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What about digestive enzymes that I hear help? I take align 5x probiotics daily.

thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 

My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.

So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  

here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 

I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 

The normal ranges can vary for the tissue transglutaminase and gliadin antibody celiac tests because the units aren’t absolute.  Could you please tell us what the normal ranges are for the laboratory used? If her tissue transglutaminase results are 10-fold above the normal range some would diagnose her on that alone.  Endomysial antibody ranges are more standardized, and a titer of 1:5 would usually be normal.  Might that be the normal range and not her result?  Her total immunoglobulin A is normal for her age. (This is tested because if low, then the other IgA tests might not be valid).

Hello there! New to celiac community, although I have lots of family in it.  My two year old was just diagnosed with celiac disease based on symptoms and bloodwork.  symptoms (swollen belly, stomach hurting, gagging all the time, regular small vomit, fatigue, irritability, bum hurting, etc) she got tests at 18 months and her bloodwork was normal. She just got tested again at 2 1/2  because her symptoms were getting worse and these were her results :   Tissue Transglutaminase Ab, IgA 58.8 Unit/mL (High) Endomysial Antibody IgA Titer 1:5 titer (Abnormal)   Gliadin Antibody IgA < 1.0 Unit/mL Gliadin Antibody IgG 8.5 Unit/mL Immunoglobulin A 66 mg/dL Her regular pediatrician diagnosed her with celiac and told us to put her on the strict gluten free diet and that we wouldn’t do an endoscopy since it was so positive and she is so little (26lbs and two years old). I’m honestly happy with this decision, but my family is saying I should push and get an endoscopy for her. It just seems unnecessary and an endoscopy has its own risks that make me nervous. I’m certain she has celiac especially with it running in mine and my husbands family. We are now thinking of testing ourselves and our 5 year old as well.  anyways what would y’all recommend though? Should we ask for an endoscopy and a GI referral? (We are moving soon in 5 months so I think that’s part of why she didn’t refer us to GI)    

This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too color coding and baking G F first makes a lot of sense.   You are not confusing yourself  you have got it right. Thiamax (TTFD) plus a B-complex, and if you want benfotiamine, the Life Extension formula covers that at ~100 mg.

High fiber can definitely cause sudden GI distress especially if it’s a new addition but accidental gluten exposure can feel similar. Keeping a simple food/symptom log and introducing new gluten-free foods one at a time can really help you spot the pattern. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense. This is really helpful  I had not considered sugar alcohols or inulin as triggers. Thanks for the practical baking tips too; color-coding and baking gluten-free first makes a lot of sense.

sorry a bit confused so I should take my B complex along with Objective Nutrients Thiamax for TTFD but what about a Benfotiamine to take. The Life extensions contains Benfotiamine and Thiamine together or im confusing myself. I am trying to see if I take Thiamax what should I take for Benfotiamine. Thanks EDITING after further research I see ones water soluble ones fat soluble. So I guess 100MG as you suggested of Life Extension contains Benfotiamine and Thiamine Hydrochloride. and the Objective Nutrients Thiamax contains TTFD.     would work for me.

I put on over 12kg by eating protein with every meal, 3 to 5 times a day. Eggs, Chicken, Tuna, Turkey etc. I stay away from too much red meat as it can be inflammatory. Scott is correct. I've come across a bunch of Coeliac PT's on Tiktok and Instagram. They all say the same thing, the key is getting enough protein and consistency.

I am just sharing this newly launched app:  

It's great to hear that eliminating gluten has helped alleviate symptoms like eye burning, which is a significant and positive change. The first and most important step is to ensure you're consuming enough protein throughout the day to support muscle repair and growth, which can be challenging with a busy schedule. Since you're already physically active at work, adding focused strength training just 2-3 times per week can make a major difference. Bodyweight exercises like squats, push-ups (modified if needed), and lunges, or using resistance bands at home, are excellent, efficient places to start. Remember, consistency with these short sessions and prioritizing post-workout recovery, including good sleep and hydration, are just as crucial as the workouts themselves. It's a smart, gradual process at any age.

