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    Scott Adams

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    Help to raise celiac disease awareness all this month. May is officially Celiac Disease Awareness Month!
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    WHEN WE FIRST ANNOUNCED THIS GLUTEN-FREE GETAWAY WE SAID THAT IT WAS THE MOST POPULAR EUROPEAN RIVER BOAT CRUISES IN THE SPRING AND USUALLY...
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    Announcing the Inaugural Gluten-Free Living Conference LIVE in Orlando, FL in April 2014! For almost 20 years Gluten-Free Living’s mission has been to help others live a happy, healthy glut...
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    The Las Cruces, NM Gluten-Free/Celiac Disease Support Group will meet on Saturday, November 17, 1:30 pm, at ASA Architects, 201 N. Alameda (across the street from Central Elementary School). We'll be joined by Dr. Daniel Hampton, local...
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    • Scott Adams
      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • trents
      None of your test results suggest celiac disease but your symptoms suggest either celiac or NCGS.  There is another test mode for celiac disease that might be pursued and that is an endoscopy with biopsy of the small bowel lining to check for the damage caused by celiac disease inflammation. This is the gold standard test for celiac disease and is usually done even when blood antibody test scores are positive. However, you might not find a physician willing to do the procedure in the absence of negative celiac antibody test scores. The absence of any positive celiac antibody test scores suggests that damage is not occurring to the lining of the small bowel. The endoscopy/biopsy would involve a referral to a GI doc. One question about your rash. Are there pustules in the bumps? This is characteristic of the rash associated with celiac disease known as dermatitis herpetiformis. My suggestion for you at this point would be to trial the gluten free diet for three months and see if your symptoms improve. If so, you likely have NCGS. If not, then you need to look in a different direction for answers to your health issues. If you do go on a gluten free diet, realize that you would need to go back on gluten for several weeks if you ever want to get tested for celiac disease again. Current guidelines for the "gluten challenge" recommend the daily consumption of at least 10g of gluten (the amount in about 4-6 slices of wheat bread) for at least two weeks prior to testing. But I would certainly give it more than two weeks to be certain of valid testing. I would also talk to your physician about your high immunoglobulin A Qn score. It may mean nothing but it can also be an indicator of some potentially serious health issues. You should google it. Here is a primer for getting off to a good start with eating gluten free:  
    • Nikki03
      This is what the exact results say…  Immunoglobulin A Qn -high 419 off chart  Deamidated Gliadin ABS, iga -2 (normal range)  T-transglutaminase (ttg) igg- 5 (normal range) T- transglutaminase (ttg) iga -2 (normal range) I was still consuming gluten when this test was done with tons of symptoms such as sick to stomach and throwing up daily no matter what I eat, random rashes and itching, painful joints, no energy and fatigue, gas, constapation, bloating, just overall unwell.  
    • Nikki03
      This is what the exact results say…  Immunoglobulin A Qn -high 419 off chart  Deamidated Gliadin ABS, iga -2 T-transglutaminase (ttg) igg- 5  T- transglutaminase (ttg) iga -2  I was still consuming gluten when this test was done with tons of symptoms such as sick to stomach and throwing up daily no matter what I eat, random rashes and itching, painful joints, no energy and fatigue, gas, constapation, bloating, just overall unwell.  
    • MichelleGrant
      I received my blood test results for celiac serology (attached file). Results were negative. Only thing not great is CRP at 5mg/L (indicating inflammation), High ferritin at 165 (also indicating inflammation). My doctor said to keep following a strict gluten-free diet and that my tolerance to gluten seems to have gotten worse, and created inflammation with all the diarrhea/ stomach issues. She said to also stay away from my other triggers which are alcohol, soy, legumes and some vegetables (eg. cabbage / cauliflower / brussel sprouts). I generally follow a low fodmap diet. The gluten-free diet is going well - things are returning to normal.
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