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Is this safe for someone with celiac disease?
knitty kitty and 2 others reacted to RMJ for a topic
I am also asymptomatic. Not everyone with celiac disease reacts the same way to the same amount of gluten, so it is impossible to say for you whether or not such small traces of gluten would be safe. I am tested for tTG-IgA and DGP IgA and IgG annually. My DGP IgA went up once when I was using a certain brand of supposedly gluten free flour, it went...3 points -
Hi @DayaInTheSun Welcome to the forum! I've been a Mod on this forum for some years now and your feelings are shared by many of us. I am not sure how long you have been diagnosed, but in my own case I do find that time has helped. It was pretty exhausting at first trying to explain to friends but they now have a pretty good grasp of coeliac...3 points
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Two things: 1. If you are using drops 3x a day you should be sure to use preservative free. The preservatives themselves can cause irritation. 2. If the problem does not resolve, you may want to have a rheumatologist check for Sjogren's. There appears to be a relationship between celiac and Sjogren's.3 points
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Vomiting - celiac or constipation
Scott Adams and 2 others reacted to sh00148 for a topic
Morning All, Just an update, I got an urgent appointment through my contact with PALS. The doctor confirmed her levels were the highest possible so she likely had higher levels of inflammation. Since the appointment, they ordered a second set of bloods, but as many of you confirmed he felt there was no doubt she was coeliac so asked us to start...3 points -
Guidance on next steps after the lab tests
Scott Adams and one other reacted to Beverage for a topic
My D was always low. It got better with gluten free diet, but was always below range or barely in range. I tried increasing D vitamins, found that K2 helps absorption of D. It improved a bit, yet remained on low end of ok range. After covid and bad flu years, i really wanted to get my D way up. We live in the Pacific Northwest, do lots outside 3/4 of...2 points -
Being present in same room as gluten pasta cooking
Scott Adams and one other reacted to RMJ for a topic
Scientist here: Actual steam shouldn’t contain gluten - the gluten molecule is too large and heavy. In distillation the larger/heavier molecules stay with the liquid. However a quick google search shows plenty of people who say they react when pasta is cooked. Vigorously boiling pasta water could also create droplets that are larger than steam droplets t...2 points -
Being a burden to family/friends
Beverage and one other reacted to knitty kitty for a topic
@DayaInTheSun, Have you been checked for nutritional deficiencies? The gluten free diet can be low in the eight essential B vitamins. Most Celiac are low in Vitamin D, which helps calm the immune system. Thiamine (Benfotiamine) helps calm mast cells so they don't release histamine at the slightest provocation. Taking a B Complex and Benfotiamine...2 points -
Being a burden to family/friends
Scott Adams and one other reacted to dublin555 for a topic
I totally agree, it’s so much more than just the physical struggle that occurs, there is the emotional struggle that goes along with it. It’s almost like you’re always navigating people who are uncomfortable with your needs and that pressure really wears you down. The fact is, the one that really did care will understand. This has nothing to do with you b...2 points -
Eye irritation 2.5 months into gluten free diet
Scott Adams and one other reacted to dirkmatthews for a topic
I found out I had celiac because of eye problems. I developed an eye irritation that was sensitive to light, pressure, and red. My eye doctor said I had iritis, an inflammation of the iris. The treatment was prednisone drops. This is a common symptom related to ankylosing spondylitis, a form of arthritis that runs in my family. My doctor wanted to start me...2 points -
Being a burden to family/friends
Scott Adams and one other reacted to RMJ for a topic
I’ve been to restaurants for lunch with people from work and not eaten anything. One time I just had a bowl of white rice. The restaurant didn’t care and nobody made any nasty comments. It took some bravery on my part to do that but it turned out fine. I just tell people I’m there for their company, which is more important to me than the food.2 points -
Let me "ditto" Cristiana's welcome to the forum, @DayaInTheSun! Many in this online family can identify with your struggle. With all of your food sensitivity/intolerance issues you probably should research MCAS (Mast Cell Activation Syndrome) and consider a low histamine diet.2 points
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Celiac And Eggs
knitty kitty and one other reacted to MommaBear82 for a topic
I just wanted to point out that the QUANTITY of exposure to eggs in baked goods would naturally be much less than if you were to eat a whole egg. I think that's why they appear to be tolerated in baked goods, but not as a stand-alone food.2 points -
Kratom
Scott Adams and one other reacted to MommaBear82 for a topic
Hepatotoxicity DOES happen with kratom. It happened to my husband. He turned yellow with jaundice and his urine became brown. This was only after taking it three times. I know because I was the one who gave it to him, unfortunately. People should realize that it can and does happen.2 points -
New to all of this
knitty kitty and one other reacted to Beverage for a topic
I got an official diagnosis from a naturopathic doctor, based on: 1. Very high blood antibodies 2.dna test and 3. Response to gluten free diet. I'm in the United States and have had absolutely no push back ever. My step granddaughter received an official diagnosis from an MD based on high antibodies blood test only. She's also in the U.S. and was told...2 points -
If there is anything I've learned in this long journey back to gluten free health, it's not to trust any food made by others that are not celiacs and careful themselves. Too many times have I got glutened by a well meaning friend or family member that doesn't realize gluten is hidden in many foods they use in recipes. I just now politely turn down their offering...2 points
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Test says no, but body says Yes?
