Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Not Sure If This Is A Symptom Of Celiac Disease Or Diabetes


The Fluffy Assassin

Recommended Posts

The Fluffy Assassin Enthusiast

nor quite how to describe it. Before I quit gluten, I often and increasingly had the sensation that my entire circulatory system was a big bruise. Everything hurt, but very slightly. It was ultra-odd. Does this make sense? Unfortunately, that sensation is now back. What I suspect is that I was on the verge of full-blown diabetes, and that the weight-loss and increased exercise after quitting gluten caused it to recede, but that now my genes have caught up to me. (My dad and one of my brothers are both sufferers.) Alternately, it might be a celiac-related symptom and I may have gotten some contaminated millet. (I ate millet couscous for each of the last five days and felt odder every day.) Has anyone experienced or even heard of such a symptom? Any suggestions on how better to word it? Thanks in advance.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mimommy Contributor
What I suspect is that I was on the verge of full-blown diabetes, and that the weight-loss and increased exercise after quitting gluten caused it to recede, but that now my genes have caught up to me. (My dad and one of my brothers are both sufferers.)

What type of diabetes do your father and brother have? Diabetes and celiac can be connected, so you should be checked for both. Type I diabetics should be tested for Celiac. If you are Celiac your other family members may be, too. You are definitely taking a proactive approach, and I wish I could offer more insight into your symptom.

P.S. Your cat looks just like my husband's cat when he was growing up. Persian?

sarahk47 Newbie
Before I quit gluten, I often and increasingly had the sensation that my entire circulatory system was a big bruise. Everything hurt, but very slightly.

I had the same symptom before I went gluten-free the first time, and the symptom went away completely when I went gluten-free. I did a gluten challenge after that (not recommended!), and when I went gluten-free the 2nd (and final) time, that symptom lingered. It turned out that during my gluten challenge I had also become lactose intolerant, and as soon as I quit dairy the soreness went away again.

I hope you're able to figure it out!

The Fluffy Assassin Enthusiast
What type of diabetes do your father and brother have? ...

P.S. Your cat looks just like my husband's cat when he was growing up. Persian?

Both are adult onset, which apparently is Type 2. I believe that my late mom was celiac, and her brother died of intestinal cancer, so I'd call it a good chance that he was, too. I've told the diabetic brother that he's probably celiac and should be tested or at least try giving up gluten, but he's shown little interest so far. I'm going to offer to cook for him; I have a feeling he'll be surprised how good gluten free cooking can be; everybody else has been.

Amelia the monkey cat is officially a domestic longhair, though I like to claim that she's a Norwegian Forest Cat. The likeliest is that she's largely NFC or Maine Coon, with maybe a little Persian in there, too. Where she picked up the Nothing But Trouble gene, I don't know.

The Fluffy Assassin Enthusiast
I had the same symptom before I went gluten-free the first time, and the symptom went away completely when I went gluten-free. I did a gluten challenge after that (not recommended!), and when I went gluten-free the 2nd (and final) time, that symptom lingered. It turned out that during my gluten challenge I had also become lactose intolerant, and as soon as I quit dairy the soreness went away again.

I hope you're able to figure it out!

Yeah, I'd rather be unsure my whole life than go back on gluten again for a gluten challenge. Thanks for the information; it looks like the millet I got from the bulk bin must have been gluten-contaminated. Don't think I'll be getting anything from bulk bins again. As to lactose intolerance, as you can see in my signature, I got here from the opposite direction, realizing I was celiac after confronting lactose intolerance. After a year and a half gluten free, I'm not lactose intolerant anymore. Do you think it might be casein? Lactaid takes care of all the symptoms of lactose intolerance that I know of.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,990
    • Most Online (within 30 mins)
      7,748

    Anita-Gail
    Newest Member
    Anita-Gail
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.5k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Okay, it does make sense to continue the gluten challenge as long as you are already in the middle of it. But what will change if you rule it out? I mean, you have concluded that whatever label you want to give the condition, many of your symptoms improved when you went gluten free. Am I correct in that? According to how I understand your posting, the only symptom that hasn't responded to gluten free eating is the bone demineralization. Did I misunderstand? And if you do test positive, what will you do different than you are doing now? You have already been doing for years the main thing you should be doing and that is eating gluten free. Concerning how long you should stay on the gluten challenge, how many weeks are you into it already?
    • WildFlower1
      I mean that I will be re-taking the celiac blood test again while I am currently on the gluten challenge right now, but not sure how many weeks more to keep going, to ensure a false negative does not happen. Thank you.
    • WildFlower1
      Thank you for your help, I am currently in the middle of the gluten challenge. A bit over 6 weeks in. At 4 weeks I got the celiac blood tests and that is when they were negative. So to rule out the false negative, since I’m in the middle of the gluten challenge right now and will never do this again, I wanted to continue consuming gluten to the point to make sure the blood tests are not a false negative - which I did not receive a firm answer for how many weeks total.    My issue is, with these blood tests the doctors say “you are not celiac” and rule it out completely as a potential cause of my issues, when the symptoms scream of it. I want to rule out this 30 year mystery for my own health since I’m in the middle of it right now. Thank you!
    • trents
      I am a male and had developed osteopenia by age 50 which is when I finally got dx with celiac disease. I am sure I had it for at least 13 years before that because it was then I developed idiopathic elevated liver enzymes. I now have a little scoliosis and pronounced kyphosis (upper spine curvature).  All of your symptoms scream of celiac disease, even if the testing you have had done does not. You may be an atypical celiac, meaning the disease is not manifesting itself in your gut but is attacking other body systems. There is such a thing as sero negative celiac disease. But you still have not given me a satisfactory answer to my question of why do you need a differential dx between celiac disease and NCGS when either one would call for complete abstinence from gluten, which you have already been practicing except for short periods when you were undergoing a gluten challenge. Why do you want to put a toxic substance into your body for weeks when, even if it did produce a positive test result for celiac disease, neither you or your doctors would do anything different? Regardless of what doctors are recommending to you, it is your body it is affecting not theirs and they don't seem to have given you any good justification for starting another gluten challenge. Where you live, are doctors kings or something?
    • WildFlower1
      Sorry to put it clearly, at 15, infertility started (tried to word it nicely) meaning menstruation stopped. Which is in correlation to celiac I mean. Thank you. 
×
×
  • Create New...