-
Celiac.com Sponsor (A1):
Celiac.com Sponsor (A1-M):
-
Get Celiac.com Updates:Support Our Content
Leaderboard
Popular Content
Showing content with the highest reputation since 02/07/2025 in all areas
-
Celiac or not?
Scott Adams and one other reacted to Dc91 for a topic
Just had a letter through from the Celiac team, they’ve diagnosed me through my bloods, no endoscopy/biopsy needed. I guess I’ll be sticking around on this forum and I’m sure I’ll be back soon. thanks for all your help2 points -
Safe Gluten-Free Spices and Brands: A Celiac Disease Guide
knitty kitty and one other reacted to Beverage for an article
Morton & Bassett spices are labeled gluten free. I've been using them for years, no problems. I order direct from them as the selection at my grocery is very limited. They have a newsletter with regular discounts and specials: https://mortonbassett.com/ Spicely another good gluten free brand, CERTIFIED gluten-free, but not widely available where...2 points -
Increasing symptoms after going gluten free
Scott Adams and one other reacted to ognam for a topic
I had a lot of weird/random symptoms for a few months after going gluten free. But eventually they evened out and I felt SO MUCH BETTER. The person above wrote a very detailed message that looks helpful. I'd add don't forget to check for gluten in places like medicine. Advil liquigels, for example, have gluten. It's very frustrating trying to figure...2 points -
Vaccines
cristiana and one other reacted to Scott Adams for a topic
For individuals who have experienced negative reactions to the flu vaccine, there are alternative formulations that may reduce the risk of allergic responses. Traditional flu vaccines are typically produced using egg-based methods, which can pose issues for those with egg allergies. However, there are now several egg-free options available, such as cell-based...2 points -
Hidden Gluten in distilled vinegar
Scott Adams and one other reacted to Manaan2 for a topic
@knitty kitty I can't thank you enough! My husband and I already started looking into those supplements. We definitely plan to give it a try. We've been against the Miralax since it was originally advised by PCP, but because of the level of pain she experienced on a daily basis, we decided to try it. We've made many attempts to gradually decrease but...2 points -
How to Navigate Gluten-Free Dining at Popular Restaurant Chains
LovintheGFlife and one other reacted to Scott Adams for an article
2 points -
Test uncertainty
Scott Adams reacted to MI-Hoosier for a topic
Thanks again. My mom was diagnosed over 50 years ago with celiac so grew up watching her deal with the challenges of food. I have been tested a few times prior due to this but these results have me a bit stunned. I have a liver disease that has advanced rapidly with no symptoms and an allergy that could be a contributing factor that had no symptoms. I guess...1 point -
Neurologic symptoms - Muscle Twitching and Hand Tremors
Sunshine4 reacted to Scott Adams for a topic
It sounds like you’ve been through a challenging journey since your celiac diagnosis, especially with the unexpected neurologic symptoms like muscle twitching and hand tremors. While celiac disease is primarily known for gastrointestinal issues, it’s important to recognize that it can also manifest in non-GI ways, including neurological symptoms. Research has...1 point -
Abscesses on legs
Scott Adams reacted to LookingForAnswers101 for a topic
I have not been diagnosed with celiac disease, and I just cut gluten out of my diet three days ago. The impetus was that I've tried everything to get rid of these boils, and I've heard many people say that their skin issues vanished when they cut out gluten, so I figured gluten might be the culprit here. Thank you so much for your feedback!!1 point -
1 point
-
Abscesses on legs
LookingForAnswers101 reacted to Scott Adams for a topic
Welcome to the gluten-free community! It’s great to have you here. While gluten sensitivity or celiac disease can indeed cause skin issues, such as dermatitis herpetiformis (a blistering rash), abscesses in areas like the lower buttocks or thighs are less commonly linked directly to gluten. However, chronic abscesses could be a sign of an underlying immune o...1 point -
Gluten Free Beer - The Enzymatic Hydrolyzation Process Problem
Scott Adams reacted to trents for a topic
Scott, I know full well that celiac disease is an autoimmune disorder and gluten sensitivity is not. And I agree that there is inconsistency in the use of the terms. But my contention is that "gluten intolerance" should not be used of NCGS since "gluten sensitivity" is actually found in the gluten disorder known as Non Celiac Gluten Sensitivity and, therefore...1 point -
