Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bloody Diarrhea When Glutened


whoknewafter25years

Recommended Posts

whoknewafter25years Newbie

new here gluten-free 4 almost 1 yr and feeling much btr.have UC 4 25 yrs with bleeding.does anyone have blood in stool with celiac? or gluten sens? im neg for celiac spru but pos stool for gluten sens and had a miracle healing i believe from God when i stopped gluten and had food allergy testing done and stopped those foods as well. now if i accidently have gluten i have bloody diarrhea for about 3 weeks.is this common for anyone else? for 25 yrs i have had episodes of active UC and have been on steroids and chemo.now that i am following strict diet and gluten-free i only take asacol and having formed bms with no blood thank the Lord until i have an accidental ingestion then its bad...super bad for 3weeks.sound familiar to anyone?any suggestions?

thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nvsmom Community Regular

With hemorrhoids, if your bowels get really irritated, like with diarrhea or constipation, bloody stools can happen. It can range from a bit of red on the tissue paper to full on disturbingly red toilet bowl water. Could it be a hemi? They're harmless, just a, well.... pain in the butt. I hope that's all it is for you.

Best wishes.

GFinDC Veteran

Hi,

Yes, I get blood in stool from gluten and dairy. It doesn't last three weeks for me but long enough. Dairy doesn't do it right away but if I eat it for a week, oops.

1desperateladysaved Proficient

Sometimes I think I have alot of blood in my stool. Then I remember that I recently ate beets!

Opa3 Apprentice

now if i accidently have gluten i have bloody diarrhea for about 3 weeks.is this common for anyone else?

I have celiac disease for 30 years, I don't have UC. I cheated in 2007 and again in 2012 (suspect CC) but bloody stool due to celiac disease? NO.

Hope this helps.

  • 4 years later...
Bethaliz22 Newbie

I have the same issue, and can’t find any info on if this happens to others. It is not hemroids and will happen even with passing gas and 5/6 times per day for weeks following ingestion of gluten or dairy. I’m also thinking it may have something to do with folic acid. I will also get nosebleeds after consuming even gluten and dairy free foods that have folic acid in them. Anyone else?

Ennis-TX Grand Master
1 hour ago, Bethaliz22 said:

I have the same issue, and can’t find any info on if this happens to others. It is not hemroids and will happen even with passing gas and 5/6 times per day for weeks following ingestion of gluten or dairy. I’m also thinking it may have something to do with folic acid. I will also get nosebleeds after consuming even gluten and dairy free foods that have folic acid in them. Anyone else?

You just responded to a post from 2013 for more relevant responses in the future make a new thread.

Regarding your issues I had bloody stool for years....thought it was something else perhaps related to celiac, but the issue for me turned out to be I had also developed Ulcerative Colitis and flare ups with it caused bleeding. For most flare ups with it are caused by gluten, dairy, soy, etc. For me and for some other triggers exist like glucose, fructose, starchy carbs, sugars in general. I went on a ketogenic diet to  deal with it and it works wonders. Might want to look into it. BTW other things to help treat it are marshmallow root capsules (nature way), and drinking aloe vera juice to help coat and sooth the intestines, collagen, and glucosomine are others. I heard slippery elm might work help but I just use the others for my regime with diet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
2 hours ago, Bethaliz22 said:

I have the same issue, and can’t find any info on if this happens to others. It is not hemroids and will happen even with passing gas and 5/6 times per day for weeks following ingestion of gluten or dairy. I’m also thinking it may have something to do with folic acid. I will also get nosebleeds after consuming even gluten and dairy free foods that have folic acid in them. Anyone else?

Have you had a colonoscopy? If not it would be a good idea to contact the GI doctor that diagnosed you about the bleeding. You could have something more than celiac going on.  I pass blood for a day or two after being glutened but having this going on even when just passing gas and having it last for weeks really needs to be evaluated.  Until you can see your doctor make sure you are not taking asprin or any other blood thinning drug or supplement.

Bethaliz22 Newbie

Yes, I had the colonoscopy that diagnosing me with celiac (as well as dna test by allergy specialist with all 3 genetic markers) the bleeding wasn’t going on at the time of the colonoscopy but started not long after. My pcp sent me back to the gi, but he didn’t redo anything and just said it’s probably hemorrhoids and prescribed me cream. I tried to explain the connection of when it happens and how I can have regular stool, soft stool, gas and it start, or lots of times have hard stool or diahrea with absense of trigger foods and it never bleed. He didn’t do any exam and basically just told me I should go to the Mayo Clinic.

Victoria1234 Experienced
48 minutes ago, Bethaliz22 said:

had the colonoscopy that diagnosing me with celiac

Colonoscopies can't dx you with celiac. Only endoscopies.

cyclinglady Grand Master
3 hours ago, Victoria1234 said:

Colonoscopies can't dx you with celiac. Only endoscopies.

No, it is not common, but you can reach the small intestine from the colon.   ?

