Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ontario And Ohip


Flaykee

Recommended Posts

Flaykee Rookie

When I went to my new doctor about being tested for celiac disease, I was informed that OHIP doesn't cover the cost of the celiac panel blood work. I didn't care because as far as I was concerned, it was worth it. I tested positive. It's still worth the $125.00 it cost. ( Several years ago, when I first brought the idea of me having celiac disease up to my doctor, he said no because I wasn't wasting away. So I trusted this "diagnosis" and continued to have health issues until my health deteriorated drastically last year.)

HOWEVER, it got me thinking. Isn't it better for OHIP to cover this cost than to keep covering costs for related medical issues of those who remain undiagnosed? If I add up all the times I went to the doctor for gastrointestinal issues, severe unexplained body/joint pain, depression, general unwellness, body rashes, miscarriages (possibly related to celiac disease) over the years and the operation to remove my gallbladder , not to mention the prescriptions (sometimes paid by insurance companies if you're lucky to have a plan), it must be in the high hundreds if not thousands. And had I not been diagnosed, I would have continued to make medical trips for some of the prementioned and possibly new symptoms!

I believe that Ontario is the only province in Canada that doesn't cover the cost.

Just my rant for the day :rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sora Community Regular

OHIP will cover the test if you have it done at a hospital blood clinic.

  • 3 weeks later...
whitepine Apprentice

I haven't been tested yet because of the cost of the blood work. I am pretty sure I am gluten intolerant or have celiac so I stopped eatting it completely last April. There are actually quite a few blood tests that OHIP doesn't cover because they take a lot of time and work in the lab. So I think this might be the reason why some aren't covered because if they allowed all of these long blood tests to be free it would likely cause problems in labratories and people would get behind.

It's silly yes, since I think gluten intolerance is more common than we think and the cost stopped me from getting the test, 125 dollars for a blood test or 125 dollars for food.

  • 3 weeks later...
K-Dawg Explorer

As far as I know, the poster who noted the nuance to ohip coverage is correct. My liver specialist shared the same info with me. I did not pay for my blood panel in ontario.

  • 1 month later...
Deaminated Marcus Apprentice

Well said Flaykee, 

 

I saw an idiot doctor back in the fall of 2010 after I felt better after I went gluten free.

She told me not to get tested because it's too expensive.

She could have sent me for a tTG at the hospital.

This year after reading on this forum, I went for the full panel at $125

but tested negative possibly because I was gluten free for so long and my low IgA.

 

I thought of the exact same thing.

OHIP would save a ton of money if they tested kids at say 5 or 6 years old or had the free Celiac panel

rather than having us see all kinds of specialists for a myriad of health problems.

janpell Apprentice

My doctor(s) wouldn't test me for Celiac because I don't have gastrointesintal issues but I had so many other things going on. "Food is not your issue" I believe I was told.  I quit gluten two years ago and my issues have cleared 90-95%. My son was tested at age two and his test was covered by OHIP.

Deaminated Marcus Apprentice

janpell, the gastro doctor I saw about 2 weeks ago said: "you don't fit the profile". :blink:

And the gastro symptoms are just IBS.   :wacko:

He must have gone to the same medical school as your doctor. ^_^


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 month later...
MissyBB Explorer

Ugh....I am in Ontario too and was seriously thinking about going and getting tested. I hate our sick care system. Honestly, the province does NOTHING to support preventative medicine. All they do is play catch-up once you are already sick. I am so tired of our crappy health care. And, I agree, it would make more sense to offer the testing for no fee so celiacs can stay healthy, hence, saving the tax payer and the entire system money in the long run. The $125 for the test, if paid by OHIP, could save literally thousands and tens of thousands of dollars later when that celiac gets really sick. Ugh....makes me want to pull my hair out.

MissyBB Explorer

janpell, the gastro doctor I saw about 2 weeks ago said: "you don't fit the profile". :blink:

And the gastro symptoms are just IBS.   :wacko:

He must have gone to the same medical school as your doctor. ^_^

 This is because, contrary to popular belief, medical doctors do not take nutrition training while in school. And if you don't understand nutrition and what is IN foods then you can't possibly have a handle on what happens with regard to that particular food once it enters the body. 

