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Lymph nodes in neck + thyroid issues
knitty kitty and 2 others reacted to RMJ for a topic
I’ve had on and off swelling of a salivary gland below my jaw - sialoadenitis. It was very visible when it swelled though.3 points -
To be certain that the "gluten challenge" results in valid testing down the road, I would plan on having your daughter restart gluten consumption four weeks prior to the blood draw or the endoscopy/biopsy (whichever the GI doc wants to go for first) to the tune of 4-6 slices of wheat bread (approximately 10g of gluten) daily. But be aware that once you withdraw...2 points
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Hey all!
Scott Adams and one other reacted to Savannah Wert for a topic
Thank you! I’m currently the breadwinner as my husband is pursuing a finance degree so the nights that I am at work they can eat whatever my husband makes but when I am home we have gluten free meals and no complaints so far! I definitely don’t have a choice but to switch but I think slowly transitioning my family is good!😀2 points -
Refractory or super sensitive?
knitty kitty and one other reacted to trents for a topic
Not being able to implement all elements of a discipline does not necessarily mean going through with the rest of it will not benefit you.2 points -
Lymph nodes in neck + thyroid issues
Scott Adams and one other reacted to Blue Roan for a topic
@RMJ@Scott Adams@knitty kitty, Thank you for all of your responses, tips, and suggestions. I'm very grateful that this website exists. It makes me feel a lot less alone in my celiac journey! The endocrinologist had me do a neck ultrasound just to be safe. Thankfully, thyroid and lymph nodes came back normal. knitty kitty, my Vitamin D is on the...2 points -
How to choose a Naturopath for 6yr old
Scott Adams and one other reacted to cristiana for a topic
Hi @jadeceoliacuk I am a UK based coeliac and I have used a private nutritionist a few times. She is very highly qualified and having just googled her details, she is listed on this website (see link). For that reason, I think you could trust the listings here as I am quite sure she would not want to associate with this website unless it was a...2 points -
Celebrity Cruise for Gluten Free
Scott Adams and one other reacted to gregoryC for a topic
Agree, and on this cruise I did the worst case scenario. I did not meet with any dining room staff. Out of 7 nights I only had to request 1 night to see if they could make a cuban themed seafood plate for me. They did! It was awesome! I cannot emphasize enough how much Celebrity beats Royal Caribbean on quality and options for not only Gluten Free options...2 points -
How Celiac Disease Could Increase Your Risk of Kidney Problems
Barbra S and one other reacted to Scott Adams for an article
Celiac.com 11/04/2024 - Celiac disease is an autoimmune disorder that primarily affects the digestive system, but its influence extends far beyond the gut. When individuals with celiac disease consume gluten, an immune response is triggered...2 points -
Severe joint swelling from Celiac
Scott Adams and one other reacted to Beverage for a topic
I also did not have the so-called typical Celiac symptoms, my main complaint was always getting sick, asthma, loss of sense of smell, and kidneys were failing. My GFR was in 40's - 50's and docs saying "Kidneys don't get better, we can only slow the decline" also "We don't do anything for kidneys until you are ready for dialysis." I was blown away, so decided...
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Severe Itching And No Rash
Scott Adams and one other reacted to cristiana for a topic
@SoBannaz Have you ever been offered any sort of topical treatment for your skin? I occasionally have issues with my skin and during one of the lockdowns in the UK the itching was driving me up the wall - it was in my scalp, on my chest, shoulders, across the stomach. I was really stressed and worried about it. At his request, I sent a photo to...2 points -
No, it can't be the real cause of celiac disease because celiac disease existed long before genetic modification technology existed. There is historical evidence of the existence of celiac disease from ancient times. Please provide links to support your claims and ideas about GMO wheat pollen "contaminating the entire Global wheat Supply" and being "the real...2 points
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Celiac Disease and Fibromyalgia: How Gluten Might Worsen Chronic Pain
Wheatwacked and one other reacted to imdoodah331 for an article
I was diagnosed with Fibromyalgia in 1996, after years of unexplained symptoms. It took five years of many negative test results before I was finally referred to a rheumatologist in Pittsburg who diagnosed Fibromyalgia. Treatments for that were minimally successful. Although I understood Fibro is not a "progressive" illness, I experienced constant new...2 points -
Best Lab To Get Full Panel Bloodwork For Accurate Celiac Results
Scott Adams and one other reacted to cillivilli for a topic
Thank you @trents and @Scott Adams your input was very helpful!2 points -
Can't figure this out
Scott Adams reacted to Captain173 for a topic
Yes I was asking could the symptoms I listed be related to the sibo only.1 point -
Is McDonald's Safe for Gluten-Free Orders?
