Yenni

So what are the symptoms of Crohn's? I though you had to bleed...Possibly have puss in the stool. In general very different symptoms than GI gives.

I have to say this is a very interesting discussion.

Have you tried taking digestive enzymes? Gas can be caused by undigested food sitting somewhere in the intestinal tract. It just sits there and basically ferments, causing gas. This type of gas usually has a bad smell to it as well. I take digestive enzymes and they really help me. Actually since going gluten free and taking the enzymes I rarely have gas at all anymore. Before going gluten free it used to be so bad that I would call in sick at work!!

Hope you find something that works for you.

Marlene

Thanks! I'll look into that.

He's mentioned as a researcher for genes for celiac.

I haven't finished the book yet so I haven't gotten all of my facts right about that one.

I found this too: Open Original Shared Link

Had some good info I thought.

Yes, the yoga stretching helps me alot. Heartburn was always my major symptom too before the watery "d" came on really strong one year ago, along with bouts of major gas (like i was playing an instrument in the morning or something ). The heartburn was everyday for the past 6 years until i stopped the gluten 5 months back. It sounds like you caught yours early enough before things got even worse...because the crawling thing (intestinal gas) started after the watery "d" came on.

I got D about 4½ years ago too. To tell you the truth I think I actually had D before Heart Burn.

I used to go many times a day. It actually got better, but not good, and the heart burn just got nastier and nastier. I woke up every morning with sore throat, got soars in my throat. I used to swat the herat burn was so bad. I have tried every singel anti acid pill out there. Even taken two different kinds at the same time. Protonix was the only one that made it some what bearable. Crazy. No doctors had any good ideas to give me. They used to used say "don't smoke, don't drink coffee..."and all that. And I had never even started with any of that.

Now my heart brun isn't as sever. Much better in fact. I still have it though. A little every day. But not 24/7.

Anyone ever feel like something is alive and crawling around inside of you??

I don't have the crawling thing but I sure feel I have a BIG stomach.

I got a stronger Xgas pill today. Seemed it helped a bit better. Didn't eat much carbs either. Maybe that helped too..

I am on Protonix (double dose already, the Prilosec was like sugar pills to me.). Not sure if that one makes any difference with the bloating. Helps taking away the tip of the iceberg of the heart burn.

Heart Burn has always been my worst symptom. 24/7. No matter what I take. No matter what I do. That has gotten a bit better since I stopped with Gluten.

I'll have to try that Yoga "move".

Have you guys read his Essay and SlideShow of Research on the EnteroLab page?

He was mentioned as a author of a book in Dangerous Grains too. Or if it was a paper, not a book..

I read a book called Tired of Being Tired by Jesse Lynn Hanley, M.D. It was really good and outlined a plan to heal from adrenal fatigue. I am going to a doctor who also practices holistic medicine, so is working with me to overcome it as well. You can learn a lot from googling adrenal fatigue and adrenal bunout, but the book gets into much more detail.

Lots of rest is important, several small meals eating whole foods featuring protein at every meal, more rest, lower stress, more rest , no sugar, no alcohol, no caffeine, no processed foods, bed by 10, sleep in if you can, light exercise. It actually makes gluten-free seem easy!!! After a couple months of this, plus I've been having acupuncture (that's how desperate I was ... and it seems to help), and far-infrared sauna daily, I am starting to get better. The doctor says it takes a year.

I think most of us who are ill actually have it ... sometimes going gluten-free is enough to get better and the adrenals will heal themselves, but some of us need a little more than that. I had gotten to the point where I couldn't get out of bed much. Now I have good days and bad days.

That is actually how I live. Hehe. That is a good thing anyways. I don't work and I take it easy most of the time. Eat often, sleep lots. So at leat that is something I have got going for me.

I got better after my burn out by have a feeling I kinda got it again with getting sicker and sicker.

Thanks!

Oh and I did a search on that stuff/book you mentioned (I think It was last week-you mentioned it to me in another thread). Seems I can have that. I meant to ask how to get better earlier.

I totally agree about the part wher you gradually get worse and worse with better times inbetween and then the bad just takes over more and more.

