Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feel Like Cheating


Jackiebear

Recommended Posts

Jackiebear Newbie

I am about to have my year anniversary of being a celiac/ being gluten free. I have never felt like cheating but as this anniversary gets closer part of me wants to just cheat. Please talk me out of it! Give me statistics or articles or anything!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Takala Enthusiast

Chances are you'll have a much stronger reaction after being off of it for a year. :( Then you'll be wondering why you just did that temporary sensation for a week of brain fog, nausea, heartburn, & extra bathroom trips.

Long term cheating means that you are at much higher risk of neurological and brain damage... imagine gluten antibodies running around in your brain, and the ensuing chaos.... guarantee you wouldn't want to spend years and years trying to recover slowly from that. :ph34r::(:wacko: Or, then there is the bone loss, and tendon inflammation and damage which messes up your joints, so you can spend decades doing physical therapy every day so you can pass for "normal" and walk without too much discomfort - if you always wear heavy, supportive footwear. High heels ? Fugggetaboutit - balance is permanently off. Don't forget a fresh breakout of acne can hit every time you eat gluten. Or that thyroid disease is always lurking, ready to make your metabolism so slow you are always gaining weight at the sight of a rice cracker.

Don't forget the return of kidney problems from the kidneys filtering extra calcium out of your blood. Stones- what fun! <_<

Really, why don't you just plan to eat something really, really high quality and good that is not gluten.

nvsmom Community Regular

After a year, it won't taste the same anyways. Soooo not worth it.

Think icecream or m&m's or caramel popcorn or nachos with salsa, cheese and guacamole. Who needs the wheat!!

Adalaide Mentor

My one year gluten-free anniversary also happens to coincide with my birthday. (Give or take 2 days.) For my birthday before going gluten-free I indulged in red velvet cake. For my birthday this year I found a gluten-free bakery and bought a half dozen red velvet cupcakes. In my defense, I let my husband have one. I have also taken up one of my favorite passions again, baking. I now have a stash of cookies in the freezer leftover from Christmas that I can indulge in any time, one at a time. These things keep me from cheating.

In the year since gluten-free I have not purposely eaten gluten a single time. I have accidentally. Over time my reaction has gone from bad, to worse, to life altering for weeks at time. It isn't the hours in the bathroom that bother me, or the day following that is filled with dread knowing what is coming. It is the following 3 or 4 days or week that I sleep it off for 16 or more hours a day. The weeks following of nearly unbearable all over pain, sometimes so bad I can't tolerate the touch to put lotion on after a shower or even the water from the shower. Stumbling around like a drunk for a month with ataxia. Covered in bruises all over my body, from fresh and purple/black to old and green, sometimes overlapping each other, from bumping into so many things. I stop talking in the middle of sentences because my fog and memory are so bad that I forget that I was having a conversation. This is at its absolute worst for 2-3 weeks, then slowly subsides and after about 6 or so weeks is gone enough that I can function more or less like a human being.

This isn't some sob story about how much life sucks if I get glutened. This is to point out that there is no food on earth, nothing, not even red velvet cake, not even my grammy's cookies, that is worth that. And I'm just talking the immediate effects. That is without the risk of AI diseases or the thought that one day years from now if I happen to get cancer would I look back on the day I willingly ate gluten and forever wonder if that was the straw that broke the camel's back? Was that the one too many? Was that the gluten that gave me a death sentence? I don't want to live with that. Do you?

IrishHeart Veteran

Nope. Not going to trot out my list of AI diseases or ramifications of gluten exposure or bring out the doom and gloom flow charts with graphs and such :D I'll save those for another time.

I am sure you know by now why cheating is not a good idea. I presume you are a grown-up and if so, this is totally your decision, hon.

Instead, I'll say this: I take every precaution to avoid CC because of what celiac did to me, so I find cheating to be just plain stupid.

There is nothing worth five or six bites of some delicious goodie I can recreate myself that is gluten free and safe--only to endure weeks of feeling like total sh*t and having burning pain in my joints, bones, muscles nerves, hair loss, insomnia, heart palps, migraines, brain fog and ataxia etc, not to mention the time spent in the loo.

Chances are, you'll feel like crap.

But, if you escape unscathed, promise me you will not brag about it or mistake it for a green light to do it again, okay?.