Scott Adams reacted to ShariW for a topic
A couple of months ago, we stopped at a McDonald's while on a road trip. I ordered a cheeseburger with no bun, just lettuce & tomato on the side. No fried, nothing else. A few hours later, I had symptoms of having been glutened. So, no more stops a McDonald's for me!!!1 point -
I never had muscle twitching that I would relate to Celiac Disease (celiac disease). However, I now have Long Covid and muscle twitching, burning, and other issues cropped up with that. Predating all was restless leg syndrome (RLS). Are you talking about RLS? I've had that since '99. It gets progressively worse.1 point
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Chapstick, gum, cough drops, medications...HELP!
Scott Adams reacted to Brianne03 for a topic
Thank you for all the helpful suggestions. She has had stomach issues since the day she was born; when a baby projectile vomiting, as a big kid mostly cramping and stabbing pain after eating and just overall feeling of not feeling great...headaches, tired. We've talked to her doctor about it several times over the years; the did some testing when she was...1 point -
Celebrity Cruise for Gluten Free
Scott Adams reacted to gregoryC for a topic
The gluten-free cakes at cafe al Bacio
1 point -
Louise
cristiana reacted to Louise Broughton for a topic
Thank you everyone for your super responses. Louise1 point -
Raw Meat Craving
Scott Adams reacted to knitty kitty for a topic
@Jordan Carlson, Sorry to hear you're having a bumpy journey right now. I've been there. I thought I was never going to stop having rashes and dermatitis herpetiformis breakouts and hives, oh, my! I went on a low histamine Autoimmune Protocol Diet (AIP diet). It gave my digestive system time to heal. After I felt better, I could add things back...1 point -
Raw Meat Craving
Scott Adams reacted to knitty kitty for a topic
@Jordan Carlson, How are you doing now? Your post slipped by, but I had to let you know you weren't alone. I've had cravings for raw meat my whole life. It's due to being low or deficient B vitamins, specifically Thiamine. Meat is a great source of B vitamins. Cooking meat destroys some of the vitamins, so a craving for raw or rare meat shows...1 point -
The Millennium class ships (we went on the Summit) do have constrains due to their size. I still like them better then the edge class ships (my wife and I enjoy small crowds ) even though I only have 3 different cakes to choose from at any given time at cafe al Bacio or the buffet. When ordering from the main dining room if you want a special dessert you...1 point
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Implications of glutening after repairing villi
Scott Adams reacted to Jean Shifrin for a topic
Thanks so much for this article, Scott. My symptoms are not gastrointestinal, but result in intense swelling in my left knee if I consume gluten. The swelling will go down in a day or two if I do not ingest any more gluten. I'm thankful that I no longer have gastrointestinal related symptoms, so most of these remedies are not applicable - but I appreciate...1 point -
Celebrity Cruise for Gluten Free
T burd reacted to Scott Adams for a topic
It's great to hear that cruise lines are stepping up and offering better and more quality gluten-free options for their guests! Given the fact that on a ship you're basically trapped with whatever food options there are, it makes a lot of business sense for all cruise lines to cater to the growing gluten-free crowd.1 point -
Absolutel liquor
Scott Adams reacted to Doug1229 for a topic
All liquor that has been distilled are gluten-free because the liquor is captured from evaporation. Gluten is a heavy protein that will not evaporate make it safe for all celiac’s. cheers!1 point -
9 year old- questionable results
Wheatwacked reacted to trents for a topic
Welcome to the forum, @ABP! We can't comment on the test numbers you give as you didn't include the range for negative. Different labs use different units and different ranges. There are no industry standards for this so we need more information. If your daughter doesn't have celiac disease she still could have NCGS (Non Celiac Gluten Sensitivity...1 point -
Help with blood test result
Scott Adams reacted to gemknorodo for a topic
I wonder if the tTG-Iga result isn't back yet as there is nothing next to that one, perhaps it takes a little longer.1 point -
Pretty desperate for some guidance
Scott Adams reacted to Pua for a topic
Mahalo for all of the answers this has been super helpful. He is doing so much better on a gluten free diet. I may consider genetic testing as I never thought of that as an option and I definitely don’t want to go the usual route and have to give him gluten again for the test. It’s nice to have an “official diagnosis” but as long as he’s healthy I don’t c...1 point -