For people with celiac disease and corn intolerance, most salts, including table salt with dextrose, are generally safe in small amounts, as the dextrose is typically highly processed and unlikely to contain problematic corn proteins. However, if you’re highly sensitive, you might consider switching to pure kosher or Himalayan salt, which don’t contain add...1 point
-
Stomach pains etc 2 weeks after start of gluten-free diet
Scott Adams reacted to captaincrab55 for a topic
JuggaloDad, A gluten-free diet is a cut and dry fix for some, but it's more complicated for many of us including me. I suffered from an infant to age 56, It took almost 10 years for me to zero in on non-gluten foods that caused me GI issues/pain. Zeroing in on the non-gluten items wasn't as easy as it was for hidden gluten for me. Dairy, coffee and onions...1 point -
Simplifying Diagnosis of Celiac Disease in Children: A Study on Serology Tests (+Video)
Scott Adams reacted to trents for an article
Recent updates to "gluten challenge" recommendations are recommending a minimum consumption of 10g of gluten daily (about the amount found in 4-6 slices of wheat bread) for at least two weeks leading up to the day of testing. This is for adults. I do not know of any pretest gluten consumption guidelines for children. You might consider the "wait and see"...1 point -
My 16yr daughter was recently diagnosed
Scott Adams reacted to JuggaloDad for a topic
Thank you Scott, it means a lot especially with the speed you responded.. In life I've learned that you got to be openminded and open to understand and adjust .Thank you again I hope she will come around to the adjustment as it's not going away and it's for her own comfort and health in the long run....Thanks1 point -
Current "gluten challenge" recommendations are the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat bread) daily leading up to the day of the biopsy.1 point
-
Increasing symptoms after going gluten free
cristiana reacted to Aussie Celiac for a topic
Sometimes celiacs can also have other things like lactose intolerance which is fairly common. Also research fodmap foods, it's quite complicated but there are some other foods which can cause digestive issues. For me it's too many onions and garlic.1 point -
Status Update...
Scott Adams reacted to TerryinCO for a topic
Thank you for direction. Eating out is a concern though we rarely do, but I'm prepared now.1 point -
Years of testing - no real answers
Scott Adams reacted to Kiwifruit for a topic
Hi I just wanted to update you all and let you know that I finally have my diagnosis. 2 weeks ago I had my third gastroscopy and the biopsy confirmed the damage. Thank you for giving me the information I needed to advocate for myself when I a was a feeling so lost!1 point -
The tTG-IGA is considered the centerpiece of celiac disease blood antibody testing. Your test results exceed 10x normal range so you could be officially declared to have celiac disease without going through an endoscopy/biopsy of the small bowel lining. As you used the term "bloods" to refer to your antibody testing, I am assuming you live in the UK and it...1 point
-
Bitters for digestion?
Scott Adams reacted to Jess270 for a topic
This sounds to me like histamine intolerance. Some foods have more or less histamine. processed or aged meats, fermented food like yoghurt or kimchi and bread (yeast), spinach, eggplant and mushroom are high in histamine. Other foods like tomatoes are histamine liberators, they encourage your mast cells to release histamine, which can also trigger the reactions...1 point -
Vaccines
Scott Adams reacted to GeoPeanut for a topic
Hi, I'm new here. Sorry for your troubles.herenis a thought to mull over. I recently was diagnosed with celiac disease, and hashimoto's and dermatitis herpetiformis after getting covid 19. I eat butter, and 1/2 cup of Nancy's yogurt daily. I stopped all other dairy and dermatitis herpetiformis is gone! I also make grass fed beef bone broth to help with...1 point -
My son newly diagnosed
captaincrab55 reacted to Scott Adams for a topic
Welcome to the forum, the biggest source of cross-contamination would be eating our in restaurants--even ones that have a gluten-free menu. If your son was just recently diagnosed I'd recommend trying not to eat out during his healing period, which could last up to a year or more, depending on how much villi damage he had.1 point -
Key word, "gluten-like". By the way, have you looked up Dr. Osborne's credentials and his background? He is a licensed nutritionist but his scientific? medical? clinical background is that of a chiropractor. He is not taken seriously by many experts in the medical and scientific community. If it is helpful to you to see these other cereal grain...1 point
