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  1. trents

    trents

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  2. Scott Adams

    Scott Adams

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  3. knitty kitty

    knitty kitty

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  4. Beverage

    Beverage

    Advanced Members


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Popular Content

Showing content with the highest reputation since 02/07/2025 in all areas

  1. Dc91

    Celiac or not?

    Just had a letter through from the Celiac team, they’ve diagnosed me through my bloods, no endoscopy/biopsy needed. I guess I’ll be sticking around on this forum and I’m sure I’ll be back soon. thanks for all your help
    2 points
  2. Beverage
    Morton & Bassett spices are labeled gluten free. I've been using them for years, no problems. I order direct from them as the selection at my grocery is very limited. They have a newsletter with regular discounts and specials: https://mortonbassett.com/ Spicely another good gluten free brand, CERTIFIED gluten-free, but not widely available where...
    2 points
  3. ognam
    I had a lot of weird/random symptoms for a few months after going gluten free. But eventually they evened out and I felt SO MUCH BETTER. The person above wrote a very detailed message that looks helpful. I'd add don't forget to check for gluten in places like medicine. Advil liquigels, for example, have gluten. It's very frustrating trying to figure...
    2 points
  4. Scott Adams

    Vaccines

    For individuals who have experienced negative reactions to the flu vaccine, there are alternative formulations that may reduce the risk of allergic responses. Traditional flu vaccines are typically produced using egg-based methods, which can pose issues for those with egg allergies. However, there are now several egg-free options available, such as cell-based...
    2 points
  5. Manaan2
    @knitty kitty I can't thank you enough! My husband and I already started looking into those supplements. We definitely plan to give it a try. We've been against the Miralax since it was originally advised by PCP, but because of the level of pain she experienced on a daily basis, we decided to try it. We've made many attempts to gradually decrease but...
    2 points
  6. Scott Adams
    Celiac.com 02/06/2025 - Dining out with celiac disease or gluten sensitivity can be a challenge, but it doesn’t have to be overwhelming. With more restaurants recognizing the importance of offering gluten-free options, people with dietary r...
    2 points
  7. MI-Hoosier

    Test uncertainty

    Thanks again. My mom was diagnosed over 50 years ago with celiac so grew up watching her deal with the challenges of food. I have been tested a few times prior due to this but these results have me a bit stunned. I have a liver disease that has advanced rapidly with no symptoms and an allergy that could be a contributing factor that had no symptoms. I guess...
    1 point
  8. Scott Adams
    It sounds like you’ve been through a challenging journey since your celiac diagnosis, especially with the unexpected neurologic symptoms like muscle twitching and hand tremors. While celiac disease is primarily known for gastrointestinal issues, it’s important to recognize that it can also manifest in non-GI ways, including neurological symptoms. Research has...
    1 point
  9. LookingForAnswers101
    I have not been diagnosed with celiac disease, and I just cut gluten out of my diet three days ago. The impetus was that I've tried everything to get rid of these boils, and I've heard many people say that their skin issues vanished when they cut out gluten, so I figured gluten might be the culprit here. Thank you so much for your feedback!!
    1 point
  10. Chissers
    Thank you Scott
    1 point
  11. Scott Adams
    Welcome to the gluten-free community! It’s great to have you here. While gluten sensitivity or celiac disease can indeed cause skin issues, such as dermatitis herpetiformis (a blistering rash), abscesses in areas like the lower buttocks or thighs are less commonly linked directly to gluten. However, chronic abscesses could be a sign of an underlying immune o...
    1 point
  12. trents
    Scott, I know full well that celiac disease is an autoimmune disorder and gluten sensitivity is not. And I agree that there is inconsistency in the use of the terms. But my contention is that "gluten intolerance" should not be used of NCGS since "gluten sensitivity" is actually found in the gluten disorder known as Non Celiac Gluten Sensitivity and, therefore...
    1 point
  13. trents
    I wonder why they put dextrose in it?
    1 point
  14. Scott Adams
    For people with celiac disease and corn intolerance, most salts, including table salt with dextrose, are generally safe in small amounts, as the dextrose is typically highly processed and unlikely to contain problematic corn proteins. However, if you’re highly sensitive, you might consider switching to pure kosher or Himalayan salt, which don’t contain add...
    1 point
  15. captaincrab55
    JuggaloDad, A gluten-free diet is a cut and dry fix for some, but it's more complicated for many of us including me. I suffered from an infant to age 56, It took almost 10 years for me to zero in on non-gluten foods that caused me GI issues/pain. Zeroing in on the non-gluten items wasn't as easy as it was for hidden gluten for me. Dairy, coffee and onions...
    1 point
  16. trents
    Recent updates to "gluten challenge" recommendations are recommending a minimum consumption of 10g of gluten daily (about the amount found in 4-6 slices of wheat bread) for at least two weeks leading up to the day of testing. This is for adults. I do not know of any pretest gluten consumption guidelines for children. You might consider the "wait and see"...
    1 point
  17. JuggaloDad
    Thank you Scott, it means a lot especially with the speed you responded.. In life I've learned that you got to be openminded and open to understand and adjust .Thank you again I hope she will come around to the adjustment as it's not going away and it's for her own comfort and health in the long run....Thanks
    1 point
  18. trents
    Current "gluten challenge" recommendations are the daily consumption of at least 10g of gluten (about the amount found in 4-6 slices of wheat bread) daily leading up to the day of the biopsy.
    1 point
  19. trents
    Thanks, Scott. I have that products containing lecithin have often disagreed with me.
    1 point
  20. Aussie Celiac
    Sometimes celiacs can also have other things like lactose intolerance which is fairly common. Also research fodmap foods, it's quite complicated but there are some other foods which can cause digestive issues. For me it's too many onions and garlic.
    1 point
  21. TerryinCO