That's terrible! This article, and the comments below it, may be helpful:    

Trader Joe's carries a good variety of affordable gluten-free foods like bagels, hamburger buns, pasta, etc. I like Franz Gluten Free bread, which is available at my local Costco. Food For Life and Little Northern Bakehouse (advertisers here) also make excellent gluten-free breads. Costco also sells gluten-free pizzas, crackers, gravy, etc.

No, Life Extension contains Benfotiamine and Thiamine Hydrochloride. Objective Nutrients Thiamax contains TTFD.     I take both of these and a B Complex.  

what Benfotiamine should I take as Life Extension contains both Ben and TTFD.

I take both Benfotiamine and TTFD.   You might want to start with the Benfotiamine for a few days and then add in the TTFD.   You can look for NeuroMag (Magnesium Threonate).  A magnesium glycinate is fine, too.  Doctor's Best is a good brand.  Don't take more than 300mg total per day of magnesium or it may have a laxative effect.   Be sure to take the B Complex.  The Benfotiamine and TTFD will need the other B vitamins.  

Life Extension Benfotiamine with Thiamine has 100MG of Ben and 25 of Thia..... Do you think this is the one I should take or Objective Nutrients Thiamax (TTFD) which has 100MG Thiamine. How much magnesium should I look for? I take the womens 50+ multivitamin since consumerlabs stated and tested that it has the right amount of vitamins and not too much for men and doesn't have BHT which has shown to cause liver cancer in animals. I was never big with multivitamins as well as doctors I just read when I was first going gluten free to take a multi but I think I will stop them and work on trying the super B Thia and Ben, Mag.  

Hi all I’ve been celiac for 4 years now, I’ve done pretty well to avoid it thus far. Last night I took the wrong pizza out of the freezer and ate the whole lot!! The non gluten and gluten pizza boxes are both very similar.   2 hours later I was throwing up violently on my hands and knees over the loo.  .horrendous stomach pains,  My hair was wet from sweat every part of my body was wet. What an awful experience, just had a bad headache today  fortunately.    Is their any products/pills anyone takes if they have realised they have just been glutened to make the symptoms a little less worse.  thanks  

Yes, do take your B Complex with Benfotiamine or Thiamax.  Thiamine interacts with each of the other B vitamins in the B Complex to make energy and enzymes, so best to take them together earlier in your day.  Taking them too close to bedtime can keep you too energetic to go to sleep.   The Life Extension Benfotiamine with Thiamine is Benfotiamine and Thiamine Hydrochloride, another form of thiamine the body likes.  The Thiamine HCl just helps the Benfotiamine work better.   Read the label for how many milligrams are in them.  The Mega Benfotiamine is 250 mgs.  Another Benfothiamine has 100 mgs.  You might want to start with the 100 mg.    I like to take Thiamax in the morning with a B Complex at breakfast.  I take the Benfotiamine with another meal.  You can take your multivitamin with Benfotiamine at lunch.   Add a magnesium supplement, too.  Thiamine needs magnesium to make some important enzymes.  Life Extension makes Neuro-Mag, Magnesium Threonate, which is really beneficial.  (Don't take Magnesium Oxide.  It's not absorbed well, instead it pulls water into the digestive tract and is used to relieve constipation.)  I'm not a big fan of multivitamins because they don't always dissolve well in our intestines, and give people a false sense of security.  (There's videos on how to test how well your multivitamin dissolves.).  Multivitamins don't prevent deficiencies and aren't strong enough to correct deficiencies.   I'm happy you are trying Thiamax and Benfotiamine!  Keep us posted on your progress!  I'm happy to answer any questions you may have.  

I looked further into Thiamax Vitamin B1 by objective nutrients and read all the great reviews. I think I will give this a try. I noticed only possible side affect is possibly the first week so body adjusts. Life Extensions carries Benfotiamine with Thiamine and the mega one you mentioned. Not sure if both in one is better or seperate. some reviews state a laxative affect as side affect. SHould I take with my super B complex or just these 2 and multivitamin? I will do further research but I appreciate the wonderful explanation you provided on Thiamine.

