Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free And Depressed..


lockerbear

Recommended Posts

lockerbear Rookie

Hi everyone I'm new here and I was just hoping to get some advice on what is wrong with me.

I went gluten free (after being negative for celiac) about six months ago after having a lot of problems and it helped immensely- all of my problems went away, but I got cc'd a few times and then things never got better..

I was becoming intolerant to things i ate a lot and i figured I may have leaky gut so i went on a rotation diet to heal it. I was finally seeing some improvement, but then out of the blue I became constipated. My stomach ballooned up and i felt horrible I couldn't eat because I was so full and eventually i had to take a laxative to get rid of it. Unfortunately though my symptoms have not really gone away

I now have a constant bloated stomach. It doesn't matter if i do or don't eat it will be bloated. When i was having food intolerance problems it would go down if I didn't eat anything I'm sensitive to but now it is always there. It goes from the top half of my abdomen to the bottom. I am not constipated however I feel like I am not completely emptying my bowels...

I also always feel full, i burp a lot when i eat I get flatulence especially when I wake up and after i eat and my food just sort of sits in my stomach. It often comes out undigested

Does anyone know what this might be? I'm really depressed at this point because every time I start getting better something else comes up to bite me... I'm scared that even if i figure this out that something else will happen and it will never end. I have become very underweight since this all started and I'm very scared to go on diets. I've become intolerant to most of the high calorie foods from my leaky gut...

Any help would be appreciated


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mamaw Community Regular

I can't dx'd you but here is a suggestion.

Have you tried digestive enzymes & Probiotics? I use Digest Gold for my enzyme & I like Dr. O'Hirra probiotic 12 professional formula .. One should not take the same probiotic for a lengthy time but swap to another brand or two .....but to start I like Dr. O'Hirra's.....

just a thought

lockerbear Rookie

I can't dx'd you but here is a suggestion.

Have you tried digestive enzymes & Probiotics? I use Digest Gold for my enzyme & I like Dr. O'Hirra probiotic 12 professional formula .. One should not take the same probiotic for a lengthy time but swap to another brand or two .....but to start I like Dr. O'Hirra's.....

just a thought

Thanks for the reply :) I actually have been taking digestive enzymes for a while now with every meal, but it hasn't made much difference and probiotics haven't either unfortunately =\

1desperateladysaved Proficient

Make sure you haven't added something to your diet that has agravated gluten or other intolerances. My tummy bloat was constant, next swung form high to low, and currently is debloating. In the meanwhile I have been grain free for 7 months, began digestive enzymes, and vitamin B recently.

I hope you will get it straightened out. I like babies, but I hate to be taken for pregnant when I am not. I guess that would be especially sad for males!

tarnalberry Community Regular

You say that you are bloated whether or not you eat, which makes me suggest that you talk to a doctor. There may be non-digestive issues going on which are giving you your digestive symptoms.

lockerbear Rookie

Thanks so much for the replies guys.

I'm not sure if it would be another intolerance or something.. I have been rotating food so I never eat the same thing for 4 days and my stomach is the same every day and the only grain i eat is rice =\ i could try cutting it out though. i did notice i sometimes have reactions to fruit, but most of the time i don't and it can be with low or high fodmaps.. so i don't really know what that means.. I've tried to make an appointment with a gastro as well, but they all just took off for a month for holidays and even though i faxed an urgent referral to them over a month ago i still apparently don't have an appointment.

My ultrasounds and xrays have been fine and I found a really good naturopathy clinic online but they have been closed as well until next week. I have ordered a test for SIBO just recently which I am doing at home (or else i would have to wait 3 months for a test >< so happy they have the at home option) and hopefully that will show something. The only person i've been able to see is a doctor who gave me an antacid, but i just ignored it.. not really looking for any quick fixes. I'm considering going to a gyno as well because my mum told me about something called endometriosis which can (uncommonly) grow on the intestines and honestly (TMI sorry) when i am menstruating the pain is comparable to when my appendix burst inside my stomach... I don't think i have it, but i want to rule everything out since doctors aren't any help. Man I can't believe I thought it was just "go gluten free and get better" doctors should really warn people about this stuff!

Sorry for posting my life story lol! if anyone has experience with anything i've mentioned or any more suggestions for me I'd be glad to hear it =]

JNBunnie1 Community Regular

It is entirely appropriate to check on the idea of endometriosis, that's a good avenue to explore.

Hopefully you get some answers and start feeling better soon!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,243
    • Most Online (within 30 mins)
      7,748

    Hurtfeelingz
    Newest Member
    Hurtfeelingz
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Thanks for sharing this! Here is more info about those cookies: https://partakefoods.com/collections/cookies 
    • Scott Adams
      According to their site: https://shop.hersheys.com/our-brands/reeses/034000943265.html
    • Scott Adams
      The positive Anti-deamidated Gliadin IgA result (12 U/ml) suggests possible celiac disease, but it is not definitive on its own, as this marker can also be elevated in other conditions or even in non-coeliac gluten sensitivity (NCGS). Do you know if they also ran a tTg-Iga test? This is the definitive test for celiac disease. The absence of classical symptoms like significant bloating or pain upon gluten reintroduction, along with your history of IBS and sensitivity to legumes, complicates the picture (legumes can be cross-contaminated with wheat). While celiac disease remains a possibility, other conditions like NCGS, leaky gut, or additional food intolerances could also explain your symptoms. A biopsy would provide more conclusive evidence for celiac disease, but for that you need to be eating lots of gluten daily in the weeks leading up to the endoscopy. In the meantime, adopting a gluten-free diet and supporting gut health with supplements (e.g., probiotics, L-glutamine) may help reduce inflammation and symptoms, but it’s important to consult a healthcare professional to tailor your approach and rule out other underlying issues. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Liquid lunch
      I don’t think it matters much, there’s another type of cordyceps but I’m not sure if there’s a lot of difference, the one I’m using is cordyceps sinensis from maesyffin in wales, sinensis is the one with a long history of medicinal use in china. I think the alcohol (vodka) in the tincture helps with uptake vs taking capsules. And yes, changing my diet helped but it’s almost impossible to maintain as I can’t eat any lectins or sugar which is almost everything. Low lectin is about the best to hope for, they’re in everything. I can eat teff, millet, hemp seeds, blueberries, strawberries, blackcurrants, yogurt, cheese, walnuts, pistachios, macadamia, Brazil nuts, broccoli, sweet potato, carrots, beetroot, olives, rocket, onions, garlic, avocado, kale, mushrooms, chlorella/spirulina, and fish. That’s about it. I keep quail and make their food myself because lectins get into the commercial pellet fed chickens eggs. It took me years of adding one thing at a time with three weeks of pain every time I got it wrong to figure this out but there’s a finger prick blood test available now that will tell you which foods are triggering your autoimmune system, they test for 200+ different proteins and measure igg and ige antibodies. Good luck, I hope the mushrooms help but best to address the cause of the problem I think and have the igg and ige antibody test. The test won’t work if you’re already taking the mushrooms.
×
×
  • Create New...