    Status Update...

    Thank you for direction. Eating out is a concern though we rarely do, but I'm prepared now.
    1 point
  22. Kiwifruit
    Hi I just wanted to update you all and let you know that I finally have my diagnosis. 2 weeks ago I had my third gastroscopy and the biopsy confirmed the damage. Thank you for giving me the information I needed to advocate for myself when I a was a feeling so lost!
    1 point
  23. trents

    Celiac or not?

    The tTG-IGA is considered the centerpiece of celiac disease blood antibody testing. Your test results exceed 10x normal range so you could be officially declared to have celiac disease without going through an endoscopy/biopsy of the small bowel lining. As you used the term "bloods" to refer to your antibody testing, I am assuming you live in the UK and it...
    1 point
  24. Jess270

    Bitters for digestion?

    This sounds to me like histamine intolerance. Some foods have more or less histamine. processed or aged meats, fermented food like yoghurt or kimchi and bread (yeast), spinach, eggplant and mushroom are high in histamine. Other foods like tomatoes are histamine liberators, they encourage your mast cells to release histamine, which can also trigger the reactions...
    1 point
  25. GeoPeanut

    Vaccines

    Hi, I'm new here. Sorry for your troubles.herenis a thought to mull over. I recently was diagnosed with celiac disease, and hashimoto's and dermatitis herpetiformis after getting covid 19. I eat butter, and 1/2 cup of Nancy's yogurt daily. I stopped all other dairy and dermatitis herpetiformis is gone! I also make grass fed beef bone broth to help with...
    1 point
  26. Scott Adams
    Welcome to the forum, the biggest source of cross-contamination would be eating our in restaurants--even ones that have a gluten-free menu. If your son was just recently diagnosed I'd recommend trying not to eat out during his healing period, which could last up to a year or more, depending on how much villi damage he had.
    1 point
  27. trents
    Key word, "gluten-like". By the way, have you looked up Dr. Osborne's credentials and his background? He is a licensed nutritionist but his scientific? medical? clinical background is that of a chiropractor. He is not taken seriously by many experts in the medical and scientific community. If it is helpful to you to see these other cereal grain...
    1 point
  28. knitty kitty