-
Vaccines
captaincrab55 reacted to knitty kitty for a topic
If you have poor reactions to vaccines, preservatives, sugar alcohols and metals, you may be deficient in Thiamine Vitamin B1. Thiamine is needed in the immune response and production of antibodies. Thiamine can be depleted by vaccines if you are already low to begin with due to the Malabsorption of Celiac Disease. Thiamine can be destroyed by sulfide...1 point -
Low-Gluten Communion Hosts: A Solution for Catholics with Celiac Disease
Scott Adams reacted to MaryH for an article
I was diagnosed with Celiac in 1951. In my earlier years I would request a tiny portion of a wheat host. I typically for many years would receive the Wine, which because it is the Risen Christ contains the Body and Blood of Christ, as does any consecrated Host. For the last 10 year I have take the "low-gluten host" without a problem. I receive the host about...1 point -
Increasing symptoms after going gluten free
Scott Adams reacted to cristiana for a topic
I did suffer with gastric symptoms before diagnosis, but got all sorts of weird and wacky symptoms after going gluten free. Things got much better once my antibodies fell to normal levels, but it took years (please don't panic, many people's go to normal levels relatively quickly when following a gluten-free diet). Causes of the symptoms you mention...1 point -
Vaccines
knitty kitty reacted to Beverage for a topic
I feel for you. I've had an interesting history with some vaccine, especially t-DAP. One time after just getting it, I remember walking from the pharmacy to my car, reaching for the door handle of my car as my last memory, then waking up slumped into my car with the door wide open hours later. Nobody even knew I was there. I did get a bad cut from rotting...1 point -
Increasing symptoms after going gluten free
Scott Adams reacted to ognam for a topic
Yes, lots of delicious things have barley malt. It also doesn't include rye. And there are a number of grains commonly cross contaminated such as oats. Additionally, wheat allergies are different from gluten allergies as wheat allergies are a reaction to a wheat protein. So something *could* contain wheat gluten without causing a wheat allergic...1 point -
Water filters and gluten
Scott Adams reacted to MaryMJ for a topic
I called zero water and they state their filters do not contain gluten or gluten containing ingredients.1 point -
Vaccines
plumbago reacted to Scott Adams for a topic
It’s true that some vaccines contain small amounts of preservatives, stabilizers, or adjuvants to ensure their safety and effectiveness. For example: Thimerosal: A preservative that contains ethylmercury (not to be confused with methylmercury, which is toxic). Most routine vaccines no longer contain thimerosal, except for some flu vaccines in multi-d...1 point -
potato chip cross contamination
Scott Adams reacted to ShariW for a topic
Cape Cod potato chips are gluten-free, according to the company. I've never had a problem with these.1 point -
Hidden Gluten in distilled vinegar
Scott Adams reacted to Manaan2 for a topic
Thank you for posting this and for all of the ongoing information you provide on this site. Our stress level with managing our daughter's celiac disease would be much higher without this site as a resource.1 point -
Blistex Medicated Lip Balm and Other Gluten-Free Brands
Lynnard reacted to Scott Adams for an article
We made this update.1 point -
Blistex Medicated Lip Balm and Other Gluten-Free Brands
Scott Adams reacted to Lynnard for an article
I just looked up Carmex chapstick. I got to a screen that listed ingredients and was about to conclude it was safe. There was a button that said more about our ingredients and then I saw it listed colloidal oatmeal (which wasn't listed on the first screen).1 point -
Did I outgrow celiac
Scott Adams reacted to Klsdurbin for a topic
No!!! Celiacs disease does not go away. You can’t outgrow it, and if all proper diagnostic procedures (blood test and endoscopy) were followed when you were 8, it’s almost impossible to be mis-diagnosed. stoms and reactions to gluten do change over time, but the fact you have celiacs does not. I think that a lot of people misunderstand tha...1 point -
Not sure if this is Celiac or just a gluten-free intolerance
Scott Adams reacted to Wheatwacked for a topic
Are You Confused About Your Celiac Disease Lab Results? Some people test negative but have a positive biopsy, others test positive but negative biopsy. This is why it can take years and misdiagnosis of other diseases that Celiac Disease can mimic. The above link is a good read with real life examples. Something I find interesting is that in 19...1 point -
My Adult daughter is blaming me for her "possible" Celiac disease.
