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Showing content with the highest reputation on 01/05/2023 in all areas
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Hi, so sorry to hear of your problems. Is it possible to get a blood test where you are to test for celiac? Not invasive. Anyway, I literally felt awful when I stopped gluten. Basically your body is going through withdrawals similar to alcohol. It took a month before I felt better. I was eating gluten free, but packaged foods. About 4 months...3 points
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How long after diagnosis until you noticed improvement? What do you wish you'd known then?
Wheatwacked and one other reacted to LaLeoLoca for a topic
Choline was upvoted by my physician, and higher dose thiamine has also been ordered! Thank You to everyone for being such phenomenal, helpful mentors. I really can’t say how much this helps me. I was even able to walk around the house a little bit today, and take a bath too! Y’all have been so lovely. Thank you. PS my partner is going to the store tom...2 points -
Hair loss
Rogol72 reacted to knitty kitty for a topic
@Rogol72, You're right! All kinds of milk have them! I found this interesting.... Casomorphins and Gliadorphins Have Diverse Systemic Effects Spanning Gut, Brain and Internal Organs https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8345738/1 point -
I get very cold very easily
Scott Adams reacted to Seethefacts for a topic
Not yet, I wanted to get some opinions before going back. I've been to 4 different doctors, so I wanted to have some suggestions to run past them the next time. I really appreciate it Scott!1 point -
Weight loss or blood in stools
Scott Adams reacted to trents for a topic
Instead of Naproxen, have you tried one of the Cox 2 inhibitors like Celebrex? They are supposed to be easier on the gut because they only inhibit one of he two inflammation response generators. Our body continually rebuilds our stomach lining in response to low-level inflammation from stomach acid. This is a natural and necessary process. This is good inflammation...1 point -
Weight loss or blood in stools
Scott Adams reacted to Jim Chris for a topic
Yes. I have been on a very strict gluten free diet for 8 months. If I ingest any gluten, it really tears my stomach up. That's why I was wondering about the continued blood and weight loss. My gastronologist seems to think the bleeding has to do with my regimen of taking Naproxen morning and night. I take it because of arthritis in my spine mainly but also...1 point -
Electrolyte mixes with high potassium content?
Scott Adams reacted to Jenniferxgfx for a topic
Yeah, that's what I've been doing, it's just a bit tedious, and I'm not as exact as a manufacturer would (or should) be. It'd just be nice to have something I can pull off a shelf and dump into some water. I'm already cooking almost everything I eat from scratch, and I'm very tired.1 point -
Gluten free chicken broth
Scott Adams reacted to nightwolf8769 for a topic
Thank you very much!1 point -
Possible Symptoms of Celiac?
Charliexxx reacted to trents for a topic
Doctorsknownothing, if your mother has celiac disease, recent studies done in the past two years indicate there is very close to a 50% chance that you have or will develop active celiac disease. Have you suggested to any of your doctors that you would like to be tested for celiac disease. The first stage of testing involves a simple blood draw to check...1 point -
No problem @MiriamW. The Warburton's bread seems to have less ingredients likely to cause issues ... https://www.warburtonsglutenfree.com/products/supermarkets/white-loaf Regarding thinning hair, I've read that deficiencies in Zinc, Selenium and Iron can cause this. I've always had thick hair, but many years ago I noticed it going thin (at the Barber...1 point
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Hi there LaLeoLoca and welcome to the forum! I am so sorry you have had such a difficult journey. I am so glad to hear that you feel giving up gluten is making a difference. May I ask, have you been formally diagnosed with coeliac disease/non-coeliac gluten sensitivity (NCGS)? Now, everyone's recovery journey is different but for me I would say...1 point -
Blepharitis
Charliexxx reacted to knitty kitty for a topic
@Rogol72, Oh! Definitely, definitely, I understand about falling off the wagon...and into the cheese barrel! Sharp cheddar cheese! And chocolate ice cream! Argh! I blame it on the exogenous opioids in dairy. I get blepharitis and eczema everywhere afterwards. Not pretty. Very itchy. Vitamin A helps blepharitis in addition to omega threes...1 point
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I had been glutened from somewhere since I pretty much make all my food from scratch. I had to have an endoscopy which should gluten damage, had blood work which also indicated high gluten. 4 years ago when I had these tests my gluten levels were all in good alignment. It comes down to my levothyroxin accord brand that must have gluten in it. I switched to synthroid 3 weeks ago and have been doing much better and am able to sleep at night again. -
By PA Painter · Posted
That somes it up. It is worth mentioning GliadinX does not reduce symptoms for me at all. I also react to banana, avacado, cabbage, Oatmeal, and pecans among other things. If anyone else out there is like me, I had to eliminate gluten and all processed food before I could start to heal. I wish I had know this a long time ago. Thanks for the acknowledgement. -
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Thanks for sharing this detailed explanation. It’s really helpful to understand the differences between celiac disease and gluten sensitivity. I had no idea that gluten withdrawal could feel similar to addiction, and it’s great to have that context when considering how it affects people. It’s also good to know how important it is to continue eating gluten for accurate testing. I’ll keep all of this in mind! -
By PixieDixie · Posted
Yeah, hard for me to not eat salmon though it does cause varying degrees of irritation to the rash. Alright, guess I’m gonna have to be careful with iodine. Thanks for the article. -
By Parkrunner · Posted
I probably had celiac for 40 years, late 20s to late 60s, before being diagnosed. I was a runner and had mild intestinal symptoms most of the time. There was a couple of months in my late 40s where I had significant diarrhea every day for 6 weeks. Saw two PCPs about it and celiac wasn't on their radar. In my 30s, 40s, 50s, and 60s I had insomnia, hot flashes, night sweats, muscle cramps, muscle twitching, and cardiac arrhythmia. It took osteoporosis and fractured vertebrae before I got diagnosed. Long term undiagnosed celiac will lead to osteoporosis. Once you go gluten-free, symptoms should away eventually. But you may have other food intolerances. I happen to be lactose intolerant...
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