CATRYNA

6 hours ago, Guest jasmith said:

What the heck is "first degree relatives" ?????????????

5 hours ago, cyclinglady said:

It includes your parents, brother and sisters, and your kids.  

In my family my grandmother had Celiac. She was born in 1908 and interestingly enough even as a child she could not drink milk from their cows during the winter when the cows were on feed, but once they were let loose to forage on their own during the spring and summer months my grandmother had no problem with drinking their milk. So, obviously she had an allergy to grasses. I was diagnosed with Celiac in 2011, but I can look back and realize that I probably had a problem in the early 70's. I have also suffered Celiac skin disorder called Dermatitis Herpetiformis for at least 20 years. I have one grandchild who was been diagnosed for Celiac at age 7. She is 11 now and has to have a special meal prepared at school because of this. There are other grandchildren in the family that I would also include as Celiac, but they have not been tested. Because of my mother's disorders, I would safely assume that she too, was Celiac. It's a mess, for sure!

On 11/16/2018 at 2:29 AM, sc'Que? said:

A biologist friend from a major research university attempted to clarify what he meant when he stated that what this article proffers is NOT A VACCINE. He clarifies using my own example of taking small, daily doses of wildflower honey to help acclimate the body to the local pollens: 

"Vaccines purposely cause an immune response so you only really need the shot in a longgg while for a particular pathogen (assuming it will not mutate often like the flu!). A vaccine is given to train the immune system to have a proper, fast response to a pathogen. The daily-dose of local wildflower honey is small to avoid a strong allergenic response, which is a more specific type of immune response triggered by the production of too much IgE (allergy and parasite specific antibody). This is not a vaccine but is called immunotherapy instead because certain T cells are trained to help lower the amount of IgE present in response to an allergen.

"The Celiac 'vaccine' is more akin to immunotherapy in allergies because you are avoiding the immune response and are instead trying to get the immune system to better regulate itself so it does not attack your gut when you are exposed to glutin. If it were a vaccine then it would be training your immune system to have a stronger response to gluten, which would be bad."

At almost 70 years of age, I have no trust in the medical establishment or pharmaceuticals. I have suffered enough from vaccines and autoimmune issues since the age of 13 (1963) and so called desensitizing shots in 1980. 

31 minutes ago, Guest Vaccines safety said:

As a physician I can confidently state there is no contraindication for vaccination in people who have autoimmune diseases.  While this phase 2 trial is not a long enough duration to confirm long-term effectiveness or safety it is a start to potentially developing a cure.  Many people have difficulty adhering to a gluten-free diet or even access to good gluten-free foods and even some who adhere to the diet can still be affected by the disease and this is a promising medical breakthrough.  I am assuming by the statement made above that you do not have a scientific background or sound evidence to support your statement since the statement is medically false.  There are incidences where those with autoimmune disease who are on immunosuppression may not have as robust response to vaccination (meaning it may not work as well as in those who are not on immunosuppression) but it does not harm them or damage their gut.  I certainly respect individuals have a right to their opinions regarding vaccination but object to spreading false information. 

Oh please. " Spreading false information." Get real!  The adjuvants in vaccines are supposed to stimulate the immune system/response. That is the last thing a person with autoimmune issues needs. Our immune systems are already rolling out of control. We don't need more of the same.

8 hours ago, Guest Dee said:

Do I have Celiac?  I dont know,  I went gluten-free while on Adkins diet.  After staying   gluten-free for 3months, my TGG test was negative.  But all my previous rheumaroid factors (  I do have APLS -a lupus related lood disease)  fell from high  to  what one hematologist called " boring."  Every doc who has compared my before and after blood work has told me to stay off gluten, despite a lack of clear Celiac dx.  Since that life changing event, I have dived deeply into the dark, Functional Med side of health care, and I now know that gluten, as well as other grains and sugars and chemicals cause other, only newly discovered hormone cascades and gut biome destrunctions which are not all dependent upon the immune system.  No vaccine is going to change those cascade trajectories.  So yes, I miss croissants being able to eat at church pot lucks without having to find and grill the cooks about  ingredients, but I will never, EVER go  back to eating a delightful poison! gluten-free is not a fad diet.  Now that we have computers that speed our processing of complex biologic data it becoming more and more evident that our current " name it and blame it" medical approach is waaaay too simplistic! 

Guest Dee    You nailed it, girl! I agree whole heartedly to everything you said. I have Hashimotos, Celiac and DH. As far as I'm concerned, anyone with an autoimmune issue, should not eat gluten nor ever get a vaccine. Aside, from the nasty ingredients in vaccines, the very fact that vaccines are noted to stimulate the immune system would be detrimental to anyone who has an immune system that is already out of control. Kudos to you, for getting to the bottom of your problems and moving ahead proactively. 

On 11/7/2018 at 3:38 PM, mmcauntie said:

I had DH for about 7 years before someone figured out it was related to celiac disease. Currently have it on both elbows and scalp. Thank God I have thick dark hair! Disgusting.

I, too, had DH for many years before I was diagnosed with Celiac and then it was another 7 years before I figured out the itchy blisters on my scalp were not ingrown hairs, but DH. I had to change all of my topicals; shampoo and conditioner because they had ingredients that were causing the problem and also I found that Iodine greatly compounded the problem from just my scalp to my back, arms and chest. Here is a list of some of the ingredients;

Avena sativa (oats)

Beta glucan (frequently derived from wheat)

Colloidal oatmeal

Dextrin palmitate (starch, possibly gluten-based)

Vitamin E (frequently derived from wheat)

Hordeum vulgare (barley)

Hydrolyzed vegetable protein (may contain wheat)

Hydrolyzed wheat protein

Laurdimonium hydroxypropyl (hydrolyzed wheat protein)

Malt extract (usually barley)

Secale cereale (rye)

Stearyl dimonium hydroxypropyl (hydrolyzed wheat protein)

Triticum vulgare (wheat)

Vegetable protein (may contain wheat, barley, rye and/or oats)

Wheat germ oil

I am now grain free and things are much better. But, being in a household of 7, with 2 of us being Celiac does have its challenges.

I wouldn't touch this with a ten foot pole. Celiac is an autoimmune disorder and no one with autoimmune issues should be getting any vaccines, and vaccines are notorious for causing gut issues. Our guts are already ruined enough without adding insult to injury.