 

"Let food be thy medicine and medicine be thy food"......wise words! 

Charmainee Newbie

In my opinion, I think it is true that the government wants to keep us sick.  Look around at all of your friends and family who are employed in the medical profession or field: doctors, nurses, labs, psw's, dietary, housekeeping, laundry, etc.  Without sickness, what job would you have?  For us to have jobs, the population must remain sick.  Even I am employed at a Senior's home.  If they had had proper care and support, a lot of them wouldn't be in there.

 

I support Alternative Practitioners, gain of personal knowledge and preventative 'medicine'.  Maybe one day our government will as well.   

kareng Grand Master

Just want to remind everyone that this is not a forum for political debate.

  • 3 months later...
Rucko Apprentice

So Ontarians, to get the test, does your doctor still have to order it?  Just wondering.  I have a brother in Ontario who hasn't been tested and really should.  

  • 2 weeks later...
Curious9 Newbie

Hello, 

For posters in Ontario who has the $125 celiac blood panel done, which tests did it include? 

Thanks!

  • 1 month later...
scrumdidlly Newbie

Hello, 

For posters in Ontario who has the $125 celiac blood panel done, which tests did it include? 

Thanks!

Here's a link to Life Lab's description of their celiac testing http://tests.lifelabs.com/Chemistry/C/CELIAC_DISEASE_TESTING.aspx?s=1

scrumdidlly Newbie

Here's a link to Life Lab's description of their celiac testing http://tests.lifelabs.com/Chemistry/C/CELIAC_DISEASE_TESTING.aspx?s=1

 

I should add that I have no affiliation with them. It's that lab my doctor sends me to (cause it's in her building) so they are the ones I've researched. It could be different at other labs and they don't mention pricing, just that it's not covered.

  • 3 years later...
Bec the Lemon Apprentice

Im shocked to hear it wasnt covered but it honestly explains a lot and Im truly enraged. My doctor watched me drop weight dramatically, she watch me suffer, sent me to the emergancy room more then once because I needed IV fluids or I physically couldnt leave on my own I was so dizzy/weak. And every time I asked her to test me for digestive issues I was brushed off and told it would blow over and I just had anxiety. I lost 30 pounds in less then 2 months (and to begin with I was never overweight, never have been in my entire life) so I didnt really have 30 pounds to lose. It was only on the 4th trip to the emergency room I was finally sent to rapid access (internal medicine) where they finally tested me. It didnt even occur to me that it wasnt covered because I wasnt told because my doctor wouldnt give me the option to consider. I cant believe in Canada of all places we dont cover something so vital. Its shameful. 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      128,183
    • Most Online (within 30 mins)
      7,748