Thanks I am mostly looking for everyday staples and easy meal ideas nothing too specialty if possible.

There are other Celiac genes. HLA DQ 2 and HLA DQ 8 show up in people from Northern European descent.   People of Mediterranean descent have HLA DQ 7.  People of Asian descent have HLA DQ 9.   There's other Indigenous populations that have other HLA genes that code for Celiac disease.   Are you still having symptoms?   What do you include in your diet?  Are you vegetarian? Are you taking any prescription medication?  Omeprazole?  Metformin?   Do you have anemia?  Thyroid problems? Are you taking any vitamins or herbal supplements?  

There are eight essential B vitamins.  They are all water soluble.  Any excess of B vitamins is easily excreted by the kidneys.   Thiamine is Vitamin B 1.  Thiamine is safe and nontoxic even in high doses.  Benfotiamine and TTFD are forms of Thiamine that the body can utilize very easily.   The form of Thiamine in the supplements you mentioned is Thiamine Mononitrate, a form that the body does not absorb well and does not utilize well.  Only about thirty percent of the amount on the label is actually absorbed in the small intestine.  Less than that can actually be used by the body.  Manufacturers add thiamine mononitrate to their products because it's cheap and shelf-stable.  Thiamine and other B vitamins break down when exposed to light and heat and over time.  Thiamine Mononitrate is a form that does not break down over time sitting on a shelf waiting for someone to buy them.  What makes Thiamine Mononitrate shelf stable makes it difficult for the body to turn into a useable form.  In fact, it takes more thiamine to turn it into a useable form.   Gastrointestinal Beriberi is a localized shortage of Thiamine in the gastrointestinal tract.  High carbohydrate meals can result in gastrointestinal symptoms of Gastric Beriberi.  Fiber is a type of carbohydrate.  So, high fiber/carbohydrate snacks could trigger Gastric Beriberi.   Since blood tests for Thiamine and other B vitamins are so inaccurate, the World Health Organization recommends trying Thiamine and looking for health improvement because it's safe and nontoxic.  

Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.

Neg for HLA dq8 and dq2

How can you be negative for HLA?   What markers did you have here? Curiouser and curiouser...  

Yes, I have noticed a big difference.  I had serious malnutrition symptoms that my doctors couldn't figure out, so they blamed me, said I was "depressed" and washed their hands of me.  At home, I could feel myself dying, and, with nothing left to lose, I relied on knowledge from my microbiology and nutrition classes at university.  I went gluten free.  I started taking vitamins according to my nutritional deficiency symptoms.  Vitamins worked.  My health improved.  Now I'm here to help others.  Celiac disease causes malabsorption which results in malnutrition.  Doctors don't recognize the symptoms of Celiac disease and malnutrition. Benfotiamine has been shown to promote intestinal healing and digestion, improves diabetes and neuropathy and much more.  TTFD (Thiamax or TTFD-B1 Max) helps with brain function, neuropathy and lots more.  Every cell in the body needs thiamine to make energy so the cell can function.  Without sufficient thiamine, mitochondria die.  Every cell also needs thiamine and the other B vitamins to make life sustaining enzymes.  Thiamine has antiviral and antibacterial properties.   We may not be getting sufficient thiamine from our diets if we eat a lot of carbohydrates.  The more carbs one eats the more thiamine is needed to process them into energy.  If there's insufficient thiamine, the body stores the carbs as fat. This is called high calorie malnutrition.   We may not be getting sufficient thiamine from our diets if we eat a gluten free diet.  Gluten free flours and processed foods are not required to be enriched nor fortified with vitamins and minerals like their gluten containing counterparts.  Meats are the best sources of thiamine, but some veggies (beans, potatoes, squash) and fruits (citrus and berries) contain some thiamine.    Explore thiamine more here: https://hormonesmatter.com/thiamine-deficiency-causes-problems/