Funny, I used to be a very healthy peron. I didn't even get colds much. Then after the burn out and this stupid stomach I get everything.

As a career scientist (not in medicine) I'll make a few comments addressing why doctors generally do not feel any requirement to justify not agreeing with something. Hope this doesn't sound too pedantic.

Most of what we call progress in the last couple of centuries has been made based on use of the "scientific method". This method is based on having observable evidence for any proposed new claim. Equally important is to publish this experiemental data along with the experiemental method that was used and then have other independent scientists repeat the experiment and get the same result. If these independent observers find the same evidence, then the claim is considered valid until proven otherwise. Until this sequence of events is complete one does not have to explain why one doesn't believe in the claim since it has no validity anyway.

The benefit of this approach is many fold, not the least of which to prevent a claim from being accepted as valid based on possible experiemental errors (such as happened a few years ago with the Utah professors who claimed to have discovered how to perform "cold fusion" - they published but no one could repeat their experiment and get their result) or worse, based on fraud (such as the Korean genetic scientist who claimed a few months ago to have developed a way to create stem cells - his data was exposed to be fraudulent and he was fired in disgrace). Both such events happen more often than one might think.

For people trained to routinely use this scientific method, there are several red flags regarding new unsubstantiated claims; one is the claimant not publicizing the experimental procedure and evidence so other independent persons can try to repeat it to confirm if it's valid. I believe Dr Fine falls into this category. If he really has valid experimental evidence, then the delay is very suspicious. I tend to lean toward tarnalberry's comments elsewhere in this thread.

In the case of the researchers who won the Nobel prize for discovering that stomach ulcers are usually caused by a bacteria, they did publish their results and methodology - it just took forever before any other independent researcher took them seriously enough to go to the effort to repeat the experiments. This is an unfortunate possible outcome due to normal human inertia, but quite a different situation than when someone claims something without publishing the experimental methodology and evidence.

Hopfully some may find this explanation, limited as it is, helpful and that I didn't bore too many.

Interesting. I didn't mean to really compair EnteroLab with the Autralian doctors. I just thought of it.

So now we should all just wait for people in Italy to do their thing..

Thanks!

OH YES!! Have either of you taken dairy into consideration? I know i took the advice of the others on here myself regarding dairy...and wouldn't you know, the gas got about 80% better!! I still have my days, but now i'm wondering if i have soy issues as well. But i would definitely take dairy out of your diet for at least one week and see what happens .

I got possitive results on casein too so I stopped dairy in June I think it was.

I got better when I first got off gluten and casein, then I got worse again. I also suffer from adrenal fatigue, so I'm healing from that, too. What my doc has explained is that when the body has energy to heal, then it heals. So, you will have good times and bad because healing takes energy. Just as you didn't get sick all at once, rather you felt good, then bad, then good again until you felt bad more than good, you will cycle in much the same way until you feel good more than bad, then good all the time. It amazes me how long this takes to heal from. Now I'm starting to understand why they say the average healing time is 2 years!

Thank you Carla, I need to hear this.

I was burnt out 4 years ago. Stress at work and my stomach was starting to get really bad before it happened too. I have been tired for years it seems.

How do you get well from Adrenal Fatigue?

(getting off topic here a little- I'd love to hear more thoughts/ideas on EnteroLab)

I have been super hungry from time to time too. I even woke up at night having to eat, twice (during the night)! Dreamt of food.

Now that is better..but if something goes away something else always goes in and takes its place. If I don't have naseau I have heartbrun and it I don't have those two I have bloating. I look 4 months pregnant almost (it feels like anyways ).

Crazy and very discouraging.

I am jelaous of people who respond better to this.

I see you were diagnosed in October of this year. It takes time to get better! I am still struggling, 10 months gluten-free! But I am improving.

Keep giving the diet a chance. Most docs do accept dietary response.

I went Gluten free in May. My heart burn changed a lot, but I cross contaminated myself LOTS I am sure. I still ate soy too (had a 9 on EnteroLab I believe I do not do well on it).

Seems June was good for me..but now I am just as bad as I was this spring. I don't get it.

It makes me wounder. I have had two blood tests that has been negative in the past.