Open Original Shared Link

Bethaliz22 Newbie

Sorry if I’m not very technical, but they went in both directions and checked everything and diagnosed me celiac from what they found. I’ve also had igg testing and ige testing, and like I said, dna testing through the allergy specialist, and my own 23&me dna test that also matched up with everything else saying celiac and dairy intolerant, along with a ton of other allergies and intolerances, and the mth-fr gene mutation and Hashimoto’s hypothyroid. 

ravenwoodglass Mentor
13 hours ago, Bethaliz22 said:

Yes, I had the colonoscopy that diagnosing me with celiac (as well as dna test by allergy specialist with all 3 genetic markers) the bleeding wasn’t going on at the time of the colonoscopy but started not long after. My pcp sent me back to the gi, but he didn’t redo anything and just said it’s probably hemorrhoids and prescribed me cream. I tried to explain the connection of when it happens and how I can have regular stool, soft stool, gas and it start, or lots of times have hard stool or diahrea with absense of trigger foods and it never bleed. He didn’t do any exam and basically just told me I should go to the Mayo Clinic.

If you are passing more than a couple drops of blood you need to find another GI doctor for a second opinion. If your present doctor gets offended then you need to drop him like a hot rock.  If you can easily get to the Mayo clinic then go there. If not then find another locally.  Is it possible you are continually reglutening yourself? There is a lot to the gluten-free lifestyle that involves more than just checking to make sure the foods are gluten free. How it is prepared is also important and well as stuff like not kissing gluten eaters without them brushing their teeth first, using gluten containly lotions on your hands and then eating finger foods and much more. By the way an upper scope is called an endoscopy. You had both an endoscopy and a colonoscopy at diaagnosis. Do get your medical records also with copies of labs and endo/colonoscope results.

  • 1 month later...
Mom to 3 Newbie

My son had horrible bloody stools and stomach pain as a toddler. He became very anemic. We did an elimination diet and found that stopping dairy helped but he wasn't completely better until he stopped eating wheat. Once he healed, he could have dairy with no problems. I think dairy just exacerbated the problem when he had damage from the gluten. Since then he has been glutened a few times (family members who didn't believe in celiac :angry:, or parent volunteers at school who didn't know what gluten was) and he had bloody stools and pain each time. He just gets regular diarrhea and cramps from cross contamination like fries from a fryer shared with gluten. The GI doctor did a scope of some kind when he was a baby because of the severity of the bleeding but no blood test. I think it's too late to test now because he would have to eat gluten to test. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,551
    • Most Online (within 30 mins)
      7,748

    Bethann Sheridan
    Newest Member
    Bethann Sheridan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @LynnM, when you say, "today, his numbers were high", what numbers do you refer to? Are you speaking of celiac antibody scores? Can you be more specific and can you post the test names, the numbers and the reference ranges for the tests? So, I am understanding you to say that topical exposure to gluten doesn't cause him GI reactions but ingestion of gluten does but at the same time you are attributing the "high numbers" to the topical exposure?
    • Ginger38
      So I recently had blood work and my hemoglobin, hematocrit, protein and alkaline phosphatase were all low. They have never been low in the past but since august of last year I have been on the in and off gluten rollercoaster as I mentioned in previous posts. Should I be concerned with these new findings? I am worried I have made myself really sick and done damage or something this past year 
    • LynnM
      Thank you Scott. My son doesn't have a reaction topically, only when ingested. Interestingly though, the doc told us the face cream getting gluten into his bloodstream doesn't do the damage akin to when gluten is ingested. He had no reaction when using the face cream, it only presented in blood-work. I'm hopeful from all the comments today and will wait for the GI doc to reply. If he is cleared to use it, I will encourage SHIELD to get a gluten-free certification 
    • Scott Adams
      It’s great that you’re taking the time to research products carefully for your son with celiac disease—especially since accidental gluten exposure through skincare can be a real concern for sensitive individuals. Based on the ingredient lists you’ve shared, none of the products appear to contain obvious sources of gluten like wheat, barley, or rye derivatives. Ingredients like glycerin and tocopherols (not listed here but often a concern) can sometimes be derived from wheat, but many manufacturers use plant-based or synthetic sources. SHIELD’s transparency and willingness to share their full ingredient list is a good sign, and their note about not intentionally adding gluten is reassuring. Still, because ingredient sourcing can vary and sensitivities differ from person to person, it’s wise that you’ve reached out to your GI specialist to be sure these products are safe for your son’s specific needs. In the meantime, if you do try any of the products, consider patch-testing them first and watching closely for any signs of skin irritation or reactions. PS - Most people with celiac disease won't react to skin products that may contain gluten, but I still recommend finding gluten-free products.
    • LynnM
      Greetings Trents and Scott. This is the first time I'm posting here so I apologize in advance if I'm not replying properly. My 13 YO was diagnosed at age 5 and once gluten was removed from his diet, he grew 3" in a year, skin became much better and dark circles around his eyes disappeared. Today his numbers were very high and our new dietician discovered his face cream (Clinique dramatically different lotion) contained gluten. My fault for not checking.    His acne really has only just started and he's using OCT gluten-free products but the SHIELD is nothing short of miraculous for my 16 YO son and the 13 YO is eager to start. I will await his dietician's reply or google each ingredient.    I don't want to put him on that Rx as it's not that bad and isn't painful either. Just a boy starting 8th grade and doesn't want bad acne.    When I hear back I will circle back. 
×
×
  • Create New...