Beverage and one other reacted to Travel Celiac for a topic
Thank you, trents and knitty kitty! You have confirmed what I thought: Clean living from a gluten-free perspective has meant basic tests would show low-to-no antibodies. It was my doctor who was wondering if I even had it, based on these tests. He's not a gastro-doc, but otherwise a kind and competent doctor. He seems genuinely interested in what...2 points -
Welcome to the forum, @Travel Celiac! The high total IGA does not indicate that your celiac disease is actively flaring up. Total IGA is not a test for celiac disease per se but rather is test given to determine if you are IGA deficient, which you are not. IGA deficient people will experience artificially low individual IGA antibody tests such as the...2 points
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Family that thinks “it’s all in your head.”
knitty kitty and one other reacted to nanny marley for a topic
Oh yes same here I've been called a weirdo and health aniexty nut even at first my own daughter's were making fun of me but now they have seen the results there's too doing the gluten and lactose free has they both now older have realised they have problems too and threw me ranting on and changing it's helped them to stop suffering early so you keep doing...2 points -
Skinesa
knitty kitty and one other reacted to BoiseNic for a topic
Ya I used to react to iodine, but it doesn't bother me anymore after strict adherence to a gluten-free diet for many years now. I am happy to report that for the first time ever in my life, a probiotic formula is not making me break out, but actually seems to be helping. The strains in this formula have been specifically tested to help with skin issues. It...2 points -
Antibodies went up
knitty kitty and one other reacted to Beverage for a topic
Sounds like you're very careful with food. Any possible airborne or non-eating exposures? One time I got really sick from feeding my neighbor's chickens, the feed would get kicked up and I'd inhale the dust, read the ingredients, yup gluten. Another time we were doing some home remodeling, removed some old plaster, probably gluten in that. Anything...2 points -
fed up italian
knitty kitty and one other reacted to Beverage for a topic
Oh gosh. I remember being shocked when my new doc said he thought I had Celiacs (went in bcuz kidneys were failing, no intestinal issues), but relieved at first to find an explanation for my issues. Then as I hit the library and the internet and read up on Celiacs, I got sooooo depressed and overwhelmed. Funny you say "is it an italian thing?" ... I'm not...2 points -
Jula, welcome to the forum. What possible benefit would having an official diagnosis give you at this point in your life? You already have medical test evidence that you are a celiac (antibody tests and genetic testing) and the symptom improvement when you went off gluten confirms what the testing already pointed to. Why on earth would you risk damaging...2 points
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Help with results please. As I have a appt after the New Year.