Yes, I would be good with the diagnosis.  While NCGS isn't a malabsorptive disease like celiac disease, inflammation and restricted diets can impact Vitamin D levels.  Recovery from either disease requires avoiding gluten.  celiac disease may take a longer recovery than NCGS because in celiac disease there is intestional damage to the cilia that has to self repair in addition to the nutritional deficiencies.   Nonceliac Gluten Sensitivity Dr. Weston Price's research in the 1930s showed that diets rich in minerals and fat-soluble vitamins (A, D3, K2) promoted well-mineralized teeth, while deficiencies led to weaker enamel. Fatty liver, Intermittent diarrhea, Severe abdominal distension Choline deficiency causes abnormal deposition of fat in the liver, which results in a condition called nonalcoholic fatty liver disease. In some people, choline deficiency causes muscle damage. https://lpi.oregonstate.edu/mic/other-nutrients/choline    Choline is a large part if the bile salts for fat digestion, Acetycholine, a neural transmitter, mitochondria membrane structure, and along with folate, B12, and B6 recycles homocysteine  High homocysteine can damage artery linings. Low vitamin D levels are associated with increased symptoms of depression and anxiety,  autoimmune diseases and most of your symptoms.    

Yes, if you are convinced gluten is causing you problems then it would seem to come down to NCGS but you may also have other intolerances.

There are huge categories of gluten-free foods, are there any particular types of foods that you are trying to find?

Ended up demanding HLA and I’m negative for both. So assuming this is NCGs now? PCP seems unsure and GI is referring to genetics which I don’t get.  about to lose my mind

suggest me best gluten free food thank you

You are definitely not alone aftertastes and denser interiors are really common with gluten-free baking. Oat and tigernut flours are great choices, and tweaks like extra egg or adjusting hydration are exactly the kind of trial and error that usually leads to better texture over time.

Sounds wonderful!  Perhaps we could ask for everyone to send in ONE cookie recipe, Gluten-free of course.....unless that would swamp webpage with too many recipes - just a thought, happy munching.   

Thanks for the info. Yes I am aware about the testing but I don't want to eat gluten again and go through the pain to get tested. I will speak with my doctor in March about it but I heard next year they should have the blood test where they add gluten to see results instead of forcing to eat gluten over the long period to get tested. Either way I know I feel so much better w/o gluten so I know I am on the right track just trying to gain more knowledge on it as I continue the journey. When I eat out a few restaurants were very helpful in assisting what I can eat and I felt fine so I have my safe restaurants. Eating at home I have been better its just with family scheduling with young kids its a bit harder to cook but I have started to incorporate gluten-free so its been a bit better but just tired of same foods so I will have to adjust and hosting the holidays this will be challenging but I know how to bake cookies gluten-free so I feel better lol. I take a multivitamin and B-Complexes Kirkland Signature Super-B Complex  was rated as the best on consumerlabs as they independently test for safety absorbtion gluten free etc. I have to ook into the ones you take to see if it will benefit me as I see you also take thiamax and benfotiamine. I need to look into each but do you noticed a difference since taking them?

Be aware that going gluten free prior to testing may cause worsening symptoms when gluten is reintroduced for the gluten challenge.   The updated gluten challenge guidelines state that TEN grams of gluten (equivalent to 5 to 8 slices of bread) be eaten daily for a minimum of two weeks.  THREE grams of gluten is sufficient to produce symptoms, but it's not enough to provoke the increase in antibodies needed for blood tests.  (See article below.  Be sure to read the comments.)  So, your "lil gluten contamination"  may not have been enough to trigger that autoimmune response to the point you would notice. Not all symptoms of Celiac disease have to do with digestive problems. There are over two hundred symptoms of Celiac disease. There are symptoms that can manifest in other parts of the body.  Joint pain, skin problems, migraines, problems with other organs like the gallbladder, pancreas, thyroid.  Some nutritional deficiencies cause other health problems.   I take Life Extension Mega Benfotiamine.  I take Objective Nutrients Thiamax (TTFD),  or Maxlife Natutrals TTFD-B1 Max.   I like these because they don't contain rice flour fillers, and they are gluten free.      

