Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Wear Medicalert?

gabby

By gabby
in Coping with Celiac Disease

Recommended Posts

gabby Enthusiast
gabby
Posted

Does anyone wear a medicalert bracelet for celiac disease? I'm wondering if it might help.

thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

I still need to get it on mine.

bluelotus Contributor
bluelotus
Posted

Great idea, never would have thought of it!

BRCoats Enthusiast
BRCoats
Posted

I have heart problems, a pacemaker, and celiac. Gee.....ya' think I need to get one??? :lol::(:):blink:

Carriefaith Enthusiast
Carriefaith
Posted

I think the bracelet would especially come in handy for eating out. I have been thinking of getting one that says Wheat Allergy and Celiac Disease, since I am also allergic to wheat.

par18 Apprentice
par18
Posted

I wear a necklace. Got it at Walgreens. Cost about 10 bucks. I'm sure it will help at some point.

Lisa Mentor
Lisa
Posted

That might be a good idea.

Also, it might be helpful to pre-register at you local hospital, and indicate that you have celiac disease or other complications of the disease. That way your information is already logged on if you need to be admitted for other reasons.

Smart thinking.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


KaitiUSA Enthusiast
KaitiUSA
Posted

My mom is getting ready to order me one...I have a severe wheat allergy so I should have got one a while ago...I will add celiac disease on there while I am at it.

psawyer Proficient
psawyer
Posted

I do, and have done so since I started on insulin for diabetes almost twenty years ago. When I was diagnosed with celiac in 2000, I had that added to the engraved message, which now says:

NO GLUTEN

CELIAC DISEASE

INSULIN DEPENDENT

DIABETES MELLITUS

I'm not sure it is a really big concern, as gluten must be ingested by mouth to be a problem, and if I can swallow I can probably speak, but just in case... :o

frenchiemama Collaborator
frenchiemama
Posted
I'm not sure it is a really big concern, as gluten must be ingested by mouth to be a problem, and if I can swallow I can probably speak, but just in case...  :o

<{POST_SNAPBACK}>

I've been toying with the idea, but only because I can remember a few times that I was sedated for a minor procedure and was told by whoever came to pick me up that I was talking and seemed awake but I don't remember any of it. If someone had offered me something to eat at that time (who knows why they would, but you never know) I probably would have just taken it without question and not remembered!

Not that I'm planning to run around getting sedated all the time, but you never know what a sudden illness or accident could necessitate something like that.

psawyer Proficient
psawyer
Posted

Carolyn, good point! I had not thought of that.

celiac3270 Collaborator
celiac3270
Posted

Unless you have a severe allergy to wheat IN ADDITION TO celiac, I would not wear one. If you lose consciousness and a doctor needs to give you a medication to save you, gluten is the least of your concerns...

BRCoats Enthusiast
BRCoats
Posted
Unless you have a severe allergy to wheat IN ADDITION TO celiac, I would not wear one.  If you lose consciousness and a doctor needs to give you a medication to save you, gluten is the least of your concerns...

<{POST_SNAPBACK}>

That's a very good point, celiac3270. Better to be sick for a week over getting glutened than dead. :o

Merika Contributor
Merika
Posted

I've just been thinking along these same lines....my mom has one (has for years for other stuff, now celiac too). Jewelry tends to annoy me though...so I've been thinking, lol, do you think a tatoo would work where the breacelet would go?

Merika :P

nogluten- Newbie
nogluten-
Posted

I have one but don't wear it like i should. I worry about Iga, because if I get a blood transfusion, they need to know to wash out the Iga from the blood. Thanks for mentioning it. I need to start wearing it !

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      126,814
    • Most Online (within 30 mins)
      7,748
    judy regina
    Newest Member
    judy regina
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.9k
    • Total Posts
      69.7k
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • hmkr
      Celiac Test Results - Thoughts?

      By hmkr · Posted

      Normal range: 70 - 400 mg/dL, a little above middle of the range. So what does that mean? Thank you! I will check out that page you linked. Appreciate it! 
    • trents
      Asking for Help Understanding Endoscopy/Biopsy Lab Results

      By trents · Posted

      Well, the only thing I would conclude with would be, if you choose not to trial the gluten free diet, is to encourage you to get periodically tested, either antibody blood tests or the biopsy or both. I think it something that needs to be monitored.
    • Sking
      Asking for Help Understanding Endoscopy/Biopsy Lab Results

      By Sking · Posted

      So the strange thing is I don't have any symptoms at all, except the soft stools (comes and goes) which they told me was from the Lymphocytic colitis. I had some mild positives on my antibody test and one gene was positive which is what made my doctor go ahead with the endoscopy. The reason they started any of this was finding the lymphocytic colitis this past summer after I had C Diff and she said, Well....it may be from something like Celiac.... Definitely a lot to learn through all of this and I appreciate people like you taking the time to help out a stranger like me!
    • trents
      Asking for Help Understanding Endoscopy/Biopsy Lab Results

      By trents · Posted

      Well, I wouldn't rule either out. And you might consider trialing a gluten free diet for a few months to see if symptoms improve. That would tell you a lot. By the way, the incidence of other bowel diseases is higher in the celiac population than it is in the general population. And even if you don't have celiac disease, you could have NCGS. Gluten is just problematic for a lot of folks for various reasons.
    • Sking
      Asking for Help Understanding Endoscopy/Biopsy Lab Results

      By Sking · Posted

      Thanks for taking a look. I also just did some research and saw that increased numbers of intraepithelial lymphocytes and villous distortion can possibly be from lymphocytic colitis (which I was diagnosed with this past summer)....so fingers crossed this is what she will say it is.  
×
×
  • Create New...