Update: Just realised i never updated this post with a major development. since May 2023 i can now eat whatever i want 7 days a week. I accidentally ate the same type of food two days in a row and suffered no reaction so immediately realised my body had recovered. And of all places to discover it i was in a 5 star resort in Greece where there was...1 point
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Nighttime Soiling (5 year old)
Scott Adams reacted to cristiana for a topic
Hi @sh00148 I am so glad that your son is going to have a blood test next week. If the blood test is that soon, and he has been consuming normal levels of gluten up until now, he should have had enough exposure to gluten to test positive should you decide to stop the gluten immediately, as Scott suggest. However, one thing you may wish to change...1 point -
I’m wondering the same. I am tempted to cut out gluten as this is advised for Hashimotodisease anyway . However, if I do I would not get official diagnosis of celiac disease. In Uk where I’m based once officially diagnosed you are eligible for dexa bone scan, more regular blood tests etc. However these seem to vary in availability so I’m wondering ifactually worth...1 point
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Passing out
Scott Adams reacted to cristiana for a topic
At the time of the one awful, substantial glutening I experienced a few years ago, I felt very near to passing out. I think if I hadn't been able to lie down, I might have. As a child I was prone to fainting, and was told then how to avoid it, by putting my head between my knees, or lying down. So now, if I feel things going grey that is what I do and...1 point -
Not sure if this is Celiac or just a gluten-free intolerance
MomofGF reacted to Scott Adams for a topic
I just want to add that many celiacs do not have any obvious symptoms, but still have the same health risks if they continue to eat gluten. Unless all of her first-degree relatives, including yourself, are screened for celiac disease, there is not way to be sure that other relatives don't also have it (some studies have shown that up to 44% of first degree...1 point -
Lymph nodes in neck + thyroid issues
Blue Roan reacted to knitty kitty for a topic
Hi, @Blue Roan, I have Sjogren's Syndrome that made my salivary glands under my jaw swell. I also have dry eyes from Sjogren's. Yes, Sjogren's is yet another fun autoimmune disease that can occur in Celiac Disease. It starts in the salivary glands. Vitamin D deficiency can also make salivary glands swell. I was very deficient in Vitamin D also...1 point -
Vomiting - celiac or constipation
Scott Adams reacted to cristiana for a topic
@sh00148 Hello and welcome to the forum, I'm a coeliac based in the UK and I have only just spotted this thread. Reading your posts about PALs I imagine you are based in the UK too? I am so sorry for all your daughter has been going through but congratulations on your achievement on getting an appointment. I would definitely recommend you...1 point -
Vomiting - celiac or constipation
Scott Adams reacted to trents for a topic
Many celiacs are what we call "silent". That is, they don't have classic GI symptoms but begin developing other medical problems such as you describe with your husband. Also, it is unfortunate that many doctors, and in some cases their hands are tied by stingy healthcare system protocols, do bare minimum testing for celiac disease which would consists...1 point -
Family that thinks “it’s all in your head.”
captaincrab55 reacted to Scott Adams for a topic
I totally get where you’re coming from! It can be so frustrating when people, especially family, don't fully understand or respect our food sensitivities. Sometimes, even after years of living gluten-free, the skepticism doesn’t seem to go away, and people think it’s “just a choice” or “not that serious.” With celiac disease and allergies, though, it’s not jus...1 point -
Severe joint swelling from Celiac
knitty kitty reacted to Suzyq112 for a topic
Thx kitty!1 point -
Severe joint swelling from Celiac
Scott Adams reacted to Suzyq112 for a topic
Thank you Scott! I'll look into that.1 point -
Hi I’m Sammie
Scott Adams reacted to AJS3849 for a topic
It's possible that you have developed visceral hypersensitivity as a result of your digestive issues. Basically, that means that the nerves in your gut have been become super-sensitive due to ongoing irritation and what is normal pain for most people is magnified for you. There's really no cure, but I've found that acetaminophen helps as do a heating pad...1 point -
One other thought: what other blood tests have you had? It might be worth having your iron and haemaglobin levels tested.1 point
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What everyone favorite Gluten Free Bread?