Thanks do you take it? What brand? Is have to check consumerlabs for which is best 

Benfotiamine and the other B vitamins help repair damaged tissue, like the intestines, and they help build muscle.

I haven't had any tests for celiac. I didn't think I'm celiac based upon symptoms as I noticed no issues with lil contamination but I'm the sitting when I go for yearly physical I will get more info on testing etc. I stopped taking multivitamins to see if I noticed any differences. What would benfotiamine do for me? Thanks

The low histamine version of the AIP diet excludes bone broth and fermented foods as these are high in histamine.  Fish is also high in histamine usually.  Some Celiac people are lactose intolerant because their damaged intestinal villi can't produce the enzyme lactase needed to digest dairy.  Some Celiac people react to the protein in dairy, Casein, which can trigger an autoimmune response the same as that towards gluten.  Some people are genetically predisposed to stop making lactase as they age.   A high fiber diet can make SIBO worse.  The SIBO bacteria ferment that fiber which can result in worsening symptoms like gas and bloating.   The multivitamins and B Complex you listed in another post both contain Thiamine Mononitrate.  Thiamine Mononitrate is not a bioavailable form of thiamine.  The body has difficulty absorbing and utilizing it.  Only thirty percent of thiamine mononitrate is absorbed and even less is utilized.  Thiamine Hydrochloride, Benfotiamine and TTFD (tetrahydrofurfuryl disulfide) are much better for your body.  Keep taking what you have, but add Benfotiamine, and you'll see a big difference.   Have you had a genetic test to look for the most common genes for Celiac disease?  You may want to get a DNA test done before you attempt a gluten challenge.   Keep us posted on your progress!

I have noticed that I know that I am now 48 and I work in a very busy deli on feet all day around gluten but noticed since I started eliminating gluten even though I am around the bread all day my eyes used to burn like onions were being cut have gone away. But I don't feel weak like when I first started but I feel as If I need to build muscle which I am trying to figure out best steps to build muscle Thanks

I just looked up AIP what to et and the ones I dont are Bone Brother, Ghee, Collagen, Fermented foods or fish. I am not big with fish but if I do it would be Wild Planet skip jack albacore pole caught which has lowest mercury tuna. I avoid Gluten as much as possible. I am lactose so I avoid dairy for years. During my 9 months gluten-free I have had eggs,  nuts/seed, potatoes, peppers, coffee w/o issue. I have avoided sugar alcohol and alcohol. I am thinking I had a Trubar and IQ bar both gluten-free but I think the fiber count put me over as the Trubar was 12g IQ bar was 9 plus Bobs oatmeal in the morning I think put we way over the top of fiber. I will keep on watching what I eat. Thanks

First time I heard of aip what is it?

Don't feel bad!  I've made the same mistake!   @Scott Adams's article is enlightening.  Wait until you are more fully healed before trying questionable products.   I found following the Autoimmune Protocol Diet, AIP diet, most helpful for healing.  Have you tried it?