Scott Adams reacted to Marie70 for a topic
Wow!! Scott, Trent and Christiana thank you so much for your fast replies!! The information you have shared with me has helped me tremendously. Thank you for all the articles. I appreciate you all so much!! I’ll keep you posted in this post. I will encourage her to get tested. I feel a little better!1 point -
Years ago when I told my GI specialist that I'd like to be tested for Celiac he told me that being I had been gluten-free for over a year, I would test negative. In order to get an accurate reading I would have to eat a full gluten diet for 5 weeks. I agreed to do it and on the way home I stopped at the grocery store and stocked up on my favorite breads...1 point
-
Welcome to the forum @cameo674! First, let me correct a misconception you have about celiac disease and intestinal anatomy. Celiac disease does not affect the colon. It damages the lining of the small bowel which is on the other end of the intestinal track from the colon. The small bowel, the duodenum, is the part of the intestines right below the stomach...1 point
-
Gluten-Free Za’alook (Moroccan Eggplant and Tomato Salad)
Ed Chitty reacted to Scott Adams for an article
1 point -
I’m so confused…
knitty kitty reacted to Celiacandme for a topic
You might also be sensitive to other things while you are healing. Dairy, for example. It won't harm you from a celiac standpoint but is inflammatory and could be bothering you. Have you been keeping a food & symptom journal? Might be worth it for a week to see if you notice something you are eating prior to the times you feel your worst. I hope you start...1 point -
Typical of how celiac can slip through the cracks. If the biopsies keep coming back negative, I’d start questioning whether the tests are being done right or if there’s something else going on, like non-celiac gluten sensitivity or another autoimmune issue. It’s maddening how hard it can be to get straight answers.1 point
-
Years of testing - no real answers
Kiwifruit reacted to knitty kitty for a topic
Welcome to the forum, @Kiwifruit, I agree further testing is needed. Disaccharidase deficiency is a symptom of Celiac disease. On your test results, this line "IgA: 0.9 g/l (norm 0.8 - 4.0)" is referring to Total IgA and it's very low. People with low or deficient Total IgA should also have DGP IgG test done. Low Total IgA means you are making...1 point -
Welcome to the forum, @Kiwifruit! Were you on a reduced gluten diet when those blood tests or the biopsies were done?1 point
-
Popular Contributors
-
Celiac.com Sponsor (A19):
-
Member Statistics
-
Celiac.com Sponsor (A20):
-
Forum Statistics
-
Total Topics121.1k
-
Total Posts70.8k
-
-
Celiac.com Sponsor (A22):
-
Who's Online (See full list)
-
Celiac.com Sponsor (A21):
-
Upcoming Events
-
-
Posts
-
Yes, I'd like to know also if a "total IGA" test was ever ordered. It checks for IGA deficiency. If you are IGA deficient, it will likely render the individual celiac IGA antibody tests invalid. Total IGA goes by other names as well: Immunoglobulin A (IgA) Test Serum IgA Test IgA Serum Levels Test IgA Blood Test IgA Quantitative Test IgA Antibody Test IgA Immunodeficiency Test People who are IGA deficient should have IGG tests run as well. Check this out: I am also wondering if your on again/off again gluten free experimentation has sabotaged your testing. For celiac disease testing to be valid, one must be eating generous amounts of gluten for weeks/months leading up to the test.
-
By Scott Adams · Posted
I’m so sorry you’re going through this—it sounds like you’ve been on a really challenging journey with your health. Your symptoms (stomach pains, bloating, low iron, joint pain, brain fog, etc.) do sound like they could be related to gluten sensitivity or another condition like non-celiac gluten sensitivity (NCGS). It’s interesting that your bloodwork hasn’t shown celiac markers, but the lymphocytosis in your duodenum could still point to some kind of immune response or irritation, even if it’s not classic celiac disease. The fact that your symptoms improved when you went gluten-free but returned when you reintroduced gluten (especially with the donut incident) is a pretty strong clue that gluten might be a trigger for you. It’s also worth noting that symptoms can be inconsistent, especially if your body is still healing or if there are other factors at play, like stress, cross-contamination, or other food intolerances. Do you have more info about your blood test results? Did they do a total IGA test as well? -
For years, I have dealt with various gluten related symptoms like stomach pains, bloating, IBS-C "ish" digestive issues, low iron, low Vit D, joint pains, brain fog, and more. I finally got a double scope and stomach looks clear, but I have some lymphocytosis of the duodenum. I am wondering if this sounds familiar to anyone, where I have not shown celiac red flags in bloodwork IGA tests. WIll be following up soon with GI Dr, but so far, my symptoms are intermittent. I go back and forth with gluten-free diet (especially this past year.... did two tests where the stomach pains I had went away without gluten in diet. HOWEVER, I added it back a third time and I didn't get the pains) Anyway, I am so confused and scared to eat anything now because I recently had a few bites of a yeasty donut and I immediately got so sick. Any thoughts??
-
Kroeger has quite a few Gluten free items. Right now they are redoing my Kroeger store and are adding everything into the regular sections. Since this was done some new ones have been added. Publix and Ingles also have great selections. I actually shop Walmart and Food City to since prices on some items vary from store to store.
-
By Scott Adams · Posted
Sorry but I don't have specific recommendations for doctors, however, starting out with good multivitamins/minerals would make sense. You may want to get your doctor to screen you for where you different levels are now to help identify any that are low, but since you're newly diagnosed within the past year, supplementation is usually essential for most celiacs.
-