Wheatwacked and one other reacted to Celiac comments for a topic
I had 2 blood tests at the same time. One negative, one positive. No insurance coverage for endoscopy but felt MUCH MUCH better after three days gluten-free and many hair, skin, and rash issues cleared or improved in a week. It seems there are lots of false negatives in Celiac blood tests.2 points -
Back in September I started Semaglutide for weight loss. Shortly after starting I started having stomach issues - vomiting, diarrhea, red itchy palms and elevated heart rate. I would have The episodes were every two weeks or so. I stopped taking the semaglutide, but continued to have episodes. GP ran bloodwork all normal, including celiac. Ordered a stomach...1 point
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Symptoms and trying to figure this out
Scott Adams reacted to trents for a topic
Well, I strongly disagree that it was a comprehensive celiac disease panel. In addition to the tTG-IGA and the Immunoglobulin A, a comprehensive celiac panel would have included DGP-IGA, DGP-IGG and TTG-IGG. What he ordered was the most popular celiac antibody test available (and perhaps the best one), the tTG-IGA and he also, to his credit, ordered the Immunoglobulin...1 point -
Guidance on next steps after the lab tests
knitty kitty reacted to ABP2025 for a topic
I wish more doctors emphasized on the importance of Vitamin D. I'll increase the Vitamin D3 supplementation from 2000 IU to 4000 IU. I'll also try Benfotiamine and see if my symptoms improve. Thanks for your suggestions.1 point -
A video with researcher William Parker about Helminthic Therapy
John Scott reacted to dixonpete for a blog entry
I don't buy it either. I think a much better explanation is that humans evolved with hookworms just as hookworms evolved with us. The immunoregulatory activities that hookworms conduct to avoid expulsion from the gut have over time been incorporated into how the gut immune system works as a whole, and without hookworms present the gut immune system is incomplete...1 point -
Being a burden to family/friends
Scott Adams reacted to DayaInTheSun for a topic
Interesting you mention MCAS. I have come across mcas before but I wasn’t entirely sure if that’s what it was. When I eat certain food like dairy or soy my face gets so hot and I feel flush and my heart rate shoot’s up. And sometimes my bottom lip swells or I get hives somewhere. This started happening after I had a really bad case of Covid. Before that ...1 point -
Help with tests
Scott Adams reacted to nanny marley for a topic
Hi thanks Scott I had a phone call from the docters they gave referred me to gastroenterology as a urgent appointment because of the inflammation the kidney test went from stage 2 to stage 3a within 11 month I had one in February too so it's quite a concern at the minute so that is being looked at too the celiac test came back negative but I have been gluten...1 point -
How to Transition to a Gluten-Free Diet: A Step-by-Step Guide (+Video)
Scott Adams reacted to DonnaKEllis for an article
Thank you for this information. I have not yet been diagnosed, but I am almost CERTAIN that this is what I have had for a number of years.....in fact most of my life. I have been treated for "chronic migraine" and as my bouts of diarrhea have gotten worse, I now have sought out a gastroenterologist. He had access to many of my old records and told me...1 point -
Help! I have to eat gluten :(
Scott Adams reacted to BadHobit for a topic
An entirely different infection caused the sore throat. My doctor said, "When you suddenly switch from a gluten-free diet to gluten, your immune system weakens." I got better with medication. Once I recovered, I experimented with wheat-free but gluten-contaminated foods such as oats. Within a week, watery blisters appeared on my skin again. So I gave...1 point -
Gluten-Free Lotions: Brand Guide to Celiac-Safe Choices
Scott Adams reacted to MelissaLMandrick for an article
Thank you for this article, very helpful. I am one of the few who has a skin reaction.1 point -
Gluten-Free Soups: Lists of Gluten-Free Soups by Brand Name
Scott Adams reacted to trents for an article
Welcome to the forum, @Rcnc63! Well, celiac and gluten go together. Celiac disease is an autoimmune reaction triggered by the ingestion of gluten that damages the lining of the small bowel. Gluten is a protein found in three grains: wheat, barley and rye. So, for starters, bread and pasta are out. Focus on fresh meat, vegetables and fruits and cooking...1 point -
Fibrin glue
Scott Adams reacted to Russ H for a topic
I doubt very much that it contains any gluten. It works by producing an artificial blood clot, mixing 2 or more proteins found in the natural blood clotting cascade. These are refined from human blood donations. It comes in 2 vials that are mixed immediately before use and clot quickly.1 point -
Hidden Gluten in Everyday Products: What You Need to Avoid (+Video)
Scott Adams reacted to Tyffni for an article
The surprising one I've heard, but have not yet confirmed, is Bath & Body Works hand sanitizer.1 point -
I'm new here so I'm not sure if I'm allowed to recommend doctors? But I am in Manhattan and see Dr. Lauren Schwartz at Manhattan Gastroenterology. I am still in the process of (potentially) being diagnosed and she has been wonderful. She has experience in Celiac and has a very calming bedside manner. I feel confident I'll get the right diagnosis with...1 point
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Exploring Links Between Autoimmune Diseases and Schizophrenia (+Video)
Elizabeth Lund reacted to Scott Adams for an article
Celiac.com 12/13/2024 - The study investigates whether there is a causal relationship between autoimmune diseases and schizophrenia. Schizophrenia, a severe neuropsychiatric disorder, has been associated with immune system dysfunction...1 point -
Daughter waiting for appointment
Scott Adams reacted to trents for a topic
Duodenal ulcers are not uncommon either and often result from H.Pylori infections. https://www.healthdirect.gov.au/duodenal-ulcer1 point -
A year and a half of test confusion...
knitty kitty reacted to JA917 for a topic
I was just thinking this same thing - requesting repeat testing prior to giving up gluten. Makes sense. Thanks!1 point -
Alprazolam gluten free?