@EndlessSummer, You would do well to get checked for anemia.  I had those dark circles under my eyes when I was anemic.  Fatigue and muscle weakness are early symptoms of nutritional deficiencies, especially in the eight B vitamins, and essential minerals like iron and magnesium.   The malabsorption of essential nutrients goes along with Celiac disease and needs to be addressed.  Doctors tend to overlook the importance of vitamins and minerals.  Get more than just B12 and Vitamin D checked.  It's rare to have a deficiency in just one vitamin or mineral.  The Celiac disease, the absorption of all the nutrients are affected.  The eight essential B vitamins all work together.  All eight are needed to correct deficiencies.  A multivitamin is not sufficient to prevent nor correct nutritional deficiencies.  Talk to your doctor and dietician about supplementing with a B Complex and other nutrients while you are trying to heal.   B vitamins are needed to make digestive enzymes so we can digest our food better.  Food has to be digested in order for the vitamins and minerals to be released and then absorbed.  This can be a slippery slope.  Supplementing with B Complex vitamins can help. B vitamins and Vitamin C help reduce inflammation and clear histamine.  Histamine is released during the immune response to foods to which we're sensitive.  Mast cells that make and release histamine can become over stimulated and release histamine at the slightest provocation.  Thiamine B1 helps the mast cells to NOT release histamine.  Ask your doctor and dietician about Mast Cell Activation syndrome. I found following a low histamine paleo diet very helpful.  I followed the Autoimmune Protocol diet developed by Dr. Sarah Ballantyne (a Celiac person herself) most beneficial.   The AIP diet removes lots of foods that are potentially irritating so that your body can heal.  Benfotiamine a form of Thiamine B1 helps the digestive tract heal.  Tryptophan, lysine and theanine (all essential amino acids) help us heal, too.   Many new Celiacs also have SIBO which can cause ongoing digestive problems and contribute to Mast Cell Activation syndrome.  The SIBO bacteria feed off the excess carbohydrates we aren't digesting.  The AIP diet cuts out carbs, which in turn starves out the SIBO bacteria, allowing more beneficial bacteria to repopulate the digestive tract.   I had vast improvement within a few weeks following the AIP diet.  I had gotten down to being able to eat two foods before finding the AIP diet.  It really does work.  It's like feeding a colicky baby easy to digest foods giving the body time and vitamins needed to heal. I do hope you will discuss these with your doctor and dietician.   Do take care and let us know how you are progressing!  Best wishes!

No I haven’t been checked for the nutritional deficiency. My family has commented that I look like I may be lacking some kind of vitamin. Because of the pink circles under my eyes and just general tiredness and weakness I feel all the time. Thanks for the reply!

I use to see a dietician years ago and she recommend I cook my  vegetables which worked for a while.  The reason I can’t eat other vegetables is because it messes with my stomach. This is the first time I’ve gotten dizzy and sweaty upon eating veggies though. The only vegetable that I’m able to tolerate so far are cucumbers.  I have been in the process of eliminating food over the past few years that I don’t seem to tolerate. Going to add this to the list unfortunately. Thanks for the reply.  Thank you. I do have an epi pen I’ve been renewing for a few years now since tree nut allergy diagnosis. I haven’t seen allergist in some years.  It’s so bizarre as the list of food I’m able to tolerate seems to get smaller and smaller. But I’ll look into making an appointment with my allergist. Thanks again. 

I've had some really excellent cookies since I've been on the gluten-free diet. One, from my sister had no flour at all. It was mostly cocoa and ? Another was a gluten-free ginger snap was also very good. I think the strong ginger flavor helps cover some of the off-tastes from wheat substitutes. My stand by is gluten-free Chips Ahoy. Pretty tasty but I over do them. Biggest disappointment: gluten-free Oreos. Mostly because they stick to my teeth really bad.

Thank you so much for your reply.  Last night I did eat a smaller amount for dinner but I'm not chewy like you mentioned, but, I will start that today.  🙏🏻❤️✌️

Perhaps the takeaway from this is that you can help others who may have symptoms of celiac disease but flying under the diagnostic radar of the medical establishment to advocate for celiac testing themselves. Our community has painfully discovered that passively trusting the medical establishment to run the appropriate tests is a paradigm that doesn't work. We have found that it is necessary to be appropriately assertive.

To hear others also had issues being diagnosed by the medical system in other countries takes away some of the frustration and anger by being  misdiagnosed for so many years.  

Thanks again so much. I’ve been working harder on my vitamin supplement and an anti-inflammatory diet regimen. Today I got results back and it was a totally normal comprehensive metabolic profile- yay! I do feel a lot better too. I’m avoiding a lot of foods (way more than just gluten) but I think it’s helping and the supplements are needed too. Much appreciate your feedback on this forum.