    Vaccines

    If you have poor reactions to vaccines, preservatives, sugar alcohols and metals, you may be deficient in Thiamine Vitamin B1. Thiamine is needed in the immune response and production of antibodies. Thiamine can be depleted by vaccines if you are already low to begin with due to the Malabsorption of Celiac Disease. Thiamine can be destroyed by sulfide...
    1 point
  29. MaryH
    I was diagnosed with Celiac in 1951. In my earlier years I would request a tiny portion of a wheat host. I typically for many years would receive the Wine, which because it is the Risen Christ contains the Body and Blood of Christ, as does any consecrated Host. For the last 10 year I have take the "low-gluten host" without a problem. I receive the host about...
    1 point
  30. cristiana
    I did suffer with gastric symptoms before diagnosis, but got all sorts of weird and wacky symptoms after going gluten free. Things got much better once my antibodies fell to normal levels, but it took years (please don't panic, many people's go to normal levels relatively quickly when following a gluten-free diet). Causes of the symptoms you mention...
    1 point
  31. Beverage

    Vaccines

    I feel for you. I've had an interesting history with some vaccine, especially t-DAP. One time after just getting it, I remember walking from the pharmacy to my car, reaching for the door handle of my car as my last memory, then waking up slumped into my car with the door wide open hours later. Nobody even knew I was there. I did get a bad cut from rotting...
    1 point
  32. ognam
    Yes, lots of delicious things have barley malt. It also doesn't include rye. And there are a number of grains commonly cross contaminated such as oats. Additionally, wheat allergies are different from gluten allergies as wheat allergies are a reaction to a wheat protein. So something *could* contain wheat gluten without causing a wheat allergic...
    1 point
  33. MaryMJ
    I called zero water and they state their filters do not contain gluten or gluten containing ingredients.
    1 point
  34. Scott Adams

    Vaccines

    It’s true that some vaccines contain small amounts of preservatives, stabilizers, or adjuvants to ensure their safety and effectiveness. For example: Thimerosal: A preservative that contains ethylmercury (not to be confused with methylmercury, which is toxic). Most routine vaccines no longer contain thimerosal, except for some flu vaccines in multi-d...
    1 point
  35. ShariW
    Cape Cod potato chips are gluten-free, according to the company. I've never had a problem with these.
    1 point
  36. Manaan2
    Thank you for posting this and for all of the ongoing information you provide on this site. Our stress level with managing our daughter's celiac disease would be much higher without this site as a resource.
    1 point
  37. Scott Adams
    We made this update.
    1 point
  38. Lynnard
    I just looked up Carmex chapstick. I got to a screen that listed ingredients and was about to conclude it was safe. There was a button that said more about our ingredients and then I saw it listed colloidal oatmeal (which wasn't listed on the first screen).
    1 point
  39. chrish42
    Excellent article and study. In the 50s my mother had issues and when I think back she may well have had Celiac but testing at that time was probably non existent. Doctors hopefully will take note and inform Celiacs about the relative relationship.
    1 point
  40. Klsdurbin

