captaincrab55
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knitty kitty reacted to a post in a topic:
Family that thinks “it’s all in your head.”
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captaincrab55 reacted to a post in a topic:
Hey all!
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captaincrab55 reacted to a post in a topic:
Hey all!
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I know this isn't an IBS Forum, but it looks like they may have cracked the code on treating it. They think the new discovery may make it possible to treat other autoimmune diseases. Even if they develop a treatment I think I would continue eating strict gluten-free, but it may allow me to eat out gluten-free without the fear of being glutened. That would...
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captaincrab55 reacted to a post in a topic:
Bacteria to cure celiac disease
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captaincrab55 reacted to a post in a topic:
Family that thinks “it’s all in your head.”
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Family that thinks “it’s all in your head.”
captaincrab55 replied to SoBannaz's topic in Coping with Celiac Disease
Bonnaz, IMO it sounds like you have many foolish family members and friends! There may well be a chance that your mom may have celiac disease. Keep reminding yourself that Celiac Disease isn't an Allergy that may go away with further exposure! You may need to consider finding new friends that also have celiac disease. There are groups that get together... -
knitty kitty reacted to a post in a topic:
Hi I’m Sammie
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captaincrab55 reacted to a post in a topic:
Hi I’m Sammie
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captaincrab55 reacted to a post in a topic:
Hi I’m Sammie
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Hi Sammy, Welcome aboard. I hate to tell you this, but Celiac is genetic. Somewhere back in the family line someone had it. It was common for it to go undiagnosed years back. My Mom was never diagnosed with it, but suffered with many of the same symptoms I had when I was finally diagnosed at age 56. Silent Celiac may be in your family. I'm sure others...
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captaincrab55 reacted to a post in a topic:
Offsetting Ingestion of Gluten
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captaincrab55 reacted to a post in a topic:
dermatitis herpetiformis and cross reaction?
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captaincrab55 reacted to a comment:
Boomer Grandpa's Dangerous Test Leaves Celiac Child Seriously Ill
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Scott Adams reacted to a post in a topic:
Please help, is this Celiac?
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iceicebritney, I read where you were referred to John's Hopkins. If you live in that area/suburb and still have the rash, I can give you my Dermatologist's name(https://www.brderm.com/dr-robinson.html I se Dr Robinson, who diagnosed me with dermatitis herpetiformis/celiac disease 2 weeks after my first visit)
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knitty kitty reacted to a post in a topic:
How much does the diagnoses matter?
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knitty kitty reacted to a post in a topic:
How much does the diagnoses matter?
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How much does the diagnoses matter?
captaincrab55 replied to Kazbo's topic in Coping with Celiac Disease
I had to show that I was diagnosed with dermatitis herpetiformis in order to get my health insurance to cover gluten-free brand name drugs instead of generic drugs that weren't gluten-free! drugs that weren't gluten-free -
glucel. There's a lot of cost, including liability issues when a manufacture labels a product gluten free to be sold in the USA.
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How much does the diagnoses matter?
captaincrab55 replied to Kazbo's topic in Coping with Celiac Disease
Hi Kazbo, I had an Apprentice that was self diagnosed with Celiac. I couldn't convince him to get diagnosed by a Doctor, He did something dumb and got locked up. They refused to feed him gluten free foods, because he wasn't diagnosed by a Doctor! -
knitty kitty reacted to a post in a topic:
Wholistic Approach
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Here's a link: https://www.google.com/search?q=iodine+test+on+skin+for+dermatitis+herpetiformis&sca_esv=050a7531cb22c9f5&sxsrf=ADLYWIJQ1BNQe2y8HwcyMffU60tFc5SaFw%3A1724083366655&ei=pmzDZvPgJ_b7wbkPla-p2Ao&oq=iodine+test+on+skin+for+derma&gs_lp=Egxnd3Mtd2l6LXNlcnAiHWlvZGluZSB0ZXN0IG9uIHNraW4gZm9yIGRlcm1hKgIIBTIFECEYoAEyBRAhGKABMgUQIRigATIFECEYoAEyBRAhGJ...
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IMHO, you may have the wrong Dermatologist! I was tested for it on my first visit to a different Dermatologist. In two weeks my dermatitis herpetiformis biopsy came back positive and he sent me for a blood lab that also came back positive. You could try the Iodine test with a bandaid.
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Ginger38, Do you have Dermatitis Herpetiformis(dermatitis herpetiformis)?
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Scott Adams reacted to a post in a topic:
Wholistic Approach
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Eldene, I found this group back in 2009 when my 4th Dermatologist in 30 years diagnosed me with dermatitis herpetiformis 2 weeks after my first visit. This group taught me how to read labels and understand the evils that lurk within. I still visit this group to check on whether medications contain gluten and other updates, as well as chiming in here or...
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Celiac with other food intolerances
captaincrab55 replied to LadyofLove's topic in Coping with Celiac Disease
Welcome LadyofLove, Unfortunately dairy is a curse to some of us, including me. I was diagnosed in 09 and still can't tolerate dairy. Late last year I did a test with Everywell( https://www.everlywell.com/) and dairy came up as a No No, but cheddar cheese came up as ok. I've tried it moderately several times with positive results. I will pick and choose... -
Here's a general reply to a simple search that includes Celiac Disease: People also ask What is Club fingers a symptom of? Clubbed fingers is a symptom of disease, often of the heart or lungs which cause chronically low blood levels of oxygen. Diseases which cause malabsorption, such as cystic fibrosis or celiac disease can also cause clubbing...
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Hi EmmaR, Did the Doctor check your Thyroid?
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Rita06, I hope you're on to something, but meanwhile I suggest you get properly diagnosed!