Scott Adams reacted to jwoolman for a topic
I like BFree products and also Happy Camper. Both have seeded brown bread and both are vegan-friendly (allergic to egg and dairy).1 point -
Celiac Disease Misconceptions: Debunking Common Myths and Dispelling Misinformation
Scott Adams reacted to trents for an article
From Scott's post above: "The wheat found in today’s food supply is derived from traditional selective breeding practices rather than genetic engineering." GMO is not selective breeding or hybridization. It is the use of modern cutting edge technology to remove or add genetic material. In some cases, genes from entirely different organisms, such as a...1 point -
Uncovering the Genetic Connection Between Heart Disease, Celiac Disease and Psoriasis
sc'Que? reacted to Scott Adams for an article
There is no wheat GMO pollen contaminating anything, because commercial wheat is not GMO. It would take too long to debunk all of what you believe to be facts in this post, but given that your entire premise, that wheat is a GMO is incorrect, there is no need for me to waste my time.1 point -
Newly diagnosed Celiac
knitty kitty reacted to Peace lily for a topic
Welcome to the forem i got diagnosed in march with cealiac it’s been a process for me I’m strictly gluten free . I went years with suffering with the pain . Don’t want to go thru with that again if I can help it but I found you really have to read the labels on food products . I had a nutritionist for awhile and helped me get thru this who new s...1 point -
Uncovering the Genetic Connection Between Heart Disease, Celiac Disease and Psoriasis
sc'Que? reacted to knitty kitty for an article
The use of Microbial Transglutaminase as a food additive, used in baked goods, dairy products, and processed foods since 1989, has increased rapidly. Microbial transglutaminase has been found to be an agent that triggers Celiac Disease. High fructose corn syrup was introduced in the 1970's as a cheaper alternative to sugar. High fructose corn...1 point -
Uncovering the Genetic Connection Between Heart Disease, Celiac Disease and Psoriasis
sc'Que? reacted to Scott Adams for an article
Although there are projects to create GMO wheat that won't trigger celiac disease, commercial wheat is not genetically modified (GMO). In fact, there is no approved GMO wheat grown for human consumption anywhere in the world. The primary cause of celiac disease is an autoimmune response to gluten, a protein found naturally in wheat, barley, and rye. This...1 point -
Just diagnosed (blood work) awaiting endo. many questions. please help.
kopiq reacted to knitty kitty for a topic
@kopiq, Welcome to the forum! Be proactive. Call the GI Specialist and ask if you need to be eating gluten for the endoscopy. Ask if you can get on a cancellation list to be seen sooner. If you stop eating gluten before the endoscopy, healing will take place, not giving an accurate picture of what damage is being done in reaction to gluten. ...1 point -
What everyone favorite Gluten Free Bread?
Scott Adams reacted to DOGLOVERINFLORIDA for a topic
Canyon Bread. They make fresh and frozen. Bagels, english muffins and several different types of breads. So far I have enjoyed all of their products except for english muffins. I have not been able to find these yet.1 point -
Chocolate, Depression, and Gluten Intolerance: A Self Test
Riteeee reacted to Jim Swayze, ASQ CSQE for an article
Celiac.com 08/20/2020 - I am afraid that the following article might not make me very popular—if I had any popularity remaining after my last one! If you saw “The Paleo Template” here on these pages, you’ll recall that its ideas rest up...1 point
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0December 11, 2024 12:00 AM
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Posts
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Fantastic! Be sure to ask about continuing gluten until the procedure should the GI doc want to do an endoscopy/biopsy. He/she may also want to repeat antibody testing.
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Thanks for the replies. They had a cancellation and now she can se the gastroenterologist tomorrow!
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By Cindy Neshe · Posted
I forgot to say. Some people are allergic to Almonds. If you don’t have that allergy then it should be safe as long as there are no gluten ingredients. -
By Cindy Neshe · Posted
Hi Aussie, I have to apologize “soy” by itself does not contain wheat or gluten like Adam said. Soy can be an allergy in its own for some people. I had soy sauce on my brain when I made that comment. But I do want to say this. I often wonder about the low 20 ppm the govt allows in food. It’s low but for some people this might be an issue. We don’t really know enough yet of what gluten really does to us. Does it stay in our gut and build up over time? It’s perplexing. -
By Aussie Celiac · Posted
I was wondering about Soy. What about almond milk? I'm in Australia and it's hard to find much info sometimes. I've stopped the Japanese soy, as they don't guarantee anything.
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