    Did I outgrow celiac

    No!!! Celiacs disease does not go away. You can’t outgrow it, and if all proper diagnostic procedures (blood test and endoscopy) were followed when you were 8, it’s almost impossible to be mis-diagnosed. stoms and reactions to gluten do change over time, but the fact you have celiacs does not. I think that a lot of people misunderstand tha...
    1 point
  41. Wheatwacked
    Are You Confused About Your Celiac Disease Lab Results? Some people test negative but have a positive biopsy, others test positive but negative biopsy. This is why it can take years and misdiagnosis of other diseases that Celiac Disease can mimic. The above link is a good read with real life examples. Something I find interesting is that in 19...
    1 point
  42. Marie70
    Wow!! Scott, Trent and Christiana thank you so much for your fast replies!! The information you have shared with me has helped me tremendously. Thank you for all the articles. I appreciate you all so much!! I’ll keep you posted in this post. I will encourage her to get tested. I feel a little better!
    1 point
  43. Brook G
    Years ago when I told my GI specialist that I'd like to be tested for Celiac he told me that being I had been gluten-free for over a year, I would test negative. In order to get an accurate reading I would have to eat a full gluten diet for 5 weeks. I agreed to do it and on the way home I stopped at the grocery store and stocked up on my favorite breads...
    1 point
  44. trents
    Welcome to the forum @cameo674! First, let me correct a misconception you have about celiac disease and intestinal anatomy. Celiac disease does not affect the colon. It damages the lining of the small bowel which is on the other end of the intestinal track from the colon. The small bowel, the duodenum, is the part of the intestines right below the stomach...
    1 point
  45. Scott Adams
    Celiac.com 02/04/2025 - Za'alook is a traditional Moroccan salad made with eggplant and tomatoes, seasoned with aromatic spices. It’s a popular mezze served both warm and cold and pairs beautifully with other Moroccan dishes. Historically, ...
    1 point
  46. Celiacandme
    You might also be sensitive to other things while you are healing. Dairy, for example. It won't harm you from a celiac standpoint but is inflammatory and could be bothering you. Have you been keeping a food & symptom journal? Might be worth it for a week to see if you notice something you are eating prior to the times you feel your worst. I hope you start...
    1 point
  47. dublin555
    Typical of how celiac can slip through the cracks. If the biopsies keep coming back negative, I’d start questioning whether the tests are being done right or if there’s something else going on, like non-celiac gluten sensitivity or another autoimmune issue. It’s maddening how hard it can be to get straight answers.
    1 point
  48. trents
    See attachment which is excerpted from this article:
    1 point
  49. knitty kitty
    Welcome to the forum, @Kiwifruit, I agree further testing is needed. Disaccharidase deficiency is a symptom of Celiac disease. On your test results, this line "IgA: 0.9 g/l (norm 0.8 - 4.0)" is referring to Total IgA and it's very low. People with low or deficient Total IgA should also have DGP IgG test done. Low Total IgA means you are making...
    1 point
  50. trents
    Welcome to the forum, @Kiwifruit! Were you on a reduced gluten diet when those blood tests or the biopsies were done?
    1 point
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    • trents
      Yes, I'd like to know also if a "total IGA" test was ever ordered. It checks for IGA deficiency. If you are IGA deficient, it will likely render the individual celiac IGA antibody tests invalid. Total IGA goes by other names as well:  Immunoglobulin A (IgA) Test Serum IgA Test IgA Serum Levels Test IgA Blood Test IgA Quantitative Test IgA Antibody Test IgA Immunodeficiency Test People who are IGA deficient should have IGG tests run as well. Check this out:    I am also wondering if your on again/off again gluten free experimentation has sabotaged your testing. For celiac disease testing to be valid, one must be eating generous amounts of gluten for weeks/months leading up to the test.
    • Scott Adams
      I’m so sorry you’re going through this—it sounds like you’ve been on a really challenging journey with your health. Your symptoms (stomach pains, bloating, low iron, joint pain, brain fog, etc.) do sound like they could be related to gluten sensitivity or another condition like non-celiac gluten sensitivity (NCGS). It’s interesting that your bloodwork hasn’t shown celiac markers, but the lymphocytosis in your duodenum could still point to some kind of immune response or irritation, even if it’s not classic celiac disease. The fact that your symptoms improved when you went gluten-free but returned when you reintroduced gluten (especially with the donut incident) is a pretty strong clue that gluten might be a trigger for you. It’s also worth noting that symptoms can be inconsistent, especially if your body is still healing or if there are other factors at play, like stress, cross-contamination, or other food intolerances. Do you have more info about your blood test results? Did they do a total IGA test as well? 
    • KDeL
      For years, I have dealt with various gluten related symptoms like stomach pains, bloating, IBS-C "ish" digestive issues, low iron, low Vit D, joint pains, brain fog, and more. I finally got a double scope and stomach looks clear, but I have some lymphocytosis of the duodenum. I am wondering if this sounds familiar to anyone, where I have not shown celiac red flags in bloodwork IGA tests. WIll be following up soon with GI Dr, but so far, my symptoms are intermittent. I go back and forth with gluten-free diet (especially this past year.... did two tests where the stomach pains I had went away without gluten in diet. HOWEVER, I added it back a third time and I didn't get the pains)   Anyway, I am so confused and scared to eat anything now because I recently had a few bites of a yeasty donut and I immediately got so sick. Any thoughts??
    • Peggy M
      Kroeger has quite a few Gluten free items.  Right now they are redoing my Kroeger store and are adding everything into the regular sections.  Since this was done some new ones have been added.  Publix and Ingles also have great selections. I actually shop Walmart and Food City to since prices on some items vary from store to store.
    • Scott Adams
      Sorry but I don't have specific recommendations for doctors, however, starting out with good multivitamins/minerals would make sense. You may want to get your doctor to screen you for where you different levels are now to help identify any that are low, but since you're newly diagnosed within the past year, supplementation is usually essential for most celiacs.
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