And I promise that if you feel like crap, just this one time I won't say "I told you so". Most members know how much I am (unapologetically) anti -cheating.

oh..... I am really curious.....what gluteny food is so tempting that it is calling you to the dark side? :ph34r:

Opa3 Apprentice

Don't do it. I did in 2007, and ended up with IBS/GERD. Wheat is not worth anything.

Make progress, be well and STAY well. :)

gancan Apprentice

Stay strong and celebrate your year anniversary with a big pile of gluten free nachoes!! :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced

I am about to have my year anniversary of being a celiac/ being gluten free. I have never felt like cheating but as this anniversary gets closer part of me wants to just cheat. Please talk me out of it! Give me statistics or articles or anything!

For me, I never get far enough to even worry about serious complications because the immediate effects are enough to keep me from ever cheating. I never even have any desire to cheat...not on the radar. But, then again, being up all night, hurling until I think my stomach will come up, does the trick for me! :o

Think of what you are craving and find it's gluten-free counterpart and indulge yourself. :)

tarnalberry Community Regular

I don't get it.

We don't think that an alcoholic celebrating a year sober is ok to go out and drink. We don't think a serious diabetic is ok to go out and eat sugar their whole birthday long. We don't think it's ok for someone allergic to peanuts to go eat a peanut butter cookie on their birthday because it's their favorite.

I mean "Yay! I want to celebrate doing a super great job by totally screwing it up! Yay!" ???? It doesn't make any sense to me.

Oh, I get the the desire to stop watching every little ingredient. The desire to go back to old comfort foods you once knew and loved. The desire to be "normal" compared to your gluten-eating peers.

But you can't go back in time.

Pegleg84 Collaborator

The best way to celebrate would be to indulge in some really good gluten-free goodies. Bake yourself a cake, make something wonderfully delicious that you wouldn't usually have, or find a good bakery that will do it for you, but keep the gluten out of it. You don't need a hangover for a week.

(Now I have the urge to bake chocolate cake... great...)

Congrats on making it through a year!

GFinDC Veteran

How bad is cheating?

twe0708 Community Regular

I am about to have my year anniversary of being a celiac/ being gluten free. I have never felt like cheating but as this anniversary gets closer part of me wants to just cheat. Please talk me out of it! Give me statistics or articles or anything!

I can't believe it's an option for you. I had one small bite of what was supposed to be flour less fudge and I was sick in an hour. I can't imagine what would have happened if I ate a regular piece. I remember when I was first diagnosed my doctor telling me I could cheat for special occasions. NOT an option. If you decide to do it, I wouldn't do it on your special night because it may just ruin it. Good luck!

Order the flourless cake at P.F. Chang's with raspberry sauce and strawberries if you are looking for a special dessert to celebrate your special occasion. It is so goo you can't tell is gluten-free.

bartfull Rising Star

If I were diagnosed with a fatal disease and told I had a week to live, I would fly to New Orleans and pig out on anything I wanted. But until that happens, I will stay home and pig out on as many gluten-free options as I can find and enjoy every bite.

JNBunnie1 Community Regular

Did that work? Want more horror stories? We got plenty!

Jackiebear Newbie

I did decide not to cheat. Its not a certain food i want, its just all the constant checking. It really gets old. The holidays were really hard, but i got through them. I have never purposely cheated and i don't think i will anytime soon. I have been doing so much better and i would like to keep getting healthier.

IrishHeart Veteran

big-party-smiley-emoticon.gif

Good for you!! You put your health first. We're so proud of you!

Hon, I think we all get the "sometimes it gets old" part. We really do.

Personally, I hate the lack of spontaneity of just dining out wherever/whenever I want to, especially

because we like to travel.

But there is nothing like feeling good and not being desperately ill 24/7 for years..