    recipe
    Newest Member
    recipe
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.1k
    • Total Posts
      70.7k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Once you have removed the inflammatories, it is time to focus on the deficiencies.  A lot of them not specific to Celiac, but deficiency in them elicits symptoms associated with Celiac. According to research, celiac disease tends to be more prevalent in urban areas compared to rural areas.  Same is true with airborne viruses.  Because urban residents get less sunlight.  To top it off we use lotion and gear to block the little light there is.  This compremises the vitamin D blood level.  A virus attack further lowers vitamin D and the immune system loses control over the Celiac genes and they go into acute symptoms. 40% to 75% depending depending on country are vitamin D deficient. 50% do not eat the Adequit Intake for potassium (4700 mg a day) 90% do n ot eat the Adequit Intake for Choline. Iodine intake since 1970 had dropped 50%.  The western diet is typically excessive in omega 6 fatty acid compared to omega 3.  Above 14:1 by some estimates.  So they sell us expensive, processed oils to compensate.  Anyway after 10 years gluten free myself,  here is what has helped me in just the past few years; once I realized I was at a healing plateau and just GFD would not cut it, and reallized my deficiencies.  Most recently, I started a statin which I only took for two weeks before it started to cripple me.   Got a prescription for Nicotinic Acid to 2000 and am more flexible now Plus HDL went 29 to 44, eGFR from 55 to 79. I also learned if the pharmacist gets a prescription for Niacin that it is dealer's choice whether you get Nicotinic Acid or Niacinimide.  And it comes out of a regular vitamin manufacturer.   "likely deficiencies and what I take to boost my intake (I get anorexic at the drop of a hat so I take them to keep me stable):  the ones that helped me the most noticibly Was increasing vitamin D blood level to 80 ng/ml and Iodine to 500 mcg once or twice a day, Thiamine, Choline, and Iodine. 10,000 IU vitamin D 500 mg Thiamine or more Choline Iodine – 600 to 1200 mcg of Liquid Iodine Vitamin B2 helps break down proteins, fats, and carbohydrates. It plays a vital role in maintaining the body's energy supply.  500 mg Nicotinic Acid - increase capillary blood flow, lower cholesterol. I recently started 2000 mg a day instead of a statin which I cannot tolerate. I the first month my HDL went from 29 to 44. eGFR (kidney function) jumped from 55 ti 75. It also has make my whole body less stiff. The ichy, flushing with the first few doses goes away. The non flush forms of vitamin B3 do not work. It is the relaxing of the capillaries and tendons. 500 mg Pantothenic Acid vitamin B5 Omega-3 and Omega-6 Fatty Acids in Vegetables  Eating more of the vegetables low in omega six and high omega 3 can reduce inflammation Whole Milk Vanilla yogurt to which I add 100 grams of raspberrys, black berries and blueberries has lots of probiotics and makes my tummy and body happy. Red Bull has sugar (not high fructose corn syrup) and the vitamins (B2,3,5,6 need to metabolize to ATP energy and Taurine as an antioxident). It is a good source of energy for me because my genetic hyperlipidemia does not process complex carbs well.        
    • trents
      Gluten-like cross reactions to other foods are from the proteins that make them up. Dextrose is the sugar component found in corn.
    • Ryangf
      I just found out a few days ago that some salt like table salt contains dextrose that’s derived from corn. I’ve been thinking about getting rid of using table salt and just using my own kosher or Himalayan salt, but tbh I’m reluctant to do it. I’ve cut out a lot of things and I don’t really want to cut out anything else that I’m not sure will effect me…in a super small amount that it might be added to salts to stabilize the iodine. I don’t want to be further alienated when I have to go to a restaurant with my friends. Also most of the items at my house that have salt in it canned food etc. are some of the few quick things I can eat- because I’m not the one paying for the food in my household and i can only ask for so much. I’m not in a place financially where I can get a lot of my specialized items- although my family tries their best to get items I Can actually stand. I get I can bring a my own salt with me at a restaurant and ask for no seasoning but it feels like a lot to me- cause I already check for cross contamination and ask if the food has like a high volume of corn in it like cornstarch etc. I’ve also heard most dextrose is not derived from the Zein (corn gluten) portion of it- so it might be safe- but idk if that’s true. I just wanna know if anyone actually responded to it negatively.
    • Scott Adams
      For my first couple of years after discovering my celiac disease I also had to avoid cow's milk/casein and eggs, as well as other things, but could tolerate duck eggs and sheep and goat's milk products. I'm not sure if you've tried those, but it could be worth testing them out.
    • knitty kitty
      Hello, @Kwinkle, How are you doing?   Have you tried adding a Magnesium supplement?   The B Complex vitamins need magnesium to work properly, especially thiamine vitamin B 1.   Magnesium deficiency symptoms and Thiamine deficiency symptoms both include gas and bloating.  Thiamine deficiency symptoms also include loss of appetite and fatigue.   My gas and bloating resolved rather quickly when I took Benfotiamine (a form of thiamine shown to promote intestinal healing) and Magnesium Glycinate in addition to my B 50 Complex (all twice a day plus the following...).   I found Magnesium L-Threonate or Magnesium Taurate are better when taken with a form of thiamine called TTFD (Tetrahydrofurfuryl dusulfide) because all of these cross the blood brain barrier easily, which corrects the loss of appetite, fatigue and anxiety.    Like @Celiacandme said, keeping a food/mood/poo'd journal is a big help in finding problematic foods, and for making sure your diet is not carbohydrate heavy.  If you're eating a lot if processed gluten free facsimile foods, be aware they do not have vitamins and minerals added to them like their gluten containing counterparts.  For every 1000 kcal of carbohydrates, we need an extra 500 mg of thiamine to turn them into energy and not store them as fat.   Let us know how you're doing!
×
×
  • Create New...