risk of developing antibodies and 'losing' another food.

A program for gut healing often consists of a good quality (high billion count) probiotic to rebuild good flora in the gut, digestive enzymes to help with digestion as the pancreas is often not doing its job well, and L-glutamine for healing the lining.

jerseyangel Proficient

ONLY possible thing I can think of, is that I take klonopin and it has a corn starch filler so I am sure that is contributing negatively to everything...it may be CAUSING some anxiety rather than what is is supposed to be doing, but that is a long ween to get off of it, which I am starting this week.

Hi Josh, I think it is the Klonopin contributing to your fatigue. It is an anti-anxiety med, classified as a sedative. Fatigue/tiredness is a side effect. You are also correct, in that it may also be causing anxiety--called "rebound anxiety". It can also cause depression.

When weaning off, do so very slowly (very slowly) and you will be fine. Contact me anytime.

josh603 Newbie

Jerseygirl...I have been on the same dose of klonopin for a year. At first it made me tired but not anymore so I know it's not my klonopin. And it happens about 30 min after I eat my hummus

mushroom Proficient

Jerseygirl...I have been on the same dose of klonopin for a year. At first it made me tired but not anymore so I know it's not my klonopin. And it happens about 30 min after I eat my hummus

You know the old joke, Josh: Doctor, doctor, it hurts when I do this!! Doctor: "Don't do that." Just 'joshing' :D

GFinDC Veteran

Hi Josh,

Here's a link for Klonopin side affects for info. This AskaPatient site is great for getting input from actual people taking drugs versus drug companies selling them.

Open Original Shared Link

Try doing a search of the forum on elimination diets. That is basically when you start out with just a few whole foods and then add one at a time for 3 or 4 days to see how it affects you. The idea is to build up a list of safe foods for your body. Elimination diets can be very helpful with finding food intolerances.

I gave up hummus for a couple years myself, and all beans too. I can now eat hummus and black beans in limited quantities after being off them for that time. I also react to nightshades, potatoes, tomatoes, peppers and eggplant. Grapes and soy are big triggers for me also. We all have to find out how our own bodies react to foods. Each of us may develop reactions to different foods.

Don't forget to look at any vitamins and meds and also drinks like coffee, tea etc that might affect your body. Those kitchen sink all-in-one multivitamin pills are risky IMHO, as they have so may ingredients it's hard to identify which might cause a reaction. It's better to get individual vitamin pills or limited combos.

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.

Get your vitamin/mineral levels tested also.

Don't eat in restaurants

Eat only whole foods not processed foods.

Eat only food you cook yourself, think simple foods, not gourmet meals.

Take probiotics.

Take gluten-free vitamins.

Take digestive enzymes.

Avoid dairy.

Avoid sugars and starchy foods.

Avoid alcohol.

jerseyangel Proficient

Jerseygirl...I have been on the same dose of klonopin for a year. At first it made me tired but not anymore so I know it's not my klonopin. And it happens about 30 min after I eat my hummus

Sorry about the delay in replying.....sometimes I'd forget my head.....

Well, if you are sure it's not the Klonopin (and after taking it for a time, it can cause the rebound type symptoms I mentioned before--I have taken it. It is because of the tolerance it can cause), I think the reasonable thing to do would be to fine a sub for the legumes. I had problems with legumes and was off them completely for 5 years. I can now eat them in moderation.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,965
    • Most Online (within 30 mins)
      7,748

    Deema99
    Newest Member
    Deema99
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jy11
      Well the conflicting results continue as the biopsy has come back negative. 😵‍💫 Waiting to discuss further but I really don’t know what to think now? Eight biopsy’s were taken from duodenum which surely should be sufficient if it was coeliac? 
    • Pasballard
      I have Celiacs and want you to be aware of the amount of weight you can potentially put on if you rely on gluten free snacks, bread etc.,they  are high in carbs.  I put on 25 lbs in a short amount of time.  Whole Foods are the best way to go but I struggle with this.  The cost of gluten free is also a problem.  I love black licorice but most have gluten.  My favorite chili seasoning as well.  The list is endless.  I take  Advil liquid gels and had no idea until I read this.  I hope you do better than I have done.  I feel I am destined to suffer daily no matter what.  My aunt didn’t take care of herself and died from complications.  I hope you can get on a good routine.
    • growlinhard1
      Thank you, I appreciate the response. I'm going to begin the gluten free diet and wait for the biopsy results. I feel fairly certain that it's the right thing for my well being. I will keep you posted.
    • Scott Adams
      The flu vaccine is indeed not 100% effective every year, as its effectiveness varies depending on how well the vaccine strains match the circulating flu viruses. However, even in years when the match is less than perfect, the flu vaccine still provides significant benefits. Studies consistently show that vaccinated individuals who contract the flu often experience milder symptoms, a lower risk of complications, and a reduced likelihood of hospitalization or death compared to those who are unvaccinated. For high-risk groups, such as the elderly, young children, and individuals with chronic health conditions, the flu vaccine remains a critical tool for reducing severe outcomes. Regarding the mention of risks associated with vaccines, it’s important to note that the flu vaccine is generally very safe for most people. Serious side effects are extremely rare, and the benefits of vaccination far outweigh the risks for the vast majority of individuals. If someone has specific concerns about vaccine safety due to medical conditions or allergies, they should consult their healthcare provider to discuss their options. As for alternative measures like a D Lamp (ultraviolet light disinfection), while these can be useful for reducing pathogens in the environment, they are not a substitute for vaccination. The flu virus spreads primarily through respiratory droplets, and personal protection measures like hand hygiene, masking, and improving indoor ventilation can complement vaccination but cannot replace its targeted immune protection.
    • trents
      Because you have already had the "gold standard" test done, and because you have some experiential evidence that removing gluten from your diet causes you to feel better, it would make sense to begin the gluten-free diet as you wait for biopsy results.
×
×
  • Create New...