Keep up the good work. And congratulations on your first "rebirth-day"!!

hugs, IH

Celiac Mindwarp Community Regular

Good choice :)

I don't like the thinking and. checking part of either. I have been eating wholefoods the last 3 weeks, and that has cut down the checking a lot. Our spontaneity is a bit different, and we are masters of the picnic now, even in winter, we just have to be creative about venues. We also entertain at our home more, which we enjoy especially

Keep it up :)

Adalaide Mentor

Woohoo! Best decision. It does get old. I had a pity party early in the winter. I whined about everything to my husband, about none of this is fair, about how stupid it is that I can't even eat a freakin mint because it could have who knows what in it. I just want to be able to wake up one day, say hey lets do this, leave the house and go. But no, I have to plan everything or starve to death while I'm gone. <_<

You're right, it is so stupid and unfair! It is okay every once in a while to stamp your food like a petulant toddler and say so too. Then I always go indulge in a cupcake to get over it and I forget what my problem was. :lol: And you should totally get a cupcake to celebrate anyway, since as IH pointed out, it is your rebirth-day! (I got ripped off... my rebirth-day and birthday are at the same time.)

IrishHeart Veteran

And you should totally get a cupcake to celebrate anyway, since as IH pointed out, it is your rebirth-day! (I got ripped off... my rebirth-day and birthday are at the same time.)

poor babe. Didn't we celebrate your birthday enough? okay, here's one for your re-birth day too.

happy-birthday-fireworks.gif

IrishHeart Veteran

Jackie bear, make this flourless chocolate cake and celebrate YOU!! :D

Open Original Shared Link

Adalaide Mentor

poor babe. Didn't we celebrate your birthday enough? okay, here's one for your re-birth day too.

happy-birthday-fireworks.gif

psh, it was a joke. :P Let the Jackiebear have the happy birthday. If it turns out as an excuse to have 2 a year, that much better!

GFinDC Veteran

Great decision! :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      126,017
    • Most Online (within 30 mins)
      7,748

    Leelee505
    Newest Member
    Leelee505
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.1k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • BertoleAmur
      I’ve been gluten-free for a while too, and I know how frustrating it can be when your body reacts unexpectedly. I haven’t personally experienced what you’re describing with Ozempic, but I did have a situation where I took a break from certain supplements and noticed my body felt a lot better.
    • Scott Adams
      Two of our moderators @knitty kitty and @Wheatwacked know a lot more about nutrients and may be able to offer some more help, so hopefully they will chime in here.
    • aperlo34
      Hi Scott, thanks for the reply.    I’m currently taking  3000IU vitamin D3 centrum multivitamin  500mg vitamin C 1000mcg B12 naturemade softgel Omega 3 (for dry eyes) My latest labs for vitamins were D - 43.6 (range 30-100) B12 - 406 (range 232-1245) Folate - 11.4 (range >3.0) ferritin - 117 (30-400) magnesium - 2.3 (1.6-2.3) Calcium - 9.9 (8.7-10.2)   I am 29 and really struggling with this emotionally, I was caught by surprise 2.5months ago with this dx and pretty much no symptoms that I really knew of besides low ferritin. When I first met with the GI doctor in July and he ordered the endoscopy/colonoscopy, that was around when the twitching started. I’m unsure if it’s the anxiety of it all (I have been consistently freaking out since the scopes were ordered, losing sleep, obsessively googling etc.) or if it’s celiac related. I’m horrified that I might have something else wrong with me.  Additionally, I’ve been getting some mixed opinions - dietician told me to stop the additional b12 because my multi had b12, but I see online that some people think b12 levels should be well over 500.    Some other things that I’ve experienced since I went gluten free are more “sinus” headaches, facial pressure, some cramping in my left side (could be postural problems I’m dealing with) and dry eyes - my eye doctor has me on some eyes drops that really help and this is a work in progress. And no my mouth isn’t dry too 😅   I’m absolutely beside myself with fear of other AI diseases and have no one I can really turn to (besides online) that has dealt with this. I have no idea what’s in my mind and what is a real symptom anymore because I’m so hyper aware of every sensation in my body! Thank you so much in advance for any input/guidance.    
    • Yaya
      I never had muscle twitching that I would relate to Celiac Disease (celiac disease).  However, I now have Long Covid and muscle twitching, burning, and other issues cropped up with that.  Predating all was restless leg syndrome (RLS).  Are you talking about RLS?  I've had that since '99.  It gets progressively worse.  
    • Scott Adams
      Hello @aperlo34, what types of supplements are you taking? Your symptoms could be related to vitamin/mineral deficiencies.   The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
×
×
  • Create New...