CeliacPsycho246 reacted to Scott Adams for a topic
You may want to search the same site for other makers of the drug, if there are any. Many times generic manufacturers make the same drugs using different inactive ingredients. To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it...1 point -
Gotcha. I'll give 100% gluten-free a whirl after my testing concludes. I know the traditional endoscopy is the gold standard, but I've already had that done and it was normal, so my gastro wants to do a capsule endo to try to cover more surface area and see if she can see anything further than the traditional endo... If I do have Celiac, I just seem to...1 point
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What everyone favorite Gluten Free Bread?
Scott Adams reacted to mbrookes for a topic
We don't have a Trader Joe in my town, but a small local grocer has started carrying a variety of Dr Schaar products. I do like all of his that I have tried.1 point -
Vomiting - celiac or constipation
Scott Adams reacted to cristiana for a topic
So glad @sh00148 that you now have a coeliac diagnosis for your daughter. We really appreciate your update. If we can help any further, do not hesitate to get in touch.1 point -
Daughter waiting for appointment
Scott Adams reacted to jjiillee for a topic
She finally has her appointment today. They said in their opinion it’s likely celiac. But repeated the bloodwork today. Her frost bloodwork was weak positive 5.3 (4-10 is a weak positive) Dr wanted her own labs. And they will be calling us to schedule the endoscopy. They told her to keep Eating gluten. She has been eating is again for the last couple w...1 point -
Thank you so much!1 point
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Allergy Meds
Scott Adams reacted to trents for a topic
Your only resort would seem to be directly contacting the manufacturer and ask some pointed questions about CC . . . and hope you get some straight answers. You are probably already aware of this but the label "Gluten Free" does not necessarily equate to zero gluten. "Gluten Free" is a standard established by the FDA whereby a product can use that label...1 point -
GLUTEN FREE OCD MEDICATION
CeliacPsycho246 reacted to Wheatwacked for a topic
vitamin D levels in obsessive-compulsive disorder "The number of participants with vitamin D insufficient ... and vitamin D deficiency ... in the OCD group was statistically significantly higher than the control group... and also the number of participants whose vitamin D levels were in the normal range ... in the OCD group was statistically significantly...1 point -
Check Costco's store brand.1 point
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Daughter waiting for appointment
Beverage reacted to Wheatwacked for a topic
Hi @jjiillee, Call the doctors office and tell them about the improvement with gluten free diet. Diagnosing Celiac Disease is as much an art as it is a science. Many go 10 years of suffering various symptoms before finally being diagnosed.Most celiacs have vitamin deficiency, it is part of the diagnosis. Especially vitamin D. Ask for her to be...1 point -
Kratom
plumbago reacted to Scott Adams for a topic
The problem with Kratom is that it is linked to liver damage, so the risks of using it far outweigh the benefits. This is from the Mayo Clinic: https://www.mayoclinic.org/healthy-lifestyle/consumer-health/in-depth/kratom/art-204021711 point
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Thanks, I appreciate you getting back to me. Sometimes the retailers don't have content info on products they sell and they have rewrapped them with no ingredients list. Guess I'll stick to prepackaged medalions with all the info.
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I find that I sometimes have symptoms due to cross-contact with foods that *might* be contaminated in the processing. 100% gluten-free certification is something I look for in every processed food I consume.
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I would not be comfortable with just wiping down the rack after a gluten-containing food was cooked on it. When I cook pizza in the oven, my gluten-free pizza goes on the top rack - nothing else is ever placed directly on that top rack, gluten or not. Contact with minute traces of gluten cause me symptoms within a few hours. If I heat a gluten-free roll in my toaster oven, I place it on a small bit of foil so that it does not directly contact the rack that *might* have traces of gluten on it.
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By Wheatwacked · Posted
Also ask for a test of vitamin D levels. I agree with knitty kitty that cyclical Thiamine deficiency may be the cause of your cycle. Celiac Disease causes multiple vitamin and mineral deficiencies. Itchy palms can be a symptom of iodine deficiency. Low iodine levels can lead to dry, flaky skin on the hands and body due to the disruption of normal skin cell regeneration caused by a lack of thyroid hormone production, which relies on iodine. Other symptoms are fatigue, weight gain, sensitivity to cold. I take between 600 and 1200 mcg a day Liquid Iodine. It has improved my healing. Strong Iodine and Lugols Solution are other options. Start low and build up over time. Between 1970 and 1988 the dietary intake of Americans dropped by 50%. Perhaps this is why some can tolerate the bread in Europe? -
Be cautious with vitamin D if you are female and post-menopausal. I had to decrease my D dosage from 4000 IU/day to 2000 IU because of hormonal acne and unwanted facial hair - likely from an increased testosterone level from the D. Finally relief! I hope to keep my D level below 50 nm/l now.
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