Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Tests Should I Get Next,i Feel Lost


Liquidceliac

Recommended Posts

Liquidceliac Rookie

I'm wondering what tests I should ask my doctor for next( or beg him) since he thinks I have anxiety only .Right now my current symptoms are , a nervous feeling before a bowel movement(which I've had on/off) my whole life.It seems my stomack/ digestive tract goes into overdrive when I eat gluten.But only after a few days if being off the stuff.For example this Xmas and the week after I ate cake,donuts,cinammon roles, and my symptoms exploded.Sore stiff neck/ back/shoulders and jaw.Sinus flared up again,nervousness ,cold hands and feet,shivering.I stopped eating all gluten and soy (allergic to soy) on Monday.Slowly my muscle tension subsided,and now my stomach can take small meals ( gluten free of course ) and bigger meals like last night (steak and spinach) and it had that weird consequence.I woke up nervous and had to take a #2 which came out fine.Except I know by the way my stonach feels its going to be one of those overdrive days.This is what I called days where I need to be near a toilet because my digestion is in overdrive 4-6 times ill need to go.Not diearhea but small normal ones?!? It's been like this as long as I can remember, either I'm constipated or on overdrive since my early 20's.Only the muscle tension was new this year and sinus problems .Ive had food allergy testing including Gluten (not celiac), blood tests galore for thyroid,diabetes,red/white cells,urine tests.Mri of spine,X-rays spine,lungs,EKG,endoscopy (no biopsy),hpylor I tests .All neg I'm lost.Do celiacs get muscle tension and sinus inflammation? I also have hemmroids in 36 make


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GottaSki Mentor

Welcome LiquidCeliac!

Yes, all the symptoms you mention can be caused by Celiac Disease or Non-Celiac Gluten Intolerance. The best next step is to be tested for Celiac Disease. You NEED to be eating gluten for these antibody tests to have their best chance for accuracy. You mention going a few days without gluten - have you spent significant time gluten-free over the past year?

Here is a list of symptoms that can be associated with Celiac Disease:

Open Original Shared Link

Many primary doctors will only run a tTG IgA (Tissue Transglutaminase IgA) to screen for Celiac Disease, but you should request a full celiac panel as these tests can not be done after removing gluten.

Full Celiac Blood Panel:

Total Serum IgA

Tissue Transglutaminase IgA and IgG

Gliadin IgA and IgG

Endomysial Antibody IgA

Deamidated Gliadin Peptide IgA and IgG

Also, low vitamins/minerals can indicate you are not absorbing nutrients properly - another indicator of Celiac Disease. So you might want to have these drawn at the same time as the Celiac panel.

Misc blood tests:

CMP (Complete Metabolic Panel), All B Vits, D, K, Iron, Ferritin, Copper and Zinc

Good Luck to you -- Keep Looking for answers :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,316
    • Most Online (within 30 mins)
      7,748

    Parky
    Newest Member
    Parky
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.3k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      In what way? Skinese:  You paid for it, might as well try.  They are the usual mix and is gluten free. "Free of milk/casein, eggs, fish, shellfish, tree nuts, peanuts, wheat, gluten, and soybeans. Contains no artificial colors, flavors, or preservatives."   Are you using whole milk yogurt or the no fat yogurt.  The no fat has varius ingrediEnts to mimic fats texture but some people react to the  gums used.   Sibo: Foods that do not contain carbohydrates or fiber do not usually cause problems. This includes meats (beef, pork, lamb, venison); poultry (chicken, turkey, duck); fish and shellfish; eggs; and butter, oils, and hard cheeses. Stonyfield Whole milk yogert, I think, is the only one with lactase for lactose intolerance.  Naturally Fermented Pickles [The Complete Guide] For your skin health you need dietary iodine intake around 500 to 1000 micrograms a day.  I take Liquid Iodine 500 mcg a day.  It is the amount I ate daily in the 1960/s before they stopped using it in bread.  Since 1970 the daily intake of iodine has decrease 50%.  50 mcg/drop in the brand I use.  The dose used to prove Wolff-Chaikoff Effect was upwards of 11 grams The USDA lists the safe range from 125 mcg to 1000 mcg (1 gram).  Japanese say 3000 mcg is safe.  Look at tradition japanese hair, skin, and their childrens intellegence.  They must be doing something more right than us.   
    • Barcino
      FASANO DIET - not Dasani. For some reason, it is not allowing me to edit my post. 
    • Scott Adams
      Yes, she should be eating lots of gluten daily...4 slices of wheat bread would be ideal for the screenings.
    • Barcino
      Hello,  I cant get my daughter's TTG IGA antibodies to drop into the normal range. A bit of the backstory : both my kids were diagnosed in July of 2023. Both were >250 at diagnosis.  My son went from >250 July 2023  to 33 Nov 2023  to 15.7 July 2024. With <15 being negative. He is almost there.  My daughter went >250 July 2023 to 66.3 Dec 2023 to 31.7 July 2024 to now back up to 35.6.  We are a fully gluten free house and we do not eat out AT ALL in any restaurants other than one dedicated gluten-free bakery. We don't eat any oats. She takes anti epileptic drugs / vitamins so we are double checking all medications and supplements. One medication says they should be gluten free but cant guarantee excipients aren't contaminated so we will be changing that one to a different manufacturer.   Feeling a little worried that her levels are worse and we cant get her into the normal range. We are thinking about cutting dairy or doing the Dasani diet. She doesnt eat a crazy amount of processed food and what she has in gluten free certified and not made in shared lines but maybe we should cut it all out until her levels drop? Any other advice? We will check all personal products also, but we believe everything is gluten free. My son is away at school so trying to figure out what she does and eats that he doesnt. Chickpeas (canned), dairy (he doesnt eat much dairy due to acne) and of course her medications.   Thank you for any input you may have.
    • jjiillee
      She finally has her appointment today. They said in their opinion it’s likely celiac. But repeated the bloodwork today. Her frost bloodwork was weak positive 5.3 (4-10 is a weak positive) Dr wanted her own labs. And they will be calling us to schedule the endoscopy.  They told her to keep Eating gluten. She has been eating is again for the last couple weeks. 
×
×
  • Create New...