I am not gonna quit or anything, it just makes me feel a little uneasy.

But even if you have any of the genes (both the non one and the celiac one) do they have to be active? I mean do you have celiac if you have the gene or can it be "sleeping" sort of speak?

So they even say it is a scam huh?

I have to say it would have felt better if I would have gotten diagnosed through the "golden standard". For some reason my mind distrusts the EnteroLab stuff some with the way other doctors seem to not like it.

I know there are a lot of bad doctors out there though.

Also the fact that I seem to not get all that better.. Hmm..

I think there's a two-fold problem with Enterolab - the medical profession is slow to change and accept new things, and Dr. Fine is trying to promote a business. He hasn't published studies or information on his particular process, so the doctors are skeptical, and I think part of his reason is a desire to keep his business going as well as possible (my cynical mind expects he's waiting on patents ). The same approach of stool testing is being researched in Italy, actually, and looks promising, so I expect it's going to end up going well, but it'll take a while.

Aren't they working on a blood test there too? One that is done in the finger. I thought I read that somewhere..

I sure hope it will not end up being a "fiasco" with EnteroLab..

Makes me think of the 2 Australian doctors who found the Helicobacter and said they caused Ulcers in the stomach. The world laughed at them for 10 years, then they got the Nobel prize.

Maybe EnteroLab/Dr Fine will end up that way..

Dr. Fine is mentioned in Dangerous Grains.

Other than that....what Carla said.

He's not published his work yet. Some doctors do accept his tests though.

I saw that he was mentioned in the back as a author to a book, but not EnteroLab itself/the work there. maybe I missed it.

I am curious if you guys know how other doctors/"the world" look upon EnetroLab. I haven't seen EnteroLab getting mentioned in any books I have read or any articles.

Seems many doctors do not honor their results either.

Do you guys have any impression of this?

Thoughts?

I have had bad luck with doctors (as so many others here) and I was thinking I'd ask if anyone knows of a good doctor in Anchorage, Alaska.

Well, the reason I had this thought in the first place is because some people get pretty sick when they do detoxifying diets and fasts. The idea is that the stored toxins get released into the blood, urine, feces or perspiration during a detox and if a person's body is sluggish about getting rid of it quickly or they don't drink enough water, they can temporarily feel pretty rough.

That is what my sister in law talked about too.

It is a pretty interesting idea. In some ways it would make sence, but who knows.

My sister in law talked about this with me the other weekend. She hasn't been all that correct with other stuff so I didn't believe it. I have no idea if it is true though.

She siad she read it in a book called " You are what you eat".

My bowel has taken command over my life too.

I so feel for you. I am kinda in the same situation as you. Not feeling quite as dissy as you though, but I dream of food and naseau at night. Then wake up feeling awful.

I feel like I am going insane. I am so tired of this.

So you are not alone, not that that is much of a comfort.

I have had so much gas the last couple of days it isn't even funny. My stomach hurts. A bit more than usual. I feel my stomach hates food right now but I need to eat because I get a bit naseaus when I get hungry.

I feel so blue right now. Things feel hopeless. It's like I am just getting worse.

I eat gluten free ham, rice, bananas, potatoes, water melon, Calcium pills.

I am on Protonix and I have taken some soft gel X-gas. Not sure if my stomach liked the X-gas... Had diarrea today. I am being super carefull with gluten, soy and dairy. Washing my hands, watching out for cross contamination.

I did realize 3 days ago that the vitamins I have been eating has soy in them, so I stopped with them.

Sometimes I feel sure this will never end.

Does anyone have problems with gas/bloating like this? Is it just part of the process to get well...

Last spring when I was very sick for a month because of the GI I ran a fever off and on. Pretty high for a little bit there too.

During the summer, when I got glutened, I ran a low fever too.

I am normally a bit under normal in temperature.

Freeda brand vitamins are what we use - I've never been able to find them in a store so we order them online. They have a website - www.freedavitamins.com. They were recommended by the nutritionist.

They have so many...which ones do you get? Did your nutritionist recommend any inparticular?

I find that I can feel bad from some Vitamines...especially if they have a lot of Magnesium for some reason. I get fast blood sugar drops from that. Kinda strange..