Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

The Hives Are So Bad


blondebombshell

Recommended Posts

blondebombshell Collaborator

this was this morning. now they are red, and look like little bumps that i picked open.

DSC06959.webpDSC06951.webp


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

I do not have personal experience with DH; hubby has it, and from his and the other pics I have seen, this does not look like DH. Does it leave scars ? Does it turn purple? Does it form pustules that break open? These are the general characteristics of DH. Probably not exclusively, but generally.

Kate S. Newbie

I'm so sorry . . . that looks very painful!

I have DH, my mom has DH, my sister has DH, and my brother has DH . . . and I have to tell you, your rash looks EXACTLY like my rashes. I showed my mom your pictures to verify, and she thinks so too.

I can usually feel my rashes coming before they show (a painful pricking sensation), and then after they appear, they itch terribly. Iodine and dry skin makes the itching much worse. Although Benadryl doesn't make them go away, it does help with the itching.

Interestingly, those who have DH may or may not have damage to their small intestine, so you can still have DH, even though your endoscopy came back negative for Celiac.

They diagnose DH by taking a biopsy of skin right next to the blisters (not the blisters themselves); however, the results of your test may be compromised if you are already on a gluten-free diet.

I know how dreadful these rashes can be: Last summer, my entire body was covered in rashes just like yours for three whole months before I was diagnosed with DH (before that, I had patches on and off for years).

I hope you feel better soon!

c.moriel Rookie

Your pictures look exactly like my skin used to look, back before it spread to 90% of my body. 10 years ago it was just starting and would come and go. I had dr and dermatologists tell me it was everything from eczema/psorasis to wringworm. Of course nothing helped. After being diagnosed with celiac last month and going gluten-free, i've watched my skin change slowly. One thing I've learned that may help you is that for some people with dh, sunlight can help relieve some of their dh symptoms. Be careful, though. Some people don't respond well to light therapy.

  • 2 weeks later...
Glamour Explorer

I have some areas that look just like that. I feel prickly burning sensation before the itch begins too. That is how I know it is not a scratch first then itch syndrome that the doctors try to convince you of.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,043
    • Most Online (within 30 mins)
      7,748

    Teddyboss
    Newest Member
    Teddyboss
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      69.9k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Sarah Marie
      Is it worth it to remove gluten before they potentially do an endoscopy & biopsy? I thought I read it’s best to be eating gluten for 3 months prior to it. So hoping they have a cancellation and call us in sooner. 
    • LCO
      Thank you very much!
    • Aleda D
      Thank you for the warning. I get blood tests twice a year to check where I stand with the vitamins I regularly take, so I appreciate the extra reminder. I know some vitamins don’t build up but now I will watch the B6 for sure. 
    • trents
      I think you would do well to take a high potency B-complex such that you get more balanced dosage across the spectrum of B vitamins. They work in concert.
    • Scott Adams
      Around 5 years ago I visited Tokyo, and luckily had my sister in law with me who is from there, otherwise it would have been more difficult. The bottom line is that there are tons of naturally gluten-free food options there, but you need to be able to communicate your needs to restaurant staff. Here is a gluten-free restaurant card for American visitors in Tokyo. It includes a request for a gluten-free meal and mentions common gluten-containing ingredients to avoid, like soy sauce and miso. English: Thank you. Japanese:   You can also download the Google Translate app, and besides being able to help you speak with people there about this, it has a camera app that translates Japanese text to English in your camera, so you can use it when shopping in a supermarket.
×
×
  • Create New...